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Showing most liked content since 25/04/17 in all areas

  1. 7 likes
    Paul, I so wish I could attend Lin's funeral to give you a hug in person, but unfortunately I will not be able to have the time off work. Promise me that you'll look after yourself and know that we will all be with you in spirit on the day and my heart will be with you too. Also, please do stay in contact and we ever have a get together make sure you come along so that we can all give you those long overdue hugs. You're an amazing man and I can only imagine how proud Lin was and how proud she would be of you right now. Stay special my darling man xxxx
  2. 7 likes
    My dearest friends, Thank you for your condolences. Its been very hard to come to terms with lins death so suddenly and so quickly. Trying to arrange things has brought its own trials and tribulations. However plans have now been confirmed for Lins funeral. Its going to be a very simple cremation on the 19th of may at 0930 at Stafford crematorium and after which, I will retain Lins remains until I pass away and then we will be interred together, as we have been in life. The songs are: "You Are Not Alone" played on pan pipes. If you wish, you can listen to the rendering on You Tube and leaving on Dolly Parton's 9 to 5. Lin would have been proud and so grateful to you all, for supporting me through the last 8 years plus and would have liked to have thanked you in person if she could have, God bless you all. Daffodil has suggested that those who wish to donate to charity and would you mind if I asked you for those who wish to donate to BEHIND THE GRAY please, in Linda's name as I believe Karen would use it to support this important site, which is the only site in the world who caters for survivors of sah's and strokes with support from survivors who wear the tee shirt with pride and hopefully it will be part of Linda's legacy. I will pop on now and then and will try to support those who need help. God bless you all and thank you from the bottom of my heart words cannot express how I feel, but my love goes out to each and everyone of you with gratitude, humble appreciation to you all. God bless each and everyone of you xxxxxpaul
  3. 7 likes
    Paul, this thread is and will always be a beautiful story of love , care and compassion between two souls mates and is lasting testament to the beauty of your relationship and how you coped in the years since Lins SAH. I applaud you both for that. She was ready to go, her body could endure no more but she goes wrapped in your love. Such sad news though , I know many of us are upset but our thoughts are with you sending you strength for the coming days and weeks. What is Lins favourite charity? If you share I would like to make a donation in her name, in her memory? Take care now, BTG is here if you need us, just reach out. Daff x
  4. 6 likes
    Hi my lovelies Thought I don't jump on Keith's bandwagon and come and say hello- my God I've missed you all- why have I not been on here!! Mind you I haven't found the time to do much recently as things has been so chaotic over the last 18 months/2 years with my family but hey that's what makes life interesting hey! Great to see lots of old faces as well as new. I need to spend more time on here to catch up. Love you all xx owe lots of people on here and this group as a whole masses for their constant support and reassurance 😀😀 Laura xx
  5. 6 likes
    Hi Chris, well done for dipping your toe in the water of the forum and don't worry about making any mistakes as any of the moderators will help and also answer questions if you need a bit of coaching or are struggling to do something. like Sharon and Sami I too hit a 'wall' in the months after my hospitalisation and SAH. I had tests at my doctors who diagnosed PTSD and so I had counselling but also I was fortunate in that my employer also provided a service where we could access a counselling helpline so I phoned that whilst I was waiting to see someone on the NHS. I think main thing is to talk about things and be honest with yourself how you feel, if you need to cry then cry, if you need to sleep then sleep. The early months is actually all about being kind to yourself and acknowledging you can't force yourself to bounce back into the previous moulding you had. Now is about change. Age means you have greater exoerience to draw on, you know that other calamities whilst awful and distressing that have no doubt happened do not stay forever but their effects will always leave their mark. That's your bleed. You need to ask for some help to deal with the black cloud and do what's right for you. Tips i think That helped me. get outside everyday and just notice and have some still time enjoying the spring. find a way to relax and settle the brain. I do mindfulness meditation but anything that soothes you will help. set yourself three small goals each day , not biggies but something to do, it could be as simple as folding the washing write a night diary, get a lovely book and write in it before bedtime things that made you smile and anything that worried you. Track your progress. get a good sleep routine look at what you are eating, post SAh minerals go haywire and I think a lot of the depression is the chemical inbalance, you can 'tell yourself' all the right things but you still have that feeling so eat good foods that help. I give myself a gentle shoulder massage each night with an oil which fragrance I particularly like and is good for depressive which is rose but not everyone likes that odour but maybe find something that works for you Chris just be kind to yourself here. You haven't done anything wrong, you wanted to go on holiday that's understandable, you could walk o you thought why not . Your brain went this is all a bit too much too soon, so start again, baby steps and find your new balance. good luck.
