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Would like to share my story


Julie G-B
  • Hi would like to share my story. 

     

It all began on 17th February 2017, out of the blue I got the worst head pain ever, the back of my head  right hand side. I was only a 2 min walk from home, by the time I got in the house I could hardly speak, I went straight upstairs' and lay down, within minutes I had all the characteristics of a stroke, weakness, slurred speech, mouth drooping on my left etc., my husband rang the ambulance.

 

 I was taken to hospital, had a head scan, they said it wasn't a stroke but they found an aneurysm behind my right eye they said the symptoms and aneurysm weren't connected, I was admitted on the stroke ward, they did a lumbar puncture to make sure there was no bleed. I was discharged on the 19th feb. I would receive an out patient appointment to have the aneurysm looked at.

 

I waited 7 weeks, heard nothing, went to my GP, they said give it another 3 weeks and see what happens, in the end I rang the stroke ward at the hospital as I had no idea who I saw or who I was referred too. They said I had been referred weeks previously on further investigation they had lost my paper work!

On the 16th June I had an angiogram which showed I had 2 aneurysms behind my eye, on August the 22nd they were coiled and a shunt/stint put in, discharged on the 23rd. Going back in 5 months for another angiogram to make sure all is ok.

 

It has now been decided that I did have a bleed in February. I have had a base headache since February, I'm confused, so so tired, cant find words, a shocking memory, really struggle with light and noise, shooting head pains, neck pain, sometimes my head is just too heavy for my neck, when I'm extra tired my left eye almost closes, just wish I could have just one day off from the head ache.

 

I was told I would be referred to a group meeting in the hospital with others in the same boat as me but yet again heard nothing. 

I have found this site very interesting and really appreciate people taking the time to put up their stories, I didn't know if I was normal, I feel so out of it and have found some comfort from this. 

 

Thanks everyone x



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Hi Julie, 

 

I had an SAH/Bleed and I do not remember what was going on.  I had a shunt put in a year later and woke up from cuckoo land.

 

You are not alone and this site is a God send as we have all been there without the wait you had. !! 

 

My short term memory is awful lol but I sing a lot and it cheers my Family up (Not !! ) ha

 

I knew I was getting better as hubby and Daughter were so good to me, now they moan more ha ha 

 

I will wish you well and as I tell everyone, My Surgeon told me" No Stress"  it is bad for us, that's where the singing comes in xx

 

Hope you feel better but it is a long haul, take it easy and again No Stress xxxx

Regards

Winb143 xxxxx  Sunglasses help I wear them even when it is rainy lol xx 

 

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There is loads on here Julie and they will be here soon xx

 

Good to know we aren't alone  and when on a downer come into Green room were we type our general chit chat or let off steam xxx

 

Many a time I have left here laughing. (little things please little minds ) xx

 

Be well 

 

Win xxxxx

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Hi Julie :)

 

A very warm welcome to BTG.

So glad you found us and the site has given you some comfort to know you are normal in how you are feeling and not alone.

You will find lots of helpful information on the Forum also lots of friendly caring support.

 

As the lovely Win has already said, please feel free to join in the daily banter in the Green Room, we are a friendly bunch and ask any questions on the main Forum.

We cant give medical advice, but can share our experiences.

 

Julie G-B said QUOTE 

"I'm confused, so so tired, cant find words, a shocking memory, really struggle with light and noise, shooting head pains, neck pain, sometimes my head is just too heavy for my neck, when I'm extra tired my left eye almost closes, just wish I could have just one day off from the head ache."

 

I can totally relate to all that you have mentioned above. Things will improve, it just takes time and learning your limits and not pushing yourself too hard. Lots of rest and drink plenty of water. 

Wishing you well with your ongoing recovery and look forward to hearing more from you.

 

Take care

Tina xx   

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Hi Julie

 

As Tina says, a warm welcome to BTG sounds like you have been led a merry dance to get a diagnosis. Drink plenty of water and rest, they are the best things for you. That and get on to the hospital about that group meeting. It really helps to speak to others in the same boat - as we are on BTG. Makes you feel less isolated and helps to make sense of all the problems.

 

Come back and let us know how you are getting on.

 

Clare xx

 

 

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