Jump to content

Search the Community

Showing results for tags 'aneurysmal'.

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


Forums

  • Subarachnoid Haemorrhage/Stroke Discussion
    • Subarachnoid Haemorrhage Discussion
    • Non-Aneurysm SAH or Perimesencephalic SAH
    • Stroke Discussion
    • Carers Support
    • Untreated/Unruptured Cerebral Aneurysms
    • SAH/Stroke Anniversaries
    • Cerebral AVM's - Arteriovenous Malformations
    • Your Story
  • General Discussion
    • Advice & Tips/Healthy Living/Benefits
    • Introduce Yourself
    • Driving After SAH

Categories

  • Articles
    • Forum Integration
    • Frontpage
  • Pages
  • Miscellaneous
    • Databases
    • Templates
    • Media
  • Useful Websites
  • SAH Info
  • Your Story
  • General
  • Inspiration

Calendars

There are no results to display.

Categories

There are no results to display.

Blogs

There are no results to display.


Find results in...

Find results that contain...


Date Created

  • Start

    End


Last Updated

  • Start

    End


Filter by number of...

Joined

  • Start

    End


Group


Jabber


Skype


AIM


Yahoo


ICQ


Website URL


MSN


Interests


Location


Biography


Location


Interests


Occupation


SAH/Stroke Date

Found 1 result

  1. Hello everyone. I'm Cassandra, I'm in my 50s, and I collapsed at work in June 2015 with a sub-arachnoid haemorrhage due to a ruptured aneurysm. The aneurysm formed at the site of a really small AVM on the right hand Anterior Inferior Cerebral Artery in my brain stem - an area of the brain one of my specialists describes as 'eloquent', meaning it was a sort of 'Grand Central Station' that basically ran my entire life. For 4-6 weeks prior to the SAH, I experienced a range of symptoms that could well have been related: double vision, dizzy spells, stabbing pains up the back of the head, a regular, rhythmic sound in my head and excessive fatigue and exhaustion. I was referred to a cardiac specialist by my GP but my SAH intervened! I had the aneurysm embolised during angiography, but from what I understand both cranial nerves # 7 and 8 (facial and vestibulocochlear nerves) were damaged through interrupted blood supply and the procedure. I had a 'tiny stroke' which contributed to mild and temporary facial palsy which has pretty well 100% gone away. I have no memory of the first 6 weeks, but I'm told that it was a miraculous recovery from a huge bleed and that I had no vasospasms. I did have hydrocephalus so got a VP shunt (the non-adjustable type which just uses pressure to modulate the flow). Sixteen months after the event, after steady incremental improvement I am mobile and can lead about a 75% normal life. I can't drive or work. The biggest issue i have (aside from the almost constant fatigue) is the continuous chronic feeling of numbness, congestion, heaviness and pressure in my head - largely on the right side. This is the one thing that makes me say ‘I can’t live like this’. My anti-depressant is helping me manage it short term to medium term, but long term, if there is no change, it stands in the way of what could be close to a 100% recovery. None of the four specialists who have handled my case have offered a useful or helpful prognosis or explanation for what is causing this numbness, congestion, heaviness and pressure, and I don’t think waiting to see if it improves over time is satisfactory. I can't help thinking that three years down the track, with no change, a specialist will finally pay attention and say, Oh, let's have a closer look.... I'd rather look now! My husband has done some research and I have found that there appears to be a connection between ongoing neural inflammation and ‘foggy brain’ and a significant ‘double-edge sword’ role played by activated microglia on inflammation I found two papers that support this but no-one in the medical field was impressed.. Norman Doidge, author of The Brain That Changes Itself and, more recently and relevantly, The Brain’s Way of Healing” talks about the role of the glia cells and, importantly, the production of toxic cytokines. He makes a strong case for positively influencing how the brain handles this activity - and others - through laser light treatment. I tried weekly treatments for 3 months, but at $70 a pop it was becoming a bit of a financial drain. Anyway, I've followed this forum for a while and with the help of my husband have signed up, and am hoping to get some insights from others!
×
×
  • Create New...