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Karen

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Karen last won the day on February 19

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About Karen

  • Rank
    Administrator
  • Birthday 26/08/62

Profile Information

  • Gender
    Female

Converted

  • Biography
    Where do I start? I had a Subarachnoid Haemorrhage in 2005 and life became very different!
  • Location
    Wimborne, Dorset UK
  • Interests
    James Patterson, Lynda La Plante, Cranford, Marian Keyes, Cathy Kelly The Great Outdoors, Planes, Tr
  • Occupation
    Running this site
  • SAH/Stroke Date
    25/07/05 SAH - aneurysm coiled

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  1. I've always believed that any interruption to the supply of blood to the brain, is a stroke. That includes a clot or a bleed on the brain. Our deficits as to what we experience, will always be different ... as to what artery or what has been damaged by the bleed or even a clot. Every part of the brain is different, as to the area that it supplies and the affect that it has with our day to day life. No size fits all and I doubt that you guys would be on this site, if you weren't experiencing problems. Brain injury will always be individual and some of us suffer less and some suffer more mental and physical deficits ..... i'm still on a learning curve since starting the site in 2006, but I do know that talking about it and sharing your own experiences is something that you can't put a value on. xx
  2. Showing on TV this evening at 9pm on BBC2 http://www.bbc.co.uk/programmes/b09rdg0z My Amazing Brain: Richard's War Horizon,2018 Horizon follows the story of Richard Gray and his remarkable recovery from a life-changing catastrophic stroke. The film shows the rarely seen journey back to recovery. Recorded by his documentary film-maker wife Fiona over four years, this film shows the hard work of recovery. Initially bed bound and unable to do anything, including speak, the initial outlook was bleak, yet occasionally small glimmers of hope emerged. Armed always with her camera, Fiona captures the moment Richard moves his fingers for the first time, and then over months she documents his struggle to relearn how to walk again.
  3. Fourteen Years Later

    Happy Anni-versary Super! I'm sure that your travel adventures have inspired many a SAH'er to bite the bullet and go for it too! Have a lovely day and thank you for all of your help and support over the years. xx
  4. With many thanks and I wish you luck! This thread is now going to be closed re: deadline. If you're successful, I hope that you will come back and let us know and even if you're not, well done guys! xx
  5. Hi James, I've passed on your email address. Many thanks.
  6. Huge magnetic forces are used in MRI/MRA scanners and hence why platinum is used to coil aneurysms and is compatible in a scanner. I believe that it's anything with iron in the composition that causes a problem when being scanned and hence why we are asked to take off belts, bras with underwires, clothing with metal buttons, zips, jewellery etc as we or the nursing staff wouldn't know the composition of the metal and whether it would cause us a problem in the scanner. I truly wouldn't worry about magnetic eyelashes. It really won't cause a problem with your coiling. In a MRI machine, I believe that it's about the equivalent of a thousand fridge magnets on the brain when we're being scanned for check ups .... so I would honestly doubt that your magnetic eyelashes would cause a problem at all, on a day to day basis .... but if you were going in to a MRI scanner, you would have to remove them. Just adhere to the warnings on the product. xx
  7. James, I just need to pass your email on .... let me know if this is okay? xx
  8. I don't want to go too off topic or I may have to delete myself! So please don't reply! When it comes to reading or listening, you really need to practise it .... grab some quiet time, even if it has to be with ear plugs or ear phones! I was like most of you post SAH and couldn't remember anything from a book ... it does take practise and you can't perhaps do it, in the early months or years and it's baby steps, but you need to keep going with it. I started off with magazines. It does help to re-train the brain in my experience and from someone (me) that had to re-read passages/chapters or listen again, I've got to the point where I can read a book a week. It's my guilty pleasure since having the SAH, so please don't give up. x
  9. The following message has been posted on behalf of Ian Galea who is looking for a SAH survivor to contribute artwork that could possibly appear on the front cover of a neurology journal. For full details, please read below. If you are interested in participating, please either respond below to this post or you can PM me if you prefer and I can forward your email address. ----------------------------------------------------------------------------------------------------------------------------------------------------------- My name is Ian Galea. I am an Associate Professor in Experimental Neurology at the University of Southampton. We have a paper which will appear in the April issue of the neurology journal “Brain” (https://academic.oup.com/brain) detailing the development of a new scale to measure the impact of subarachnoid haemorrhage (SAH) on people's lives. So far all scales used to measure outcome after SAH have been borrowed from other types of stroke or brain injuries, so this is quite novel. We have worked with patients and their carers in Southampton to develop this scale. The article will be given prominence in the April issue of Brain, and the Editor has selected it as "Editor's choice" with free access for all. The editorial team have invited us to contribute art to appear on the front cover of the April issue of the journal. I think this is an opportunity to express the impact of SAH on people's lives in an artistic way, preferably by someone who has had SAH. I would be most grateful if you could send an email to all members of Behind the Gray, to see whether anyone with artistic talent is happy to help, and would be happy to work with us to produce the piece by the end of January. It might be a painting or drawing which they have already accomplished. There is no guarantee that the art we submit will be accepted, but it is a good opportunity to raise awareness about SAH and the impact it has on people's lives.
  10. My Darling Linda

    Paul, the memorial must have been tough for you .... sending love and hugs. xx
  11. Quadrantanopia

    Admin note to members: In order for this thread to continue and due to a member completely deleting text from their posts on this subject, I've had to heavily edit/delete replies in order to make sense of the conversation for new members. I've salvaged what I can, rather than closing the thread.
  12. Win, funny that you say that about ear piercing .... my Doc did my ear piercing when I was 16, as I had an allergy to certain metals. Unfortunately, he pierced the left lobe too far down, which is the one with the crease and I reckon that the weight of some of the earrings that I used to wear, has also added to the crease.....in fact it's now a V shape!
  13. Yes, I've had one for years on my left ear lobe and was aware that it's a potential indicator. However, I've a tendency to sleep mainly on my left side, so I'm a bit more wrinkly on that side of my face! x
  14. Melissa

    Posted on behalf of Melissa.... I had a bleeding stroke (Subarachnoid hemorrhagic stroke) on June 28 2017, After 5 days in ICU and 11 more in hospital I came home. I have a great support family and I really like my doctor however now that its been a little over a year I am starting to get this uneasy feeling and not sure what to do. I have been researching and in most cases you have to have surgery to repair the bleed or you have a greater chance of it happening again....I did not have surgery and when I ask about the chances of it happening again I was told that it was very rare. Has anyone had this and did not have to have surgery?