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ToriC

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About ToriC

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  1. Thank you so much for your kind words. She is now on a ward-she has been there for 3 days now and already looks better. It's so light and airy there and she shares the room with 3 other ladies so a lot more "normal". She has been responding more and staying awake for longer spells. When she was awake I did show her a picture of my dog (who she adores) and she recognised him and mouthed his name-it brought a tear to my eye!! She also said "no" and "yes" to the neuros this morning so they now know that I am not lying to them when I say she responds. She is in such an amazing hospital-I cannot fault the North Staffs hospital...amazing people!! More physio tomorrow and a possible shunt next week! X
  2. Good news is is that she is going to a neuro ward now!! As soon as there is a bed for her 👍👍. She has responded to the neuros the last too days-when they say her name she opens her eyes. She has been in the chair for 2.5 hours today and has been out in it each day since Friday. When she is awake she nods and shakes her head when you ask her questions...she also mouths yes and no and looks like she is teittering one but I cannot lip read. She has also been breathing completely for her self for the past 2 days. They will therefore but a speech valve on her trachy in the next day or 2. She sleeps a lot!! Xxx
  3. Hi all my Mum is now nodding and opening her eyes to response. She mouths "yes" and "no" and mouths things that I don't know what she is saying. She is also reacting more to pain. She isn't doing all the mentioned improvements all the time, bit she is more often each day. The physios have hoisted her into a chair a couple of times and we got to take her outside. When they did some exercises with her, she held her own head up-it was amazing to see!! She has been on the trachy mask for 16 hours yesterday so could be ventilator free this week!! She will be able to talk when she is trachy free hopefully. I just hope she improves from here...the drs are still monitoring her with EEGs but they are still saying minimal brain activity is showing when she is improving so much?! Maybe I just take the EEG with a pinch of salt?
  4. Hi all thank you again for your kind words. We have made a bit of progress over the last couple of days. She has only been doing trachy mask trials for the past 2 days and ended up doing 7 hours on it today. She was also showing sleep/wake cycles...when you caught her in her awake state she would open her eyes and mouth words-she even cried today. But then she drifts off into unconciousness again... she also nods and says "yes". The physios have had her sat at the end of the bed-fully supported obviously but it's a start. The neuros say she still has some swelling of the brain so as that goes down her consciousness should improve. I will be back to see her in the morning. Xxx
  5. Thank you both so much for your replies. I have put music onto an I pod for her with some of her favourite artists, so she is listening to that. I go in the morning and my brother goes in the evening... Today she has had lifted and moved her left arm a few times-this is the first time I have seen this since she got Ventriculitis. And she has moved her head from side to side and reacted when I said "Mum, open your eyes". She was really trying and frowning a lot. I am hoping we are getting back to what we had before the infection and then can build on this. She is a very strong woman and I am sure she is thinking about being at my wedding next Summer. Xx
  6. Hi all i am new to the group. My name is Tori and my Mum, Pat, has been in ICU 5 weeks today. 5 weeks ago my Mum collapsed with the worst headache, her voice went slurry and she quickly lost consciousness. She was rushed into her local hospital where she had a CT scan, which confirmed a huge bleed in her brain. She was then blue lighted to a fantastic neuro team 30 mins up the road, where she was straight into brain surgery. This surgery was to insert a drain (EVD) into her brain to relieve a huge amount of pressure and blood. The neuros said that she may not make the night and the bleeding was grade 4-5. Anyhow she came off the ventilator the next day but did not really wake. By the next day she had moved her arms a little and said yes and no. Then she went for surgery to have 1 ruptured and 1 unruptured anuerysm coiledit took 6 hours. By the weekend she was back on the ventilator and sedated due to seizure activity detected-could have been from the coiling and swelling etc. Then after 3 days on sedation and lots of seizure meds, she was weaned off it and she was left to wake up but still ventilated. She was very intermittent with commands and sometimes would stick her tongue out for the nurses, and sometime wouldn't etc. Her breathing was good as the ventilator was assisiting her rather than completely breathing for her-she then went for surgery for a tracheostomy. She then made more improvements with pain reactions and some eye opening, and told one of the nurses she was ok one night. She nodded at me a few times too and was moving her head around etc. Then she had to go back to surgery to have the drain realigned as it had migrated. This was 3 weeks in to her ICU stay...then 2 days after the drain realignment infection hit! Her temp sored and so did her heart rate...she was shaking uncontrolebly. Therefore sedation was the only answer so she then spent 10 days in and out of heavy sedation so that the infection could be treated. The infection was in CSF and Ventriculitis set in. At the weekend the sedation was finally lifted successfully with no soring Heartrate or temp. She now has daily lumber punctures and the drain has been removed (it was harbouring infection). Her opening pressure is getting better so I'm hoping her ventricles will get smaller and the CSF is no longer growing bugs. Since being off all the sedation 2 days ago she hasn't really done anything-her eyes open when she is turned and they open when she coughs. But her body is now very still. I'm really hoping that the sedation is just taking its time to go and that the Ventriculitis could be holding things back. I'm just looking for experiences really and hoping that 5 weeks is still very early days???