  6. 6 likes
    Hi PJ, I can understand how you are feeling. I went back to work after six months and that was way too soon for me. I supposedly went back on a phased return but after a week they were dumping all sorts onto me and it was too much. It's hard to believe you went back to work after twelve days. That's way too soon and quite dangerous if you ask me! What we are talking about here is a brain injury, that in a lot of cases can be fatal, even before you get to hospital. Your brain is at the core of everything you do, so to treat it with scant regard for your general wellbeing is ill advised. If you were to take ill again, because you had gone back to work too soon, they may have lost your services for good, so why are they pushing you - or are you pushing yourself too hard because it's where you want to be? Treat your brain with the care and respect it deserves. The things you describe (headaches, frustration, concentration issues, noise, stress, short term memory, lots of sleep etc) are all classic SAH features. They take time to get over and your body will get over most of these problems - if you give it a chance, in its own time. You aren't doing that at the moment. You are overloading your brain, and your body is telling you it can't cope at the pace you are asking it to. So slow down. GPs are not specialists. Go back to the people that treated you to get some proper advice from them. They will more than likely tell you to take some time out by going off work sick or by taking some leave to go on vacation. Discuss that with your employer too - but after you have obtained the advice from your treatment centre. Then you can go to your employer armed with the knowledge they give you. You think you have PTSD - well I'm not a doctor and you might be right, but from what you say, my bet is that you just simply haven't given yourself enough time to let your brain heal properly. You need a time-out and if you must carry on working in the short term, you should negotiate either lessening the load, or going part time - for a while at least. You say you want a chance to heal, so deep down, I guess you know yourself what needs to be done to give yourself that chance - so be brave and do something about it. Go and make contact with the people that treated you for their advice, and then go and sit down with your employer, be open and honest with them like you have been with us. You will probably find them to be more receptive to that approach, rather than with the appearance that you are just not coping and are not saying anything to them. Make that first move, it might just be the best thing you ever do for yourself. Plenty of us have gone back to work, but even then most have had to make some kinds of adjustment. A substantial change has happened, abruptly, to you. Now it's how you deal with it that counts. Be fair to yourself, take stock and re-appraise where you are, and what you want out of life, and then go and make it happen. Work to live, not live to work. Try and stay positive, but try and tackle the issues head on. I'm sure you will get through it, but you need time and patience, and to be open and honest with those around you. Good luck , Macca
  7. 6 likes
    hi pj Don't start self medicating, Your body wont accept it. With the trauma your brain has undergone stop take time out. Booze is not the brains friend. It takes three months or more for the blood to dissipate from your spine, every one wants too race back to full health straight away. It doesn't happen like that, it takes time. Everyone who has a bleed has a different rate of recovery you are not exempt if your body needs sleep then let it sleep. Don't fight it. The sooner you accept that things are happening at a slower pace then let it. It is possible your doctor does not understand sah's and its legacy. As Clare said see a neuro psychologist or a clinical psychologist to help you through the bad patch you are going through. In the early days of recovery there are more bad days than good. Talk to your boss ask him to look on here, it will give him an insight as to what you are going through because its ignorance that they are not more forgiving and understanding I would also suggest that you speak to the gp about the drug you are using for headaches as its also used for other symptoms. Use conventional pain killers. I think the drug you are using may be responsible for the nightmares There is no shame in seeking help from those who understand your situation i.e. the neuro psychologist or clinical psychologist as soon as you can And DONT YOU DARE THINK ABOUT CHECKING OUT OF THIS WORLD. Your family needs and wants you in their life. They want you back, and as soon as you feel able see the drs and get help. We are here, your life and family are more important, so is your happiness. Slow down, take a deep breath and seek help and if its necessary change jobs. Drink plenty of water, slow down. You have a second chance of life, grab it and enjoy with help Regards and I hope you take things on board. Wishing you well. We are always here for you
  8. 6 likes
