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subzero last won the day on March 6

subzero had the most liked content!

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About subzero

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    Senior Member

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  • Interests
    Sport-(watching rather than participating now)Football, Golf, Athletics

    World travel

    Reading-Gardening-Having a latte as often as possible with my wife (she had SAH 5/2011)

    Late learner for Washing & Ironing, Hoovering, Dusting, Washing up-

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  1. 1 Year Anni-versary

    Kay.... a big well done to you (and your partner) 12 months on. So much has happened since you cut your finger on that tin of chicken soup a year ago ! To recover from your initial bleed and then find that months later the medics would have to deal with another aneurysm .... well you really have had to go `through the mill` !! The second wait, not to mention the delay in the procedure must have been so hard for you both. But you are here now, and it is clear from your thread that your BTG friends have been supporting you all the way. You`ve done the hard bit. You can handle the recovery road and I wish you well as you tackle the challenges in year 2. Subs
  2. One year nasah anniversary!

    Hello Eric....also a big well done 12 months on. In these early days and weeks.... just getting to the end of each day was no doubt an achievement for both you and your family. 365 days later you have lots to look back on and be thankful for. Great that you are back to work..... As a Carer..... a big well done to your family too.......who have lived every up and done with you. Keep strong and keep listening to your body and brain as you face the year ahead together. Subs
  3. Thanks for your post KG. Welcome to BTG. If you feel ready to share your own SAH experience, please don`t hesitate t do so on our `Introduce Yourself Forum. Subs
  4. Lynn413 - New member

    Hello Lynn and a warm welcome to BTG While we do not provide medical advice, you will receive valuable support from the members of BTG, and also by reading the many Forum threads which relate to the varied recovery experiences of members and their carers. With ten months behind you since you experienced your SAH you can look back on your recovery objectively. Perhaps you can tell us more of the circumstances when your bleed happened...and the following treatment and recovery. You say you are back to work. What is the nature of your employment and when and how did you approach that big step of getting back to work? For many, a carefully phased return to work between 3 and 6 months post SAH is recommended, but every recovery is unique. Returning too soon can have many detrimental effects as your traumatised brain needs time and patience to compensate for the damage caused. Going back to a stressful job too quickly could well result in the various issues that you mention. Support from family and friends is also so important. Contending with work and home life and recovery has to be managed carefully. Many of the early effects of SAH improve over months and even years.... We look forward to hearing from you and wish you well as you recover. Please do not hesitate to ask any questions. Meantime continue to keep hydrated by drinking water often and do take important rest breaks throughout the day. Don`t let stressful situations at work or home hinder your recovery. Subs
  5. Hi, well done on getting that holiday finalised. Three months after my wife`s SAH we faced up to our anxieties about travelling and spent a week in Jersey. The following year our destination was New York. Early fears are only natural, and as already mentioned.... so long as you pay attention to avoiding exhausting schedules you will both be able to feel much more positive about organising your second trip ! Subs
  6. Lowey family post

    I found the leaflet within the following link from The Brain and Spine Foundation very helpful when explaining to friends what happened to my wife.. https://www.brainandspine.org.uk/subarachnoid-haemorrhage Subs
  7. Lowey family post

    Hello, and also a very warm welcome to BTG. So sorry to hear that Your dad has experienced an SAH. The good news is that he has survived..... despite the low survival rates. The past seven days have no doubt left you and your family traumatised as you became aware of the severity of what happened to dad, and dealing with the days immediately following when you were scared that he indeed might not survive. Your daily routines have no doubt been turned up sides down as you have rearranged your schedules to spend time in the hospital. It is a very emotional and exhausting experience. So glad you found the site early and that you are already finding help and support as you read from the experiences of our members. There is so much within the various forums to help you in the days ahead. As others have said, seven days on is very early to gauge recovery. Only in the coming days, weeks and months will the true extent of the trauma to his brain become evident. Time spent in hospital can vary from days to months, and as every bleed is unique, there is no one given path of recovery. For some, following several weeks of very anxious times in hospital can be followed by substantial progress, while for others there may be prolonged hospitalisation and rehabilitation required. Please be prepared to have patience... and trust these incredible medics in the early days. Ask them to help you understand how they are assessing your dad. Please also ensure that you and your family take care to look after yourselves. You need to be strong for dad, so eat well and sleep well as you spend time encouraging him in the ways mentioned above. We look forward to you keeping in touch and continuing to ask for help and support. Subs
  8. Hello Gemma....many thanks for adding your valuable contribution to this thread. Great to see you have progressed well in your own recovery.... hope you can share this some time in the future. Take care... Subs.
  9. To add another dimension..... this site has been in existence for over ten years, and there are a number of members who have survived their bleed and the scans post bleed have discovered other aneurysms of varying sizes. These are now being monitored or treated as advised by the consultants. Those members are moving on with their lives in the knowledge that these checks are in place and thankful that they have been discovered in time. There are very few members who have suffered a second bleed. Subs
  10. My story so far

