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Macca last won the day on July 19

Macca had the most liked content!

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About Macca

  • Rank
    Super Moderator

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  • Gender


  • Biography
    60 yrs old. Two grown up sons, three grandchildren, two boys and a girl. Got married in September 12 to Sandra. Played for Oldham Athletic in early 1970s. Thankful to have found this site. Visited Hawaii and Pearl Harbor in 2003 to fulfil one off my wish list.
  • Location
    City of Salford UK nr Manchester
  • Interests
    Football (soccer), reading, finding out about SAH, Spitfires, sailing ships
  • Occupation
    retired 11/4/2014
  • SAH/Stroke Date
    1/9/2010 L Ant comm- coiled

Recent Profile Visitors

652 profile views
  1. Hi Rich, I still suffer with tiredness/fatigue. It may be worth you getting your hormone levels checked. When I was coiled, my pituitary gland stopped producing growth hormone and I now have to have daily injections of it and I feel much better, although not perfect. I haven't heard of anyone else having this, so don't hang your hat on it, but it is a possibility. Hope you find some answers. Macca
  2. 9 months post SAH

    Hi Kathie, Everyone is different and 9 months is not unusual. If you do go back to work, discuss a phased return. Take regular breaks, stay hydrated and rest when you need to. If you can delegate work, then do so. Whatever you do, don't bluff, they will see straight through it. Think about going part-time or reducing hours, at least temporarily. If, and it's a big if, it is too much, then analyse what you are doing and think about changing your job. Stress is the last thing you need right now! Don't forget, this is your brain you are talking about, it is at the centre of everything you do. The symptoms you describe are very common amongst us survivors. You can get round them to a certain extent but you need to accept that change may be inevitable. Changing your job is not the end of the world - in fact it might just provide the fillip you need to push on and enjoy the rest of your life. Put 'Back to Work' in the search box and have a look at that thread for lots more information. I hope all goes well for you. Macca
  3. Thank you. Two years on!

    Hi Irene, Delighted for you! Thanks for letting us know how you are getting on and may you continue to progress! Congratulations on reaching your milestone!
  4. Newbie -Linda

    Hi Linda, Welcome to BTG! yes we are British but pain and suffering has no barriers - neither does caring and compassion as is described so eloquently above by Kris. I had the dreaded thunderclap headache 7 years ago today and I'm still here, so that should be some encouragement for you. I am now 62 years old! My job was very stressful and I went back to work after 6 months. I decided that I'd had enough three years later and took early retirement - best decision I ever made! As you're in Oz, don't worry if answers take a little time to appear - the time differences are enormous between here and you and the USA. Headaches are common after SAH but none of them are ever as bad as the 'thunderclap' one. Seek professional help if you are worried but congratulations - you are a survivor! Look at your glass as half full, not half empty. Look for the new opportunities that open for you, not behind to the ones that have closed. Life will be what you make of it. Yes, you've taken a punch, but get up from the floor and punch back! - when you're ready to, that is! Welcome aboard! Macca
  5. I haven't had soreness in or behind my eyes, but I have had the scalp tingling to which you refer. It settled down with the passage of time. I did report it to my doctors but, in my case, they said it was fairly normal after brain injury but that I was right to have asked the question. It took ages to settle down and scared me for a while until I got used to it. Brain injuries are notorious for taking a very long time to heal but you are right to ask questions as your condition currently is so very different to what you experienced pre-operation. Go ahead and ask your questions of your doctors, that's what they are there for. The only daft question is the one you don't ask, so don't be shy, and you don't want to become stressed by worrying about 'what ifs.' I would just say that everyone is different and, as you have other sensations as well, you should definitely get professional medical advice. I, too, experienced the tingling sensations when I was tired and it receded as my energy levels came back up or after sleeping. Over time, these sensations have all but disappeared unless I am exhausted, but even so they are nowhere near the intensity they were when I first had them. Mention your tingling sensations to the people who treated you as ordinary GP's don't seem to have the depth of knowledge to give you the answers you want and need. They may refer you to your optician. It is possible your optician may further refer you to a 'neuro-opthalmologist' for a check to be done. about that specific problem. If you see your doctor's and your opticians, make sure the two departments speak to each other and are aware of what the other is doing so they can take it into account when making their decisions about treatment, if any. Good luck and please let us know how you get on. Best wishes, Macca
  6. Skippy is right, you should seek professional help with this. It sounds like a defensive mechanism and he is frightened of swallowing. Perhaps you should talk about the possibility of blended food intake rather than solids. Have the doctors and nurses not noticed this, and why haven't they done something about it? I don't know how speech pathology can tell about swallowing, but I would venture that a chat with the consultant would be more productive. Why haven't the speech people been communicating with the nursing team and reporting back what they have found? I would start asking lots of questions if I were you. Don't leave them to sort everything out or nothing will get done. If it takes you to bring all the different departments together then so be it. They are all humans capable of mistakes as well as great things, so if you see something that isn't right, speak up. Don't be shy, get in there, it's what doctors are for and the health and safety of your husband is paramount. Hopefully, the pocketing isn't producing a choking hazard. The sooner you face up to the problem and get it sorted the better. Let us know how you get on.
  7. Good luck Andrea, my thoughts are with you.
  8. New here :) Amanda

