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subzero

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subzero last won the day on May 20

subzero had the most liked content!

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About subzero

  • Rank
    Senior Member

Profile Information

  • Gender
    Male
  • Location
    Scotland
  • Interests
    Sport-(watching rather than participating now)Football, Golf, Athletics

    World travel

    Reading-Gardening-Having a latte as often as possible with my wife (she had SAH 5/2011)

    Late learner for Washing & Ironing, Hoovering, Dusting, Washing up-

Recent Profile Visitors

1,187 profile views
  1. subzero

    Finally - 6 Years

    Hello Paula. Also a big well done 6 years post SAH. Thanks for returning to share your anni-versary with such a positive attitude about the future. You certainly put your hubby and sons through the mill six years ago and the re-bleed 6 months later must have been so hard for you all. Given that you were told you had 3 other untreated aneurysms being monitored, you certainly had so much to deal with. Glad you took the right approach about work ... and wish you and your family best wishes for the days ahead. Subs
  2. subzero

    Returning to work.

    Hi and also a warm welcome to BTG. Using the `search` option at the top right of the Home screen ...and entering...`return to work will also give you access to various views on returning to work`. I hope you find these helpful. Subs
  3. subzero

    In hospital with grandma who had SAH

    Hello Sarah, and a warm welcome to BTG. So sorry to hear about what has happened to your grandma. We do not provide medical advice, but you are in the company of members who have survived the trauma of SAH and NASAH, and also members who are carers like yourself ....all whose lives have been suddenly caught up in a life changing event over which they have had no control. You already have sensed that feeling of helplessness and insecurity. While your grandma`s trauma is unique to her...there are some general pointers which are common to all. I mention some which may help you in some way. You will have had much communication with the medics. Put your trust in them... they will do their utmost for grandma and keep you informed of any prognosis. Spend time at grandma`s side holding her hand and talking to her....assuring her of your support. It is highly likely that she will hear and understand. It may well be that you are asked to stay in a waiting room and keep in mind that there will be other carers there who are also experiencing uncertainties about a loved one. Sharing a few words with these people you have never met before can be so supportive for both.. Do you have other family and friends to share the caring load? You need to have friends to share your own thoughts and fears. Don`t be afraid to cry .... releasing your own emotions is so important to keep you grounded. It is tough when you leave your grandma to get some sleep .... alone with your thoughts can be so difficult Keeping yourself well rested and well fed. These can often be overlooked in the heat of these uncertain early days. The body is an incredible thing and even at the brink of life.... there can be a resolve to fight to live...and grandma is fighting that fight every minute with your help. . Please keep in touch with us and don`t hesitate to share your thoughts ad concerns on this site. You are in the company of members who not only have survived their own trauma, but now they are helping others in their challenging recoveries. Subs .
  4. Hello, and also a warm welcome to BTG. While we do not give medical advice you will receive much support from the wealth of information within the site Forums, and also from members sharing their experiences of their recovery journeys. Perhaps you can confirm that your husband did have a SAH as opposed to NASAH. Your comments about how your lives have been affected by the bleed are common place within this site. Depending on the severity and positioning of the bleed, the recovery can have many challenges which you both have to face together. Firstly, it is very early in your husband`s recovery. During the first year you will become more aware of the issues that are going to be longer term. The main thing to accept is, progress is unique to each bleed. Time and patience are so important in the early weeks and months. Personality changes, mood swings, headaches and fatigue are common. These are real challenges. Following discharge from hospital, like you experienced, here in the UK too the follow up and support is hard to find. Hence the reason for this site. Your frustrations with family and friends not understanding your husband`s condition is again common place. He may appear ok outwardly, but his brain has obviously suffered much trauma and you can see the effects in most aspects of your life together. The emotional issues ca be very tough for you to deal with. He mayt be in denial about the problems you are encountering. Also, bear in mind that if your husband went to church, the chatter from the congregation , the `noise` of the music and also him listening to any controversial topics which he feels strongly about, can all have a problematic affect on his brain. Please make sure he does get plenty rest and keeps well hydrated. Try and talk things over with him but be sensitive as you go. This recovery may be a big test of your two year marriage from time to time. Be prepared not to take everything to heart when he is behaving an talking out of character. Please take time to read some of the topics within the Carers Forum, and within the Introduce Yourself Forum. You will instantly relate to many of the comments, and you will begin to feel you are not alone. Wishing you well as you face the challenging future. Please don`t hesitate to ask for support at any time. Subs
  5. subzero

    New Member - Aimee

    Hello Aimee...also a warm welcome to BTG. While we do not give medical advice, you will receive much valuable support from our many members who share their recovery journeys on this site. The following links are from the Forums which have already posed your question `What is an Infudibulum` Tina`s answer gives a concise definition. http://web.behindthegray.net/topic/903-what-is-an-infundibulum/ http://web.behindthegray.net/topic/5812-infundibulum/ Please continue to ask any questions which may help you find out more about recovering from SAH/ NASAH. Subs
  6. subzero

    One year later...

