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Lyn

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Everything posted by Lyn

  1. Hi Clara? it’s really early days for you, but things will I’m sure get better. I’m 19 months post nasah & still get my words muddled when I’m tired. If I’m having a conversation & there is background noise I find it hard to concentrate. I was off work for 6 months. On the plus side I finally feel almost back to ‘normal ‘, and very grateful to be here. You take care xx
  2. Hi Linda, I’m sure all of the comments have been a comfort, this site is just amazing ? I had my nasah 19 months ago now, when I was 46. It was a small bleed. I too was discharged with little information-after nothing was found on my angiogram. No follow up checks. I had 6 months off work, now back to my normal part time hours. I’m a full time carer for my daughter , so life is never boring! I still get pressure headaches & the odd pains, but nothing major. I also still get tired much quicker than before, but I’m finally feeling much more like my old self again. I’ve got more energy & general get up & go. It’s definitely a long road, but I’m just glad I’m here to do the journey! Take care of yourself x
  3. I hope you get some answers soon. Only you know what’s ‘normal’ for you & if it’s worse it’s definitely best to get checked. Take care x
  4. Hi, I’m 19 months on after my nasah & still get sudden little pains in different parts of my head? yesterday I had one above my ear, but nothing since.... mine do usually seem to happen when I’m tired, but not always! I have lots of weird sensations I never used to have, but guess I’m getting used to them. If yours keep on or get worse maybe call Doctor to see what he says?? Hope they can put your mind at rest xx
  5. Hey ladies? Blimey, I can't wait! I'm 48 & had nasah last year. No signs of menopause yet, but can't be too far away I guess. Hubby says I'm a nightmare with the pmt, think he might move out when menopause happens!! What we have to go through eh? Tough birds though aren't we?! Take care lovelies ?
  6. Hi all. I get this too. Tight feeling round my head & my neck really aches? We had a huge storm here last night & I felt much better this morning. It's back tonight but not as bad, maybe more storms to come. It's so hard to explain, but good to know it isn't just me! Nite nite zzzzzz
  7. Congrats on 2 years Jan, although I'm sure it feel much longer! Onwards & upwards lovely lady?
  8. Great to hear you've had no after affects from your sah. This is a brilliant place for advice, support & just to vent if you need to! I had an nasah last March & luckily am more or less back to 'normal'. I was off work for 6 months & still get easily tired & head achy. I do worry that it might happen again, but less & less as time goes on. More than ever I'm just so glad to be here & it sure makes you appreciate everything you have & those who are most important to you. Hope you're return to work goes okay & just take it easy ?
  9. Hi Steve, so glad you've found everyone here. It's such a comfort to know others have experienced same/similar feelings. I'm 14 months on from a nasah, which came on very like yours. All I can say is don't try to over do it, your body will let you know when you need a rest. I was back at work after 6 months, but still know when I've done too much, achy head/neck & overwhelming need to sleep. Sending you all good wishes ?
  10. Hi Jan. I know what you mean. It's been almost a year for me & I have been feeling a lot better over the last few months....more energy & sleeping better. But last night from nowhere I got this overwhelming tiredness & achy neck. I was asleep by 8.30! Yesterday wasn't particularly busy so no real reason for it. It's frustrating & does get me down sometimes, but I guess there's nothing for it but to embrace the new us & just hope things continue to get better. Take care?Xx
  11. Congrats Clare. You always sound so upbeat & positive in your posts, but I guess it wasn't always that way! I'm nearly one year on & feel so much better. Hopefully my days will be as full as yours this time next year. Onwards & upwards to us all?
  12. Sounds like your Mum is making amazing progress. She is lucky to have your love & support. Stay strong lovely ?
  13. hi Deb, hope you've had a good nap? hopefully you're sleep pattern will soon improve. I'm now 10 months on from a nasah & the fatigue is finally improving? I know everyone's recovery is different, but as you say we are so very lucky to be here writing this! You take care & keep taking naps, they help so much x
  14. Sophie I hope you've now been to a & e. You cant just wait & see what happens... I had the most painful headache, neck so stiff I couldn't move it. My gp sent me straight to hospital & afterwards told me she'd never seen nasah before. I had ct, mri which showed small bleed. This was finally confirmed by lumbar puncture. I was given Nimpoopine to reduce risk of further bleed. I had angiogram in London hospital & fortunately nothing else was found. You need this peace of mind & know what's happening. Doctors /hospitals can be so frustrating. Only you know how you feel, please get checked out asap...take care x
  15. Hi Deb. Sorry to hear you are struggling at the moment, I hope the headache improved. I too get headaches & tinnitus, which gradually get worse the more tired or stressed I get. My daughter is severely disabled & I'm her full time carer. Sometimes she sleeps well & other times I can be up 2-3 times a night. It can be very draining. Luckily most days I get a break when she's at school, but as you know there's always something to do -especially with Christmas coming up! I have finally realised though that rest is best...you desperately need time for yourself doing whatever relaxes you. My hubby came home early & found me napping the other day & I felt guilty!! Even though i'd been rushing around all day. Its hard to accept we're not the superwomen we used to be, but I think once we learn to accept it the happier we can be. I hope you get a little 'you time' soon & that you all can have a lovely Christmas together. Take care?
