Welcome, Guest!

By registering with us, you'll be able to discuss, share and private message with other members of our community.

Macca

Super Moderators
  • Content count

    2,624
  • Joined

  • Last visited

  • Days Won

    75

Macca last won the day on December 14 2017

Macca had the most liked content!

Community Reputation

11,150 Excellent

2 Followers

About Macca

  • Rank
    Super Moderator

Profile Information

  • Gender
    Male

Converted

  • Biography
    60 yrs old. Two grown up sons, three grandchildren, two boys and a girl. Got married in September 12 to Sandra. Played for Oldham Athletic in early 1970s. Thankful to have found this site. Visited Hawaii and Pearl Harbor in 2003 to fulfil one off my wish list.
  • Location
    City of Salford UK nr Manchester
  • Interests
    Football (soccer), reading, finding out about SAH, Spitfires, sailing ships
  • Occupation
    retired 11/4/2014
  • SAH/Stroke Date
    1/9/2010 L Ant comm- coiled

Recent Profile Visitors

897 profile views
  1. You're welcome. We all need to step back and take stock from time to time. Sometimes you get so close to a situation that you fail to see what should be obvious. I've done it enough times myself and you get wrapped up in things that seem all consuming. Good luck with re-planning and enjoy that family of yours. Let them see some of the benefit/reward of all that work you have been doing -and you know what? - Your work will still be there when you get back and someone else may just have taken some of it on for you! Best wishes Vermont Girl! Macca
  2. Hi, Yes I have some thoughts having experienced this kind of thing before I retired. First, fatigue/tiredness is probably down to the SAH, but regardless, you are feeling it whether or not it is from that so you need to deal with it as best you can. Second, you are so busy doing your job you have little time for anything else - and that can't do anything but wear you down, eroding your general health, your time with your family and your work is taking over control of your life. It's time to arrest that and take back control. Your last sentence says it all, but you need to stop thinking about it and just do it. Take a couple of days off, get yourself a pen and paper, find somewhere quiet and go through what you do each day, both at work and when you get home. You need to break it down and look at what you can delegate, set specific time for your admin, take regular breaks, even if only for ten minutes or so. Even at home, can someone else do the washing up or hovering, making the beds etc. Can you take the dog for a walk just to clear your head? Learn to say 'No.' It sounds to me like you are very conscientious and take on everything that comes your way. Can you get someone else to do the task and you just oversee it instead of you doing it all? Make time for your husband and family - do some quality things together or you will be in a rut and they will begin to resent being always in second place. After all, don't you go to work to make things better for yourself and for them? Yes, you have ambition and your career is important to you but you need to re-evaluate why it is important. You should look at it this way I think - family first, career second. The first is your bedrock, the second is your means of ensuring its well being (including yourself). You will be no good to anyone if you gradually get weaker and weaker to the point where others will start asking questions about your competence and your ability. So, well done for recognising that something needs to be done. Nothing stays the same forever. What you must do is recognise and make the changes required and don't stand still, because when you do that, you get left behind. We all do things best from a position of strength, not weakness. When you enjoy your family, you enjoy your job and you do it better. You're a smart lady. I know you will heed this. Do it for your family, do it for your career but most of all, do it for yourself. Good luck, Macca
  3. You're welcome Issy! It's what we do! Good luck, Macca
  4. Hi, As I see it, hospitals treat the clinical needs they are presented with and they do it very well in the main. The 'aftercare' ie when you are released from hospital is a 'gap,' and is a different thing altogether. What happens after release from hospital is that the patient(and their carers/families) acquires a thirst for knowledge - what happened?, why did it happen?, what can I do about it?, why does it affect so many different parts of my body? etc etc and this is where a site like this one begins to fill the gap. Where hospitals could improve is by garnering the knowledge from people like us and putting it into some form of leaflet, on-line Q&A or some such thing. The problem, though, is that the effects of SAH are so wide ranging and no one source could cover absolutely everything, because a SAH and its effects are a personal thing, varying in degrees of effect and emotional and practical impact. That is why this site is becoming so popular, the experiences are from real people who have gone through it and come out the other side. There are things though that are common to many SAH such as memory loss, headaches etc and these could be dealt with. It's just the effects that are different! It wouldn't cost a great deal of money to put information together but sadly most hospitals cite money as the primary excuse for not doing it. All it needs is a co-ordinated effort to put something together and let all hospitals use it. It does not need to become a cottage industry - just a one off effort could be enough! It needs someone in authority to say 'Yes let's do it!' instead of always coming up with excuses of why not to do it! Sorry to rant but it seems so obvious to me! And 'yes' I am a survivor, lucky to be here, and living and loving life to the full, in so far as I am able! That's the best way to say thank you to those who saved my life. Macca
  5. Lowey family post

