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jillbb

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Everything posted by jillbb

  1. Hi all many thanks for your help. Have now cut down to only 5 pet. Sheep, have had to adjust my life style as we all have to. Feel really sorry for you younger SAH 'S how you cope with young children must be very challenging, just after 3 weeks of hyper active 4yr old and 6 year old has really taken its toll on my brain, by the end of each day my vision is really blurred. I do wonder what happens to our brains when we get stressed and and tired, one imagines that after 4 yrs the bleed would have healed along time ago, we all coped easily before our SAH
  2. Hi all, l am one of the members who comes and goes! Great to see many old friends are still here after a period away. As with us all we have to suffer as they say in silence, only when my brain feels it is going to burst and l can't go on do, l return to BTG, the one place where one does not feel nearly ashamed and guilty at not being able to cope, or one has to say no, l can't do it. I am now 4 yrs on, it is getting better if l do not do too much, but when l get stressed, and family and friends find it hard to understand that l am not as l was, especially when they need a lot of physical help it is difficult. It is very reassuring having read the previous posts above from everyone, how we all have the same problems with our brains. Nobody unless they have had a SAH knows how it feels, living with constant headaches are a bore, and constantly forgetting and confused is frustrating. I have a great fear of going to the GP it took me a year to get my license back, and then l had do a driving and a number of written tests ,at my age 73 they would never give me my licence again. I have also had to have special eye tests as there was damage to my eye. So there we are, l live in the Brecon Beacons, no bus. I can still drive my pony but the shops are a long way to go! Has any one else had any problems with DVLA and has their Dr ever mentioned driving when they have been about headaches and vision. Sorry to only appear when l am at the end of my tether, but school holidays etc!! Love to all Jillx
  3. Thank you every one, my chest seems much better, I have booked to take my Mother away for 2 days to the west Wales and will be staying in a hotel. My son is coming to help am hoping that having nothing to do will help. I was probably over doing it, as you all say, if we try to push our luck we get pulled up with a real jolt. Have just come down stairs and feel ok, just hoping when I go out side the vertigo does not start again. It did unfortunately yesterday. Thank you for your support, very difficult to say any thing at home, but hubby knew as he helped with the house work. Love Jill
  4. I would like some advice from anyone else who has suffered vertigo. I had my SAH 2 1/2 years ago. I have made a good recovery I think! I get tired my brain is terrible at times but other wise I a, very lucky. Still terrible on the iPad! Keep forgetting how to find my way about. Last Thursday I had just done a birthday supper for my Granchildren. The room was quite hot, but I collapsed on to the floor, hardly any warning. Poor husband and daughter had to drag me into the hall, for fresh air. When I came round I felt very tight across my chest, but that has gone. On Friday I felt very dizzy, but was still able to keep going, fed the sheep and ponies in a bit of a blurr. Saturday went to a carriage driving competition, but could only drive round the school before having to get off, leaving my grandaugter to take over my pony! I was so dizzy I could only sit and watch. Sunday I did very little and felt much better, but today I am dizzy again because I have been trying to work. Terrified of the dr as I lost my driving license for year and then had to a 3 hour test before they would let me have my license back. I am not stupid and would never drive if I was dizzy. Any advice. Very frustrated OAP Jill
  5. Hi Sara hope you are feeling better. I think we are all in the same position, I am nearly 2 years in, we have just had Christmas which I dread. My family forget I am over 70 and that I get tired or shall I say exhausted. I am just beginning to pick my self up having had family for 2 weeks. We can never be exactly the same, it is just trying to pace one self. On the bright side I had not used an iPad until my SAH my first messages to Behind the Grey were terrible as I just did not know what I was doing! I would never have bothered to learn to use a computer if I had not had an SAH. I was a keen horse rider, I was advised not too ride as my balance is not good. I now drive a pony and compete in unaffiliated driving trials. Can not compete in affiliated as we are not allowed to have any tests called. Brain problems are not classed as a disability! I think your sking is great, some times we have to change sports for some thing we can do, but keep going as time goes on we do get better, or perhaps we learn how to cope. Ours is a hidden problem. People, ,even families forget and get impatient with our tiredness and the never ending head aches. When I wake up with out a head ache I rush round doing all the jobs I had not felt like doing, then I get a head ache again. As Win always says keep laughing how right she is even if you feel like crying . Happy New year love Jill
