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  2. Hey Daff and congrats! x It fills me with complete pleasure that your life is starting to work out and that you have a new relationship! So very happy for you and very much deserved! I always remember you on International Women's Day .... 🤎 Big hugs and hope the girls are doing well too ... Love K xxx
  3. Congratulations on your 12th year point mark Daff lovely to hear from you and that life is good Thank you for all your caring positive support over the years to many. You write so beautifully. Sending much love Tina xx
  4. 🎉12th Anni-versary to you Daff postive attude is the way to be well done (and many Thanks for all your info) ❤️ Louise.x
  5. Hi Daffodil and thanks for your anniversary post 12 years on. A tough and challenging recent past for you and delighted to hear you are so positive about the future. Your two girls will have grown up so much. How are the four legged pooches doing? ? ... and of course 'James' is behaving too no doubt ? 😊 Take care and enjoy these relaxing times paddling on the waterways. Subs
  6. Celebrating my 12 year point mark today. Still regaining and changing and my landscape so different to the one that I lived through back then. I still have growth, I have a new relationship now , daughters almost grown but BTG is such a part of my story that I think I’ll always come and say thank you here to Karen and the moderators and also I think of the lovely folk who helped me along the way and who are no longer with us .wonderful Win and the marvellous Macca whatever you find yourself doing today find the joy in some of it love and healing to all
  7. Hi Charza Totally sympathise with the jerking awake. Mine was caused by the meds I was put on for the pain. It might not be the same for you, but it's worth asking your GP - I was put on Tramadol and it didn't agree with me at all, so the GP took me off it. Don't stop meds prescribed by your GP without their say so, but definitely speak to them.
  8. Hi there Anne, thank you so much for taking time to reply. I hadn't heard of Same You, so that is a really helpful resource, thank you again. It has been 3 months since the NASAH for me and sleep issues since end of Dec. Have a GP appt Monday so will see how I get on. I was in hospital for 2 weeks, but got no info on anything when I left. Take Care too xx
  9. Hi Charza I am sorry to read about your experience. I had a NASAH on Christmas Day 2022 with no specific cause. I'm doing fairly well physically but the emotional / mental side is tough as I am also in the depths of menopause. I haven't experienced the jerking you speak of, how horrible for you and sleep deprivation is awful. I can't see when you experienced your bleed but I am going to assume it was fairly recent. Whenever it was, please speak to your doctor as there must be something they can do to help, even if it is temporary assistance with sleep medication - not wine! Same You is an excellent charity - there might be something on there to help you with, here is a link. https://www.sameyou.org/resources I am sure you have heard it before, but be kind to yourself and treat yourself with love and care. Best wishes, Anne x
  10. Hi there CSmith, you'll find lots of really helpful stuff here as you go through the next part of your recovery. I've found that the best way is to look at all the posts regardless of whether they seem to apply to my situation or not, and just roam freely - I've found some amazingly helpful stuff here. You will see that nobody will offer you specific advice, but without exception they will support you. It seems like your incident was a few years ago now and that you're coping with the new you, but I've found that it never really goes away completely and small things trigger a bit of a fear response from me and my imagination can go into overdrive. Like you, I didn't want my family to worry when I was having some discomfort or struggles with fatigue and didn't want to trouble my GP with it all as it seemed a bit weak, but once I got myself over this and owned up, I found my GP helped immensely, the stress lifted. I start to feel better fairly quickly now I've learned to delegate some of the management of my tiredness to my family and I've found that de-stressing helps me cope better than before and the pains, while still there, don't seem as threatening and don't last as long. I'm sure you will find a solution that helps you personally, but do get medical advice and share with your family if you are able to.
  11. I’m in the UK and had a Brain Hemorrhage when I was 18 years old, I was only in hospital for a week and came out fine. Or as fine as you can be. I had trouble adjusting afterwards as I was constantly on tablets for roughly a year I think. I don’t seem to be able to remember much at all. I get fatigued pretty quickly and over the last couple of days I’ve been getting small piercing pains behind my left eye where I had the anuerysm, I don’t know if this is just my brain overthinking everything as this happens 11 years ago on February 7th If anyone has felt the same pain or has any advice I would be very grateful, I don’t want to mention it to my family as they worry as soon as I say anything about it or any headaches which I suppose is understandable
  12. As Sami says 3 months is still very early in your recovery. Make sure you drink plenty and get as much rest as you can. I do think you should have a chat with your GP though to put your mind at rest. Take good care and keep us posted Clare xx
  13. Hi Charza I suffered from exactly the same and it was down to the medication I was prescribed for after care. For obvious reasons I can't state which one, but as soon as I stopped taking them, the jerks stopped too. Talk to your GP if you're taking pain meds and you think they might be having a side affect - they may be able to prescribe something different. 3 months is early in recovery so it may have nothing to do with meds etc, but definitely get it checked out.
  14. Hi Clare, Thanks for taking time to reply. I had the bleed just under 3 months ago. I had some jerking in the hospital and sleep was so disrupted due to all the meds and checks, etc. They became more regular about a month from initial bleed.
