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ClareM last won the day on May 6

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About ClareM

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    Portsmouth UK
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    NASAH Feb 2015 with Hydrocephalus and EVD

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857 profile views
  1. Sounds like he is doing really well, glad he is driving again as it gives him some independence. I had to wait 10 months to drive and now am not that fussed about going out in the car, I've got used to being chauffered and public ttransport Make sure he takes the time to rest when he needs to and hopefully he will be fine. Hope you get to take that trip to London and maybe some holidays next year. xx
  2. I echo Pauls comments TJRCGG. If your husband is up for the trip then take it. You will be in the UK and therefore near medical attention should you need it, though I would think it highly unlikely. The chances of a rebleed are very slim, your husbands main problem will be fatigue so build in plenty of breaks during the trip. Quiet breaks where he is away from any stimulating environments. Have you thought about having a chat withyour GP re the amount of anxiety you are suffering, this episode has really shaken you and you may need some support yourself to get over it. I hope you can start to feel more positive soon, your husband has survived this and is very lucky as we all are. Embrace that survival and look forward to the future, it may be a new future but it's there for the taking. Good luck and keep coming here with your worries. We will try and support you. Clare xx
  3. Quadrantanopia

    That all sounds like progress Johnnie, keep us posted on your how it all goes Clare xx
  4. Hi, I had mine Feb 2015 with the complication of hydrocephalus so had an EVD and was unable to drive for 10 months. He will start to feel like his old self and some people who have had a perimesencephalic bleed find they almost get back to normal. It varies from person to person but he needs to be realistic about his recovery. It's not like a broken bone - 6 weeks and off you go. Try and make sure your sons take the burden of the workload. I found work the hardest thing to get back to and in fact have changed my job twice since the bleed something I never dreamed of doing aftr spending 22 years in a job I loved. Things post bleed are often different and it is something that he needs to be aware of. Hope you are coping, try not to worry too much about another bleed, they are very rare. Clare xx
  5. Hi welcome to BTG glad you have found us. Must have been very stressful being in another country when your husband was taken ill. Glad to hear his latest MRI was clear, that must be a relief. Regarding your holiday, May is a long way off and although he will still be in recovery at that point hopefully he will be up for the trip. I flew 3 months after my bleed, only to Europe, but since then have flown long haul. The only problems I get are extreme fatigue, so the first few days are usually spent resting. You say you are a very socially active couple, I expect you will find this may change. Your husband may find it difficult being in noisy situations and participating in conversations with more than one person. My social life is definitely not as hectic, I have become a bit of a homebody. He is still very early days but things will get better. Try not to stress too much, make sure he drinks plenty of water and doesn't go back to doing too much work too soon. Keep us posted. Clare xx
  6. Hi Alex Welcome to Behind the Gray and congratulations on finding us! It is interesting that we were one of the only sources of information you felt comfortable asking advice from. Don't worry about your english, it is much better than the french I use in emails when looking for ski accommodation! We are unable to give medical advice but we have a wealth of experience in the progress of recovery and I am sure many other members will share their stories. Your brother is in such early days and has a long way to go on his road to recovery. Let me tell you that when I was in hospital my children reported exactly the same as you are saying about short term memory. I would greet a visitor and know their name and speak to them. If they left the room to visit the toilet or speak to someone, when they returned I treated them as if it was the first time I had seen them that day. My children laugh about it now, though at the time they were very worried. By the time I left hospital I was retaining much more and able to remember better. Short term memory is often one thing that takes a long time to recover. People who have suffered a SAH (Sub Arachnoid Haemorrhage as we call it in the UK) often have this long term though it usually gets better over time. I still suffer mildly now though it does not affect my life and I manage to work - I just have to write everything down. Keep talking to your brother, hopefully his long term memory is ok? I will look forward to hearing from you again soon and how your brother is getting on. Clare xx
  7. 5 years

    Congratulations Casey and happy anni-versary. Great to hear that you are doing so well and still visiting us on BTG. Clare xx
  8. Nine Years who-hoo

