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Mace

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About Mace

  • Birthday 19/06/1956

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  • Biography
    I am 55, work for the NHS and had coiling of ruptured basilar tip aneurysm on 18th June 2010
  • Location
    Nottingham, UK
  • Interests
    Music, IT, walking, meeting up with family & friends
  • Occupation
    NHS Project Manager
  • SAH/Stroke Date
    17th June 2010

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  1. Hi Siobhan, and welcome to BTG I too had double vision (third nerve palsy) following my SAH in June 2010, and wore patches on my glasses for a time. I was referred to the Orthoptics Dept at QMC and have now had two lots of squint surgery - the second last August was the one that cured and the surgery involved adjustable sutures which had to be manipulated after surgery to gain the optimum result. Uncomfortable but worth the short-term pain for long-term gain! The Orthoptics surgeon was very reluctant to operate the second time as he said the odds of success were 50/50. I managed to convince him that those odds were better than 100% surety of double-vision for life if he didn't operate, thankfully he listened. I hope all goes well with you, but would advise being a little pushy as it may well be cureable! Good luck, Mace
  2. Thank you Macca - I haven't been on BTG for some time, but came today looking for good news and I found it! I came on today to check out whether any SAH sufferers have gone on to have thyroid problems, but can't find anything as yet. I may even start a thread (get me!) Two letters arrived for me today from the hospital. The first was informing my GP of investigations for suspected thyroid cancer, and the second giving me a surgery date for a hemi-thyroidectomy on 8th January! I only saw the consultant a couple of weeks ago, so that seems very soon! Aside from being heartily sick of hospitals I'm not overly concerned, mainly hopeful that the thyroid may be the cause of the extreme fatigue that still plagues me two and a half years after my SAH. I too would like my evenings back please! I have received amazing support from fellow BTG'ers, so thank you one and all - how fortunate we all are to be here is something I never forget. Wishing you all a happy and healthy Christmas and New Year. Mace x
  3. I had just driven down a busy dual carriageway to a hospital appointment, and the moment my head popped I was in my appointment with a Consultant Opthalmologist. At the moment he asked me to put my chin on that frame thingy I remember saying, in a minute 'cos my neck really hurts. I then put my chin on the frame and said 'and now we're in trouble, 'cos I can't see you'. The lovely Consultant said that my eyes rolled into the back of my head, and when the shock wore off he knew exactly what was happening. He had me taken for a CT scan and the SAH bleed was found within the hour - I was blue-lighted to QMC for coiling the next day. All I can say is my guardian angels were working overtime that day. I live alone, and had this happened at home I would have been in real trouble... Mace x
  4. Mmmm, interesting article Nessie but I wonder if it is indeed an April Fool's joke? Hi Michael, I don't know if there is any connection but I have suffered with RLS for years. It was particularly bad last night, and I still have it this morning as I sit at the computer typing. Sorry, I have no helpful solutions - just the ability to share your discomfort. BTW fantastic SAH recovery, well done ! Mace
  5. Welcome Simon, and although it's lovely to meet you I'm sorry you need to be joining us all here at a BTG! Your treatment sounds awful pre-diagnosis - you are indeed a lucky boy to be with us. Re. the critical illness cover, your damage is indeed permanent so I would go for it. After all, the coils aren't temporary are they? Good luck, and drink lots as everyone will tell you. Mace x
  6. You were indeed graceful, and immensely moving - I admire your composure Nessie, fabulous. I had my SAH shortly after yours (17th June 2010), and have been searching for your blog without success. Sorry, but could you point me in the right direction please? Take care of yourself, Mace
  7. Many thanks indeed for letting us know about this - sounds like an excellent service. Take care, Mace
  8. Hallo Painter, You don't say how recent your surgery was, but as someone who had coiling for a ruptured anuerism in June of this year I can tell you that the fear was overwhelming for the first couple of months I would say. However, as with most things it does diminish in time, thankfully, although I do acknowledge that I am not dealing with unruptured anuerisms so my case is different to yours. I suffered multiple strokes at the time (thankfully with little deficit) and that recurring was/is my main fear. The fear was so all-consuming at first that I made a conscious decision to really LIVE with the fear and get on with each day, rather than be burdened and paralysed by it. I hope that makes sense, and that it is of some help to you. All best wishes, Mace
  9. Bless you Zoe, you are doing marvellously but I can understand why you are so upset. You mentioned a firm called ABICS who will occupy Richard with shopping etc. - when do they start working with Richard? I would suggest that they are involved as soon as so there is an easy transition from his rehab staff to ABICS - perhaps you can enquire about that? Apart from that I am at a loss, as I have not been in your position - but we do have some carers on this forum who I am sure will chip in. At the end of the day, the children surely must be your primary concern and I am sure you are protecting their interests to the best of your ability - you sound to me like a really great mother and wife. Sorry I can't be of more help, but know that you are in our thoughts, Take care of your little family, Mace x
  10. Hallo Chrystal, and welcome! You can indeed talk to us - most have experienced SAH and can help you to come to terms with what has happened to your mother, so ask away! I hope your mother is recovering well and we look forward to hearing from you further. Take care, Mace x
  11. Hallo Rhian, And a very warm welcome to the site for a friend down under! I love Perth, and have fond memories of the city. Breakfast at the Indiana Tea House in Cottesloe is a favourite of mine! I had my SAH in June this year (17th) and have experienced strange reactions on trying to fall asleep. With me, as I am trying to drop off I suddenly gasp for air - a deep gulp as if it is my last breathe. It used to happen every night until the last couple of weeks, when it has become less frequent. I never had this before the SAH and I have assumed this is stress-related. I hope yours becomes less frequent in time too! All the best, Mace x
  12. Hallo everyone, is this available online now? I've tried searching without success, so if anyone has a link I'd love to read it. Thanks in anticipation, Mace x
  13. Hi Jules, You and Kelvin are welcome additions to our little community - but I am sorry you have both had to endure so much in order to join us! Stay strong and scream if you need any help or advice as everyone on here is very happy to share their wisdom and experiences so you don't feel so alone. Bye for now, Mace
  14. Forgive us - we're all a little bit brain damaged!!! (or that's our excuse anyway)
  15. Yep - that'll be just you then Kelv! You have a nice day now, Mace x
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