    Hi Lowey, I think your Dad has gone into recovery mode. The body seems to have a natural way of retreating into itself while healing takes place. His brain has undergone a horrible experience, however, this is why it is important for you to keep talking to the medical people looking after him. Have they put him on any drugs that have side effects that appear to make him more lethargic. Are any of them sedatives to keep him calm? Are they controlling the state he is in to give his body the best chance of healing, in its own time? Write down some questions you want answering and ask the medics the next time you get a chance. Don't try to do it from memory, because in the heat of the discussion, which is often emotional because you are family, you will forget and not have the chance to ask again for some time. It is at times like these when you need the greatest patience, since he needs to recover in his own time, and not the time that you want him to. That is an important distinction. It is important for you to keep talking to him, if you can't think of anything then read articles from a news paper or magazine. People take in more than you think, even if it seems there is little response at the time. Good luck Macca
  6. Travel Worries

    There are hospital facilities on most islands these days, and where there are none they usually have links to get you to one. The Maldives have links, Cyprus facilities are excellent. I don't know about Bora Bora, never been but I'm sure there will be some provision. Turkey have excellent facilities too. I went to Kazakhstan and they have some very able people in the hospitals there but you need medical insurance. So as long as you have insurance you should be ok in most places, unless you are going to somewhere very remote, but even then, the chances of you having a re-bleed are very, very minimal. Another way of looking at it is that if the chances were high that you might have a re-bleed, then the insurance companies wouldn't cover you - but they do and they wring their hands as they take your money off you because they know that the chances of them having to pay out are extremely low. So if they offer you cover, you generally know you are ok to fly! That's my opinion anyway! Happy travelling!
  7. Travel Worries

    Nice one Swishy - go for it! Well done! Macca
  8. Travel Worries

    Take any medication with you (with a doctor's note) in your hand luggage, get insured and go and have a great time. I have flown all over the place since my SAH, Greece, Spain, Canaries, Ireland, Kazakhstan, Portugal, Cyprus, Turkey. I have had no problems whatsoever, just plan what you are doing and don't overdo the alcohol, or stay in the sun too long, rest when your body tells you that you need to, and you'll be fine!
  9. Well done Krislwal. Keep looking for answers by all means, but live your life, don't get hung up on the past or what may happen if you are very, very unlucky. Keep looking forwards when you can, and only look back to learn lessons from what you have been through. You are a survivor, like the rest of us, so make the most of that second chance. That's the best way to pay back those that treated you and then supported you in your recovery. Bless them all! Good luck to you, lady! Macca
  10. The 'Why' question is the greatest unanswered mystery. Nobody knows why for sure. Not enough research has been done, but common theories include alcohol/tobacco abuse, too much stress, poor diet, high blood pressure and hereditary factors. However, nobody has actually proved any of these, it seems, although there is plenty of good old common sense, and a few limited studies, to make an argument for any or all of them or any combination. Could it be drug side effects? Or how they interact with each other, if you take multiple prescriptions? I haven't the faintest idea, I'm just blessed to still be here, and long may it continue! It may just be a weakness that we are unlucky to have had, but then we have had the counter-balancing luck that allowed us to be treated and survive. Amen to that, I say! It may take a lot more money and research to come up with the answers to your question, but at least they can treat it if they get to you quickly enough! My consultant compared it to getting a puncture on a bike. One minute you're ok and the next you get a burst tyre, maybe by going over something sharp or because of a weakness in the inner tube, it's the luck of the draw! If it's good enough for him, a brilliant man, it's good enough for me! If anyone knows any better, I'll hold my hands up! Good luck, Macca
  11. I have been retired over three years now and I went early. My mortgage is paid off and now I don't have to pay petrol, car park fees, collections, lunches etc, I am hardly any worse off than when I was at work. You need to do your sums of course, but it's achievable and it's better than working for a living. You can also get a part time job with less stress or work for yourself etc so it isn't all doom and gloom. Go for it if you can! As one door closes, another opens!
  12. Fourteen Years Later

