saffy

Hi Everyone......quite awhile since i was here......ive not been doing to well....trying not to do to much but taking my grand dog (daughters dog lol)for a tiny little walk was still to much...ended in bed for a couple of days...so feeling so tired brought on the tears...so am feeling very down at the moment...very fed up...bored out of my tree...thats main reason ive not posted im so negative....i'll not depress you anymore...hope all of you are doing well...take care ..love Saffy xxx

Hi Everyone.. thought id let you know how things are going...ive been doing ok.....my blurry eyes have gone ok now thank goodness.....i still get a bit of slurry speech but only when im really tired....but ive got to ask...i havnt had a sah as you know just had anuerysm coiled....its 7 weeks to-morrow since i had it done.....but why do i get so tired....on sunday my energy just drained and ive spent two days in bed...with the tears ....i think maybe ive done to much....to-day im feeling better...im not sure if any of you are like me and just had coiling...i can understand how being tired ect when your getting over a sah..(in truth it must be hell) im going to see my gp to-morrow...she is and has been wonderful throughout this...but she didnt know what coiling was lol so not much hope of telling me about the aftereffects...im still waiting for my hospital app/ment..rang an hour ago....was told they would ring me back to-day...but cant see it now.....im really amazed at the lack of aftercare you get...i got in touch with PAL about my lost files...no luck as yet....anyway hope you all are doing ok...take care love Saffy xxx

HI Everyone.......well im up and dressed...first time dressed as havnt felt like it before to-day...now full of cold yuk....but doing ok.....doing a bit of cooking but not pushing it...i really cant believe how this op has left me so weary....was told over 5 hrs is a long op...but still dont understand why its left me like this......but at least its done....managing the 3 ltrs of water but hate it....is this much drinking forever or just for a few weeks....well im trying to find the energy to write my letter to the hospital about my notes...that is one thing im not letting go....i praise the medical staff but loosing my life notes ....im livid...whoops just reread what ive wrote....im moaning arent i...im lucky ive had the op and got through it...truthfully im glad it was found as it was a pure fluke....hope you are all well take care love saffy xxxx

Hello everyone...thank you for your messages....i really want to thank you all from the bottom of my heart for all the support you have given me over the months..we are all strangers to each other yet now share an amazing bond...one we really would not have wanted...but you all have helped me more than anyone and i will be eternally grateful....i am doing very well ...resting alot.....having a bath has me feeling like ive done a marathan lol...but theres no rush and my daughter is being wonderful...hubby trying his best lol but ive spoilt him im afraid and hes useless butdoing his best....theres one thing im bothered about so i must ask ....my eyes are blurry they do ease sometimes ...but then go blurry...have any of you had that...i know my speech slurs sometimes but is getting better...it was bad at first ..they said its the blood vessels all tightening with the op and slowly easy off.....well must go now ....so once again thank you so much...speak soon....love saffy xxxxxxx

HI everyone...thank you so much for your messages....doing ok ..but resting alot...they said listen to your body and lie down when it tells you and its telling me alot lol...its the 3 ltrs of water im hating lol but got to be done...im going to bore you with next bit but it was pretty sh---y. well i,ll try to tell you abit of what happened ...got in hospital on the monday at 4.o.clock as asked...got to the ward at 7....was starved from midnight...no water after 5..was told there was a bed in icu for after op....at 4.o.clock in the afternoon (yes all day ) the man who was doing my op came to me to say i wasnt going to have my op....1 the icu bed had been taken...2 they couldnt find my hospital notes...they had all my notes and scan info for my aneurysm but not my rest of life notes...talk about bomb shell...so after floods of tears...and wanting to know why ..as i was suppose to be in 2 weeks ago...was told they just couldnt find them...and they couldnt operate without them...but they had lots of people looking for them....so pulled myself to-gether and told him i was not leaving my bed till they did my op and boy was i serious to which surprise he agreed with me and said he would himself go looking for my notes...he said you,ll be in theatre at 8.30 in the morning....so starved again and still waiting at 8.30...then aneathatist (wrong Spelling ) came did all the checks then told me the op probably wouldnt be done as still no notes...so i was in abit of a state to put it mildly...then out of the blue at 10 .o.clock they came for me....still no notes...there assuming there lost proper....but my nice surgeon had fought for me.....but i really was at the last of my tether...so not a good experiance.....but its over with now....going to lie down now lol worn out lol....love Joan xxx