    Congratulations on 9 years Colleen. You certainly seem to have a busy life now with work and your dog. Hope you have celebrated with a rest of some kind. Well done to have achieved such a great recovery. Clare xx
  9. back in hospital

    Hi Clara So sorry to hear of your troubles. Sounds like your scans were discussed at an MDT meeting when all the doctors get together and discuss certain patients. Hopefully they have come up with the right decision by sending you home and when the Ot comes on Tuesday you can get more answers. Don't cut too many people out, just give yourself some space. The ones who are there for you will understand and wait for you to be ready. I've lost friends since my bleed but only a few. The friends I have made since have been plentiful, interesting, caring and kind. So don't give up on friendship, it just may be different. Good luck Tuesday, keep us posted xx Clare xx
  10. New member - Peter John

    Hi Peter Welcome to BTG, glad you have found us. As Louise says, must be nice to have the sun most of the time. 4 months is very early days, I was just about returning to work at that stage on a very slow phased return. Still had periods of being absolutely floored and unable to anything but just sit! I too had a non aneursymal bleed and like you often thing 'why and will it happen again?' don't think that feeling will ever go completely. I am 2 and a half years out now and think I have reached the point I am likely to stay at. I've had plenty of ups and downs, career change and plenty more. Try taking some outdoor exercise gentle walks or maybe cycling. I find running therapeutic and a stress buster. I gradually built up my fitness after the bleed and now run 2-3 times a week plus I do classes at the gym. Take it easy, drink plenty and don't expect too much too soon. Keep us posted on your recovery. Clare xx
  11. Ann

    Hi Ann Welcome to BTG glad you have found us. I remember arriving at the hospital after collapsing on a run and being told I had had a bleed. I was given painkillers and then remember next to nothing for 3 days. I was awake and speaking in that time but have little recollection. My daughter likes to amuse me by telling tales of things I said. Very early days for you, rest and drink plenty of water. Take your time to look around the site there is a wealth of useful information here. Take care and keep us posted on your recovery. Clare xx
  12. SAH/Stroke/CKD

    Great new Shobs, hope Sandeep recovers well. Take care of yourself too! Clare xx
  13. Hi Clara So glad you feel like you have found a new home with us on BTG. We. are all here to listen and understand. At the stage you are now I too was struggling. My husband had to field telephone calls and people were told I could only talk for a short time. Words got muddled and things got forgotten but as time has gone on it's got better. I still forget, I still repeat and I still get lost in a sentence. But no where near as often as those early days. Be kind to yourself and don't expect too much. Relax, your friends if they are true friends, will understand and wait for you to be ready for longer chats. And they will come! Take care and keep us posted. Clare xx
  14. Hi I'm Taka - new member

    Hi Taka my NASAH was over 2.5 years ago. I feel I have recovered well and am about 90% back to what I was. I am a changed person with different views and feelings. Along the way I have lost friends but made new ones. I have changed jobs and now even my career due to stress. I know now that I need to make myself number one because nobody else will. I still get get odd pains in my head but don't worry unduly. Yes I read lots of journals and articles on SAH in the early days and some were helpful. However the most helpful things have been BTG and my neuro psychologist. Keep resting and and drinking water. Hope you are coping with your young family. Clare xx
  15. Hi, Welcome to BTG, glad you found us and hope we can be of help to you. Sounds like you have had a rough time of it with the usual lack of information on discharge. Hope the headaches have stopped now and that you are beginning to recover. You ask what is normal? That's not really a question that is easily answered as we all recover in different ways and at different speeds. I too had a NASAH with the added complication of hydrocephallus. I was in hospital for 2 weeks and off work for an initial 3 months followed by a slow phased return. I think 6 weeks really is a minimum, don't rush back as it will only set you back further. Your brain has suffered a terrible onslaught so you need to be kind to it and take things slowly. Hopefully your future will be a near enough return to normal but it may be a 'new normal', almost the same with a few subtle changes. A haemorrhage is a life changing event and I don't think there are that many of us who are 100% as they were before. You'll get there though, just take it slow, drink plenty of water and rest, rest. rest! Look forward to hearing more from you, keep us posted. Clare xx