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Jan

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Jan last won the day on July 5 2016

Jan had the most liked content!

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About Jan

  • Rank
    Established Member
  • Birthday 30/04/64

Profile Information

  • Gender
    Female
  • Location
    Congleton, Cheshire
  • Interests
    Sewing (I make collectable teddy bears), gardening and reading

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  1. Many thanks for all your replies, As Lyn wrote its good to know it's not just me. Perhaps we haven't realised our new vocation? "And here is today's weather forecast, brought to you by BTG !!!!!" Jan xx
  2. Hi Sis, That is a great explanation thank you, You've just made it make sense for me ๐Ÿ˜€We didn't get the predicted storm, just lots of rain, my head feels better now๐Ÿ˜€Thank you again. Jan xx
  3. I've read posts on here in the past( can't find them now) relating to Barometer head and just wanted to ask a few questions. . . . My head has felt fuzzy and heavy today. I felt really really tired early afternoon so I had a sleep for an hour on the sofa, I Never sleep in the day.It was sunny and warm here this morning, it's cloudy now and I think we're due thunderstorms around 5pm.could my heavy head be related to the weather? If so, how does my head know that we're due a storm? I know that you can't give any medical advice, I just wanted to hear of other people's experiences/ feelings Thank you for reading Jan xx
  4. Macca Thank you, you've just had me laughing til I cried(happy cry !)Ive checked the kitchen cupboard, got a good stock of bin bags and an image ofJohn dressed like a village idiot, whoops I think you said yokel., just joking, he's only an idiot for putting up with me poor man . On a slightly more serious note Thank you for advice re medication, I will check side effects etc. Macca, you have a unique talent with your advice and humour,It never fails to lift me, Thank you Love Jan xx
  5. Where do I start?!!! Thank you all so much for taking the time and consideration to reply to my post.Because I know that you all understand, your replies have enabled me to 'look from the outside in' and that is a huge help. I think my biggest mistake since leaving hospital has been pretending that everything is ok and that I'm ok. Too much pride? Yes I think so. John and I have never been ones to ask for help, always happy to give it but perhaps too proud to ask for it., I think we asked on a couple of occasions in the early days , it wasn't forthcoming so we didn't bother asking again.. I agree that we should meet up with my sisters for a chat, as you've mentioned above if We don't tell them how do they know? The preparations are coming along re wedding This has caused added pressure My organising skills left me 2 years ago,I feel bad that I've not shown much interest or enthusiasm, I've mostly left it to John ( like he doesn't have enough to do! poor bloke) 2 months to go and I haven't bought a dress yet! I asked him if he'd still marry me if I turned up in my jeans and Tee shirt, Bless him, he said Yes(I think he'd prefer to see me in a dress though!!!) My anger and frustrations are my enemies right now, and throw in a touch of the green eyed monster and lots of tiredness, not the best combination! I am on Anti deps~sertraline., I've insisted that the dose be reduced in readiness for coming off them completely, I know they suit some people but they're not for me. As for an appointment with my GP, please excuse the next sentence. . . . I would be better off having a chat with Alfie (my dog) he has more knowledge and understanding of Sah.,sorry if that came across as very rude. Just reading and re reading all of your replies is helping me more than you know.You are all so generous with your time and advice. Thank you again Love Janxx
  6. It's been 2 years since my Sah and I hate to admit that at the moment it's beaten me into submission. I can't find the energy to fight back, my apathy towards anything and everything is relentless, I have little interest in anything. John and I have spent most of the last fortnight arguing(we don't generally argue) I mean arguing to the point that I'm closing windows so the neighbours don't hear. I know that I've been feeling sorry for myself recently, we have no family support at all, I've tried to talk to my sisters a couple of times but nothing changes. I told one sister on Sunday that I'd told John to leave me an go and find some happiness (I am very very lucky, I know John won't go anywhere, he loves me). I (stupidly) thought that by telling my sisters how bad things are,they might be more understanding of what we go through, not holding my breath. I think that I resent the normality of their lives. Sorry to have moaned Ive just read what Ive typed. I do know that this isn't depression(had that last year) Thank you for reading Any advice, experiences, thoughts gratefully received Jan xx
