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About Tinaw

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  1. Tinnitus

    Hi, I just wanted to make an update again if anyone else can be helped by what happened to me. As I said in earlier posts I had been feeling quite unwell for a while, my tinnitus had increased and my ear started to feel full and I couldn't hear too well. Also, I had headaches, I couldn't take a short walk without being short of breath, my legs were shaky and frankly, I was in a state of panic thinking that something was very wrong. All these symptoms I just put down to general fatigue, but I couldn't understand how I could be feeling so bad all of a sudden. Then I received a message from my doctor, that the blood samples they had taken a few weeks ago showed that I was anemic. They wanted to run some more tests, so I went to my GP's office. There, the blood tests showed that my blood count was very low, so low that my GP sent me to A&E for a possible blood transfusion. I was not given one, as I apparently looked to well for this. (I was not feeling that well, though). Anyway, apparently my iron levels were very low, and this is what caused the anaemia in my case. Instead of blood, I received an intravenous iron drip (never heard of it before). This is quicker than eating iron supplements and also doesn't upset your stomach at all. The body is given all the iron it needs in one go, and then it takes a while for the body to use the iron to actually increase blood count. After the iron drip I felt like a completely different person. It has been a few days now and all the symptoms I had before have diminished or gone. My ear hears fine again, tinnitus on very low volume (apparently anemia can cause or worsen tinnitus), I am able to take a walk without having to stop all the time, and the general feeling of unease has lifted. I am so glad that I had routine blood tests done a while ago and that my doctor contacted me. The anemia in my case is probably caused by the fact that I had stents fitted as well as coils. The doctors told me that for the stents to grow in to the blood vessels and not cause clots, I have been on two different blood thinners simultaneously for six months since my SAH. This has made me bleed a lot every time of the month, but I haven't given it a second thought, I never believed anemia could come so quickly. Since six months have passed now I only have to eat one blood thinner from now on and only for another six months, and I hope that this will help. If it doesn't, at least I am monitored closely now. So, if anyone experiences anything like this, it might be worth checking if you have any deficiencies that can be helped.
  2. Tinnitus

    Thank you so much, Gilly. I do look forward to a time when I won't panic anymore. It is completely draining and really doesn't lead to anything good. And still I have been in a panicky state for most of today. I actually almost went to A&E as I was feeling so bad. Now I am glad I stayed in bed resting instead of waiting endlessly in a hospital, getting even more fatigued. Still feel quite anxious though, but fingers crossed I will get some more sleep tonight. I will try to monitor my tinnitus from now on. I was going to, but it felt ok for a while so I never did. I have a bad habit of thinking that whenever I have a terrible day, I think I will feel that way every day from now on. Not very constructive. A diary would probably be helpful to be able to look back and see that there have been good days (and in all fairness I have had many good days since the bleed). BTG is truly a blessing on these days when everything seems hopeless.
  3. Tinnitus

    I just wanted to check in to say that unfortunately I'm feeling very low at the moment. I had three weeks when the tinnitus didn't bother me too much, but in the last few days something happened. As I woke up one morning, I suddenly felt that my hearing had decreased in my bad ear. I felt like I was under water, all sounds became really distorted. Also, the ringing was louder and I noticed I was super sensitive to noise. Even having a shower was too loud for me. My anxiety levels have since then risen, as this feeling wouldn't go away the next day. I went to an ENT specialist in hospital to check my hearing, and actually the hearing in my left ear was worse than before. No explanation given other than I probably had been exposed to loud noise at some point. She did not think this was connected to the bleed as I had no other neurological symptoms. Today, I am at an absolute low point. Extremely sensitive to all noise, difficulty sleeping, and very, very anxious. I'm finding this incredibly difficult to cope with, and lack of sleep just makes it so much worse. I'm sorry for the rant, but I really don't know where to turn, my poor husband is trying to cope too and is getting tired of listening I think. Did anyone experience anything similar, and any advice as how to cope with this?
  4. Hello! I think it is very individual when you go back to work. I have been away from work now for almost 6 months and I feel like I am climbing the walls here at home. I have a the support of a brain rehab team at my hospital, consisting of a doctor, a therapist and an occupational therapist and they seem to think that 6 months is a short amount of time to return to work after an SAH (I'm in Sweden so this may be different from what is recommended somewhere else). They keep telling me that returning to work too early may give you setbacks, which you also mentioned that you have heard. I guess they have treated many patients so they probably have the statistics on this, so I am listening to their advice not to rush back to work. (But it still makes me frustrated and I am hoping to do a few hours a week at work starting December). Anyway, I would say listen to your body and brain, I think only you will know when you are ready to go back to work. Take care!
  5. Tinnitus

