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  3. Thank you to all of our members who continue to donate each month....It's very much appreciated. 🙂x Many thanks also to Catwoman23 for her very kind donation. 🙂x
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  5. Hi Catlaura I had to have lots of tests to check my vision. The DVLA wrote to the Consultant that had approved my tests were ok to drive after 2 years. I did not have to re take my driving test. The DVLA after lots of polite phone calls chasing, returned my licence. Good luck lets us know how you get on. Take care Tina xx
  6. Welcome..As Super Mario said 3 months is really early into your recovery. I know it is hard to be patient but brains heal slowly. I too had problems with crowded places...I think for me it also involved and still does the fear of being bumped into as my balance is not what it was. I work around it best I can and find I am able to do pretty much everything I did before. I had anxiety after and found seeing a counselor helped me but time has also helped. Go slow and steady, be gentle with yourself. xx Jean
  7. Welcome to BTG I am noise intolerant and hate crowded places. Ear plugs are a good idea if you go anywhere noisy. I avoid crowded areas like the plague even going to the supermarket when I know it will be less packed and quieter. On saying that, 3 months is very early in your recovery, so you need to be taking baby steps to avoid taking backward steps. Anxiety is very common after a SAH. If that is really causing you a problem, it would be wise to see your GP and ask for counselling. As for the gym, take medical advice as to when it would be possible to return to that activity.
  8. Hey everyone I have the same issue, its been 3 months only since my SAH and I miss getting back into the gym, my problem is that I can not stand crowded places anymore or too much background noise. Does anyone have a similar issue? also anxiety its been nagging me more often now. Thank you for reading my post!
  9. I have dizziness/vertigo from my SAH just over 20 years ago and in spite of doing everything I have been told ie physio etc it has not improved. I use a walking frame to hold myself upright all the time. It may well be time to consider a frame to give you stability and eliminate the risk of falls. All I can suggest when visiting friends who have stairs to their doors is to ask them for help like holding your arm when climbing them.
  10. I am going on 10 years post SAH (non-aneurysm). My vertigo/dizziness is bad, to the point where I'm afraid to go walking. Friend's homes have stairs to the door without railings (only more than 4 has railing required). I have Tinnitus that worsens with stress. Wondering who else experiences this. I am 62 yo.
  11. As far as I am aware, if you are passed as being able to drive safely during a driving assessment you do not have to take a driving test. The assessment is the last stage. Others may be able to give you more information.
  12. Please can anybody advise me whether you have to retake your driving test after a practical driving assessment or is the practical driving assessment the last stage in this process (if you previously had a licence before it was revoked for a visual field defect).
  13. Hey Daff and congrats! x It fills me with complete pleasure that your life is starting to work out and that you have a new relationship! So very happy for you and very much deserved! I always remember you on International Women's Day .... 🤎 Big hugs and hope the girls are doing well too ... Love K xxx
  14. Congratulations on your 12th year point mark Daff lovely to hear from you and that life is good Thank you for all your caring positive support over the years to many. You write so beautifully. Sending much love Tina xx
  15. 🎉12th Anni-versary to you Daff postive attude is the way to be well done (and many Thanks for all your info) ❤️ Louise.x
  16. Hi Daffodil and thanks for your anniversary post 12 years on. A tough and challenging recent past for you and delighted to hear you are so positive about the future. Your two girls will have grown up so much. How are the four legged pooches doing? ? ... and of course 'James' is behaving too no doubt ? 😊 Take care and enjoy these relaxing times paddling on the waterways. Subs
  17. Celebrating my 12 year point mark today. Still regaining and changing and my landscape so different to the one that I lived through back then. I still have growth, I have a new relationship now , daughters almost grown but BTG is such a part of my story that I think I’ll always come and say thank you here to Karen and the moderators and also I think of the lovely folk who helped me along the way and who are no longer with us .wonderful Win and the marvellous Macca whatever you find yourself doing today find the joy in some of it love and healing to all
  18. Hi Charza Totally sympathise with the jerking awake. Mine was caused by the meds I was put on for the pain. It might not be the same for you, but it's worth asking your GP - I was put on Tramadol and it didn't agree with me at all, so the GP took me off it. Don't stop meds prescribed by your GP without their say so, but definitely speak to them.
