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Found 2 results

  1. Hi all, this forum has been the most helpful in everyone's kind sharing of information and experiences for me to better understand what actually happened to me. The emergency care was amazing, (UK resident) but feel like there is minimal follow up support and just left to find own way with symptoms and management after discharge. I feel so lucky with having a bleed without the anneurysm - although there was an extensive bleed, no cause found. I had 3 lumbar punctures for pressure management and was restarted briefly on nimodopine for vasospasm during my 2 week inpatient stay. I think I am recovering really well but having major sleep issues. I have developed ongoing issues with jerking limbs everytime I fall off to sleep that start with a single limb - usually an arm/leg but progresses to all my limbs and sometimes feels up my back and neck too. Then the affected part feels all tingly for a bit. It doesn't hurt, but they can be quite powerful. I don't actually have an issue with wanting and falling asleep but he jerks wake me up every time. I often can't finally get to full sleep until around 4am. So this impacts on everything else the next day. It also makes my tolerance for frustration and petty annoyances at an all time low - yikes! I have been practising all the good sleep hygiene advice and over the counter antihistamines and chamomile teas etc. I have noticed that if I drink a glass or two of wine I actually sleep better, but don't want to end up medicating this way. It is really difficult to speak to a GP and the neuro nurse has told me I am discharged from her service and these symptoms aren't from the SAH just coincidental timing. Has anyone else had issues with their sleep and managed to resolve them? Thank you for taking time to read this, wishing every single one of you positive vibes and the very best in your recovery.
  2. The University of Surrey are looking for volunteers to take part in research. If you experienced your first SAH/stroke in the last five years, but have not had a SAH/stroke within the last 12 months, we would like to invite you to take part in a new study. We would like you to tell us about your quality of sleep, and whether you feel it has changed since your SAH/stroke. So what does the study involve? We will ask you to complete a set of questionnaires about your experience of sleep and your quality of life. All responses will be kept anonymous. All participants must be over the age of 18. To take part, please follow this link: http://surveys.fahs.surrey.ac.uk/changes_in_sleep/ To ask for further information, please contact Sophie Light via email at: sl00223@surrey.ac.uk This project is run under supervision of Professor A. Sterr at the University of Surrey. This project starts from the 17/02/2015 and ends on the 05/05/2015. Thank you for your help. (Posted with permission from Admin)
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