    Winnie`s favourite quote fmrted.... `No stress!` Subs
  11. Hello Issy.... Well done for taking the time with your family and `friends` to help make that important decision about your future employment. Your own health and wellbeing are so important. I am sure any sacrifices you may have to make will be more than compensated with the feeling of release from a very stressful work life with no end in sight to the heavy workload. Your comments about `funeral work` reminded me of my dearly departed neighbour who often said during our chats..... `We are in the `departure lounge` He always made me smile when he said this. Take care... you wont regret it. Subs
  12. Carer new to SAH

    Hello Liz, and also a warm welcome to BTG. So glad you found the site, You are definitely in the right place to help you get a better understanding of life after SA,H for both your mother and you and your family. Unlike a fractured limb, or routine hospital operation, recovery after SAH is very much an unknown quantity at the outset. Now that mum is home, over the next days, weeks and months you will be discovering how much damage has been caused to mum`s brain and how she is coping as her brain begins to compensate for the trauma. Everyone`s bleed is unique as are the personal circumstances of their family lives. Perhaps you can let us know how your mum is affected. What are her mobility and cognitive abilities now.? Is she confused with memory issues and has her personality changed in any way...?.) Fatigue will figure prominently in the months ahead ..... let her enjoy her rest. One thing is sure, your mum will need much support over several months to give her the best chance of recovery. This will be a very challenging time for both her and all of you who are wanting to do your best for her. As already said, it s so important that you try and organise her support so that all of you are not so stretched that your own lives and health begin to suffer too both emotionally and physically As also mentioned, your approach to helping her eat well is a challenge. You will be wanting her to eat well while she will often feel the opposite. Give her small helpings ..... I found making petite sandwiches with healthy fillings were a good way to start her stomach`s ability to digest food again. Plenty water is also vital. In the days ahead, depending on how mobile she is, try and make her life as normal as possible. Getting up, clothed and sitting is much better than lying in bed. A short trip in the car to a nice spot she would enjoy.... these are ways to help her want to be positive in her recovery. And again, I repeat what has been said earlier.... keep yourselves strong too by eating and resting well. This is no a short journey. We look forward to the many other questions you may have and hope you and your family can take the steps to ensure your mum has the best chance of improving and becoming as independent as possible. Subs
  13. Fourteen Years Later

    Also a big WELL DONE! SM on 14 years post SAH. A true example of tackling your SAH head on and moving on with life. Wishing you many more years of travel. Subs
  14. Dramblys - introduction

    Hello... and a welcome to BTG. Such a traumatic start to 2018 for you both as you come to terms with your wife`s SAH and the sudden changes brought upon your daily routines. While we do not give medical advice, BTG provides a wealth of support in the form of real experiences related by our members who have willingly shared their recovery experiences. As you read the various forums you will find information to help you both. Our members will also try and answer any questions you may have. You highlight that that you were given little information about what to expect after your wife was discharged. This is not unique to the US... this is common place throughout the UK too. Recovery however does not follow a specific pattern or timescale. Each individual has their own individual challenges depending on the size and nature of the bleed and the actual damage done to the brain. Other personal factors such as age, family support network, finances and commitments and employment all play a part in how recovery plays out. Only in the months that follow will you be finding how the list of issues you mention resolve or continue to affect her. It is good that you have an understanding employer..... your wife needs you to cope with much of the daily household routines. Fatigue will play a large part .... she will need to rest constantly and keep well hydrated. One thing is certain, your wife needs to accept that there is no quick resolution. Time and patience is so important. I d hope she can continue playing whatever musical instruments she uses. This must act as a great source of therapy for her in the days ahead. So I wish you well in your roll as Carer. You need to take care of yourself too in this journey.... as you come to terms with your wife`s changing emotions and memory difficulties. Many of these issues will improve over time She will also find this site an immense help when she feels ready to make use of it. Knowing that there are others facing similar challenges is very comforting. Please continue to keep us informed of her progress, and don`t hesitate to ask questions of our members along the way. Subs
  15. Candice

    Hello Candice.... and a warm welcome to BTG. While we do not give medical advice, you will find much support from our members many of whom have shared their own experiences of brain trauma in the various forum threads. As far as your own diagnosed condition...RCVS ... if you type this in the Home Page search box... you will discover posts concerning your condition. I hope you find these helpful. It must have been such a traumatic time for you and your family last year as you experienced these severe headaches. As in SAH, your recovery will be unique to you. Do you have ongoing appointments with your consultant? Do you have family and friends who can support you in your recovery. We look forward to hearing of your progress. Subs