Winb143

Hi Philip,

I was okay but felt tired on the day of my bleed SAH4 stayed in bed most of the day,  Got up started making my Hubs tea a curry.

He came home early as work had been rotten and he poured me a wine which I never got to drink as I passed out, 2009 and I woke up 2010 after shunt was fitted.  So I was in cuckooland for a long while.

It took me an age to get back to some normality, I knew after coming on here  I wasn't alone and bang went the fear of my mortality  as I never knew there were so many of us who had suffered these bleeds and it helps knowing you are not the only one.

Saw my surgeon for first time  after shunt check up, and I thanked him.  He said to my hubby has your wife always talked a lot as if I wasn't there.

So I interrupted him and said "When you are the youngest of 10 you have to speak quick as you wouldn't get a word in" !! Then he started speaking to me !!   I told him my Aunt had a bleed and her 2 sons but surgeon said it was too distant it had to be immediate family ??  I still don't believe that xx lol  But he must know more and he did save me after all xx Good luck xxxx 

Hi M~C,

Sounds like you are doing okay, but try not to overdo things !! Easier said than done xxx

I didn't wake up for over a year ..well I was awake but in my own little dream world (Hydrocephalus) talking to my Parents who had died, I even forgot my Dad was dead. 

I found this site and have never looked back it is a God send when we worry about little niggles etc as a trouble shared, as saying goes  xxxx  Good luck  

Win xxxx

Your words made me well up Sophie, it's a part of my SAH and me now !! Tears at the drop of a Hat !!

We are survivors and you have done extremely well for a young girl to put it into words.

I hope you have a good life and a happy one, now the world is waiting for Sophie's next instalment.  On her survival adventure.

Well done you for putting it so concisely as I cannot spell Succinctly lol xxxx  Now remember a smile a day keeps the blues away xx

All the Best,  that old girl with the silly name ...Keep us updated wont you xxx 

Love

Win xxxxxx

That's the spirit Pat,

When I get short term memory loss my Hubby and Daughter laugh, but now Tut a sure sign I am getting better. xxxx

We will both get there and when down just come into Green room and have a chat with others, so many have had bleeds etc.  We are like a Family who when our own get fed up we can share a problem with each other.  You take care of yourself xxxx Nice typing to you lol xxx

Hi Pat I have a sister named Patricia alias Patsy xx

I used to get itchy head after my shunt woke me up so I decided to bathe it in warm salt water as my Mum used to swear by it.   It does go but if it worries you see Doc.

Sounds like you have done so well, I was told I'd never walk again but 250 yards then back aches on a good day!! 

I have had Epilepsy since puberty but noticed they had got stronger after SAH so Specialist upped pills and been seizure free since new pills in Feb.  Touch wood !! Horrible things xx

We are in it for the long haul but you will get there and some days you might feel so tired and another day you can take on the world.  Then pay for it the following Day  xx 

Keep happy and stress free as we are survivors and welcome to BTG and others might tell you to drink water listen to them xx Do not listen to others problems just be happy and think about the times you have laughed so much,  it really helps.

Wishing you all the best and Welcome to BTG xxxx  Now a smile please  xx

I was afraid that I had outlived my life expectancy and was not ready for death. !!.

Was so scared to be honest

Think when we have a bleed it makes us think life is too short to worry about mundane things.

I came on here and saw people laughing and joking about what they did weekend and it made me realize there is a life after Bleeds/Sah etc xx.

So Jen and Jason welcome to the survivors club and remember we made it,  all being a few drill holes short or a scar or two.  We are here xxxx 

Have a good weekend All (That's an order lol ) xxxxx

Well Done to Sophie and to Heathers Daughter look forward  xxxx Never back only when you need to.

Wishing both Young ones all the best for the future... And remember laughter is good for us and stress is not good  xxx

Thanks for update xxxx

Win xxxx She who sings and drives others potty xxx

There is loads on here Julie and they will be here soon xx

Good to know we aren't alone  and when on a downer come into Green room were we type our general chit chat or let off steam xxx

Many a time I have left here laughing. (little things please little minds ) xx

Be well 

Win xxxxx

Hi Jen,

This site is good, helped my Daughter and now me xx

I had the same as you but lucky for me I remember nothing about it due to Hydrocephalus.  