    Maria, Yes, it is important to keep talking to him. You take in more than you can acknowledge and it is surprising what he will remember even when there is no initial response. If you struggle to keep talking because there is no visible interaction, then read newspaper articles to him to let him know what is going on in the world. I know from bitter experience. These are difficult times for both of you, but it is important to keep plugging away until you make the breakthrough and beyond. The journey is tougher for some than others, but the important thing is to keep going, however tiresome it may seem. Somebody on here once said "Every journey starts with a single step." Well, every journey ends with one too. Your job is to make sure you take all the steps in between, to enable you to make that final step. Nobody said it will be easy, but it is absolutely necessary, to give him the best chance of recovery. Never doubt that - or that we will support you every step of the way in whatever way we can. All your problems away from this are miniscule by comparison. This kind of event puts life into perspective and revises the context in which you look at things. Stay strong, keep your chin up and keep supporting in the way you are doing. Make sure you get enough sleep and eat, drink and rest well. Your man needs you at your best and your strongest, not your weakest. You cannot allow yourself to be dragged down by it all because that will help no-one. It's tough, and life has dealt you a blow, but grit your teeth, you can do it if you put your mind to it. We are here anytime you want to let things out. To help those weaker than yourself, you need to retain your strength and fortitude. I wish you both well. Macca
  9. 6 likes
    So very sad for you Paul ... words are never enough, but I think that you can see from the responses on here, that we've all shared your journey with Lin. As Daff has so eloquently said, that it's been a beautiful story of love ....and we all feel part of yours and Lin's journey .... Such a sad day, but Lin fought with great courage and you have too .... she couldn't have wished for a better partner. Sending much love to you and I'm so sorry. xx
  10. 5 likes
    I thought I'd pop in to say hello to all, new members and old, from a long standing, lapsed old member! It's great to see this site is still going strong and providing such great support almost 11 years since I joined. Also good to see some of the old hands are still about. Keith
  11. 5 likes
    Morning guys Daffodil- Thanks for your message it's great advice I was seriously contemplating this last night but I have woke up this morning feeling much better. The hydrocephalus is something I have been warned about to keep an eye on something called normal pressure hyrdrocephalus. It can happen after SAH. It is basically a slow build up of pressure on the brain . Being unbalanced is one of the symptoms. Im starting to think the problem was caused by my cooking exploits on Friday. I was bending over turning baked potatoes in the oven it was prob moving my brain into a position it's not been in since SAH. I'll not be cooking for a while now! My balance is more like at 95 per cent rather than on Saturday morning when I could barely make it from room to room. The relief is just amazing. I can stand on one leg now! I have to thank everyone for all the messages and support it's been invaluable. It's been a hard weekend for me and the family but I feel much happier now. Just going to to take it nice and easy again today my mother in law has kindly took my daughter to school but I am going to do the pick up it's just a 5 min walk away. Thanks again have have a good day everyone. Steve.
  12. 5 likes
    Hi guys Yes just been resting again and drinking water. Feeling a bit better for it. Had to say no to family as they are going out for a meal tonight but I thought that would be a bit much. Shame as I hate not doing stuff with them but my instinct was telling me not to do it. I think I have read on this site that you have learn to say no! Thanks again Steve.
  13. 5 likes
    Hi As I said to you in a reply to a previous post you really need to stop and take stock of what is happening to you. At 4 months I was just starting my phased return that took another 4 months and ended with me fixing at a reduced rate of hours. I had been working 5-6 days a week approx 41 hours. I reduced to 34 hours and now only work 4 days with Weds off to rest. My bleed was 2 years ago and I still need that day. I never intend to go back to full time work. If I have to work a weekend as per my contract I have a day off in lieu instead of pay. My health is worth more than the money. I think you you need to sit down with your employer and discuss what you are feeling and approach the subject of reducing hours. My neuro- psychologist was really helpful with compiling a report making suggestions for my working life. Can you see if you are able to see one through your own doctor? This could be used with your employer to maybe help draw up a plan. As you say your emotional health is starting to suffer so you really need to address the work issue now. Good luck, keep us posted and don't forget you are not alone. Clare xx
  14. 5 likes
    Paul I can barely read or type for the tears. You have been such an amazing partner to Lin and your story on here has held all of our hearts completely. I cannot express my sadness but my heart is truly broken for you. My deepest sympathy, biggest hug and most sincere condolences sweetheart xxx
  15. 5 likes
    Thanks Louise - I appreciate those reminders. Yes, no two of us are the same. Thanks too ClareM - I always appreciate the advice. I'll take it on. I'm only planning on going bank to work gradually - 8 hrs first week and increase from there as I see fit. Thankfully, my work side of things is very understanding. I'll keep you posted. Kerryn x
