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Tina

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Everything posted by Tina

  1. Tinnitus

    Hi Tinaw Thank you so much for your update and so very pleased you have got to the bottom of why you were feeling so unwell. Your post will be very helpful for others to read if they have similar symptoms. Great news you are being monitored closely now. Take care and keep in touch. Love Tina xx
  2. Kay - new member

    Hi Kay fingers crossed for you that all will happen this time on the 14th December. Wishing you well and let us know how you are doing. Take care Love Tina xx
  3. Penny - Saying hello to members

    Hi Penny a very warm welcome to BTG Thank goodness your friend found you and you were airlifted to hospital. I too had 7 hour op to clip my bleed. Great news your scan looked good even though you still feel like **** . It can take some time to recover, you have had a major trauma to your brain. I also lost lots of weight and felt very dizzy, nauseous and wobby and had double vision, so can relate to how you are feeling and going through bless you. As you have already found, there is a wealth of helpful information here and lots of friendly support. BTG was a Godsend to me in the early days and still is. You are in the very early stages of recovery, things will improve, it just takes time. Rest up plenty, listen to your body and drink lots of water. Look forward to hearing more from you and please feel free to join in the daily banter in the Green Room. http://web.behindthegray.net/forum/9-the-green-room/ Take care Tina xx
  4. Hi Steven, welcome to BTG. In the early stages i also had the tingling and pressure feelings. I was told the tingling in my scalp/head and face was everything mending after my bleed. I also had big pressure pains behind my eyes and back of head especially if i put my head down. These did improve over time. Rest up, drink plenty of water and don't over do things. I had a follow up with my Neuro Consultant at 3 months, when is yours? If you are really worrying i would contact your Doctor for peace of mind. Let us know how you are doing. Take care Tina.
  5. 5 years

    Congratulations Casey on your 5 year NASAH anniversary Sorry you had a miserable headache as a friendly reminder, hope you are feeling better now xx Great to hear you are doing so well. Thank you for all your caring support to others. Take care Love Tina xx
  6. Nine Years who-hoo

    Colleen congratulations on your 9 year SAH anniversary Well done you for all you that you have achieved, be very proud ! Sending much love back to you, Take care Love Tina xx
  7. New member - Peter John

    Hi Peter John A very warm welcome to BTG, glad you found us. It is very early days in your recovery, be kind to yourself, listen to your body, pace yourself and don't push too hard. Some great advice above and you will find lots of helpful friendly support here Look forward to hearing more from you and how you are doing. Here is the link for NASAH section : http://web.behindthegray.net/forum/16-non-aneurysm-sah-or-perimesencephalic-sah/ Take care Tina xx
  8. Kay - new member

    Bless you Kay, so very frustrating and stressful, really feel for you, so sorry your surgery did not happen, hugs xx Thank you for letting us know, I really hope you get the 10th November confirmed so at least you know what's happening. Wishing you well for your coiling and hope it wont spoil your 30th birthday celebrations. Everything crossed for you, all will be fine Take care Love Tina xx
  9. Hi Clara I can relate to a lot of what you mention. I felt like my whole world had been turned upside down, which it had, devastated ! Many years later i stopped trying to be the old me and started to embrace the new one. Learnt how to pace myself and know my limits. I am much kinder to myself, instead of pushing too hard and making myself ill. I also had my down tearful days, more from frustration, when my words would not come out the right way or i could not remember things or did not wants to see or speak to anyone or had an anxiety attack i could not control. I think it is all part of the road to recovery and it does get better, i promise Take each day as it comes, one step at a time and you will get there. BTG was a Godsend for me, good days and bad days i found great comfort and support from others here and still do You will get your mojo back, it just takes time. 5 weeks is so very early in your recovery. As Karen Hyder once said to me, be kind to yourself, very wise words. Take care Love Tina xx
  10. Hi Krislwal Hope you will get some answers and comfort when you see your Doctor. Take care xx
  11. Hi Dotty A very warm welcome to BTG Glad you found us. So sorry to hear about your Dad, such a stressful worrying emotional time for you all. Two weeks is so very early in your Dad's recovery, his brain will be working overtime trying to mend and recover from a huge trauma, plus doing the normal everyday things we take for granted. Really fantastic news he recognises you all, is eating, swallowing and reading signs. The confusion often comes from extreme fatigue, have you noticed your Dad sleeping a lot. This is normal as he will need lots of rest and sleep to help with his recovery, also lots of water. The surgeons are closely monitoring your Dad, and sometimes recovery does take months & months, there is no time limit, everyone's recovery is different. Although he is confused and seems in his own little world , he is responding to your questions and his memory is there, which is a huge positive Wishing your Dad well with his recovery and look forward to hearing how you are all doing. You will find lots of helpful information on the Forum. Please feel free to ask any questions, we cant give medical advice, but can share our experiences. Take care & remember to look after yourself. Tina xx
  12. Tinnitus