I get the buzzing echo sounds and like a buzzing or holding a shell up to ear and then other noises think it must be part of our brain getting its own back lol

Make the most of healing as when you get better they forget what you have been through and it's nice to be spoilt lol 

Wishing you all the best 

Regards 

Winb143 alias Win ... Singing helps me but not my family xxxx 

Hi Julie, 

I had an SAH/Bleed and I do not remember what was going on.  I had a shunt put in a year later and woke up from cuckoo land.

You are not alone and this site is a God send as we have all been there without the wait you had. !! 

My short term memory is awful lol but I sing a lot and it cheers my Family up (Not !! ) ha

I knew I was getting better as hubby and Daughter were so good to me, now they moan more ha ha 

I will wish you well and as I tell everyone, My Surgeon told me" No Stress"  it is bad for us, that's where the singing comes in xx

Hope you feel better but it is a long haul, take it easy and again No Stress xxxx

Regards

Winb143 xxxxx  Sunglasses help I wear them even when it is rainy lol xx 

Hi Kathie,

I had an SAH and I get tired a lot xx nature of the beast I guess.  Never give up as we have all had down days and days where we are so tired we cannot do much.

It gets better as the years go on so listen to your brain/body and take it slower xx

Not nice that we get shattered quicker than before xx My short term memory  is bad now days xx but I am an oldun ha ha xx

You are in early days of recovery so take your time and pace self xx  This site is a good place to come as it has helped my Daughter when I was in cuckoo land and now me.

We are not alone xxxx  keep going and try and manage a smile when poss xxxxx Good luck to you

Winb143  xxx

Sophie I have a niece called Sophie so you keep going forward and we are always pleased to hear from you as it gives others hope.

Remember there is a life after SAH xx Go forward and spread the word ha ha xxx

So pleased for how your life is going forward.

Be happy and stress free  for the future  xxxx (when possible) if you feel a stress moment start singing or think of funny times  xx

Love

Win xxxxxxx   the old girl with a funny name ha.

Sophie ,

We had a Mum come on here and her Daughter was going to go to University, she put it off for a year and went when she felt able and her Mum gave us an update.

I cannot remember the girls name sorry but someone might remember it.

Short Term Memory loss arghhhh.  I am an old dear and can remember years ago but ask me what I said to hubby 5 minutes ago ???  lol

You will get better but it is a long haul and you have youth on your side.  All I had was excess fat that kept me going lol

I was told by Surgeon No Stress and keep away from sob stories, you need happiness in your life xx

I wish you well and all the best for the future because you do have one !!  Now get yourself better and sing when down happy songs only and surround yourself

with good memories.   We are all here to prove there is a life after an SAH xx

Good  luck and when down come on here if needed,  to give vent  or whatever xx

Love

Win xxxx

Hi Jackie,

I did answer your mail yesterday but it is missing so if you get 2 just ignore one.

I did think my time was up and my Daughter told me about a site she found while I was in hospital, Yup this site !!

My N Surgeon  told me , do not stress as stress is bad for us.  Hard not to stress so I sing a song or 3 to keep the blues away and just knowing we are not alone helps.

It has put my mind at ease knowing that life goes on after SAH/Bleed.

I came on here full of doom and gloom and left laughing,    Also water helps so keep drinking it..

Then Daffs came on who also had a shunt and we could speak about our worries. 

You will get there just drink water, type a song and always have a smile at hand as it really helps (Well it does me, easily pleased lol)

Take care and when you feel up to it come in Green room where we chat about everything and nothing.  To just know we are not alone helps xxx

Been there done it lol got the medal xxx making your medal now.  xxx

Take care

Win xxxxxxxxxx

Hi Joanna,

Hope you get better soon, Do not rush things,  This site has helped my Daughter and myself no end.

When I was in hospital it gave her somewhere to write her worries /concerns about me down.

I was out of it so never knew what was happening.