  16. 5 likes
    Hi all This post is to introduce myself and at the same time, to thank all the contributors to this excellent resource. For those of us that have had an SAH - this is a fantastic website. I'm married with two young kids (10 and 4) and live in Melbourne, Australia. On 6th April, a bit over 3-weeks ago, I had just completed a 30-minute run when I bent over to grab a dropped coin only to experience an "instant headache". As I don't get headaches, I figured something was amiss. Told my wife and she didn't like the sound of it either so after a couple minutes of her going to "Doctor Google" - she had me booked into a local GP. I owe her my life because I wouldn't have booked myself in! The local GP was about 70-years old and thought it best to book me into the local hospital for a CT scan - "just to be safe". The CT scan showed the bleed so I was ambulanced to hospital and operated on that afternoon, (6th April 2017). Thankfully I had all my facilties with no neuro deficits. In brilliant care of the doctors and nurses, I was coiled via angiogram. Ten days in the HDU, I followed doctors orders with high levels of fluid intake (they told me 3-litres but I averaged 4 per day). The first three or four days post operation were horrendous due to the headaches and sleep deprivation but it improved as days rolled on. I spent about 2-weeks in hospital and am now recovering at home. Thankfully I feel fine but like 99% of posts on this website, my batteries run out sooner than before the SAH. Today I have a small headache and slight neck ache but having read the posts here, that's normal. Phew. With this thing that has occurred, it makes you a bit more worried so I'm relived there is a forum such as this. Wishing everyone a speedy recovery. Thanks again. Regards Kerryn
  17. 5 likes
    You're welcome Kindra! Just remember, it's important to listen to what your 'self' is telling you as well as what we try to help you with. All the answers you require are right there within your own body - we just confirm it for you! What you describe is how many of us feel - spot on, in fact! So just adjust to take account of it all and you'll be just fine and dandy! Get on and enjoy life - it's what it's there for! Best wishes, Macca
  18. 5 likes
    Wow! I just got back to this forum today after being away for awhile, and I am blown away by all the thoughtful and knowledgeable responses. I'll bet all of you know what I mean when I say it is much appreciated to hear from those who know what I'm dealing with. I feel as though I've taken a step or two backward lately, but I think it's because I expect too much. I'm really taking to heart what all of you said about water, slowing down and giving my body a chance to heal. If I have to think of the stroke as an "excuse" to take a break, then so be it. It's an allowed excuse. Thanks very much to all of you for taking the time to welcome me and share your thoughts and advice. One of the weirdest things about this, by the way, is feeling as though I'm as good as new in the morning, but then feeling like an invalid by nightfall! How is that every day I think I'm back to "normal"? Lol! One of the best things about this is how much value life seems to have for me now. I don't take things for granted. I love every minute I'm conscious... xoxox
  19. 4 likes
    thank you Karen it has taken me by surprise im pleased others have supported you and please pass my grateful thanks onto them again a very humbled paul xxxx
  20. 4 likes
    Hi Steve Wise words from Michelle. As you say you had a good day yesterday and possibly did too much. It's a strange thing that while you are doing 'too much' you feel fine. It's not till later or the next day that it hits you. I still have this problem 2 years on. When I am at work I feel fine and push that bit more to do more intensive work - even though I have been told by my neuro psychologist that I shouldnt - Later that day I feel really tired, suffer from poor balance and am not much good for anything except the sofa! I need to learn this lesson, I still push too hard and suffer setbacks but it is a hard rule to learn when you feel so fine at the time. Just rest today and hopefully tomorrow you will feel a bit better. Take care and let us know how it goes. Clare xx
  21. 4 likes
    My Dearest Paul, Lin is the brightest star in the sky. You are in our thoughts and prayers. With much love to you, Sarah-Louise, Paul and Caitlin Xx
  22. 4 likes
    Hi, my name is Steve and I recently suffered from a subarachnoid brain haemorrhage and hydrocephalus. In the weeks following my stay in hospital, I have found this forum to be a valuable tool in my recovery. Reading the stories of others has been really helpful so I would like to include my story which may help other people too. On the 19th February 2017, I was looking after my seven year old daughter as my wife was on holiday with friends. I woke up with a strange sensation in the back of my head, going into my neck. The moments after this are pretty hazy; I remember writhing around in severe pain on my bed. At some point, the pain receded and I was able to get up and make my way to the bathroom. I looked in the mirror and I saw that my face was sheet white with sweat pouring off it. It was at this point that I realised that something was seriously wrong with me. My