I had a SAH on the right side of my brain 2 months ago. With a 100% blockage on the left side . This has been the worst nightmare.
At least I am still alive, but the pain I continue to have is unbearable. Not only the migraines, but different pain in my legs and arms.
No one seems to be especially concerned with the pain I am in. After the first angiogram in the hospital, they kept me in neuro ICU for 5 days. I had a second angiogram a 2 weeks after. The neurosurgeon said he wants to put in a stent and that he thinks this needs to happen sooner than later. 2 weeks later we go to an appointment, he states he wants to put me on Plavix, then he will schedule the angioplasty.
I return a month later with no further tests and he tells me he is not doing the angioplasty (with no real explanation). The brain spasms(vasospasm) kept for about a month. I think I still have them. Best way to describe is squishy head. I have episodes where I lose balance, my vision will have a vibration effect, bursts of white stars where I almost fall.
I take 10mg of Norco and the pain still will not go away. However, the neurosurgeon said the migraines have nothing to do with with the SAH and gave me Fioricet ( which does not work). I had migraines before, but nothing like this. Not to mention, these are WAY different than any migraine prior.
I can't work full-time. I am so sensitive to all light, especially the sun. I cannot look at my computer at work for more the 4-5 hours. I sit in my home after work crying half the time. I am scared to do anything strenuous or exciting, bending over hurts my brain(blood rushing), being outside in full sun hurts my eyes(even with sunglasses on). I have had about a total of a week relief(combined days) in 2 months from migraines.
Hopefully, this new neurology appointment June 1st will come up with a treatment plan. Can anyone help with any suggestions?