  7. Hi Kay, welcome to the best source of support and friendship you will come across along your recovery journey. Ive just seen your post regarding the cerebral angiogram and wanted to tell you 'don't worry', mad words I know, we all worry. When I went for mine,I was also told that I may have to stay overnight and ,like you that was the last thing I wanted.. Now, I know all hospitals are different and we are all different. This is not medical advice, just my experience..... I was told that I would be sedated for the procedure so I asked " if I have it done with no sedation can I go home tonight?" Answer was Yes. I felt no pain or discomfort.I had a lovely nurse holding my hand all the time, explaining it all to me and answering my questions( she probably wished I'd been sedated, I can talk for.Britain) Worse part was having to lay flat for 4hours before being allowed home.I hope this perhaps put your mind at ease a little, please let us know how you get on. Take care Jan xx
  8. Michelle, when I met you for the first time last year, I was 1yr post Sah and you were 2yr. You gave me enormous inspiration and the courage to carry on along this horrible bumpy road that we all have to travel . For that I am eternally thankful.You are a very strong lady to whom I aspire can't wait to see you next week๐Ÿ˜€ Love Jan xx
  9. I am completely overwhelmed by all your lovely and kind responses. I am (almost) at a loss for words, That would be a first for Jan who rambles on and on ! You all make me feel loved and understood.Thank you so very very much Sis, you are welcome here anytime, I can't wait to meet you. Michelle, I'll pm you, we're hoping to come up to the Lakes soon Lots of love Jan xx
  10. Two years ago today my whole world was thrown towards the skies with absolutely no warning. My world was shattered into tiny fragments. The pieces, still drift back down even now,some were lost blown away on the summer breeze and many of those that I found don't fit together anymore. I don't think I'll ever stop looking,I want to fit as much back together as I can . The sensible part of me knows it will be a different picture, a different world. And I am still (after 2years) trying to accept that fact. I have learned a lot in two years, I think that I am now gaining the strength to be me I do know for sure that without John and BTG, I wouldn't be where I am now. John is my rock,I love him 'to the moon and back' BTG is my saviour, A massive Thank you to all of you for your support and encouragement and patience with me Love Jan xx
  11. ๐Ÿ˜๐Ÿ˜ƒ๐Ÿ˜€๐Ÿ˜€๐Ÿ˜€ Fantastic xx
  12. Thank you so very much for all your kind words, thoughts and advice,I can't explain how much you all mean to me. Thank you for always being here for me. Jan xx Ps. Macca you did make me smile ๐Ÿ˜€x
  13. Thank you all so much for taking the time to reply to my post.You are the only people with an understanding of how I'm feeling. As I mentioned in a recent post, there is no support or understanding from family. John and I feel very alone at times. Thank goodness we have each other. Without BTG I honestly don't know where e'd be. Louise, I had counselling last year,it did help at the time Paul, I have an appointment with my GP on 13th June, I will be asking for a referral,, mind you, I'm not holding my breath, my surgery don't like spending money and my doctor seems to have little knowledge of Sah. Anyway, today is a new day and the sun is shining Thank you all again. Can we adopt you all as our family? ( I don't moan all the time, I promise, I'll try to find a couple of pics to prove this!!!!) Jan xx
  14. I am very nearly 2years post Sah. I'm experiencing some tearful down days at the moment I think because of the many stories and articles I've read and comments from my physio a while ago,It's kind of hit me this week that where I am now could be as good as it gets and I'm finding that hard to deal with I'll try to explain;I have left side weakness with severe lack of sensation in my hand and numbness in my leg. My physio told me that that is the last thing to regain or that the feeling may never come back.I still do my exercises and balance exercises because my balance isn't too good either.My optician told me that nothing can be done for the homonymous hemianopia. You're probably thinking 'Jan, these people know their stuff so just accept it' Therein lies the problem, I don't want to accept that this is me now. I know that I've come through this a lot better off than many, so why do I find this so difficult to accept? My life changed to the point it is unrecognisable.I need to love this life and start living it. Thing is, I'm not sure how Are these feelings normal? Has anyone else gone through this? Any advice would be great Jan xx
  15. Hi Steve ๐Ÿ˜€I'm glad you're feeling a bit better now, me too. There must be some truth in fish being good for the brain healing!!!! Ive had scampi and chips for tea and feel loads better ! Like you, early night tonight ๐Ÿ˜ฎ๐Ÿ’ค ๐Ÿ˜ฎ๐Ÿ’ค Take care of you Wishing you a fab day tomorrow (Don't overdo it !! ) Love Jan xx