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misskdk

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misskdk last won the day on April 5 2015

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  1. Hi Clare, I hope you are doing better and were able to see your GP. Let us know how you're faring! Take it easy and stay "tuned in" to that spot in your head. Any noticeable change in pain is your body telling you that something is different. We have all gone through so much and fought so hard to be where we are now, our lives are far too precious to simply sit back, wait, and leave up to fate. I'll be sending many good vibes your way. Best of luck to you right now!
  2. Thank you Macca, Carolyn, and Sharon. This place really gives me the boost I need every day, you all are so great and so supportive! Macca - Everything you said is so true, I'm very different than before but it's not necessarily worse! I feel it's sort of like finding my way through a maze I grew up in, except for some reason the pathways have changed and I have to relearn the maze. It's tedious, difficult, and frustrating, but given some time I'll know my way around again! Thanks for the encouragement. Carolyn - I stumbled upon this place accidentally one night, and I really think it's sort of serendipitous to have found BTG! We are all united by these unfortunate circumstances, but like you said, we can hold each other up and support one another. I love all of you for being here for me and I hope to be here for you all in turn! Sharon - I wish you the very best as you return to work. Like I mentioned earlier, I feel I returned to work too quickly and wish I hadn't, so I absolutely encourage you to take it slowly. I wanted to get back to work as soon as I felt physically strong enough, but what I failed to realize was that my mind wasn't fully healed yet, and still isn't. I hope your return to work is much smoother than mine, I will be rooting for you!
  3. Thank you Louise, Jane, and John! I am really enjoying reading everyone's stories and finding our similarities and differences. Louise - Ever since discovering BTG, I have been more and more accepting of the "new me" thanks to you all helping me realize that what I'm going through is normal, that I'm not alone. I feel better in the last few days than I have in months because of this place! Jane - Thank you for your encouragement! I wish you the best in bouncing back from your latest procedure, and hope you stay in good health and will never need another one. You are so strong from going through this for 14 years, I have a lot of respect for your resolve and everyone else's here. John - Agreed that the stress is just not worth it, there is so much more to life than that! I am amazed at how active you already are in less than a month ... I was so sensitive to light and electronics when I was recovering, that I was barely able to look at a TV, let alone my cellphone or computer. I'm so glad you seem to be recovering very quickly!
  4. Hi Brenda, I was the same way during my recovery and would get ill at the thought of eating basic food such as rice or toast, even drinking plain water was disgusting to me. The only thing I liked to eat was fruit, and I had to be put on insulin at the hospital because my blood sugar spiked so much. My appetite eventually returned and I'm back to enjoying the same foods as before (though I try to cut down on the sodium levels now), so I'm confident that you will too! I can't give you a timeline since everyone's recovery period is different, but it seems like meeting a dietitian is a good idea! Have you tried protein/vitamin smoothies or milkshakes yet? Those were one of the first things I got used to after fruit, since it was in the same "sweets" vein, and at least that way I was able to get something more "nutritional." It was recommended by my attending dietitian at the hospital, so that was the first thing I thought of when you mentioned your referral. I actually fought the smoothie/milkshake idea for a long time because in my mind it just sounded awful, but I eventually gave in and tried it, and I found that forcing myself to try things that I assumed I wouldn't like (even taking just a few bites or sips) actually helped speed up the process of getting used to food again, like it made my body and mind "remember" that other foods tasted good. I wish you the best of luck and will be rooting for your appetite!
  5. Wow, thank you all so much for the warm welcome. I have tears in my eyes ... I feel like I have already received so much understanding here in this one thread. I hope to give back to you all in some way! To be honest, I am having regrets over returning to work so quickly, I wish I had taken the time to realize there were a lot more changes that I needed to get adjusted to. I focused so much on worrying how my mental capacity would be affected, that I lost sight of everything else that might be different. Besides feeling "dumber" than I used to, I also have numbness on the left side of my body from the stroke, and have issues regulating my mood ... I get really snappy at work now, and I feel terrible about it afterwards. My employer and coworkers have been pretty understanding, though I worry that they'll eventually get tired of my mood swings. That is great to hear! I have, sadly, been hearing more and more about younger people experiencing SAHs and strokes, though it is still a much lower number compared to the general population that is affected, and I have not personally met anyone my age who I can relate to on this level. It's been an isolating experience, as it's hard to talk to my peers about what I've gone through ... conversations get awkward and I hear a lot of rubbish such as "I thought only old people had strokes," etc. I also do not have a spouse or partner at this time, though my parents and best friend have been great sources of support in different ways. I sometimes worry that I'm not going to find a significant other who is understanding of what I've gone through, and I worry that I'll still be alone many years in the future, when both my parents have passed. I know it's a ridiculous notion to have, so I do my best not to think about it and try to look on the bright side of things. I remind myself that I'm alive and I have so much I want to accomplish! Thanks for reading my venting. I wrote a lot more, but deleted it as it was turning into a novel, haha. Thank you all again for being so welcoming, I feel like I've found a great "home" here!
  6. Hi everyone, My name is misskdk and I just joined after finding Behind the Gray last night. I've been spending the last few hours reading posts and articles on here, and I can't thank you all enough for sharing your stories ... they have already been a huge source of support for me and have given me a lot of hope. A little bit about me: I'm 27 years old and was hospitalized in October last year, was diagnosed with a SAH and RCVS (Reversible Cerebral Vasoconstriction Syndrome), and also suffered a stroke while hospitalized. I spent about a month in the hospital and then another month at home recovering, before returning to work in December. Since October, things have, of course, not been the same. Though everyone I talk to has noted how quickly I've recovered, I can sense that I am a very different person, be it physically, mentally, and emotionally, and it's been hard to adjust to the "new me." I found Behind the Gray while seeking answers regarding my recovery and the changes in my life, and my expectations have already been exceeded. I hope to get to know everyone here and learn from you all, and once again I thank you for creating and contributing to such a wonderful site!
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