  16. Very sad news? Life can be so unfair, especially with someone so young. Truly makes you realise how lucky we are & that life is for living. I hope Nathan is okay, it sounds like the school are doing all they can xx
  17. Hi Brian, you sound very positive & upbeat which I'm sure will speed up your recovery ? I had a nasah in March & have only recently gone back to work. Early on i slept every afternoon, it was such an overwhelming tiredness. I thought I'd be back to work sooner, but have learnt to listen to my body & I know when I've overdone it! For me its an achy neck & a bit of a 'muddly head'. I'm also very lucky to have no lasting affects & be more or less back to 'normal'. But don't underestimate the toll it has taken on your body & make sure you rest! Take care?
  18. Hello Deb. So sorry to hear about your Sah, but glad you found this site so early. Its made a huge difference to me & a comfort to know others have the same/similar experiences. Its 7 months since by nasah, so still early days. But its really early days for you! You really do have to learn to try & put yourself first for a change (easier said than done, I know). My youngest daughter has cerebral palsy & I'm her full time carer & its very easy to fall back into the old routine. Don't get me wrong, I'm back to doing everything again, but I do ask for help now when I need to. And if I cant do everything I don't beat myself up about it. I too have distanced myself from a couple of needy friends. I was always happy to be there & take on others problems, but now not so much. Negative people you don't need! My husband has been really supportive & he's probably sick of me saying I'm tired or got a bit of a headache. But the trouble is because I seem 'back to normal' he can easily convince himself that I'm all better. I really hope that you can have a little respite from the pressures of everyday life, but please ask for help & try to explain how you're feeling. I hope the meal goes well, but I can well remember how daunting it feels to be out in public in the early days. Be strong & as you said onwards & upwards. Take care ?
  19. I guess 'there' is where we were before our 'episodes'. When I was first out & about & would see people I know, they'd look at me as if they'd seen a ghost! Didn't expect me to be able to walk, let alone be out. Or they'd ask if I needed to sit down/have a rest. And they'd often look at my head when asking how I was, not sure what they were expecting to see.... I know I'm so lucky to have more or less fully recovered, but on the other hand its hard for others to understand the overwhelming tiredness I sometimes feel & I always seem to be saying ' I've got a bit of a headache'. I think my 'there' now is having a good day, no headache & little tiredness. Just being able to enjoy life to the fullest.
  20. So many positive comments ? I've just gone back to my job as a Teaching Assistant in Year 2. I did a short phased return, but only work part time. Its great to be back & all my colleagues have been really supportive. An experience like this certainly does make you realise who & what are important in life. I'm getting remarried to my ex husband next year❤ we'd been back together a long time, but marriage didn't seem that important before. A move isn't on the cards, but hopefully travelling & visiting new places is. I'm just so grateful to be here, I want to make the most of every day. Be happy everyone ?
  21. Morning ? what a frustrating time for you. But I truly believe that everything happens for a reason(even hospital cancellations)! I'm sure its no good telling you not to worry, but it sounds as if you're in the best hands. I hope the next few weeks are also relatively pain free & that all goes to plan on the 31st. Big hug to you? xx
  22. I had my nasah in March & have more or less fully recovered. I went to a club a few weeks ago for my daughters 19th birthday. I was fine with the loud music & all the while I was with people I knew. But my hubby went to get our coats & i all of a sudden panicked as i lost sight of our friends. I was so relieved when he came back? Also I've recently gone back to work in a school. I've settled back in & everyone has been lovely. But sometimes in the staff room when several conversations are happening at once, i find it really overwhelming & hard to concentrate. I never had anxiety /panic attacks before, but i guess its something i have to deal with.
  23. Hi, this was my experience - I'd had a pretty stressful week, was tired. I remember getting my words muddled the day before it happened. I had a nagging headache all day (just usual end of week tiredness I thought). Was talking on phone at home on the Friday evening, suddenly had shooting pain in back of my head & my neck stiffened up. Had to lay down. Was in tears from the intense pain. Started being sick, couldn't stand the light. Just thought it could be a migraine, as the pain eased a little over next day or so. My hubby thought it was something more & convinced me to get a doctors appointment. By the time I went 3 days later I couldn't move my head without feeling I might pass out. Doctor sent me straight to a & e. Spent 4 days in assessment unit, started taking Nimpodopine on day 2. Had ct scan - not conclusive, mri showed small bleed at back of head. 3 very painful attempts at lumbar puncture finally confirmed bleed. Transferred to Kings College in London. Had angiogram, weirdest experience ever. But thank God nothing else found. Sent home after 2 days 'to live my life as normal '. ?
  24. Thank you? and the sun is shining! I've got another infection, got antibiotic ear drops. She said hopefully the ringing is worse due to infection & will improve. Hey ho, onwards & upwards.
  25. thank you, I will join you soon! I'm usually so positive & happy, but sometimes its just overwhelming. Hubby asked if I was okay & I just burst into tears! I've got Doc app today to check my sore/ringing ears. See what he says....
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