  6. Dear dawn I read your post with sadness, what are we doing to our work force? SAH, people will never understand the long term results, they seem to think that after a reasonable time we should all be fit to work. The medical profession don't seem to want to know, and certainly appear to me to totally underestimate the long term affects. Luckily I am retired although I still work on my small holding, there is no way I could hold down a job, with constant pain in my brain and continued blurred vision, will be watching your progress it seems very hard to judge your ability to work when you have had a brain injury love jill
  7. Has anyone found there eye sight was deteriorating? I am very depressed as the dvla sent me for a third eye test in 11months! I do at present still have my licence, but have been trying to renew it since my 70th birthday last September. I had a test last week and they say my sight is deterioating in my right eye. I suffer from continuous pins and needles in my brain, the only way to describe it, it seems to be getting worse. I am terrified of asking for help, because of my licence, but it now wakes me up at night, and I don't think they are very interested in any one of my age. I only had an SAH burst blood vessel no aneurism, so I am surprised my symptoms seem to persist. I lead an active life and have even been placed in some of my pony driving competitions so I am not suffering with depression, just total frustration at having constant pain in my head and a wonky eye. I have every sympathy with every one who has these very difficult to describe symptoms with their head, if it wasn't for this web site I would be going nuts. Love Jill
  8. Hi Allison so sorry to hear of your tragic loss, and your SAH? I also had a bleed for no reason, except I was chasing sheep! Just because you only had a bleed, please don't expect too much from yourself. I am now 18mths on, I expected to be back to normal ages ago but it just is not like that! Try to get as much help and support as you can, while it is still in your family and friends memory, I find when it is 18mths on, There is not so much sympathy especially when one states that you can'nt do things as one is so tired. Do drink lots of water and keep off the drink, I find a one glass of a little white wine filled up with tonic is ok, but red wine a big No no. Good luck, be kind to your self, it does get better, it would help if it would just stop raining. Love jill
  9. Hi Hwyaden, Panic attacks anxiety seem to be an ongoing problem, I just stand in the kitchen on some days and just say,"I can't do any more, when I get too many demands from family. They all think after this length of time we should be back to normal, I just don't seem to be able to work as I used to. I love my Grandchildren but I know I will get touchy as my daughter and 2 toddlers are coming to stay for 10 days! Noise and the constant tv all day really winds me up. At least I have got a lot of bulbs to plant so that will be some thing to do with them. Beautiful day, lying in bed looking at the Holy Mountain other side of the valley, I don't say that in the winter when we are stuck in. Love Jill
  10. Hi Juliette I, am so glad that all went so well with your MRI, I presume you were in the Heath Hospital, the same as me. I have never met any one who has had an SAH, I am not sure how one gives information about telephone numbers etc, but I only live outside Abergavenny, and would love to meet up with you. I have not found any sort of actual group in our area, I only found this site as my step daughter is quite a wiz on a computer, and has at last persuaded and conjoled me into the 20th century. I have been lucky at not having to have an operation, but as I improve ie less fatigue, I disappointingly seem to go backwards with my memory. Do we demand of ourselves too much? Are our expectations of returning to our normal selves prior SAH just unrealistic, I have passed the stage of being grateful to be alive, I just am striving to get back to as I was. Yesterday I went for an all day art course, with a visiting tutor, my confidence fell, as I looked at my blank piece of paper, her instructions were clear, and bless her she made no comment, when I said I could not remember a simple technique, this happens now all the time! Love Jill
  11. Look normal, friends and family just can't understand why we aren't'. I now do tell people I have had an SAH, if I don't appear to have grasped what they are saying, otherwise they think you are starting dementure! What is the hardest thing, is that I keep forgetting instructions I have been given and people are not very understanding when they have to repeat themselves. I used to ride a horse regularly before my SAH, my balance is poor so I have taken up driving, I used to drive when I was young. There is a special way of holding the reins,, I know in my head how to do it, but the message to my hands just suddenly won't go! Difficult to explain. My mind knows but my head will not send the instructions. I have a friend in wheel chair, heaven forbid. I was in the same position, but as she always says, people can see her disability they can't see mine, so tolerance of our problem especially after a year, is understandably a lot less. Keep going Susan, it isn't easy, but make up your mind you are going to beat it. I have set myself lots of silly little challenges, it does help. Love Jill. P.S. One challenge to use a computer, I never used one before my SAH through choice.
