Welcome, Guest!

By registering with us, you'll be able to discuss, share and private message with other members of our community.
Titanium

New member intro: Titanium

5 posts in this topic

Hi - I've used Titanium as my 'stage name' as, along with platinum, it's one of the sturdiest metals and that's why it's often used to decorate (aka repair) our brains.

 

Firstly if you're a fellow SAH survivor reading this I want you to pat yourself on the back as the quoted SAH death rates vary from 45% to 80% within a month, combine that with the fact there are only 8-10k cases in the UK every year so some GPs only have one patient during their whole career then I think we're doing well! Especially when people hear you've had a brain haemorrhage they always have a tale of a relative or friend who had one too but they weren't lucky enough to wake up again.

 

I had my first SAH in August 2010 (no headache previous to it) - I was walking on a treadmill at the time so have realised that I shouldn't believe what they say - exercise is actually bad for you! The SAH was clipped and I went through the learning curve pretty quickly as I run my own business so had to be on the ball to pay my staff wages at the end of the month. Part of me wanted to be able to be at home to do a proper recovery but the other part of me knew that I could do that for a long time but going back to work would still exhaust me whenever it happened and by having to use my brain it got it back into the groove quicker. As I was only 38 at the time I knew I was lucky in that youth was on my side.

 

I had my second SAH on Friday 13th (previously my lucky date) in 2015 - again with no headache prior and literally just heading off to work. This time they looked to see if they could coil and they were able to so I avoided having hair like a nest this time. Within 8 weeks afterwards I had a large seizure (again no warning and hadn't had one prior) but fortunately the ambulance arrived quickly and gave me an oxygen fix - since then I've been on Keppra although it's questionable as it delays brain recovery (anti-cholinergic drug).

 

I have had 2 cerebral angiograms since and have refused to have another one moving forward. The last time something happened in my brain that the neurosurgeons haven't heard of before so given the high risk I don't think my brain will entertain it again whilst I'm awake (plus they damaged the femoral nerve artery so it was mega painkillers and unable to walk for a week).

 

They discovered I need more metal in the second SAH by it hasn't grown since the previous CA and I now have a third unruptured aneurysm but we're just leaving it until next year - I've done a comparative on the last 2 CAs and it hasn't grown significantly so it's safer to leave it be methinks. (Especially as I'm reading 'Do No Harm' by Henry Marsh - an insight into the world of neurosurgeons (humorous in some places and a wake-up call in others). 

 

So, that's the harbinger of doom part written. 

 

Do I lament my misfortune and wrap myself in cotton wool?

Absolutely not. Every day when I wake I smile because I've woken up on the right side of the grass; when I'm tired as I've been working on a screen all day then I put music on and do silly dances; I laugh internally when I express my opinions knowing that I don't really have many brain barriers now so that's my get out of jail card; I can't drive so I see and hear the tapestry of life when travelling on public transport and I appreciate everything around me when I'm on foot. I'm not married and I don't have children (as far as I know) - it's just me, myself and I but the three of us seem to be titanium when it comes to coping with these brain hiccups.

 

So, in the grand scheme of things I think I'm actually quite lucky and long may the luck prosper!

 

Sarah

SAH August 2010 - clipped; SAH March 2015 - coiled

6 people like this

Share this post


Link to post
Share on other sites

Well written Sarah. xx

 

And I think I have it bad as feeling tired, it is good to be a survivor isn't it  and see there are quite a few of us !!

 

I find happiness helps me over rough patches and my Parents left me with a load of  happy memories,  I still talk to them when needed lol

 

I find music helps also but only happy songs  xxx

 

Keep in touch and perhaps might see you post in the green room soon.

 

Good luck

 

Winb143 xxxx

 

Share this post


Link to post
Share on other sites

Thanks Winb143 - I suspect we're cut from the same cloth!

I will hopefully be in the green room soon (once I've worked out how to add my photo!)

Titanium xx

Share this post


Link to post
Share on other sites

Just take your time and you will find way around the site then another day you'll go and forget it ha ha 

 

Keep Well

 

Win xxxxxxxxxx

Share this post


Link to post
Share on other sites

Sarah, welcome to BTg and what an inspiring and uplifting post of looking forward and dealing with the hurdles that have been put in your path. 

 

I did wonder whether you were a David Guetta fan but then realised it was a homage to our platinum coils, I have rubies as well in my shunt so figure We SAHers get a special  kind of brain operation where you leave more valuable than when you entered theatre. 

 

Im glad youre doing well, and loving the idea of silly dances after working on the pc that might be something for me to try, 

 

tell me do you hope to drive again in future or will you stick with public transport? 

 

Keep on keeping on and please share some of whats helped you on others threads, that experience is oh so helpful 

 

 

2 people like this

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now