  15. Hi Charza and welcome to BTG. Sorry to hear about your bleed and also about your sleep issues. I too suffered a NASAH but have not had sleep issues since relating to the bleed. My sleep issues are related to stress that I am prone to now. Possibly a chat with your GP would be helpful as suggested by the Neuro nurse, it is getting easier to make doctors appointments now. You don’t mention how long ago your bleed was. If recent, it could still be the blood dissipating down your spinal column but you should get it looked at. Take good care and come back to let us know how you get on Clare xx
  16. Hi all, this forum has been the most helpful in everyone's kind sharing of information and experiences for me to better understand what actually happened to me. The emergency care was amazing, (UK resident) but feel like there is minimal follow up support and just left to find own way with symptoms and management after discharge. I feel so lucky with having a bleed without the anneurysm - although there was an extensive bleed, no cause found. I had 3 lumbar punctures for pressure management and was restarted briefly on nimodopine for vasospasm during my 2 week inpatient stay. I think I am recovering really well but having major sleep issues. I have developed ongoing issues with jerking limbs everytime I fall off to sleep that start with a single limb - usually an arm/leg but progresses to all my limbs and sometimes feels up my back and neck too. Then the affected part feels all tingly for a bit. It doesn't hurt, but they can be quite powerful. I don't actually have an issue with wanting and falling asleep but he jerks wake me up every time. I often can't finally get to full sleep until around 4am. So this impacts on everything else the next day. It also makes my tolerance for frustration and petty annoyances at an all time low - yikes! I have been practising all the good sleep hygiene advice and over the counter antihistamines and chamomile teas etc. I have noticed that if I drink a glass or two of wine I actually sleep better, but don't want to end up medicating this way. It is really difficult to speak to a GP and the neuro nurse has told me I am discharged from her service and these symptoms aren't from the SAH just coincidental timing. Has anyone else had issues with their sleep and managed to resolve them? Thank you for taking time to read this, wishing every single one of you positive vibes and the very best in your recovery.
  17. Yep another one with shunt and SO know the Baromic pressure thing 'well'
  18. It’s almost 12 years since my SAH and I still suffer when we get low pressure. I’m not sure if it’s getting better now or I’m getting used to it or maybe cope with it better. I tend to go to bed and keep out of peoples way as much as possible or go for long walks with the dog 🐕
  19. I'm nearly 6 years since my NaSAH I've got 2 shunts, 1 in my back which is tied off and a programmable shunt in my head, due to complications with Hydrocephalus. I've suffered quite debilitating sensory flooding issues since my stroke. I Use many coping strategies to get me through as best I can. I'm now finding after several years of changeable weather conditions, all year round that its affecting me. Changes in barometric pressure I seem to be very sensitive too and it knocks me for six. Heavy head, fullness in head, nausea, headache, can't think straight, cognitive sluggishness. Sensitivity gets highlighted to bright lights and noise etc. I find keeping well hydrated, take anti sickness and pain med if you need them. Plenty of rest/sleep helps, also keeping your surroundings quiet and close your curtains. I'm finding any storms we are getting I'm being affected by them. I've checked with my hydro nurse and it seems quite a lot of us are experiencing these symptoms with changable barometric weather conditions. Really feel for you all. We've had at least 3 storms over the past month with flooding etc and snow is on its way today. Keep warm, everyone, I'm wrapped up with my fleecy hooded pjs, don't know about anyone else, but my shunt does let me know when it's cold, so I keep my head covered which helps. Lots of love to everyone Bev x
  20. I was told to let the DVLA know which i did. I would contact your GP and also gets letters from Specialists explaining your condition and that you are ok to drive and submit to your insurance company. Always keep copies of everything you send as things can and do get lost. We wish you well and please let us know how you get on. I do know from experience the DVLA take ages to reply and you do have to keep chasing them up. Good luck Tina P.S. please click on the links below, they may be helpful even though you have not given up your license. https://web.behindthegray.net/topic/6865-reapplying-for-license-with-exceptional-circumstances-uk-only/ https://web.behindthegray.net/topic/10610-help-needed-re-criteria-to-reinstate-driving-licence-under-exceptional-circumstances/ https://web.behindthegray.net/topic/9789-getting-so-stressed/
  21. Thays why i didnt phone them in the first place.
  22. Some states require physicians to contact the DMV. I'm not sure I would want to take a chance of getting stopped and find out I was driving on a suspended license. An acquaintance of mine had her doctor turn her in, she was trying to get her license back and the last I heard from her she was trying to get a letter from the doctor releasing her to get her license. She said it was a lot easier getting suspended then it has been getting unsuspended.
  23. Hi, I went to A and E due to fainting and was kept in. I was then discharged with no answers but the Cadiologist said to ring the DVLA as i shouldnt be driving. I didnt do this but stopped driving just in case. I have now fould out i have Hamimotos disease and have new meds. How do i get my medical updated so there are no insurance problems if i drive - as the cardios advice is on my notes?
  24. Thank you Jean for your kind words. I am feeling the positivity from you! Xx
  25. Thank you for your lovely message. My Christmas Day was peaceful. I love that quote “fear isn’t the place to be”. I shall try to remember that. Xx
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