Winb143

If in doubt see Doc as Sami has said, you might be given a pill kinder to you and we are not allowed to give advice. You do not need stress so see Doc and tell him about the pills and ask his advice. Come out of surgery with a smile xxxx and perhaps a milder pill xx I only take paracetamol along with a song xx Love Win xxxx Hope you get sorted xxxx

Hi Chris/Crispy, You need to take your time and remember what you have been through. You will get better as time goes on, I was told I'd never walk again but 200 yards, and on a bad day 5 steps lol. We need to cheer ourselves up and remember not to rush things as brain needs to heal firstly and we will get there. Do not listen to sob stories we do not need to hear them while mending, singing helps me as I came from a Family who loved to sing. My Surgeon said no stress so I sing when stressed and it disappears, or the room empties and I get peace lol Take care and keep happy All the Best Win xxxx There is a life after SAH/ Brain Bleed xxx

Steve, I get moody, we did before we had our bleeds, so even more so now. We have to think of a happy time in our past or a happy song when on a downer it keeps stress at bay . I wish you all the best and do not overdo it. Remain happy when possible as that is the key (Don't tell Steve about row with hubs Win lol) oops you dragged it out of me ha ha Good luck Steve Regards Win xxxx Keep moving forward and remember SMILE when possible

PJ/Clare, Glad you are getting help, as it is better than having me type a happy song out for you !! Off key xx We are not alone in this, we all have a good day and then the bad day comes, we are here for those bad days xx I have come on here and felt so sad but upon leaving here I think to myself "You shyster Win" and even now I am smiling. Now get sorted and please let us know how things go, and remember to keep happy 1 month of not hearing others problems is a must !! No Stress if possible and I totally concur with Daffs comment lol xxxx (They never listen ) lol Keep away from people with problems ie doom and gloomers you need happy in your life xxxx Good luck on your recovery Win xxxxxxx

Welcome Kerryn to BTG, It is good to know we are not alone xx Hope you get better soon and take it easy All the Best Win xxxxx

Hi Jenni, I wish you and hubby all the best, the others have given you good advice. I do hope he can cheer up soon, my answer to all ills is to sing and keep doom and gloomers away from his bed. I had my Sisters singing to me, not that I remember. Now keep your chin up and get help as Super said xx Let us know how he gets on and take care of you also xx Love Win xx

When my head feels like a Thunder head/ barometer head, I either sing or go to bed for a rest up. My singing leaves a lot to be desired so my Family prefer I go to bed, ha xxxx joke !! I try also to think of days when I have laughed so much and cried with laughter, I think of my Mum and her funny ways and she comes to mind and that starts me off laughing. We worked together and we had good laughs and she was a smashing woman xx see no tears just a big grin xxxx I do not like quiet when my ears ring or a thick and foggy head. I need to get my mind off it. But each to their own way of coping xx Good luck Cassandra and never give up xxxx All the Best, Now sing up xx Win xx

Hi Steve, Never give up (I am sure I posted you already) I was told I'd never walk again, well the guy said "What makes you think you will walk again" I thought rude words and thought I'd show him. Christmas 2010 I walked 4 steps to my hubs to give him his Christmas present. I was shattered but after hols he went and got me a zimmer frame for around the house. I walk unaided but stuck at 200 yards on a good day. I have my dignity back though. Never give up keep trying. I shower myself also. Sounds silly things but they are all aims. You will get there and look back and say "Yeah I did it" Never give up. I also have days in chair and I think lazy Win get off butt. Keep going you will get there XX Regards Win xx Zimmer frame gone, walking sticks gone, (they got in my way) Good luck xxxx I had SAH and hydrocephalus with shunt fitted also.