daughter woke up and asked to go downstairs. I asked her to go into her room to read as I was feeling unwell. I phoned my mother for advice and she told me to call NHS Direct straight away. The operator quickly advised me that I would need an ambulance and put me through to the emergency services. I remember at one point telling them that the headache was getting better and that I didn't believe I needed an ambulance. However, another wave of pain made me change my mind and they sent out an ambulance. I managed to get in contact with my mother-in-law to get her to come up and look after my daughter and then within approx 10 minutes, the paramedics arrived. They began to carry out their checks and my mother-in-law arrived. After some deliberation and calling a hospital for advice, they decided to take me to hospital to be on the safe side. I said goodbye to my daughter and walked out to the ambulance. Soon after the ambulance pulled off, I started to vomit and they turned the blue lights on. On arrival at the hospital, the triage nurse put me into the queue along with everyone else waiting in A&E. It was at this point I really deteriorated; the pain became unbearable and I became photosensitive. I have no idea how long I waited there but it felt like a long time. I spoke to a nurse to say I was in severe pain who said I would be seen in 5 minutes. Another nurse callled me in to a room and I feel like I collapsed onto the hospital bed. I remember his face as he shone a light into my eyes. This is my last clear memory for nineteen days. Much of what happened in the three weeks that followed I have learned from my family. The CT scan showed that I had suffered a bleed which was causing hydrocephalus. As a result, I was transferred to the RVI in Newcastle. Later that afternoon, I underwent surgery to drain the fluid from my brain. When I woke up from surgery, my parents, sister and her husband were with me and I discovered my wife was making her way back from Abu Dhabi. She arrived back first thing on Monday morning. The first two days I was conscious, talking and in quite good spirits although my short term memory was nonexistent. However, due to the fact I could not remember that I had a drain in place, it was pulled out and I had to undergo another surgery to replace it. Following that, I spent nine further days in the High Dependency Ward with quite severe pain, drifting in and out of sleep due to the high dosage of morphine. Eventually the drain was removed from my head and put into my spine. This meant I was able to go onto a ward. It was here that my memory begins again. I spent a week on the ward receiving excellent care. The drain was removed ,midweek, and I was finally able to go home on Friday 10th March. The first weeks out of hospital were difficult especially when I came off morphine. I suffered from terrible constipation, night sweats and headaches as well as finding myself highly emotional. I have attended some group sessions run by my local Headway group and have been seeing a counsellor every two weeks. Both of which have been very helpful. Recently, things have gotten slowly easier. In the last week or so, I feel like my strength is starting to come back and I have not been having headaches. My mood has improved and I am starting to feel more like myself again. Thank you for reading my story.
  23. 4 likes
    PJ/Clare, Glad you are getting help, as it is better than having me type a happy song out for you !! Off key xx We are not alone in this, we all have a good day and then the bad day comes, we are here for those bad days xx I have come on here and felt so sad but upon leaving here I think to myself "You shyster Win" and even now I am smiling. Now get sorted and please let us know how things go, and remember to keep happy 1 month of not hearing others problems is a must !! No Stress if possible and I totally concur with Daffs comment lol xxxx (They never listen ) lol Keep away from people with problems ie doom and gloomers you need happy in your life xxxx Good luck on your recovery Win xxxxxxx
  24. 4 likes
    Thank you for all the kind words,! I finally got a call from the neurology department where I was in ICU for the SAH. Thanks to my husband getting involed with the patient advocate. They are sending paperwork to my employer to let me work as tolerated for the next 4 weeks. Then I have a followup in 4 weeks to reevaluate me. I am beyond thankful. I feel like I have hope again. they are also setting me up with a neuropsychologist in my home town. It was kind of funny because they were kind of dancing around why I should see one until I interrupted her and said I was trying to get a referral to one from my primary care doctor. I know I need to see one because I am not dealing with any of this in a healthy way and I need help! Between the encouragement and understanding here on this page and finally getting help with not having to work full time and an appointment with the neuropsychologist, I feel so much better about my immediate future. I will check back in here as I journey down this unknown path that is my future. I am so glad I have family that is working hard to get me the help I need. They were quite worried over my decline over the past 3 weeks. This group and the stories here make me feel so much better. I am not so different than all the great folks here. It is so comforting to know my recovery is like a lot of others and I am not all alone!
