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  1. Today
  2. Thank you - perfect timing. I needed this today! As I get better, I keep thinking I can do more. I pay for it the next day - good reminder.
  3. This time is for R&R and R (rest, relax, recover) and NO your not being lazy you had a Brain Haemorrhage be kind to yourself... short walks, lots of rest listen to your body keep hydrated...
  4. Yesterday
  5. Hey I don't like change much either even the smallest and simplest things set me into melt down hate that but cant help it its how I am now.. Yes I would finish the NHS sessions (it's so hard to get onto something don't back away)
  6. Hi, it's a pdf file and can't be posted in the gallery .... I'm happy to send it to you via email if you would like to view it? x
  7. I have up and down days with word finding, been the same since my SAH 13 years ago. It is so frustrating knowing what you want to say but can't.
  8. Can't seem to download st all. Can a pic be posted in gallery maybe?
  9. Is there anyone out there who has this word finding problem actually get worse for them. Some days it seems I'm going backwards. Or is it just like everything else; up and down days?
  10. Admin note: In order to stay on topic in the medical forums this thread has been edited and artwork and replies can be found on the following thread started in the Green Room....just click your mouse on the title below. x
  11. Last week
  12. Yoyo, if I were you I would finish the NHS sessions and then see how you feel before going to a private therapist. The time to do that is if you feel you would benefit from more counselling. Recovery is a very slow process and you may not think that you have made any, but you will have, the progress will be so minute that you can't recognise it yourself. It has been suggested at times on here that you keep a day to day diary then you will be able to see what progress you have made in reality. As for making no sense, you do make sense to us and for you to be able to spill out your concerns on here can only help as it is an outlet.
  13. Thank you, thank you all so very very much for your kind words and words of advise. I thought I was having a better day today, but not so. I notice I can't take sudden changes in anything. I have a complete meltdown and end up exhausted with crying constantly. It's hard because I sometimes feel that because I have no physical obvious effects, those around me expect me to be as i was before. When there is a change in any event I seem not to be able to take on the change immediately and go into complete meltdown. This is so unlike me, I was always do organised and the job I did needed me to always be controlled and no what I was doing. I more often than not was the one doing the supporting at work, thus needed to remain in control. My job involved some very awful things so even more's the need for me to be controlled to be able to support others. I am finding this relying on others so very very difficult. At times I think how can I continue living like this, then I pull myself together or try to. Today was one of those not in control days, I completely lost it over a what was a minor change. I have never ever been like this in my life. I feel so very useless and it feels at times hopeless. I don't mean to be so negative. I just hope things will improve. I am trying to keep positive, you all for your wise words of advice. I understand my husband will have and is going through a difficult time, I hope things will improve for us both. I guess I just have to go day by day, bit by bit. I cannot believe how knocked I am by all that has happened to me. Sorry to keep saying these negative things. Thank you all for you kind words. I sometimes, in fact most of the time feel I am not going forward but that I am stuck. I have to shake this sadness off. I having CBT therapy into the 2nd week only. I guess its too early to say if its working for me, I think I get 8 sessions on the NHS. I am wondering if its best to just have therapy privately. I think I have 6 sessions on the NHS, do I just move to a private therapist now. I cannot believe how totally anxious I get when there is change in something, it leaves me feeling so awful I cannot find the words to express how awful it makes me feel. I so hope this improves. I am not used to such strange, emotional feelings. I feel very alone at the moment. This site lets me know I am not totally on my own with these feeling. Sorry if I make no sense, even as I type this I feel that I am just spilling out a load of rubbish that makes no sense. I so hope this gets easier. Its so hard because I am physically doing so well, able to get about on my own and now even able to type on the computer and getting quicker. It's this emotional fluctuations that I find difficult and exhausting. Phew that's it for now. I'll probably read this back and think what an idiot I sound. Thanks all
  14. Hi, When I was down I tried so hard to get back to my place. I went back to work too soon, I started walking too soon, and I had incredible fatigue, dizzy spells , and headaches. Take your time. You are not a sloth, your brain is hurt and it does not heal like a broken arm. People cannot see inside your brain so do not pay attention to those that think they know more than you because they don't. Only you feel what you feel. iola
  15. Don't know if you have to wear a helmet. I did after my craniotomy, but that's gone when you're put back together. I didn't have a plate, they froze my skull for four months then put it back together with metal plates. Going back in the hospital is always scary, but they know what they are doing. Take care!💕
  16. Make the most of good Days Mandie xx Lovely aren't they lol xx You have been through a lot and can come out of it knowing we are survivors ..Well Done You xxx I still draw matchstick style lol xxxx Palhuc, I think I told you, I was told I'd never walk again but I can walk 200 yards on a good day not long but it is getting better, and tell hubby to keep his chin up and you also xx I had an SAH4 and do not remember anything until shunt was in xx Pleased for you Mandie hope your days keep getting better and when they aren't sing happy songs xxxx my answer to all ills Be well Both Winb143 xxxx