Hi Palhuc My Daughter felt guilty when she had the flu and couldn't get up to see me but it is tiring for our Family. I can guess how you must feel. My Hubby did not trust Hospital to take care of me so they took turns every day for up to Christmas in London Hospital and then I was moved into a hospital nearer Kent (home). I cannot walk very far but after being told I'd never walk again, 200 yards on a good day isn't too bad xx So shopping means wheelchair but I can bath myself so I have my dignity back. I loved food and I was bought Chocs, to be honest I got an addiction to them lol, I said to myself "Well Win after what you have been through you deserve a choc" while resting my arms on midriff bulge ha ha xx This site was my Saviour as I used to think of death and what songs I wanted played at funeral ha. I came on here and saw a load of people all having a laugh while getting over a brain bleed. You and hubby will get there just like me and mine as we argue now so I know I am recovered lol. Take care you 2 xxxxxx Luv Win xxxx

Hi Matjaz, Welcome to BTG, there are some on here who have had your type of SAH. I myself had an SAH. Just wanted to welcome you to Behind the Grey and others will be along soon to welcome you. I was told by Neuro Surgeon "No Stress" so will pass it on to you. Keep happy and try singing as it helps me. Now keep a smile at hand xx

Hi Palhuc, I kept pulling the tube from my nose out and had to keep going down to X Ray to have it put back, so they left it out. I am told this by my Daughter as I remembered nil, until I had shunt put in to get rid of my Hydrocephalus. I am afraid as I remember zilch for approx. 1 year I cannot say what had happened to me. Good in a way !! It was all like a dream and I saw my Parents who are dead !! lol mind plays tricks on you. Look after yourself Palhuc , see I got your name right lol xxxx Now have a good rest as without you hubby would be lost.

Paulhuc Hi xx You know your hubby and gradually you will see bits of him coming back, see we are not Doctors and we can only give you info on what happened to us. As I said I had a 4 bleed and once I woke up I was so glad to be alive and I love life. I am so happy to have had a 2nd chance as a lot do not get it. So Cheer your hubby up and take it 1 step at a time so let us know how he gets on with swallow tests, My Daughter saw a yoghurt pot at the side of my hospital bed and she said just knowing I'd had a yoghurt made her so pleased. Wishing you both well xx Win xxx

H Kimberly, It does get better but we have all had a long haul and we get the good days , which I have started to take for granted but I should treasure them. All what Tina has said I agree with. Take it slow and listen to your body and brain xx Keep well and wishing you all the best Love Win xxxx No stress xx my surgeon told me xxx

Paulhuc, I had a grade 4 and was out of it, and I had Ventriculitis in the early days, UTI and then Sepsis. and a bad bed sore on my heel. My Surgeon saw it and said to Nurses "I do not want that to get any worse" Now I have a dent in heel !! The OT's said "put her in home" Family disagreed, phew lol xx Once I got home my family said all I did was sleep and I was found to have Hydrocephalus. So the Therapy I was getting did not register in my brain, as it was full of fluid !! I had a shunt fitted and remember coming around and my dogs jumping on me xx The OT's I remembered in my watery brain were nasty horrible people and I swore at them when they made me do baby things as my brain was not with it. I cried, I played them up but I felt I had to be strong against them in my floaty brain. Bet I was a pain lol. I awoke after having a shunt fitted and heard about this site via my Daughter Bessie. (her real name is Sarah) . Sounds like hubby is doing okay but get him aftercare as he needs it as so did I. I wish you both Good Luck. Oh also while in hospital the carers shaved my eyebrows off, and my top lip which I used to bleach, what is it with them and hair lol xxx Keep strong and with your help he will get well soon xx Music and laughter is my answer to everything. Now sing him his fave song xx get him singing and smiling again xxx and he can tap his feet to the music x Love Win Had my fav meal in liquid form or so I am told xxxx