    Hi Amanda, Welcome to BTG! The 'glad' part is you're still here, still smiling, still battling. Well done! Surviving a SAH is traumatic and can trigger very strong emotions in the early days afterwards, so don't beat yourself up about that. Instead, congratulate yourself on surviving and look onwards and upwards. After all, what else can life throw at you? Don't look back and be anxious about what has happened. Look to the future as a bagful of new opportunities, be thankful you came out of a bad time and be excited for the new future you have in front of you. Its like you've had your very own 'Dunkirk.' You weren't quite defeated and you've lived to fight another day, just like the British army, all those years ago! Doctors are humans and they can make mistakes, just like anyone else - but you survived it - and that has to be a positive omen for you, doesn't it? Do as Chris says, have a look round the site, click on the topic headings (Ie 'Subarachnoid Haemorrhage Discussion') and loads of subjects will come up. You can do that for each of the main headings and all the subjects you can think of have probably been discussed before to one degree or another. If it's all too much for you, just ask the question and someone will answer. Nice to have you aboard. Have you considered buying a lottery ticket? With your luck, the jackpot can't be too far away, surely? Best wishes, Macca
  9. Sammy Anne - if your daughter needs help then find her some. Even so, the very best support for her is a strong and stable Mum, upon whom she knows she can rely. So, you have to be there for her come what may. That's not too much for a daughter to expect of her Mum. Make sure you are proactive in finding some hands on support for yourself too! Stay strong - it will be worth it in the long run. Good luck. Macca
  10. MRI

    Hi Josie, Lots of us have been on this journey. It is surprising how emotional you can feel when you need to go back to the hospital. When I first went back, I was ok until I got into the hospital car park and then I inexplicably burst into tears. I didn't know why, but it was the fear of going back in - it seemed totally irrational at the time. When I went in however, it was like meeting old friends and everything was done in a matter of fact way that caused me no alarm whatsoever. I was frightened of my own shadow without any rhyme or reason. When I came out I felt such a fool, but on reflection, I reversed that thought. I thought, what a hero, I did it, I dealt with it. I had let my fears get the better of me because I had let them, I hadn't controlled them, and I hadn't confided in anybody. That was the foolish bit for me. I should have talked to someone before I went in. I had let reality fly out of the window and I needed someone to put me back on the path of reality with some balance of reason. I had needed to stay in control and the way to do that was by communicating. I was ok and I have never looked back. Go forward with confidence. The people dealing with you know what they are doing. You are worried because you have unanswered questions in your head. So get them out into the open - ask them out loud and get yourself some answers. If you let the 'what if's' get to you, you'll stress yourself, so keep them to a minimum by asking your questions and by speaking to people like us who have been there before you! Good luck Macca
  11. Hi Sammy Anne. I am so sad to learn of your continued troubles. First thing - look at the literature that comes with the drugs you have been prescribed. Look at what they treat. The look at what they don't treat. Then look at their known side effects. Do they relate to what you are feeling. Before you take them get a second opinion from another doctor, and make sure they are aware of your SAH, your current feelings, headaches and any other medication you are on etc, so they can take all of your situation and symptoms and tablet interactions into account. They have to be aware of everything to give them a chance to make the right decision. However, if you are aware yourself of what the drugs can and can't do, at least you can give the doctor in question the right facts in relation to your situation , headaches and SAH fears. Of course, you need to do this when you are not so upset, so that the correct diagnosis can be made. You seem to be lacking some 'on hand' support and, if you can, it will be important for you to find some either through family, friends, or counselling group that you can trust implicitly. Have you no UK routes you can exploit to your advantage? You cannot give up on your daughter, she needs you now more than ever, and it is important for her ongoing development that she has the love, support and ongoing strength of her mother, you, to ensure she grows up into healthy, well balanced individual. Stress is often associated with risks of SAH but no-one can say for certain because you can't measure stress - it is different in every individual - but to be less stressed than you are now has to be of benefit to your general all round health, in my opinion . You must stay in touch with your doctors and, with no disrespect to your psychiatrist, - check with your doctors that your tablets are ok to take before you do so. We can't tell you because we are not doctors - or even medical professionals - so take proper advice. Take care Sammy Anne, we are here for you to let off steam when you need it. Good luck. Macca
  12. Questions

    Thanks for letting us know. Glad you got that sorted. Good luck.
  13. Hi Pat, Six and a half years on, I find I have to manage my good times to get the things done that I need to, and then rest and rest properly. It is now about time management and realising that I am thankful to still be here and that all I have to do now is be a bit more organised than I was before. Look forwards not back, the positives not the negatives, the ups not the downs - half full, not half empty. Look at what you can do, not what you can't. Things could be worse and even now all this time later, I still feel that I am improving. As the song says 'Always look on the bright side of life.' Full of clichés, I know, but it's how I deal with it all. Good luck, Macca
  14. Kay - new member

    Be positive Kay - they have identified the problem and are in a position to be able to do something about it if required. Sometimes a second intervention is needed but look forwards to putting all this behind you once it is done. Good luck, Macca
  15. Questions

    Hi, You tend to get these things in the early days when your body has had enough and it needs to rest. It is usually a sign of tiredness setting in and is your body's way of telling you to slow down or stop. In my case these things got better with time and as I got fitter, almost without me realising it. What I would say is eat regularly, (little and often, rather than large and far apart) and as Super Mario says, stay hydrated and go to see your doctor if the problems don't recede.