  25. 4 likes
    Hi Crispy Welcome to site, pleased you have found us. After my SAH I became very depressed I too did seek support and counselling helped. I am fine now but it took a while, it is early days and having your mobility issues must add to this. I too tried a holiday just after SAH and again found it too exhausting and too soon. I think that having a SAH is a tremendous shock to the system and naturally it has some impact on your emotions you are doing the right thing speaking to GP, hopefully you will also get lots of support from this site. regards Sharon xx
  26. 4 likes
    PJ. It is so hard and we all know and feel your pain. i can't in all honesty understand how someone could think you could jump straight back into work so soon ...12 days after is beyond my comprehension but I note that in the US right now there is a big movement to educate people about the effects of concussion etc so it's probably lack of understanding about what a brain injury actually is so maybe it's a case of just stopping and saying to everyone 'let's get back to the drawing board'. You haven't drawn breath since it happened and you need to work out what is possible for you and realistic, what your limits are for now and to pace yourself with the things you do need to do each day. Some of that starts with you knowing and establishing that and sharing out loud that you need help to get a more realistic pattern of work and living. Maybe people see you coping and think you're doing ok but now they are noticing it's taking effect it's the time to take postive action to change things for the better. what is your company like? Are people going to be supportive if you ask to sit down with them and discuss a more phased return, is there oth help you can ask for. your doctors, go back and speak to them, ask them about support groups, what help is available and explain how hard it is and the issues you are having. often people don't get the help post bleed and discharge without pushing or asking, that's sad but true. I had amazing support but even then but in every instance after discharge it was left to us to research it ourselves or battle to get access to to help I needed so I would say turn your energy and frustration at what might help you open a door here. Its ok ok to be angry, and scared and you need to talk that through and process some of that. life changed for you back in January, there's no going back but go forward and start giving yourself the kindness and help you need to recover. i wish you well.
  27. 4 likes
    Posted on behalf of Palhuc Hello Paul I have only known you, Paul a short time on this site but have come to realize what a kind person you are and a loving husband to your Lin. It is with my heavy heart for you that I hear of Lins passing. I wish words were enough to comfort you. Please take care of yourself . My family sends their deepest condolences to you Paul. Remember Lin with happiness. I have no doubt how much she loved you. palhuc
  28. 4 likes
    Paul, I am so sorry and the words do not seem adequate. Lin was a fighter like you and now she is at peace. Feeling for you. So Sorry xxx Win xx
  29. 4 likes
    I'm heartbroken to read this news Paul. I can't begin to imagine the grief you must feel at losing your beloved Lin. We have all been touched by your story over the past 8 years and thank you for allowing us into your lives and sharing this with us. Your loss will be immense. You have been remarkable Paul in your commitment to helping Lin and I hope you can take strength from that and all the wonderful things you have done with her since you met. My thoughts are with you at this very difficult time. Much love, Sarah
  30. 4 likes
    Hi Paul, So very sorry to hear your news and you must be feeling so full of turmoil at the moment. You must feel very lost at the moment, but you and Lin have battled on for so long now. The suffering for Linda is now over. Remember the many good times you had together. Remember also the good fortune you had to find each other and to spend all that time together. What a privilege it is for you both that you enjoyed each others love and company, fulfilling each others lives. A lot of people search for a lifetime and never find what you two did and never have what you have. Celebrate her life Paul, she deserves that. Yes, the latter part was difficult because of her illness and conditions, but one thing that was never in doubt was the love you have for each other. You also got that extra time to spend with one another and I am sure that one reason she battled so long and so hard was because she wanted to be with you. Paul, I am so sad to hear this, but please know that you and Lin are always in my thoughts, and have been for so long now. Macca
  31. 4 likes
    Jen, I have deliberated about saying this so early post his SAH but after speaking to my fellow moderators they agree I should say something. You will need to investigate his eligibility to drive after discharge as He has had an EVD ( drain) placed, the current advice excludes him from driving for 6 months or until his neurosurgeon signs him off. That was my experience anyway ( I had EVD and later a shunt) and there's a lot of Threads on this site clarifying people's situation so it's definately worth speaking to his employer early on and keeping them up to date with progress etc but advising DVLA. It counts from when the EVD is removed but the DVLA are notoriously slow to process so start reapplying early to get it reinstated. I know now that's probably the last thing you want to hear but if you have some information then at least you can start to plan for different scenarios. daff
  32. 4 likes
    Hi Steve, welcome to the group, I too have been in the RVI-fantastic regional centre.I'm post 8 months now, and managing to work full time again, and just got my license back last week from DVLA. what you are going through is perfectly normal, take each day as it comes, plenty of rest , listen to your body, let the family help you.I love quietness hate noise now. There is a local monthly support group at the RVI which is great help for you and your wife, your not alone. Take care, let's hope that the weather improves, and you can relax in the garden, take your daughter to the park when your feeling stronger, as your going to feel weak for a while. Dont overdo it, tired have a sleep xx
  33. 4 likes
    Hi MatJaz welcome and it's so great that you have Found help amongst the experiences shared here. it take time to heal from this. If you think about it your brain rarely gets to rest as it's busy controlling our bodies and thoughts and all the other amazing functions , then on top of that we ask it to pay attention, do multiple things at once and have lots of stimulation from noise, lights and sounds. It's no wonder it shows us the symptoms of nausea, dizziness etc, it's the only way to say 'stop, I'm still trying to heal' So rest often, try and put in plenty of breaks in the day when you can that you do nothing, just have some silence and then go on when you feel less 'pinched' . It's call pacing yourself but if you learn those baby steps now then in time your pace and step length will grow and you will need less rest. get a nice routine for going to bed, drink and eat well and healthy and smile at the people you love and ask them to just sit a while with you and watch the world and the clouds move across the sky.. That's a good feeling when you are healing. go steady and slow in Slovenia.
