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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,573
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    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      4,383
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    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      270
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    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      786
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    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,303
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,189
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    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      824
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    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,309
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,089
      posts
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  • Posts

    • Hi dbc   Non-aneurysmal perimesencephalic haemorrhages (PMSAH)  are generally regarded as having a benign clinical course - it is very rare that there will be any complications leading to death or severe disability for this type of haemorrhage. Rebleeds are also extremely rare - we have a member Jimble on this site who has had 2 perimesencephalic bleeds, but apart from him I have only read about one other case of a perimesencephalic rebleed and that was cited in the medical journal as a unique case.   I am not sure what your neurosurgeon said is strictly true ( I think some doctors sometimes try to simplify information in order not to complicate understanding) - a very small percentage of haemorrhages with a perimesencephalic pattern will be caused by an aneurysm in the posterior circulation. The perimesencephalic pattern gives doctors a good indication that the bleed is most likely to be non-aneurysmal, but they do have to do further investigations to confirm this. Your angiogram would have confirmed this.   I am guessing that the neurosurgeon was pretty happy with the outcome of your first angiogram to feel that another was not warranted. You have to remember that an angiogram is an invasive procedure carrying a risk (albeit very small) of stroke - a neurosurgeon would not want to carry out another unless absolutely necessary and might consider follow up with an MRA sufficient. I have even read of cases of PMSAH  not getting even one angiogram, just a CTA.   I had a PMSAH and had 2 angiograms - this was only because of a vasospasm of my basilar trunk artery on the first one - they needed to do another 3 weeks later when the vasospasm had resolved to ensure no aneurysms were hidden by the spasm. I would have been completely discharged after that with no follow up had it not been for a small unruptured aneurysm I have monitored.   If you are still worried I would get back in touch with your treating hospital to talk through any concerns.   Unfortunately because of its benign clinical course, and the fact that PMSAHers are often not followed up, I think that this has led to some medics underestimating the possible long term impact of a PMSAH. Whilst it is true that some do make a remarkable recovery there are plenty of posts on BTG to show that this is often not the case.   I had a PMSAH just over 2 years ago and my most frequent and enduring symptom is the fuzzy head. I also sometimes still suffer fatigue, headaches, insomnia, mild tinnitus and am also quite sensitive to light and noise. For me, working only 18 hours a week (I'm a data analyst) makes life just manageable. It is hard - I know if I did not work I would feel much better physically. If I was younger I think I would have had to quit my job and try to find something easier on the brain - as I am only a few years from early retirement I decided to stick with it but every now and again I question that. Roll on retirement!   Take care everyone. X  
    • Good luck you and Mum Linda.   My Family kept talking to me and got photos and my Sisters sang to me    Even though I do not remember all, when I was better and had appointment I remember places that were all windows so some memories stuck in my head. My hubby said "We went here Win" and that was when I couldn't even hold myself upright !! xxx   Remember some memories are better than none  xxxx
    • Thanks all - just what I needed to hear.   SAH is an event; recovery is a process!   so glad you are all here.      Vermont Girl
    • Hi, if mum is still in hospital she will be or should be fully assessed on how she manages in walking and how she will cope once at home. There should be a team gathering around her soon if not already. Keep clam and ask as many questions you need to ensure mum is suitable for home or any other place and to ensure that mum will be looked after. Good luck to you both
    • I m sorry to hear that. Is she at home or in s rehab? Did they referred you to neuro and physical therapy after discharge. I will definitely be very careful about falls since most 80 yr olds might have osteoporosis. Sometimes we do refer patients to neuro ophthalmologist for better answers. Drink lots of water except make sure she doesn’t have fluid restrictions due to congestive heart failure.  I ll make sure she sees the primary care and neuro and ask them questions. Good luck. You ll find that this site is very helpful.