Hi Everyone....just a quicky...am home and coiled...butso tired...willlet you know details when i feel more up to it...ive been told i have £40 thousand pounds in my head ...10 coils £4000 each...love saffy xxxx

Hi....I have to ring hospital to-morrow afternoon to see if they have a bed for me......so hopefully the next time i come on here will be to say ive had my coiling done....i just wish my stomach would calm down.....going out for a meal with my family just hope i can stay calm as the thoughts in my head are a bit scary, as i must admit i am terrified..so please keep your fingers crossed for me and hope to speak to you all soon...love saffy xxxxx

Hi Everyone.....thank you for your messages......i went to my gp and she gave me a few tranx...but so far i havnt used them....i seem to have calmed down....i think i was so shattered about my cancellation i really lost it.....but im back to a week to go lol i hope....still not smoking ...that is getting easier...i have one of those electronic ciggies and ive got to admit they are great....i was on 20plus ciggies a day...so if anyone is serious about giving up i recommend this way of doing it....hope you are all feeling ok...take care ...love saffy xx

well my latest news after crying buckets is 17th may...cant get me in sooner they said as they need a long spot for my op with it being quite a big aneurysm...which scares me more...they have made a note that ive been cancelled once...but will still depend on any emergencys...i was on antidepressants after my son died but weaned myself of them this last year...but the state im in at the moment ..my daughter thinks i should go back on them...so any advice as ive got some in the med cupboard as it was me took myself of them not dr..with all this ive gone 2 weeks not smoking and i really dont want to go back smoking...i feel so down any help will be gratefully accepted...love saffy xx

hi thank you all for your messages....yes Di and Karen you were right...two bleeds admitted but i am on standby....am waiting for them to ring back ...so yes its nice to think my space could have saved a life....but selfishly i want mine done before mine ends up as one of them..thats being human i think...will let you know news as i get it ....love saffy xxx

Hi everyone....well ive had a lousy 3days.....cant settle...mind all over the place...then keep bursting into tears....how i have stopped myself going out and buying some cigs i dont know...or even hitting the bottle...im not a drinker but boy i feel like being one at the moment...how do you cope with this...sorry thats not fair i know most of you have had or having it worse....i just feel so down....ive been crossing the dates of the calendar for weeks and all for nothing and in all honesty cant see me going in this week...will i be on a list im terrified i,ll be forgotten ...id better go...forgive me for ranting but i feel theres only on here i,ll be understood saffy xx

Hi Karen......i think its really strange they rang me up at 4-30 to-day (friday) my daughter then rang the number i was given to ring on tuesday and no answer...and its a bank holiday weekend....i dont feel its because of an emergency and i would have accepted that....i think its because its a holiday and someone maybe shouldnt have given me bank holiday monday as my going in date ...but i will get to the bottom of it as its a very cruel thing to do and very unprofessional...but thank you for thoughts ...saffy x

well they rang this afternoon and cancelled my op....im gutted ....she said i should not eat tuesday and ring them for chance i can go in.....so lots of tears and im so angry...i really feel they shouldnt be allowed to treat us like this....they say stay calm ...watch your blood pressure then do this to us....i know once this is sorted ...im going to look into the way we are treated....saffy

hi everyone.....oh boy the nerves are starting to kick in...3days to go....you know the worst thing is this wondering if theres a bed...you'd think its bad enough knowing youve a bomb in your head but for them to put you through the worry about a bed to me is all wrong..surely this shouldnt be like this....re the smoking 11 days now....at least i wont get the nagging from the drs lol..take care saffy xxxx

Hi Everyone......well 5 days to go before i go in hospital (as long as they have a bed ...which terrifies me if they say no bed )but am trying to stay positive....its bad enough waiting for this op without the worry about beds...i am doing ok and what i didnt say was i smoked ...but i have gone 8 days not smoking so am very proud lol...managing to do it under this pressure...am i a clever girl or what lolol....anyway hope you are all ok and will try and pop in here before i go in.....love Saffy xxxxx