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  1. Yesterday
  2. Daffodil

    Strange Turns

    Charile, I still contact my nurse specialist on occasion.if I have a question re my shunt or other so it’s fine and they are happy to help if it means you can move forward. Periods can cause some extra hormonal unbalance and in turn the disruption post bleed mans we get strange effects and maybe don’t cope so well. Try and Look at your diet in the run up to your period, maybe consider taking some extra vitamins supplements for women , b etc and also including things like bananas etc 5hat have magnesium etc in it but take advice and maybe ask your nurse if they advise anything, yes main thing is If things get worse then get checked.
  3. Spiderwebber

    Jase - New member.

    Thankyou Clare.
  4. ClareM

    Jase - New member.

    Hi Spider if if you take a look at the forum list the first one listed ; Subarachnoid Haemorrage Discussion, is open for all bleeds including those caused by aneurysms.
  5. Spiderwebber

    Jase - New member.

    Is there a topic open for SAH caused by aneurysms. Would be nice to get another perspective.
  6. ClareM

    Strange Turns

    Just remember you aren't a burden or a crazy person, you are a survivor! The nurse specialist's role is to support so hopefully she will do that. I know mine was really helpful and didn't make me feel a pain at all. Good luck let us know how you get on Clare
  7. CharlieD

    Strange Turns

    Great I will do that first thing, I found her to be a huge support and other than the neuro surgeon the person i trusted most in the hospital. I was worried to call so I am glad i posted here. I don't want to be a burden or be the crazy person who is making too much fuss.
  8. Aandrea

    Three Years!!! Still here!!

    Congratulations Jan I hope the next year is a better one for you All my love Andrea xx
  9. ClareM

    Strange Turns

    Yes Charlie, definitely give her a call tomorrow, you don't want to go into the weekend with the worry. I work with a nurse specialist in another medical field and we welcome calls from patients if that keep them out of hospital. Good luck xx
  10. Super Mario

    Strange Turns

    Charlie, there is not a time limit of when you can call the nurse specialist. 6 weeks is still very early in terms of a recovery from a SAH. Ring her, if only to put your mind at ease. She would be a better option than your GP as she will be experienced in SAH survival
  11. CharlieD

    Strange Turns

    There was and she was great. I was not sure how long after I was discharged i am allowed to call her for? Do you think it is still ok? My sister thought it might be due me getting my time of the month. I had not had one since the SAH and so wondered if its hormones gone crazy. I will ask the nurse that too if not I might call GP tomorrow if the pain is not under control.
  12. ClareM

    Strange Turns

    Hi Charlie Is there a nurse specialist at the unit you were treated that you could get in touch with? Hopefully it is just nothing, possibly some stress but you should go and get it checked out. If all else fails go to A&E. Hope you get get things sorted Clare xx
  13. Hi Jan, Congratulations - three years must have seemed light years away to you just after your SAH. Look at you now though, married and bouncing around full of beans! Just go back and read that post above. It's a million miles away from the posts you wrote in year one. You've come on a ton, because you persevered, sought help - and received it. You listened and learned. Well done - and just look at you now! You are bright and bubbly, yes, you have the odd down moment, but the up moments are outnumbering them by far now. It wasn't like that at the beginning! Abandoned and isolated? By whom, Jan? Are they really your friends? Just stop there a minute and think! Despite all that, you have come through it all, bigger than them, stronger than them, and you are all the better for it. You may have to come into contact with them so be polite, smile and then get on with things, but don't let them drag you down, just cast them aside and move on. If they don't want to be along for the journey, go without them. Depend on yourself, and those who love you and you won't go far wrong. Lovely lady, as Tina says, you are doing just great and I doff my cap to you. A tough time and you came through with flying colours. Just brilliant! Macca
  14. CharlieD

    Strange Turns

    Thank you. The problem is I am always scared and in a panic it seems. It feels a bit more under control now. I have decided to keep taking pain killers and if it gets any worse I will go and get checked.
  15. Skippy

    Strange Turns

    Hi there Sorry, but I have to agree with your family - if its bad enough to scare you and make you panic - get to A&E. I was taken back in 3 weeks after with a scare of another bleed - it turned out to be an analgesic headache caused by the codeine I had to take. Get it checked out - don't take chances
  16. Hi All I have had a very bad day today. And have felt like I did when I was in hospital. I had my SAH 6 wks ago on Sunday. There was no aneurysm found on 2 angiograms. I felt like while it has been very hard I have improved. However today I had a funny turn which felt like when I had the bleed. All day I have felt the pain in my head and spine. My family worry and tell me to go to a and e when it is bad but I would be there all the time. I have been told I am not likely to have a rebleed so keep telling myself it can't be that. Did anyone else here have these experiences? I am not sure if I should be worried. When I had the bleed after a while I slurred my words and lots use of my right leg briefly. There has been no other symptoms. I hate this not knowing what to do for the best. Thanks
  17. Macca