  34. 4 likes
    Welcome to the BTG. I also experienced a NASAH during exercise. All I can tell you is it just takes time and patience. Listen to your body and rest when it says to rest. I did not have the lingering stomach problems you describe, but the headaches, fatigue, and moodiness is very similar and seems to be common. I am now over a year and a half out and feel much better than I did after only 3 months. You should continue to improve so long as you take it easy, get rest, and drink fluids. Also know that as time goes by, others may start to treat you as "normal" again, even though you are still healing and need rest and no stress. Try to be patient with others as they can't see you heal and tend to forget just how much your brain went through only a few months ago. I sent prayers for you to continue to heal and am so glad this site has been of help to you. I don't know what I would have done with it, as there is just so little information out there. Best Wishes, Chris
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    Hi Steve, Sorry you are feeling a bit off kilter today, you will have days like this especially when you as you are still only 3 months since SAH. I think what has happened is you have over done things yesterday, I know it's brilliant when you have those days where you feel great, you just want to do normal things and that is great, I think what you are experiencing now is your body and your brain saying " hold up a bit, we are not ready for this, we need more time to heal " and that is why you are probably feeling as you do today. It is still early days for you, you can still do things that you want to do, just listen to your body and your brain, as you are finding out today they have a way of letting you know when you have over done things. It will be 3 years next month since my bleed and I still have days when my brain let's me know I have over done things. It does get better as time goes on, your good days will out weigh the bad, it just takes time. As Win will tell you, baby steps at first. So for today you just need to rest, make sure you take plenty of water and be kind to yourself, the water will help with headaches and dizziness. Hope this has helped & you start to feel better soon. Take Care Love Michelle xx
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    Hi Paul,. Paul, I don't know what to say, when I read this, I cried. It's a long time since I've been on btg and wow you and Lin have been through it. I'm so sorry about your news. Lin has fought a battle for a long time and you have been an amazing support for her. I remember our messages in the beginning when you were wondering how you were going to be able to support her well enough etc and you've done a brilliant job. She'll be pain free now. i like Sami, would like to come and pay my respects but won't be able to get the time off xx Try and remember to take care of yourself too xx love laura xx
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    I wish I knew what to say to you to give you patience and care. It takes time to heal and it is not an easy process. Others can't see the struggles or pain, so it sometimes feels like a personal burden. The people on this site do understand and the advice they give is invaluable. I sincerely hope and pray that you are able to get through this with patience and that those around you give you the support you need. Please know that it gets better with time. Chris
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    Hey there It was about 2 months after mine that the depression hit - I was diagnosed with PTSD, so you're doing the right thing by seeing your GP. I was offered counselling before medication and, I have to be honest, between the counselling and this site, the depression lifted and I started to feel more positive about things. Hang on in there, things will improve, but don't be impatient and you then end up in a vicious circle of impatience and depression. Let your brain heal and the rest should follow, maybe slowly but most certainly definitely.