Best thing is No Stress !!  Try and keep happy and never take on others worries.

Good luck on your recovery and a smile a day helps xx

Take Care

WinB143 alias Win xxx

Verna,

I was so scared after I knew what happened to me but it does get better,  and you are around people who have had the same experience as you have been through.

Type away and go from there,   do as Super said Introduce yourself to Us and you will get replies this site has helped me and my daughter  who had nowhere to turn when her Mum was in Hospital (Me) lol  xx

Good luck xx

Win

Jac

I was told not to drink or smoke again so I took heed lol shut door after Horse/SAH had bolted lol xx

When you feel down Jac always think of happy times in life and coming on here just cheers me up and I know I'm not alone.xx

I ate chocs when I woke up and have got so big lol so now trying to diet,  I'll get there one day xx

Keep Well and remember Happy is the word today xx

Love

Win xxxx Smile?  lol

Hi Katy,

I had an SAH and remember nothing for a year,  people say I spoke to them but I still don't remember.  Good in one way !!

I was going to mention Clare but I see she has responded to your post.

Keep well and do not overdo it xx it can be a long haul but you get used to ringing etc. or see Doc about it.

Good luck on your recovery and keep smiling xx

Love

Winb143

Me also shame though as I haven't had a decent wine for ages lol  xxxx

Keep going and never give up  xxxx

Welcome To BTG Jac xxx Remember no problems/Stress while brain is mending itself.   

You think of a happy song and you start to sing it.

No I wont sing just yet but remember only happy songs, also I read when you have a smile on face, sadness cannot come through xx

Love

Win

Welcome Jac and all what Tina has said Ditto,

You think you are alone and you come on here and we are many who have gone through it.

I know this sounds selfish but I thought to myself "Win all these people have been through it so you are not alone" which was my cue to get up and start walking as OT's said I wouldn't.  Getting there apart from backache.

You have been through a lot now remember to drink water, smile and no Stress Whatsoever !! (Neurosurgeon told me no stress) so I wish you a happy and healthy life and remember it is early days  xx

Be Well

Winb143

Put me to shame lol ..I was going to walk around a supermarket and make it my aim as I wont get an electric one or I'll never walk,

also scared I might hit someone lol xx

Keep happy and remember we will have great days and some rough days.  Just when you feel down come on here and we will give you our opinions lol.  Or I'll type one of my Families songs out and we don't want that as I type off key xxxx

Remember be Happy as when  you are smiling you cannot be sad xxxx  Must be true heard it on the net xx lol

Love to All

Win xxxxxx

Now we have each other on BTG watch your troubles diminish as a trouble shared is a trouble halved

I have come on here all down and left laughing, of course the family think I have lost the plot lol but a good laugh can help us feel so

much better.

I had implant as the pills / Epanutin  made my gums shrink,  hence teeth have gaps and some just fell out, I paint a pretty pic of myself  ha

Hope to see you in Green room for every day chit chat soon xx

Be Well All. 

Win xxxx

Hi Georgia Gal,

I have had epilepsy since puberty, they got less and less but since my bleed the epilepsy has become stronger and they are horrid things to have.

Lots have to give their license back but get it back after a period of time. I had my bleed in 2009. age 63/64. (young un lol)

Get your medication right first and Good luck on your recovery xx  Epilepsy is scary and I was okay up until Docs  said I needed

a higher dose and I told them no I haven't had a fit for 6 years, they insisted and I felt like a zombie so they took me off them without slowly lowering them and I had a fit !!   My first after 6 years !! I was devastated. even though I had them since 14.

Hope you get better and better with each day that passes and any worries or to just give vent,  BTG is the place to be/come.

My Surgeon told me never stress so to stop stressing I sing !! Drives family potty lol and that's when you know you are getting better as the "pampering you" stops ha.  Good luck and keep a smile nearby it really helps xxxxx

All the Best

Winb143 xx

Ta Michelle,

Love to hear about Molly, Verdun and your cake making and of course the Caravan xxxx

It is so easy to be nice when I get so much support even after my major mess ups lol

Love to All of you xxxxxxxx

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BTG = Godsend xxxx