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debbiephome

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Everything posted by debbiephome

  1. Hi Lisa, I am going on two years in April for my coiling. I feel pretty good and have been blessed to have had wonderful and skillful surgeons on my side for my surgery. also fell blessed to have my BTG family helping me along from the beginning. I am praying that everything went well for you. please keep us posted. God bless Debbie
  2. Hi boozy sue, good luck on your up coming coiling. I had mine coiled last April and was just as anxious! it is hard waiting, I just wanted it to be behind me. you will feel so much relief afterwards believe me. my thoughts and prays will be with you, please if you have any questions feel fee to ask. Debbie
  3. Maya, I had an aneurysm coiled last April. Coiling is much less invasive, my recovery was quick and without incident...... I have had an Angiogram and an MRA since and they look the same (good new) my next MRA is set to be next August. I have one they are watching because of the location and less chance of rupture and I think the size is small, it will be something I will need to do the rest of my days. I have a good doctor that I thoroughly trust and he is very good in his field. try to think positive and for see the outcome as good, it helped me. You will be in my thoughts and prayers........please ask if you have any other questions I might help with. Debbie
  4. Clare, I may not be much help but I will send a quick message. I did have my aneurysm coiled and my head has never felt the same, even my headaches seem different. I get the weirdest feelings...kinda pressure like on the side and behind my eyes sometimes. I have sinus issue which I have always blamed and have always had allergy type problems, everything just seems intensified since the coiling. I have just learned to live with it because I am so greatful that my aneurysms were found and they were able to coil. Good luck and God Bless, Debbie
  5. Hi Ashley, I too had a aneurysm coiled in April, I just had another Cerebral Angiogram to follow up, which looked good, there was 5% that was not coiled in the back where my doctor could not see. but over all it went well and I have to have a follow up Angio in 1 year. I had an MRA before my coiling and my doctor also read that I had some white spots but said that they were very mild mini strokes! they said nothing else about them nor did they refer me out to someone else which makes since, I do see a neurologist and would think if there was something to worry about he would have said something. maybe my aneurysm takes the top spot as needs go. ( next visit something to discuss) I know we are not to give medical advise on here, so I was just telling my story about my "white spots" and maybe it will give you some information to take to your GP or Neuro in hope to help you. I have had no vision problems except for the usual aging ones! ") I have gone throught some depression, if you read some others statements it seems to be common, I find this website to be so helpful, for me it helped me realize I was not alone and reading others situations I am blessed and confindent of my recovery. I have a great doctor and support from family and I have BTG the best find since my diagnosis! I am moving forward in life and learning to live with my aneuysms.....Hang in there Ashely. God Bless!
  6. Hi everyone, I wanted to follow up post angiogram. It went well and over all I'm feeling pretty good. I have two aneurysms the one that was coiled looks good except there is a less then 5% space in the back and lower end that isn't filled with coils. My neurologist says this is an area that is hard to see during coiling. We are going to watch it an have another angiogram in a year, he said he wasn't too concerned about it but we need to keep an eye on it. The other aneurysm is exactly the same size as in the previous angiogram so very good news....I'll take it! I hope all is well with everyone else! God bless you and this wonderful BTG website, you all have given me so much.Thank you! Debbie
  7. Sammy, thank you for your reply. I am doing well without the cigs and wine. There was a time that was not as true. never needed to smoke much but I did like my vino, but these days I try to take better care of myself......I think I just went through a hard time for a month or so. I will be thinking of you as well. Good luck! Debbie
  8. I know colleen, I thought the same thing, put me out! Too be honest it wasn't that bad with just the right amount of sedation. Win, I would love to come to England...never been. My husband spent some time there for work and said it was nice. We live in Oregon, the fall here is absolutely beautiful but along with it comes environmental allergies and according to my allergist I'm allergic to almost every single one of them! Thank you again for your thoughtful comments. Very good talking to you. Debbie
  9. Thank you....Thank you! Your Words of encouragement mean allot to me. I'm feeling pretty good Win, just some allergies issues like allot of people but they are terrible right now......I hate to say it but I will welcome the cooler weather and some relief! Take care, God bless. Debbie
  10. Hi everyone, I have my next angiogram Nov 5th. The first post coiling. I'm a little nervous I guess that is normal, I'm just praying that things look good and no growth on the one aneurysm not coiled. I have to admit that this last month has been stressful and I have enduldged in a few drinks and just a couple smokes, so I'm sure that those behaviors are contributing to my fears. No more for me but I'm hoping no damage done. Thank you everyone for your continued support. Debbie
  11. Thank you both Alison and Clare for your valuable information. Take care. I'm coming up on 6 months post coiling so I have my cerebral Anglogram scheduled for November 5th, I'm praying everything including the aneurysm they did not coil is in-tacked....no growth! Take care all, I will keep you posted on the out come.
