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Lori D

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  1. Beth, The school year has been going better than I anticipated. I expected to not be able to continue working, and I have been doing pretty good. Today was an off day, but I have been having more good days than bad. My neuro team said mostly the same thing- but they didn't say anything about peppermint oil- that's interesting. They also didn't mention anything about the deep massage. I'm really glad that you're feeling better- I know it's hard to focus on the good at times. I've been having a really hard time accepting the "no more children" aspect of this. I always pictured myself with a big family, and this was my first child. But like you said, we must count our blessings. I have not heard of anyone else with this condition either. I am based in west Michigan if you ever find yourself in the midwest! Lori
  2. Beth, Thank you so much for responding. It is encouraging to know there is another person out there. It's crazy how similar our stories are. I am am going to attempt to go back to work this school year, but I'm honestly not sure how it's going to go. Most days I'm fine- but others I experience headaches and nausea. I am honestly just curious as to what your neuro team shared with you (if you don't mind me asking)- Since our cases are so similar and there seems to be so little research. My neurologist suggested that I should not have more children - that it could make this recur, as well as certain medications. I'm just wondering if they suggested the same. I hope this doesn't come across that I'm looking for medical advice- I am genuinely just curious. How are you feeling now? I'm sorry you had to experience this with two children at home. Lori
  3. Thank you so much for your supportive message. I didn't realize that I didn't put the date. My SAH was March 13 of this year. In April I went to a rehab hospital, and after received home therapy- speech, OT, and PT. Now I'm in outpatient therapy. This has definitely helped me a lot. Being on bed rest for 5 weeks makes you extremely weak! We did have a lot of family/friend support. My mother in law basically took care of my son for the first six weeks, as my husband barely left the hospital. His work was amazing and let him use all of his PTO and then some. I'm interested to hear about people who have extended their families, as my neurologist advised me to "proceed with great caution" with having more children. My husband and I both agree that getting pregnant again would definitely cause some extreme anxiety, but we are in no hurry to worry about that yet.
  4. Hello, my name is Lori. I am 29 years old. I had my SAH two days after my first son was born. I walked in the door with my husband and brand new son, started making something to eat, and I got the thunderclap headache and began to vomit. We went back to the hospital, and a CT scan showed a large amount of blood on my brain. The next morning they put in an EVD. 10 days later I had an ischemic stroke. I spent a total of 30 days in ICU, and 5 days in a rehab hospital. I'm doing very well now, aside from fatigue and slight headaches accompanied with nausea. I have had 4 angiograms, and they have not been able to find the source of the bleed. My neurologist believes that the cause of the bleed was postpartum angiopathy, since I had just had my son, and my vasospasms continued for so long (hence the 30 days in ICU). I was wondering if anyone here had this be the cause of their SAH? Also, my biggest concern is returning to work in the Fall, as I teach 6th, 7th, and 8th grade art. Overstimulation definitely sets off my headaches... and if anyone out there is a teacher, you know that over stimulation is an everyday occurrence. I'm curious if there any teachers out there who returned to work after their SAH? Thanks, Lori
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