    Ups And downs

    Hi, There is absolutely no doubt in my mind that you have overdone things. Brain injury is a traumatic experience to go through at the best of times and it hits at the very core of your being. Being able to do as much as you did so soon after the event is a very rare thing indeed. Your body has told you it's had enough and needs a break and if you overdo it again, it will react in the same way. So learn from what has happened, re-analyse what you are doing and slow down a bit. Learn to say no and to delegate. Give yourself a chance. If you always do what you always did, you'll always get what you always got. Never truer than with a SAH! (I don't mean SAH will happen a second time, just that your body will react to doing too much, too soon) If somebody hit you over the head with a cricket bat, you wouldn't just expect to get up and carry on as if nothing had happened, now would you? So in this case, the SAH is the cricket bat and it's just walloped you. So give your body a break and slow down while it recovers from the blow. Keep talking to your medics and your employers. They all treat you much better if you keep talking to them! Good luck, Macca
  18. Hi Curt, The thing to remember about SAH is that recovery is a slow and gradual process - in your wife's own time and not the time you want her to recover in. So, patience is very much a virtue in this case! Do things when your wife is ready to do them and like Chris says - do things at a gentle pace and stop doing them if she needs to rest. What you can't do is go to sleep at night and then next morning expect everything to suddenly be alright again. It doesn't work like that. Recovery is not a 100 metres sprint, it is a marathon, done at walking pace! Good luck. Macca
  19. Winb143

    Jase - New member.

    Good excuse Jase alias Spider ..I'll call you Jase as I don't like spiders lol ..Brrrr just shuddered lol Regards Win xx
  20. Spiderwebber

    Jase - New member.

    Thanks all for your lovely replies. It really is encouraging. Im terrible at replying in a timely manner 😂 if only id ticked the box below to notify me. I blame the brain surgery. 😇
  21. Last week
  22. Swishy

    RIORITA says oooops!

    Hi, I think many of us, perhaps most, had someone who was helping them as they navigated this crazy illness. I will say for me I think it is awesome to have carers as part of this site. Without those that helped us and loved us..well...for me...can't imagine...xoxo
  23. Johnnie M

    Medical Driving Assessment

    Fan bloomin' tastic Karl! It is such a buzz to read all that. I relived my own assessment of 2nd May as I was reading your excellent summary of events. Mine was slightly different in that I had to do a 'reaction' and 'decision making' tests on a driving test bed. Hitting the brake when you see a red lights (that was difficult because, like you, I don't have a full field of vision!) and hitting either brake or accelerator when certain combinations of green or red lights flash up. Reaction times were critical and a graph was issued to the DVLA of my results. I was surprised when told that the only real test of any importance was the on-road test. I am not quite sure that this is the case but I certainly started it with some trepidation and felt super confident when I got back to base. I was told I had done well and that it was a 'nice drive'. They seemed particularly impressed that I knew the meaning of a road sign (National speed limit on a single carriageway) but more so that I knew it was 60mph speed limit. I was told that most people don't answer that! Oh well. I also managed to spot a 20 mph speed restriction, which went down well. I am pretty sure that in a week or two you'll be back on the road again without restrictions. It's a life changer. I have been out pretty much every day since I got my licence back. Can't help myself!! Well done!!
  24. Finollie. If I now reading things correctly, you have had your licence revoked AFTER you had the Esterman test at Specsavers in May 2018? If that is the case then you need to get on to the DVLA to let them know that you would like to understand if you will be able to apply for your licence back under the exceptional case rules. I have already posted what those rules are in my last post but you wont be able to apply using these rules until you are 'event' free for a year. Since you have already been event free I would suggest that you call DVLA and find out what it is you can do to get your licence back. I never passed the field of vision test to get my licence back and probably never will; hence the need to jump through the exceptional case hoops! So long as things are done methodically I was always of the opinion that I would get my licence back. And I did! I wish you all the best with it. Always ask more questions if you need to. Keep us informed!
  25. Winb143

    RIORITA says oooops!

    Hi Rita, A trouble shared etc. Hope hubby is well xxxx and you keep strong xx
  26. Tina

    Jase - New member.

    Hi Jase a very warm welcome to BTG. Some great posts above from Clare, Daff, Win & Chris. At 18 months i felt very much like you do now. It does get better, just takes time to adjust to such a life changing event. There will still be good days and bad days along the way, but you survived and sounds like you are doing really well. Be kind to yourself and be proud of how far you have come and all you have achieved. Take care and let us know how you are doing. Tina xx
  27. Jan congratulations on your 3rd anni-versary I wish you all that you wish for and more lovely lady xx Love Tina xx
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