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spinny

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  1. Had my SAH in December 2015. Have just been diagnosed with Trimengal Neuralgia. Have to say that I am not enjoying the Tegretol tablets and they are not yet really working. Think I'm going to try and push my GP for an MRI scan/referral.
  2. Thank you all for your replies. It is comforting to hear your stories and advice. Had been feeling like the old me for three days or so but didn't that come and bite me today!? Heard a dog chasing some of our chickens, ran out of the house in stocking feet, lots of shouting and rushing about. Now I feel completely worn out; resting upstairs snuggled under a throw. Was very upset and cross as we had one killed the other day (found lying in the run surrounded by feathers). First bit of real physical exertion in nearly eight weeks mixed with the shock I suppose.
  3. I feel I should add that self employment is the only reason I am working at all. The downside to the freedom that this can offer, especially when you think you are invincible and don't have any fallback plan in place...
  4. Ah well. Yes, live in UK, in a village with a bus service that's about to be axed. It is so difficult to know *when* you've done too much. Certainly know the day after though! Also, because I look and sound like the old me, I'm finding that people expect me to be like the old me. Learning how to manage other peoples expectations is not something I was banking on!
  5. Thank you for your replies. Off to further research the DVLA. I believed I could drive as soon as was cleared by GP but it was the consultant who told me about six months due to EVD which is clearly stated on the B1 form.
  6. My name is Ruth. I am 48, married with two children, 10 and 6. A bit overweight but otherwise happy and healthy. I suffered my SAH on 2 December. Lying in bed, suddenly my head felt as if someone had dropped a concrete block on it. I turned to my husband and just matter of factly told him to call an ambulance, that I needed to go to hospital. This must have been about 11pm. Hospital notes show that I was admitted at 5.15am on 3 December. In hindsight all the classic symptoms of SAH were present, thunder clap headache, sweating all over (even between my toes, or so it seemed), vomiting and photo phobic. They just didn't take the call seriously. Was it a migraine? Would call back. I was unaware of this, just of the increasing pain and wondering why I wasn't being taken to hospital. When the ambulance did arrive, there was an offer to carry me downstairs over someone's shoulder but I couldn't bear to speak let alone move. They must have given me something intravenously as I do then remember being in the back of the ambulance in a dressing gown instructing my husband to get my mobile and the charger, one of the medics sweetly suggested that I might also need something on my feet. We live between two hospitals. Just as they were about to close the door and set off my husband asked where they were going to take me. Oh, where would you like us to take her? Next thing I remember is being pushed along on a trolley, being told to squeeze someone's hand and asked if I knew where I was. Not knowing which hospital I had been taken to meant I launched into a long and complicated tale (but I now realise it was all part of checking my responses post surgery). I needed an EVD for 12 days. No aneurysm found but consultant believed(s) that extent of beeding indicative of one so have had two angiograms as well as MRIs of skull and spine (back to back MRIs were a hideous experience when so sensitive to noise), ultrasound of kidneys, various CT scans to no avail. They were waiting for spinal pain but thank goodness avoided that and the need for a shunt. Third angiogram was booked for two weeks after my discharge only to be cancelled by the radiologist in the absence of the consultant. Follow up appointment with consultant was therefore a bit of a non-event last week. He wants to push for this third angiogram but it will need to go to group discussion. A few more weeks to wait for answer on this point and then a date for the angiogram (or not). Was also disappointed to learn that use of EVD means no driving for six months. So. That's my tale. Was home in time for Christmas (just as well was still on nimodopine so could play Father Christmas - they would NOT go to sleep...). Did find that initially could not watch TV or have a conversation with more than one person. Could sit at the table for a little while then went back to bed. There were lots of visitors. As my blood pressure was so low (always been rock steady before) had to have nimodopine every two hours for first 12 days. My little Samsung was so useful - iPlayer radio really helped (after first few days) as did a sleepmask and the loan of some noise limiting head phones. Today is first day without any paracetamol. Drinking gallons of water. Self employed online retail so am doing a few hours each day with helpers. Back home for lunch and rest. Collect children from school. Give them their tea. Once husband home have another rest. Children to bed. Supper together then early bed for me. Yes. I am lucky and am sleeping like a baby (have endured years of sleep depravation with the children so was dreading the insomnia) it's a real effort to make myself wake up and go to the loo sometimes. I do now have tinnitus but am focused on getting stronger and feeling fitter before I start to worry about it. I am grateful to be given the opportunity to write this down. It's so strange to be unable to think and process thoughts in the way I used to. Yes. Getting better but aware that still disconnected in many ways. It is also interesting how the brain "tricks" you, seeing words that aren't there or even a toy that on second glance you see is something else altogether.
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