    That's great, Casey, that you found something that is making the noise more tolerable and that also helps your hearing. I am still trying to sort of monitor in which situations my tinnitus gets worse, as I have only had it for a couple of months now. My tinnitus is tolerable at the moment but I would definitely look in to getting something that could help mask the noise if it gets worse. Thanks for the info!
  6. Tinnitus

    Hello again, and thanks for your support. I hope your daughter feels better, Win! And sorry to hear about your congenital deafness, Missy67. It is reassuring to hear that the tinnitus gets better over time. I am feeling a lot better at the moment, although the ringing is still with me, sometimes louder and sometimes very low. My mind has been elsewhere for the past week as I just came back from a holiday in the Canary Islands (after having read many posts here about flying post SAH I felt a bit better about it and decided to go for it - the trip was booked before my SAH). The stress before this trip was tremendous, but it all went fine, and this week in the sun with my family turned out to be a bit of a break from thinking unhappy thoughts and just listening to the sound in my ear...A bit fatigued now, but I feel that I regained a small piece of my former life by mustering the courage to travel.
  7. Tinnitus

    Thank you all! I had my ears checked and there was nothing visibly wrong with them, then again I did not expect there to be. Luckily, the noise is not constantly loud, but mostly a background noise, and I am learning not to panic when it does increase in volume. But I am surprised at the wave of emotions that I have felt since my ear started to bother me. I get these memories from being in hospital, waking up from being in an induced coma for a week, seeing my family again and their worried faces. It makes me so sad, that I made them so worried, especially my young daughters. I guess I have to remember these things to move forward in my healing process, but it is exhausting to be sad. I am very much looking forward to seeing the therapist on Friday. Meanwhile, I will try your advice Win, to think happy thoughts and sing .
  8. Tinnitus

    Hallå Daffodil ! Gothenburg is such a nice town, I used to live there for a while and have loved it since. Now I live on the east coast instead, but I try to go back sometimes to visit. Thank you so much for your useful tips and support. I tried the "sitting with it" and that really helps. I realise that I've tried to sort of run away from it, always keeping busy so I wouldn't notice the sound. This has me really exhausted of course. Rather than taking it easy as the doctor told me to, I have been doing the opposite...Anyway, as you suggested I have now booked an appointment to talk to a therapist about it. Up until now I have been using my husband as my "therapist", but although he's great at making me feel better, this time it might be better to see a professional to deal with my emotions. Take care Tina
  9. Tinnitus

    Thank you so much for your support, it really helps. It is also hopeful to know things will change and improve over time. And if the tinnitus persists, hopefully I will be able to accept it eventually. I am just so sensitive at the moment, and any changes to my health seem to make me anxious. I guess things that I may never have given a second thought before my SAH now feel slightly overwhelming. Anyway, I'm so glad I decided to google "subarachnoid haemmorhage" in English and found you (I'm Swedish, and there does not seem to be any kind of support group at all for this here, but then again - it's a small country).
  10. Hello everyone! I am sorry to make my first post on this site one so long and so negative. But today everything just feels so hopeless. I had my SAH 4,5 months ago, and I know I am so lucky to survive it. During my recovery I have suffered bad headaches, strange sensations on my scalp, the feeling of pressure in my head, fear of death when going to sleep, immense fatigue etc. However, I sort of seemed to manage all of this without going completetly insane, probably mainly because of my husband and two children. They always seem to make me forget my troubles, for which I am thankful. I was starting to feel alot better than before a few weeks ago and felt I was in a happier state of mind. Suddenly I was making progress, both mentally and physically. The headaches subsided and I was able to do more without immediately having to nap afterwards. Happy days. Then, out of the blue, my left ear started playing a tune for me, day and night. I have always been sensitive to sound, and I am a very light sleeper. This sound, although in a fairly low volume mostly, is starting to make me feel crazy. It occasionally goes away, and even when it does, I just seem to wait for it to start again. And so it does, at completely random times. I went to sleep last night, everything quiet, and I was so happy. Then, at 3 o’clock I woke up and there it was again, louder than ever. And it keeps following me today. I just can’t relax. I spoke to a stroke nurse yesterday, who said that according to the doctor, the sound was not in itself an indication of something dangerous. Therefore, it was not the hospital’s problem, and I had to go see my GP about it. So, I called and made an appointment for Monday, but something tells me they won’t find anything at all. I am guessing it’s just my head playing tricks on me. Anyway, it feels as if I have gone backwards in my recovery, and that is not a good feeling. I don’t know what I wanted to say with this, really, I just felt I had to write this down to keep my mind from going mad. I am so glad I found this site and I hope you are having a good day today! Tina