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Hello everyone. I'm Blue, 49 years old from Maryland USA. I had sah on September 1st 2016. I was at work,near the end of the day. Im a legal assistant,and was on the phone with a client when I suddenly felt the world going gray. I had sah of anterior communicating artery,and a minor ischemic stroke during coiling. I feel very fortunate to have survived,and so far,I've made a great deal of progress in recovery. This site has been a wealth of information,and inspiring to see so many survivors helping others.
Thebelleoftheball posted a topic in Introduce YourselfHi, all. My name is Jade, & I am new to all this, so please bear with me if I'm not doing this correctly. So, here is the background of the situation that brings me here: Right now, my boyfriend & the love of my life (his name is Todd, & he is 45) is in the ICU at a hospital 2 1/2 hours away from me. He suffered an SAH on Sunday, April 10, in the evening, while he was in the shower. I did not know what had happened until the next day (Monday) evening, when I called him after work & he told me he felt very sick (had gotten awful headache, vomited, had neck pain, etc.), & had been sleeping on & off since it happened. I urged him to go to the urgent care center by him, & he said he was feeling better, but would call the doctor the next day (Tuesday). He did, & scheduled an appointment for Wednesday. Late afternoon Wednesday, he texted me to tell me the doctor thought he had meningitis, or a brain aneurysm. I figured, surely, if it were an aneurysm, he'd have been sent to the emergency room. He told me a CT scan was planned for Thursday, but that he wasn't sure what time it would be. I received a phone call & voicemail from him Thursday morning (I was still asleep), telling me he was in quarantine in the ER for meningitis. I immediately called him, & was able to speak with him briefly. Later that afternoon, a phone call from his mother informed me that he'd had an aneurysm, & was in surgery for a coiling procedure. I immediately broke down, of course. She called later Thursday evening to tell me his surgery had been successful, & that he'd woken up & was able to speak. I was overjoyed that he came through surgery successfully, & told her I would be headed to hospital to see him Friday after work. When I arrived Friday, he seemed to be doing well, considering he was only a day removed from surgery. He was talking, smiling, able to open his eyes, move his arms & legs, & only seemed groggy/sleepy. They let me stay with him past midnight, & he seemed to be doing well when I left. Saturday was much more difficult- the occupational therapist asked him questions, & he struggled greatly with remembering the answers, & also, w/ his words in general. They told us his blood pressure must be kept high, to avoid "vasospasming". When his lunch arrived, he ate every last bit of it, which delighted me to see he had an appetite. He then became very sleepy (to the point his mother & I could not wake him), although he did kiss me goodbye & say, "I love you", before I had to leave to head home. Yesterday (Sunday, so one week after his SAH occurred), his mother told me he seemed to be doing better, but that they were still concerned about the risk of vasospasming, & were trying to adjust his fluids, salts, etc. accordingly. I called the hospital this morning to learn from the nurses that he'd required a procedure for the vasospasms late last night, was on a ventilator, & would be having a second procedure this morning. When I asked his mother a few hours later how he seemed, she said he was very sleepy prior to the second procedure, & that they'd made him fully unconscious. She told me the doctor said they'd do the procedure (again, I'm still not exactly sure what it is they're doing) as many times as necessary to stop the vasospasms, but from what she gathered, the doctor was indicating that my boyfriend is still remaining very strong through all this. As someone who is geographically removed from her loved one during a terrifying event, I am asking anyone to please give me any advice/information you may have about this situation, based on your experience during your/your loved one's SAH & recovery. Is it normal for me to feel more afraid than I ever have over these vasospasms?? I was so thankful & filled with joy that he survived the SAH, seemed to be cogent afterward, & seemed to be doing well after his coiling procedure, but this vasospasming has me in a panicked, sobbing frenzy. I cannot stop scavenging the Internet trying to find evidence that vasospasming does not necessarily mean fatality or permanent impairment. Please, if you can, help me understand the impact of vasospasming, & share your positive outcomes with me- I'm really, really scared for my boyfriend. Thank you all for reading this, I know it was a lot.