    Happy 'Anni'versary SuperMario! Have a great day and thanks for posting such a positive outlook! Life is about making the most of your opportunities, and after a SAH they change, but they are still opportunities! I travel too, short haul and long haul and having had a SAH, it makes me appreciate seeing the world even more!
  13. To my mind there are three stages to SAH 1) Cause 2) Treatment 3) Aftercare What happens in most cases is a ruptured aneurysm - Why? We don't really know, and so we speculate ie poor diet, (alcohol, tobacco included), stress - which cannot be measured but is believed to be a factor in a lot of cases, and various other things too. We seem to lack concrete data on all of these things and more research is needed for sure. Treatment, thankfully, is the best of the three categories above. At least we are now able to save many patients who make it to hospital in time. Aftercare is the biggest let down, for me at least. Issues around returning to work, re-evaluating your life, re-learning life skills, relationship matters, dealing with abrupt change, looking at the 'new' you, how to deal with people who can't see your injury and think you are alright, and the rest.. That's where this site has proved invaluable to so many people. After the clinical issues are resolved, that is where the authorities let go of the patient, and then the residual physical and mental issues kick in, with very little means of support, if any at all. As usual, they trot out the lack of cash available line, but there are things they could do with minimal input. Setting up support groups, providing more information online for patients and their families, utilising the experiences of previous patients and the like. Providing information for carers and just letting people release their anxieties would be a huge step forward. Step forward and take a bow BTG, currently filling a massive, massive, gap not catered for by the NHS.
  14. Me again (sorry)

    Hi, First, reply saying you want to appeal the decision. They will do a mandatory review as they are now obliged to. This is to review their own decision. When you get a reply from that, appeal again immediately. Make sure you do that as the time limits are very strict and if you are out of time they won't review it. It is from the date of the decision on the letter, not when you receive it so you must act immediately. Second - get to the citizen's advice bureau or welfare rights people quickly to get the best advice possible. Third - find out about the assessment you had. Who was the person that did it, what are their qualifications in relation to the condition you have. Have they reported the matter truthfully? Demand a full written copy of their assessment and challenge anything that is incorrect or misleading. DWP are currently on latest figures losing 60% of appeals. It would be more if more people appealed! When you get an appeal date for a tribunal, make sure you turn up. DWP don't turn up in some cases and if you do you are more likely to win. It won't get you an instant answer and may take time to go through, but you must stick to your guns to win. They rely on people not fighting decisions and their record on this issue is appalling. Get your appeal in as quick as you can and state on it somewhere. This is a letter appealing against your decision of -------- (date ). You can state your reasons later but you must appeal it straight away. Good luck, Macca
  15. Hi Mark, I too had a stressful job and I was off work for six months and when I did go back it very quickly became apparent that it was too soon. I had headaches for a while but these dissipated after a quite a time. I remember being told they were probably caused by the body reabsorbing blood into the body and it takes a while to do so. I don't know that for fact so I would check with the people that treated you. Stay hydrated. However, fatigue was a constant, but that was a separate problem for me in that may pituitary gland was damaged when the coiled me and I now have to have daily injections for the rest of my life to correct a hormone imbalance. A small price to pay because the quality of my life is now very good. What I would say, as I have done a few times recently, take stock of your job and your life and cut down the stressful things you do, delegate if you can, and generally reappraise what you do. Look at shortening your hours - at least in the short term, so you give you body a chance to recover. Something has to change in light of this serious injury and if you don't change it, it will change you. Good luck, Macca