GemmaL

Thanks, has anyone out there been left with a residual aneurysm and what were you adviced? thanks

Please help if you can. Is there anyone on here who has experience in residual aneurysm after subarachnoid haemorrhage with clipping as treatment. My mother had a grade 5 SAH with serious vasospasm and hydrocephalus 3 months ago was in a coma and on life support and told she wouldn't make it! Well she proved everyone wrong and has done amazingly! She was home, (after just a month) and is walking, talking and living fairly independently, with just memory, fatigue and mild confusion issues. However after an angiogram yesterday we have now been told that 3mm of one of her aneurysms have been left behind... We don't know yet what they will do about it or how worried we should be... has anyone had a similar issue? also she was flying to Cyprus for my wedding in August (5 months post SAH as she is well enough in herself for the trip) but now I don't know if this has risks? please help thank you xxx

Thank you all so much for coming back to me! I didn't expect such a response. I feel this site will be very helpful for my mum in the future. We have had conflicting advice from doctors about travel so I guess that we will have to just go with what her actual consultant that operated says in a months time. It's very difficult to know what to do about the wedding as so much money has gone into it and 80 people have booked flights and hotels to be there with us, but I can't get married without my mum there. I think I might plan a small ceremony here prior to the wedding as a back up plan if mum isn't well enough . Was any of you told that there was a risk to fly? Is there anyone with serious fatigue and short term memory problems/ sequencing problems post SAH that can tell me what the recovery was like...? Thanks again you have all been so hopefully and I've found the stories I've already read very interesting, informative and reassuring. Gemma x

Thanks for your reply Sharon it's really appreciated and interesting to hear how others have recovered. I plan to get my mum on this site also when she is well enough. Right now cognitively speaking this would be too much for her to absorb. My mums fatigue is awful but she has no leg pain and minimal headaches. It's reassuring to know you flew just 2 months after SAH from aneurysm as the wedding will be over 5 months post SAH. One consultant said 3 months, another said the heat isn't ideal.... it's such a scary call to make! It's an all inclusive beach holiday so hopefully wouldn't be too strenuous. My Dad in particular is really concerned about the flying. Will be nice to hopefully hear what others experiences/ advice on flying was okay SAH. Did you have any memory issues? thanks Gemma

Hi, Im Gemma and I'd like to tell you my mother's story and ask some advice from anyone out there who can relate. my mum had her SAH 6 weeks ago (7/3/17) My mum is 50, very fit, non smoker. She found out she had an aneurysm 8 years ago, as it was small she was advised to just have it monitored each year and was told it wasn't at risk from rupture. She had a seizure and went into a comma 3 minutes after the headache and sickness started. Her SAH was graded as 5 (highest grade) as she was in a comma with GCS 3 on admission and did not regain any consciousness for 4 days. scan showed 2 aneurysms, the new one (de novo aneurysm) was the one which had ruptured. She was put on life support to see if swelling would go down in her brain and 24 hours post admission coiling of the aneurysm via angiogram was attempted but unsuccessful. Clipping of the two aneurysms were later successful via craniotomy. Mum was in a comma on full ventilation for 4 days. She came round and was able to move all limbs and respond to simple commands. However on day 8 she suffered serverly from vasospasm causing her to become unconscious (GCS 5) and loose movement in her left side, triple H method was not enough to control the spasms even with her BP being maintained at 220 systolic so she underwent a chemical angioplasty. The spasms continued in a milder form up to day 20 when she was finally weaned off of noradrenaline. She also suffered badly with hydrocephalus (excess CSF/ brain not absorbing CSF) so she had to have her EVD (drain) in place for 20 days after surgery, She spent 3 weeks in neuro critical care and a further week on a neuro ward. she was released home with a carer. amazingly my mum is up, walking, talking, with only a 2% left side weakness remaining. Her only symptoms are extreme tiredness and substantial loss of short term memory/ lost ability to process/ sequence in the way she use to and moderate confusion. she has amazed everyone. She has no memory of the 2 weeks prior to her SAH or anything about the ICU My questions are has anyone experienced anything similar? What was your cognitive recovery like? I am meant to be getting married in Cyprus in 4 months (5.5 months post SAH) from me in the UK it's a 4.5 hour flight and it will be very hot this time of year. Do you think there is a risk of rebleed or any other complication from the flight or heat? Thanks in advance Gemma