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Lynsey Vaughan

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About Lynsey Vaughan

  • Birthday 25/05/1977

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    Take on Take That, Peter Gabriel

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  1. Hi Mary, MME stands for myalgic encephalomyelitis. Myalgic means muscle aches or pains. Encephalomyelitis means inflammation of the brain and spinal cord. It's often called chronic fatigue syndrome even though it's not just tiredness, I think a lot of people think they have it as get excessive tiredness,but you get lads of other symptoms, which is what I had first. It was 3 years before diagnosed as doctors and even I thought it was to do with my sah, it was another person with Me that recognised signs. My friend had fibromylgsia and I do understand how hard it can be,my thoughts are with u x e is
  2. I think it might be an ME relapse that maybe I had awhile ago but as normal I ignored symptoms and have carried on normally and think my body has thought 'well you ignored me gently telling you, try this then' and stopped working! But I know it sounds weird maybe, but I love my life. I was 15 when San happened,& I've been left with problems, have Carers but my life's great. I have a brilliant family and man of 10 years, great friends and even though Ive been signed off work at the moment I help at my local hospice, teach them how to make jewellery & cards. I started making them as a hobby and people buy them as gifts and I've raised nearly £200. That's why I don't want to really speak to doctors as I was in anti depressants for years and I'm worried they will again, it took me ages to get off them and I am not depressed, just have no up and go,even though I know I have loads to do. But I do thank you all for your kind comments , it's great to have apace we can chat openly, people not only care, they understand x
  3. Also, warm olive oil,dropped in ear at night, then cotton wool put in as a plug can help
  4. Hi Donna, I was 15 when I'll, I'm 34 now. I still suffer sickness several times a week, and because of eyesight/ balance I feel dizzy/ nauseous often. But the main thing I can never get used. To is that if me and my partner have a cold/bug/infection I get it several tiimes worse. Ear infections can bed me, as my body fels like its going to break. I always say how can you explain to others how you feel,when you can't explain it yourself. So what you are going through is normal. When bad I rest but make sure you get some fresh air, make sure you drink a lot. Also I find that arneca massage oil is great for aches, and the gel cool patches help on my head,but Anne of neck as well. Also use tiger balm a lot as well x hope u feel better soon
  5. Hi thanks for quick reply. I am seeing my neurologist at the end of the month, I'll talk to her then, but after dealing with so many doctors over the years I know they will say 'it's usual' as they can't really answer, every case is different and they are only really trained generally. It took a lot to write on here but I know the best people to ask are the ones that have been through it. My confusion is that I never had these pains and discomfort years ago, I don't know why I have it now, and why I s'more tired now then I was years ago, maybe I should accept I am 'special' as my mum says hehehehe. I always keep smiling. I believe if you accept that you won't get better, you won't. I never give up and always think, I have make up to cover my bruises when I stumble lol x thanks again
  6. Hi, I have never wrote about myself before but I reaLy do need some advice. I had a haemorrhage in 1992, told I was ever going to walk again, paralysed down right side.nearly 20 years on I am walking & lead a good life. I have a weakness on right side of body, but can walk. I have a balance problem, double vision, nystagmus & the memory problems etc most tend to have. I was recently diagnosed with osteopenia. Apparantly because of the steroids I had to take after my illness, this caused this. I was also diagnosed several ears ago with ME. I do have some medication to take several times a day. My question is, I was getting on ok, but over the last year I have really gone down hill. My legs are really ad, ache a lot and I get bad pain in kness. But this is nothing to do with the osteopenia. I also am getting very very tired, have no energy. I have also suffered with feelings, well the lack of them. Is it possible to have new problems years after a injury? I'm 34 and really ate spending most of the day resting, I do one thing and that's me gone for the day. I can't remember what it was like to go out in the evening. I recently went to a funeral and spent two days after recovering. Please can someone help? My B vitamin level is fine, I take some supplements to help.
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