Hi PalH I was told I'd never walk again and one day I had music on (They say music is good for us) and started to tap my feet as I think I can tap dance xx I then thought if I can move my feet, then why cant I move? so out come a foot pedal (electric one). So in the early days I practiced taking little steps. On a good day I can walk 200 yards plus, before back aches. On a bad day approx. 100 or 60 yards. I did all the exercises you can think of like raise feet, twist ankles etc . Christmas morning 2010 I walked 4 steps and gave my hubby his Christmas pressie. It may not seem a lot but it gave me my dignity back and for after new year my hubby ordered me a zimmer frame to get to bathroom. Good luck and sending positive vibes for you both xxx Never give up xxxx Win xxxxx My next aim is to go shopping without a W/chair but not yet ready xx

Best they have spotted it, as they are doing their job, a few on here have had the aneurysm either re coiled or clipped. Some have a regular check up on it to make sure it hasn't changed. I know you both must be worried but it shows they are alert to this. Good Luck to you both Love Win xxxx Head/Chin up xxxx

Johnnie M, You just do not want to scare family which is good on you. You keep getting better and hope to see you in Green Room when you feel like it xx Keep getting better and stronger, okay we will have an off day but as long as the good outweigh the bad then we have made it.. Good luck Win xx

ddson, Mine changed after my SAH but I never realised it until I had a shunt in as I was in cuckoo land until then. I think things stink and they do not, my hubs gets the hump with it lol. Doc said it is all in my head but I told him and my nostrils xx He never laughed lol Mind you I cannot sleep in a bed for more than 4 nights before I wanted it changed. We do not mean to be a pain and it is horrid, I ate chocs also and put on weight but I love my food but cannot stand stew/casserole type dinners. Take her out for a coffee and remember to us it is so real. I can eat for the UK lol xxxx Wishing you both Good luck xxxx Win xxxxx

I just used thingymebob and watchamcallit in early days, funny how my family understood me lol or they had switched off xxxx Think it was the latter Grrrr xx Win xxxxx

Hiya Kindra, I worked with my hubby and took the stress of people going broke on us, and in the end it told on me. (Win blames others for SAH lol) You are doing great and all what others have said I agree with. Just keep a smile close to hand and shame you cannot carry a camp bed around for those moments of extreme fatigue. Darn it xx Wishing you all the best and listen to what your body is telling you. Easy for me to say xx Be Well Win xxxx I believe happiness can get us through this and of course the odd occasional song from myself xx

Cannot help Kelley but I have heard it mentioned on here, so see Doc and remain stress free xxxx Good luck xx and remember calm is order of the day, easier said than done xx so get any worries off your mind and see Doc.

We All left with about that amount of advice YS lol. That is why this site is so good as we can share our worries. My GP is out of his depth with SAH, so I look it up on internet. arghhhh

Hi Gemma, I had a 4 and also Hydrocephalus, I was told I'd never walk again but up to 220 yards on a good day before back aches. I then got Ventriculitis, UTI, Sepsis and hydrocephalus that a shunt sorted me out and came back to the real world. This site will help Mum as it did me, I started to sing in the middle of others posts as singing kept me happy lol (I was a pain at first) and couldn't keep on track. But they stuck by me and now I come on here and leave laughing, which is a good medicine along with me typing songs out ha ha Ask Mum what she wants , even have a party on 1st Anniversary with Mum as "Special Guest of Honour" or before you leave ??? Whatever happens I wish you and Mum all the Best xxxx Go get married and be happy that will be good medicine for your Mum xxx We need laughter and happiness to get us back on track xxx so tell Mum not to listen to tales of woe and keep hers and your chins up xxxx and I'll keep my 3 up lol God Bless you All xxxx By the way my short term is getting better slow but sure !! see forgot to mention that ha ha xx also No Stress for Mum xxxx

See told you JM, We are here and even if you do not feel so alone, or you get headache from my songs . My job has been done ha ha xx So anyone need a song? I'll take that as a No !! Keep Well Win xxxx

Meant to say,when you are okay, come in green room we leave messages in there, some are silly when written by me lol But it is a good place to vent or let off steam or ask questions if needed xx Take care JM Win xx