    Hello Jean, and congratulations one year on. From that initial traumatic first fortnight it is great to hear how positive you are about your journey so far. We are pleased that your friends in BTG have been a support and encouragement along the way. Time and patience help so much in that first year .... and I wish you continuing recovery in the months and years ahead. Your Mexican holiday sounds great. Take care and have a safe vacation. Subs
  7. subzero

    Melissa

    Hello Melissa, great to hear from you and thanks for sharing your thoughts with us. You certainly are in the company of many members who have experienced a bleed without the medics finding the source of the bleed, and you are not alone in being so fearful of another bleed. Instances are very few on BTG and you are right in saying that over time you will find yourself accepting this and being less fearful. This link will give you immediate access to the NASAH Forum http://web.behindthegray.net/forum/16-non-aneurysm-sah-or-perimesencephalic-sah/ and this link will enable you to find this forum http://web.behindthegray.net/topic/6062-melissa/?tab=comments#comment-124679 Please continue to keep us informed as you recover, and in particular make a comment on the SAH/Stroke Anniversaries form when you reach 2 years. Best wishes Subs
  8. Hello Darcy .... the past two months have certainly been challenging for you and your husband. In an instant your lives have been changed and your focus has been 100% on willing your husband to recover while trying to get an understanding of what recovery from a NASAH entails. Even in this short time you have no doubt built up a knowledge that you never expected to have. You mentioned that you just have each other. How are you coping ? I am glad that you find reading the experiences of our members a big aid in your understanding. Within the site there are so many unique journeys ... you are not alone. Others have mentioned in your other thread that it is so early in your husband`s recovery. It is so important that he rests well and does not push himself too hard. Although the exact site of the bleed was not identified, his brain has been damaged and needs time to readjust and to some extent recover. I am particularly interested in his DVT. What is the latest assessment you have had? My wife had a DVT in her leg leg a few weeks prior to her SAH . She was given blood thinners, and when she was transferred to ITU to treat her SAH, the first thing they did was insert a filter in her groin to prevent the clot moving to her lungs or heart. I tell you this because we were advised that the filter had to be removed within six weeks or there would be a risk that it would become attached to the artery...and removal would not be possible. The result ... blood thinners for life. Unfortunately even at six weeks they could not remove my wife`s filter. (I hasten to add that her SAH was in no way connected to the blood thinners... her SAH was caused by a blood vessel in her brain being weakened by a disease now known as GPA - Vasculitis) Please check with your medics and consultants if you are in any doubt about the filter issue. Take care and keep strong. Subs
  9. subzero

    Finally - 5 Years

    Hi Iola and well done five years post SAH Thank you for that very personal and honest insight into your life with SAH. Your advice and support to others on BTG is always valued. Subs
  10. subzero

    Feeling rough again

    Hello Stephen... sorry to learn that you feel your recovery is not going well. it is very early in your recovery and headaches, nausea and eye issues are experienced by many following an SAH/ NASAH bleed. You mention that you have recently had an appointment with your neuro-consultant. Did they recommend you see an eye specialist? What issues did you discuss then? If in doubt please don`t hesitate to check with your GP too, in particular about the need to frequently urinate. Please also take the time to tell us more about your SAH experience by starting a thread in the Introduce Yourself Forum. Subs
  11. subzero

    Areajay

    Hello Areajay and also a warm welcome to BTG As everyone has mentioned... it is very early in your mother`s recovery. As the weeks and months pass the issues resulting from her SAH will become more apparent, Some will be more temporary than others and the healing process will depend on the severity and positioning of the bleed. So it will be fair to say that even the medics and consultants cannot give you definitive advice on what may occur in the days and weeks ahead. You are right in feeling positive from the fact that she seems to be coping well so far given what has happened. Confusion and memory loss is a normal experience in these early days. Given that she is `fiercely independent` this can only be a positive factor in her recovery. I do hope that you and other members of her family are coping well. The strain of seeing a loved one suffering from SAH/ NASAH whatever the age, can also take it`s toll. Keep strong by resting well and eating well. You may also find the Carers Forum a great help. Subs
  12. subzero

    dilly new member

    Hello Dilly, and a warm, welcome to BTG. You have arrived at the right place for getting help, support and advice from members and carers who have first hand experience of life after SAH. We do not however offer any medical advice. As you browse through the various topic threads you will discover many experiences similar to your own situation. It was also four years after my wife`s SAH when I discovered BTG. To assist us in our responding to your post it would be helpful if you could provide some more information about what happened at the time your family member experienced the SAH,,, and also a brief comment on how progress has been over the past four years. Any SAH is such a traumatic time for the survivor and also for the immediate family and friends. I am sorry that now after four years you are feeling anxious and uncertain about the recovery. Each bleed is so unique as is the recovery journey. We look forward to your comments and assure you that you are in good company to help you face the future. Subs
  13. subzero

    1 Year Anni-versary

    Kay.... a big well done to you (and your partner) 12 months on. So much has happened since you cut your finger on that tin of chicken soup a year ago ! To recover from your initial bleed and then find that months later the medics would have to deal with another aneurysm .... well you really have had to go `through the mill` !! The second wait, not to mention the delay in the procedure must have been so hard for you both. But you are here now, and it is clear from your thread that your BTG friends have been supporting you all the way. You`ve done the hard bit. You can handle the recovery road and I wish you well as you tackle the challenges in year 2. Subs
  14. subzero

    One year nasah anniversary!

    Hello Eric....also a big well done 12 months on. In these early days and weeks.... just getting to the end of each day was no doubt an achievement for both you and your family. 365 days later you have lots to look back on and be thankful for. Great that you are back to work..... As a Carer..... a big well done to your family too.......who have lived every up and done with you. Keep strong and keep listening to your body and brain as you face the year ahead together. Subs
  15. Thanks for your post KG. Welcome to BTG. If you feel ready to share your own SAH experience, please don`t hesitate t do so on our `Introduce Yourself Forum. Subs
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