    Hi Tina A very warm welcome to BTG from another Tina Sorry you are suffering so badly with Tinnitus, its horrible, feel for you ! You are still in the very early stages of recovery, i had this on and off for the first year in my recovery. It did improve over time, i still get the odd noise but fingers crossed not so loud. One thing i will say, is that sometimes you seem to go backwards to go forwards in recovery, if that makes sense. Maybe you are overdoing things, pushing too hard. Be kind to yourself and listen to your body. Glad you have found BTG, you will find lots of caring friendly support and also lots of helpful information on the Forum. I really hope your GP can help you on Monday. Look forward to hearing more from you. Take care Tina xx
  13. 2 Year Anniversary

    Chris, congratulations on your 2 year NASAH Anniversary What a great way to start your special day, with a run, a smile and such a positive outlook Be very proud of what you have achieved, i know there have been ups and downs along the way. You are an inspiration. Thank you for being part of our BTG family and for all your caring support & friendship back to other survivors here. I hope you have a very special day celebrating ! Take care Love Tina xx
  14. Congratulations to you both on your 1st year Anni-versary 'Loka samastha sukino bhavanthu' Wishing you both all that you wish for and more ! Take care Love & hugs Tina xx
  15. Current Health Status

    Hi Snootybutnice Go to the first post at the top of this thread and Click on the circle to the left of NO..6 , then click at the bottom on SUBMIT VOTE. It then shows you a graph of all the results Hope this helps xx P.S. If you click on the results on the right hand side you will see you already voted 6 on the 5th October last year .... thats why you cant see how to vote, it only lets you vote once, just tried it myself xx
  16. Just checked my ears, I don't have any creases, I've had an SAH .
  17. Would like to share my story

    Hi Julie A very warm welcome to BTG. So glad you found us and the site has given you some comfort to know you are normal in how you are feeling and not alone. You will find lots of helpful information on the Forum also lots of friendly caring support. As the lovely Win has already said, please feel free to join in the daily banter in the Green Room, we are a friendly bunch and ask any questions on the main Forum. We cant give medical advice, but can share our experiences. Julie G-B said QUOTE "I'm confused, so so tired, cant find words, a shocking memory, really struggle with light and noise, shooting head pains, neck pain, sometimes my head is just too heavy for my neck, when I'm extra tired my left eye almost closes, just wish I could have just one day off from the head ache." I can totally relate to all that you have mentioned above. Things will improve, it just takes time and learning your limits and not pushing yourself too hard. Lots of rest and drink plenty of water. Wishing you well with your ongoing recovery and look forward to hearing more from you. Take care Tina xx
  18. Eileen, a very warm welcome to BTG and thank you so much for sharing your reassuring experience with Kiwi11. Maybe you would like to post a bit about yourself in the Introduce yourself section. We look forward to hearing more from you. http://web.behindthegray.net/forum/8-introduce-yourself/ Wishing you well Tina xx
  19. SAH/Stroke/CKD

    Shobs, also wishing you and Sandeep all the very best for the 17th October. Take care Love Tina xx
  20. SAH nearly 5 weeks ago passed out on the toilet!

    Hi Jen A very warm welcome to BTG. So glad you found us. You will find lots of helpful information on the Forum and lots of caring support. Feel free to join in the daily banter in the Green Room, we are a friendly bunch. Wishing you well with your ongoing recovery and look forward to hearing more from you. Take care Tina xx
  21. Quadrantanopia

    Good luck to you all, have everything crossed for a positive outcome xx
  22. Hi Mandie So sorry you are feeling this way. I think a lot us go through times when we feel so very low, tearful and grieve how we have changed or been affected. Sending you a huge hug and lots of love xx Try to concentrate on how well you have done and all the positive things, easy to say i know ! Try doing something that you enjoy and makes you feel happy. You never need to apologise for being negative, as i said, we have, at some point all been there and can totally empathise and understand where you are coming from.. If things don't improve and you cant get out of that rut like you have before, maybe go to see your GP for some help. I tried counselling and it really helped to talk to someone not family or friends. Others tried antidepressants that also really helped. We are always here for you Mandie. Hope today a better one for you xx Take care Love Tina xx
  23. Concerned

    Hi Sonia, lovely to see you So pleased that you went to the Dr as Sarah suggested. Glad the letter was re written and you got your peace of mind, bless you xx Take care Love Tina xx
  24. Kay - new member

    Hi Kay Wishing you well for tomorrow and a speedy recovery in time for your 30th birthday Thinking of you and sending loads of positive healing vibes your way xx Take care and as Win has said, when you feel up to it, let us know how you are doing. Love Tina xx
  25. Hi Rich a very warm welcome to BTG. It is very early days for you in your recovery, at 5 months i could hardly walk because of the dizziness and double vision plus headaches. Well done for doing so well, but i would say slow down and pace yourself, don't push so hard. Your body has a way of telling you when you are doing too much. Rest up as much as you can to allow your brain to repair, you have had a major trauma. Have you thought of trying a V pillow to help keep you slightly upright when trying to sleep. I found this really helped with the dizziness when lying down. I was also very noise & light sensitive for quite some time. Even nearly 10 years down the line, i still suffer from dizziness and fatigue, also nerve pain down the side of my face, forehead and around my eye. I had to learn how to pace myself and recognise my new limits, still catches me out now sometimes Things will get better, go steady and let us know how you are getting on. Take care Tina xx