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    Dearest Paul, I am so very,very sorry to read the sad news of your loss. Lin has battled so valiantly all these years, she has been a true inspiration. And there has rarely been a more devoted partner and carer than you. We all have been so blessed that you have shared your lives this way. Words are so insufficient. Please know I send my deepest condolences and wish I could reach you with a hug. I pray you will be comforted knowing that Lin now is truly at peace in God's everlasting light and love. Love, Colleen
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    Paul, I was shocked and very sad to hear you have lost your Darling Lin, A beautiful light has gone out in your world today, But that light will shine brightly in heaven forever. Sending you much love at this very difficult time, Michelle xx
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    So sad news really gutted for you, guess words don't convey the amount of dedication, love, care and fight that both of you have given. Your love for each other shone through your posts and that can never be taken away. Take Care Paul my thoughts are with you x Sharon x
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    Paul I cannot imagine what you must be feeling now I am so sorry for your loss xxx Lin R.I.P
  43. 3 likes
    Paul, I can only reiterate what others have said. My thoughts are with you at this heartbreaking time. Lin is now at rest. My deepest sympathy and sincere condolences
  44. 3 likes
    Paul I too cant find the words I am SO sorry to hear about your great loss.. Thinking of you and sending my love
  45. 3 likes
    Paul.............. I am so sorry to read your post about Linda. Along with you, our hearts are so sad too and many on BTG have shared your journey over so many years. Paul, what you have showed in your unwavering support for Linda is hard to comprehend. Your feelings of love, hope, fear, joy, frustration, relief and helplessness over such a long period is far more than most of us could cope with. Linda had a great `soul mate` in you, and we are proud of the strength you have shown in such demanding circumstances. Paul our thoughts are with you throughout the coming days and weeks. Take care and may God bless you and strengthen you. Subs
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    Hi all I joined this site today, I'm in recovery from my SAH aneurysm about 3-weeks ago. Thankfully I'm doing well but it's all quite a surreal thing...that only we can relate to. These posts from all of you, starting from Phil's original post - has provided many answers. In addition, you have provided unanticipated questions and answers. Thanks very much for the effort; very grateful. Kerryn
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    Hi Jenni As others have said 5 days out is very early in recovery. It sounds like he is doing really well so keep encouraging him and try and lift his spirits. It is a bit scary when you are uncertain about the future which he must be. Encourage him to drink lots of water and to eat anything he fancies. I lost over half a stone whilst in hospital but soon put it back on when I came home and started feeling better. As Sarah says look after yourself too, it's important that you keep well so that you can do a good job looking after him when he comes home. Clare xx
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    Hi Steve, Never give up (I am sure I posted you already) I was told I'd never walk again, well the guy said "What makes you think you will walk again" I thought rude words and thought I'd show him. Christmas 2010 I walked 4 steps to my hubs to give him his Christmas present. I was shattered but after hols he went and got me a zimmer frame for around the house. I walk unaided but stuck at 200 yards on a good day. I have my dignity back though. Never give up keep trying. I shower myself also. Sounds silly things but they are all aims. You will get there and look back and say "Yeah I did it" Never give up. I also have days in chair and I think lazy Win get off butt. Keep going you will get there XX Regards Win xx Zimmer frame gone, walking sticks gone, (they got in my way) Good luck xxxx I had SAH and hydrocephalus with shunt fitted also.
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    Hi guys Thanks for the further comments again it is really appreciated. I can relate to the one step forward and two steps back when recovering. Three weeks ago I was trying to do more and more, walk further, read work emails etc. I basically had a crash and burn moment. I tried to walk along to a local fair with my wife and daughter but didn't make it all the way there as I didn't feel all that well and the noise was unbearable. I turned back and let my wife and daughter go on ahead. While walking back home I began to feel off balance and almost 'drunk'. I made it back home but I was in a bit of a panic as I thought if I fell I would not get back up. I have taken this as a warning to take it much easier. For three weeks I have been mostly resting and not doing much at all and I feel much better for it. But I know that taking it easy will be the way forward from now on! Thanks again, Steve
  50. 3 likes
    Hi Steve, welcome to BTG. Firstly I think you did remarkably well in managing to get the necessary help for yourself as well as cover for you daughter during that initial time frame when you were obviously not at all well. It's good that you are beginning to feel that things are getting a bit easier. As you will have gathered from stories on here, recovery can be a long slow process, but being prepared for the possible 'one step forward two back' scenario is always worth knowing about. So many of us in our recoveries have thought on the lines of "Oh, I feel really good today, perhaps I've finally turned a corner, I'll have a go at this - then, I still feel full of energy, perhaps I'll just do that too" Cracked it - then within a day or two you can feel totally wiped out and not be able to do much, if anything, at all. I found this happened time and time again and eventually it gets a bit disheartening. It's basically the brain saying "hang on a minute, I'm not recovered yet, you're really expecting me to do far too much while I'm still poorly and if you're going to do that to me when all I want is rest, then I'm afraid I'll just have to shut down for a day or two, so you can't do this to me until I'm ready" ! Everyone's recovery is unique to them and I wish you all the best with yours. At least you will be in a better position in July to remember what your consultant says. Sarah