  12. Steroid sprays- I have been concerned about the steroid sprays I have been using for a few years now, so I asked my neuro surgeon if he had any information that they can cause cerebral aneurysm? He said that there isn't enough evidence to support that theory.....he didn't say they couldn't either "safest answer I suppose" I do believe I will stop taking them. I have severe allergies and will probably suffer but without a definitive "no" they do not cause aneurysms from my doctor I feel uncomfortable taking them....why take the chance?
  13. The list would be great Allison, I just want to be as safe as possible myself. I have taken nasal sprays for a long while with my allergies.
  14. Hi Alison, I have a question regarding the nasal sprays you are referring to. I also use a couple sprays for my allergies, flonase and another steroid spray. I haven't heard anything about sprays causing aneurysms or bleeds until now and of course it concerned me since I have had an aneurysm coiled 5 months ago. Since I have had such bad allergies and a sinus infection that of course I have been using the sprays daily. I gave a call into my surgeons office directing this question to him. Can I ask which nasal sprays you are referring to? Maybe they are different then mine and I can rest at ease. Thank you. I hope that you are well. Debbie
  15. Interesting thread. People are funny aren't they? The only things that happens to me that is closely related is when ever I see family or friend that know I have had a brain aneurysm coiled,they instantly start looking at my head to see where the incisions are from the surgery, understandable, but after you explain it 10 time over ....well it's exhausting. Still so blessed for our new technology, coiling done through the femoral artery.
  16. Sharalu, I did not have a bleed but was fortunate enough for my GP to have found my aneurysms on an MRA. I did have one coiled and they are watching the other one, which is stress wondering and hoping it stays the same size. Angiogram will tell in October. So my experience going back may not be the same. I went back to work after a week and it was also stressful, I got tied easily and experienced aniety, It did get better each day, drink lots of water and take those breaks! It is true when they say people don't see what is wrong inside so may not understand the anxiety and tiredness. "You look fine" is what they think. I wish you luck in your recovery be well! Debbie
  17. Macca, thank you so much, what a relief for sure. I'm just wondering how long these weird headaches will last? They come at random times during the day and night and feel kind of like pressure headaches not bad enough for Pain pills but definitely enough for a Tylenol. all in all feeling pretty blessed these days..... One day at a time!
  18. Hi all, so my previous sinus infection seems to be getting better, but now I feel these weird pressure feelings in my head not really painful but not comfortable either to say the least. these headaches and odd feelings I have been feeling in my head i acquainted with the sinusitis but now I'm rethinking that some of it may be residual from the coiling? I see my GP on Tuesday so I will ask her about it. any comments, similar experience? It has only been about a month post coiling, not sure what to think..... as mentioned no real follow up to what to expect down the road ofter coiling.
  19. hi everyone, I just wanted to check in to say hi it's nice to see everyone doing well. I am now almost 4 weeks post coiling I feel OK except for this sinus infection that I got and my allergies. It was unfortunate to get the sinus infection after my procedure, kind of alarming wasn't sure if it was my sinuses or something to do with the aneurysm just being coiled! but all seems to be going okay I'm still a little tired and still feel some weird sensations in my head but some might say I was always that way... Laugh out loud. take care. Debbie
  20. good afternoon just an update, I am 2 weeks post coiling & spoke with my doctor yesterday. he said everything seems fine my headaches are subsiding and my fatigue is getting better. I started back to work Monday and the first few days were rough, but getting better. next appointment is in 6 months for another angiogram. love to all Debbie
  21. Way to go Carolyn! So very happy to hear the surgery went well. Will pray for your speedy recovery. Debbie Xoxo
  22. Hi Alison, I think you are doing great! Keep positive and relax! We are here to support you! I just got off the steroids, I was only on then for a week so I don't have much withdrawal. I do have a pressure type feeling in my head and a slight headache each day but I hear it is normal. One thing that surprises me yesterday was a panic attack.....I had a busy day and had my granddaughter over visiting and started feeling anxious, it was terrible. I don't know of this is normal post coiling or if the whole experience is just catching up with me?? but today Im feeling okay..... I think I will try some meditation/yoga as you had mentioned.
  23. Macca, I am very blessed for sure. I have been having some headaches but to be expected, they should start to subside, hopefully within the next week or so. I am feeling better everyday! My hubby and I are glad to have the surgery behind us! Now just the recovery and check ups. I am looking forward to New beginnings with new friends, spending time with old friends and telling my family how much they mean to me "often" Debbie Xoxo
  24. Carolyn, it will be fine.... Keep is posted. Hugs! Prayers! Debbie
  25. Thank you all for you well wishes! I feel better each day and am so grateful. BTG is a wonderful group of people. Carolynusa, I will be thinking of you with your upcoming procedure, I was also nervous but please know you will be fine. Think positive, try to relax and keep the faith..... this is where you find my strength....... as well as surround yourself with positive "everything' There are such wonderful technologies these days it is amazing. You are in my prayers and good vibes coming your way. Debbie Xoxo
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