  19. Hi there Anne, thank you so much for taking time to reply. I hadn't heard of Same You, so that is a really helpful resource, thank you again. It has been 3 months since the NASAH for me and sleep issues since end of Dec. Have a GP appt Monday so will see how I get on. I was in hospital for 2 weeks, but got no info on anything when I left. Take Care too xx
  20. Hi Charza I am sorry to read about your experience. I had a NASAH on Christmas Day 2022 with no specific cause. I'm doing fairly well physically but the emotional / mental side is tough as I am also in the depths of menopause. I haven't experienced the jerking you speak of, how horrible for you and sleep deprivation is awful. I can't see when you experienced your bleed but I am going to assume it was fairly recent. Whenever it was, please speak to your doctor as there must be something they can do to help, even if it is temporary assistance with sleep medication - not wine! Same You is an excellent charity - there might be something on there to help you with, here is a link. https://www.sameyou.org/resources I am sure you have heard it before, but be kind to yourself and treat yourself with love and care. Best wishes, Anne x
  21. Hi there CSmith, you'll find lots of really helpful stuff here as you go through the next part of your recovery. I've found that the best way is to look at all the posts regardless of whether they seem to apply to my situation or not, and just roam freely - I've found some amazingly helpful stuff here. You will see that nobody will offer you specific advice, but without exception they will support you. It seems like your incident was a few years ago now and that you're coping with the new you, but I've found that it never really goes away completely and small things trigger a bit of a fear response from me and my imagination can go into overdrive. Like you, I didn't want my family to worry when I was having some discomfort or struggles with fatigue and didn't want to trouble my GP with it all as it seemed a bit weak, but once I got myself over this and owned up, I found my GP helped immensely, the stress lifted. I start to feel better fairly quickly now I've learned to delegate some of the management of my tiredness to my family and I've found that de-stressing helps me cope better than before and the pains, while still there, don't seem as threatening and don't last as long. I'm sure you will find a solution that helps you personally, but do get medical advice and share with your family if you are able to.
  22. I’m in the UK and had a Brain Hemorrhage when I was 18 years old, I was only in hospital for a week and came out fine. Or as fine as you can be. I had trouble adjusting afterwards as I was constantly on tablets for roughly a year I think. I don’t seem to be able to remember much at all. I get fatigued pretty quickly and over the last couple of days I’ve been getting small piercing pains behind my left eye where I had the anuerysm, I don’t know if this is just my brain overthinking everything as this happens 11 years ago on February 7th If anyone has felt the same pain or has any advice I would be very grateful, I don’t want to mention it to my family as they worry as soon as I say anything about it or any headaches which I suppose is understandable
  23. As Sami says 3 months is still very early in your recovery. Make sure you drink plenty and get as much rest as you can. I do think you should have a chat with your GP though to put your mind at rest. Take good care and keep us posted Clare xx
  24. Hi Charza I suffered from exactly the same and it was down to the medication I was prescribed for after care. For obvious reasons I can't state which one, but as soon as I stopped taking them, the jerks stopped too. Talk to your GP if you're taking pain meds and you think they might be having a side affect - they may be able to prescribe something different. 3 months is early in recovery so it may have nothing to do with meds etc, but definitely get it checked out.
  25. Hi Clare, Thanks for taking time to reply. I had the bleed just under 3 months ago. I had some jerking in the hospital and sleep was so disrupted due to all the meds and checks, etc. They became more regular about a month from initial bleed.
  26. Hi Charza and welcome to BTG. Sorry to hear about your bleed and also about your sleep issues. I too suffered a NASAH but have not had sleep issues since relating to the bleed. My sleep issues are related to stress that I am prone to now. Possibly a chat with your GP would be helpful as suggested by the Neuro nurse, it is getting easier to make doctors appointments now. You don’t mention how long ago your bleed was. If recent, it could still be the blood dissipating down your spinal column but you should get it looked at. Take good care and come back to let us know how you get on Clare xx
  27. Hi all, this forum has been the most helpful in everyone's kind sharing of information and experiences for me to better understand what actually happened to me. The emergency care was amazing, (UK resident) but feel like there is minimal follow up support and just left to find own way with symptoms and management after discharge. I feel so lucky with having a bleed without the anneurysm - although there was an extensive bleed, no cause found. I had 3 lumbar punctures for pressure management and was restarted briefly on nimodopine for vasospasm during my 2 week inpatient stay. I think I am recovering really well but having major sleep issues. I have developed ongoing issues with jerking limbs everytime I fall off to sleep that start with a single limb - usually an arm/leg but progresses to all my limbs and sometimes feels up my back and neck too. Then the affected part feels all tingly for a bit. It doesn't hurt, but they can be quite powerful. I don't actually have an issue with wanting and falling asleep but he jerks wake me up every time. I often can't finally get to full sleep until around 4am. So this impacts on everything else the next day. It also makes my tolerance for frustration and petty annoyances at an all time low - yikes! I have been practising all the good sleep hygiene advice and over the counter antihistamines and chamomile teas etc. I have noticed that if I drink a glass or two of wine I actually sleep better, but don't want to end up medicating this way. It is really difficult to speak to a GP and the neuro nurse has told me I am discharged from her service and these symptoms aren't from the SAH just coincidental timing. Has anyone else had issues with their sleep and managed to resolve them? Thank you for taking time to read this, wishing every single one of you positive vibes and the very best in your recovery.
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