  17. By the way, I'm not ALWAYS this positive. There will be ups and downs for sure. Just expect that! God bless!
  18. Fortunately I had a right side bleed and did not have a whole lot of mobility issues. I just forget things and lose things all day. I also lose my words a lot or have trouble finding words then I want to use. My personality has changed a bit, I tell it more like it is rather than letting people walk over me. My Family had to get used to that. But I am extremely blessed to be able to walk and talk very well since the incident. My faith is something else that has help me through. Without my faith I'm not sure where I would be
  19. Hello Xmartz You don,t know what an inspiration you are to me you have overcome so many obstacles and remain so positive. Good for you I don,t even know you and I am so proud to hear your story. My husband had a stage 4 bleed in October he has come through most problems but if you can believe remains in hospital for a stage 4 bed sore that the hospital can not seem to heal . It has been 10 months and he desperately needs to go to rehab, my husband is not walking but has plenty of leg activity ,.the hospital tells me he will not walk but don,t have anything but statistical data to say he will not walk. I think that because this wound has become such a problem they are telling us he will not walk because rehab will not take him until wounds as healed. We have been waiting to get him into a sub acute hospital that specializes in wound vac which they are using now on him they also have rehab but very few beds available My heart breaks for him because I see him working out in bed and really trying to get his mobility with no help but range of motion. Xmartz did you have any mobility problems how did you overcome, I am sorry if you have already posted this info but I just found your postings today and was so inspired. I will look for more of your postings. I am glad you are each day getting better. It gives me hope and I turn I can pass on to my husband. best of luck to you.
  20. Hi Dave, My Post SAH leaflet "Subarachnoid Haemorrhage and the Return to Daily Life" from the NHS says that "headaches are caused mainly by tiredness, tension or viral illness." If you are back working full time you are probably more tired towards the end of the day and if you are in a stressful job then that may also contribute. Logically, that would mean worse headaches towards the end of your working day and that is what you say is happening to you. So, you have two of the three things mentioned and if you are concerned then you are right to seek professional medical advice since none of us are doctors, so we cannot give medical advice. So get checked out to re-assure yourself. Probably, you worrying about it is also adding to the mental pressure affecting you currently. If your doctors can re-assure you then that is one less thing to worry about. You are also only two years out and brains are notoriously slow in recovering fully, so don't beat yourself up about it, you are doing really well, but don't sit there thinking everything's all right, until a medical professional tells you so. Good luck and please let us know how you get on.
  21. Just a positive post on a good day. Two years ago I had a massive SAH. I included a pic. The doctors call me a miracle. I was flown to a closer facility where they did six hours of surgery which included removing damaged brain tissue and half of my skull because of the swelling. Afterwards, I remained on life-support for a week . Because of lying so still I developed blood clots in my legs. after a few weeks in acute care I was transferred to a rehab hospital. After three weeks in the rehab hospital, the day before I was to leave for home I developed a massive pulmonary embolism him. I was back in ICU again. After another few weeks in the hospital, 53 straight days in all, I returned home to my children, then ages 12 and 14. Six months later I had a subdural bleed due to blood thinners and was back in the hospital. After which, I developed little seizures. I went through 18 months of physical, occupational and speech therapy. Then I went through six months of Vision Therapy. Although I can no longer work as an EMT, I have fallen back on my Art degree and I am doing drawings and paintings again, which is very therapeutic. I am still working on getting back to driving, but I feel very real ready and know that it will come someday. just thought I would post something positive for a change. An image of my brain scan! There is always hope, keep the faith ! Mandie
  22. Hi Dave Sorry that you're still suffering from the headaches but I can't help you I'm afraid. Like Jess said though, glad that you are talking to someone about them. A Neurologist would be better than a GP as they don't know much about SAH and the after affects.
  23. Hi Dave I get terrible headaches sometimes horrible xxx I am glad you are speaking to someone in neurology however whilst you are waiting drink plenty of water and relax xxx Hope the headaches ease soon xxx
  24. Hi Everyone I haven't been on for a while and hope you are all well I would like to ask if anyone still suffers from headaches following a SAH. I had mine coiled 6th july 2015, I am now back working full time but I have a constant headache ftom the moment I wake up And normally more so by the end of the day. Some days are that bad I can't function properly, my Gp suggests that it is the legacy of my bleed and how lucky I am thats all I have Although I do still get really emotional at times. I have asked to speak to someone at neurological dept but while I am waiting on this appointment, I thought I would ask here first As you guys are probably the best people to advise Regards Davie xx
  25. Hi there, welcome. Go straight to A&E as Macca has said your describing the classic symptom. so please go to A&E don't wait. lets us know how you get on..
  26. Hi Kiwi11 As everyone has said, go to hospital and get this checked out, you really need to do this, as Macca said if it's not a SAH then you have lost nothing by going and you have put your mind at rest, if it turns out it has been a bleed then it will be dealt with by the hospital. Please don't leave it, get it checked and let us know how you got on. Wishing you good luck Love Michelle xx
  27. Never hurts to get checked out. Everyone's symptoms are different. My only symptom was vomiting for three days straight prior. Of course which caused which I don't know. The vomiting could've caused the bleed or vice versa keep us updated
  28. I'll get Lauren to check it out. Thanks for letting me know. x In the meanwhile if any member wants to print off the poster, PM me with your email address and I'll send it as an attachment.
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