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Showing results for tags 'haemorrhage'.
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It doesn’t seem possible that I sit here 10 years on and can survey where I am now. Not that I have a direct comparison from that day as I have no memory of events for a good few days after my aneurism let go , it was not until I left the ICU and moved to HDU and wondered what on earth was all the kit around me for that I have any memory at all and they aren’t that nice. I pulled my ventricular drain out , my catheter, cannula, I mean they were just an annoyance! Those days though are far in the rear view now but for some reading they may be very present and reality and so just know healing is NOT confined to the first two years, regains continue , you learn more, but just don’t try and rush it faster than your brain is telling you it wants to go. Trust me in that if you learn your warning lights and heed them then you’ll gain confidence and move forward. There’s no going back, getting back, it’s all about what’s possible from here. stay curious. https://popgoestifty.blogspot.com/2022/03/lowering-curtain.html
- 15 replies
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- 11
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- subarachnoid
- haemorrhage
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I’m so pleased to have landed on this group and to be able to read about similar experiences. I suffered a non aneurysmal perimesencephalic subarachnoid haemorrhage three weeks ago - massive sudden onset of headache and neck spasm - radiating from base of skull at the back round to temples. Went to local small emergency unit who referred to bigger A and E dept. CT scan showed no bleeds (apparently) and since I was fine other than neck pain and rushing pulsing headache, I was given diazepam and told I could choose to go home (after 9 hrs in A&E waiting room or wait there overnight for a lumbar puncture as a double check but there were no beds anyway). Went home. Headaches continued and on getting up had strange aches in lower back and down tops of back of legs. Back to A&E for another 12 hrs in the waiting room until finally got admitted onto a ward. Lumbar puncture next day. Results the following day indicated bleed. Given Nimodipine and ambulanced to neurosurgery at St George’s South London. Review of the original CT scan was determined to have shown small bleed so confirmed with CT angiography. I was pretty well throughout except for stiff neck and headaches, and weird feeling at the base of my spine on getting up to walk which was always simultaneous with rush and ‘swimmyness’ at back of head that then settled after a minute or two. I’ve always suffered with bad neck though for last 15 yrs. I’m ‘ok’ three weeks on but what’s worrying me is that although the neurosurgeon and reports I’ve read say this NAPSAH doesn’t recurr, I actually had three instances of that exact same phenomenonal headache, like being hit across the back of the head and then rushing and radiating round, prior to this recent one. I didn’t seek medical attention previously because I thought it was neck spasm and it did go after an hour or two with anti-inflammatory painkillers. All 4 occasions were during same kind of intimacy and they weren’t consecutive but all within last 6 months. Neurosurgeons say the former three were most likely unrelated to a bleed. I wondered if anyone else has suspected that they’d had more than one episode? And also around the time of the earlier episodes I also developed a constant buzzing tinnitus. Wow. I do sound like such a moaner, especially as others have obviously suffered more lasting effects, but it’s all been a bit scary recently. -
Hi there I am now 10 days out of hospital after having a brain bleed which resulted in a clot which they are hoping will absorb itself. I had an angiogram and MRI during my two week stay in hospital, as well as having an EVD draining fluid for 6 days. The consultant could not find an aneurysm on the first scan and I have to go back for another MRI and angiogram in 3 weeks - I have just turned 34 three days ago. I am terrified. I have a one year old and a four year old and am finding I have good days and bad days but the sickness is getting unbearable! I am on Cyclizine but if I dont take it I can be so sick. Is this normal three weeks post op?? Am very scared and worried. Why has this happened! Thanks Jo -
Please go easy, this is my first post, might be in the wrong section, sorry if it is, might offend some, sorry if it does, no intention to, just need some help, I am wanting to know how other people with SAH Haemorrhage are suffering, I want to know if what is happening to me is normal. Mobility Issues (starting to get worse) Leg Pains Left hand shakes a lot Body Convulsions Depression Headaches General pain Hearing Stuff Seeing Stuff Smelling Stuff Throwing Drinks over myself(or food) Incontinence at times (Urinaly) through not being able to get there on time I spoke to my doctor about him sectioning me, he said the fact that I asked about it shows I do not need sectioning. But I can not cook, taking care of peronal care can take in excess of an hour, I can not work, I can not walk my dogs, everyone wants me to give up smoking (a contributing factor rather than the cause of my SAH) but how can I with all this going on. I have really bad thoughts, but I would never act on them I feel it is a selfish thing to do (just my opinion, please do not judge me on this). My doctor has been great and it seems now like help is starting to trickle through, just had our first financial problem, think we have 2 more months before our lives fall apart in that way. Had my SAH aged 34 on the 1st of feb, 1 week in intensive care, 4 weeks in a ward, I was walking around, my only issue was pain, now look at the list. Yesterday, I was walking on frogs (seeing stuff) Smelling toffee apples, my dog I kept thinking was dying, I kept letting my cat in but it kept getting back outside, no windows or doors open. I suppose I was hoping to hear about how other people have attached things to their SAH and not feel like I am going nuts, even though I sort of am, lol Cheers to those that can help me. -
Hey everyone, So on 02/03/2012 I had a brain haemorrhage due to an AVM in brain (which I had no idea about). It was too deep inside my brain to operate on without causing some serious damage, so later I discovered they could do gamma knife surgery so the veins will swell up over 2-5 years. I was in the second year of university at the time and I've repeated it since with my marks intact. Now exams are coming up and I'm not sure if I'm ready. But it's been a whole year since it happened so I don't know if I'm being lazy/a wuss or I still can't go back. Also the problem is that even if I repeat again there's no telling if I will be able to go back after another year. So, what's you're opinion on the subject? Also if you could tell me what your recovery times have been like then that would be great.