  12. Hi jo, I am now 18 months post SAH, I am trying to get back to my normal way of life. I always rode my horse until my SAH, have had to give up due to balance issues. I have now started driving a small dart moor pony which I love. Yesterday I went to a competition with a friend, I was fine in morning, by the afternoon, I started to feel very wobbly, I slept in the car coming home, helped her unload, then came home, and had to go to bed for an hour. Felt sick, dizzy and wobbly and tried not to admit it as other half would say I had over done it again. Dear Jo you are a new girl to SAH. Always go to get medical advice, if you are worried, I have never had much luck with my GP as he always says I was not the sort to have an SAH, reading this site, I would think I was, we all seem to have been very active people, and we all try to get back our previous lives. Unfortunately, every time we over do it, our brain takes control, and says very firmly NO, rest if you won't, I will make you! Nothing we can do, if you can't beat it join it.!, Love jill
  13. Hi Julie , I have also been on HRT for over25 yrs, after a hysterectomy. I have been on estraderm 25 for years having had great difficulty finding the right pill. I did try to stop a few years ago, but I became so tired, that my GPS gave me a blood test and found I had no estrogene and said I should stay on HRT. I had never thought there could be a problem with HRT. if I forget to change my patch , I know with in 2days by the sudden onset of extreme tiredness. I have never discussed HRT with my GP, but I have had no side effects. Love jill
  14. Hi Iola, So sorry to hear about your boss and work. I have had to come to accept, that as time goes on, after an Sahfriends and family find it hard to comprehend that we are not as we used to be! Although I don't work now, I lead a very active life on a small holding. my memory is terrible, having been able to work all day, I am still exhausted if I have done much physical work. I am 17 Months on, so don't punish yourself. I now say I can't, I.did try and refer family to the btg web site, but they did't seem to want to know! They do not want to accept we are different we look the same, we should be the sameas we always were, unfortunately we can not always live up to there expectations. I think you are doing wonderfully, looking after your little girl, coping with a job, and an SAH, Try not to get too low, you are doing so well, Please don't let a thought less employer affect your confidence. Love jillxx
  15. ] Hi jillion you certainly have been through it. I am also lying in bed, result of over doing it yesterday in the garden. This is a great site, as it helps one not to feel guilty, at yet again the inevitable tiredness and headaches which keep returning. Try not to think about work, your sort of job is so essential that when you are well enough they will be crying out for you. You are the most important person at the moment, sah's take their time, I have learnt as all of us have to, all the will in the world will not make a tired brain cooperate, rest and all our best wishes love Jillxx
  16. Hello Kathryne, glad you have found BHG, I find it is the one place one can talk about ones fears and frustrations with out being a bore to other people. At first every one is sympathetic, but having no outward sign of health problems, people and family cannot understand why after a year one is not back to normal! I have found to my cost, that trying to do what I used to do ie a full day looking after Granchildren gardening or even going to a class, where I have had to use my brain concentrating I eaves me exhausted, for the next couple of days, and having to say no, I just can't do it, surprises friends. Some how this seems the hardest thing, it makes me unhappy and feeling useless. We have to. accept especially for very active people that we have to learn to change our lives, our brain gives us no choice, it appears to me having read many posts, that SAH seem to affect very active people, that probably makes it harder for us to accept. Love Jill
  17. Hi diane. Glad you have found the site, l do not post often but regularly read how other members are progressing. The one lesson we all learn is that once we realsed we have survived the road to complete recovery is slow. Often l feel l can manage without behind the gray! but l always come back for reassurance. When when l feel frustrated that l have not coped with a situation. Just be patient with yourself l do not know how much help one has in Canada. But help from the medcal profession in wales has much to be desired! Self help is the only way One learns so much from others, the fact. We all suffer tiredness. Memory loss and it certainly goes on and on, l find my friends have been very understanding and l have now started. Pony driving as l cannot ride any longer as my balance is bad, keep looking forward one day at a time. Love jill 14
  18. Hi Rbr. sorry you are feeling so rotten, You seem. to have an incredabley busy life, l know how tiring young children can be. The more l read tne posts on this web site, makes one realise a sah is not like a broken leg, it does not heal its self quickly. l keep thinking after a good couple of days l am nearly back to normal but then l have fatigue and head aches. I am also suffering from aches nd sore shins l put it down to having to carry hay to the ponies and sheep, we have a foot of snow here in tne Brecon Beacons. I was explaining to a frie d why l was unable to cope with serving on a comittee, and l said to her that l had an sah, she told me to say l had had a stroke, people understand that then dont expect. so much. l find it so hard saying no l can,t cope. good luck try and get the chi?dren to help you, lv jill
  19. Dear Kris and Vanessa, how l agree with you, as an active mum and gran my family have always had me on demand, whether looking after the children or looking after ponies, l live on a small holding in the brecon beacons, so have always been busy. l find it very frustrating as the DVLA took driving lice se away so l feel cut off at times. They do not understand this incredable tiredness, at times if l am confronted with too many demands l just panic a d say l cant cope, l have never been like this, comming to terms with the new you is hard, one cannot bore ones friends continuosly by saying no, so l end up. staying away, does any. one else feel like this?? best wishes jillbb
  20. I would like to hear from other members how long on average does it take to get ones license back? My consultant told me the chance of me having another sah was the same as him! THerefore why am I considered such a risk? I contacted the D VL who said they would review my case and let me know, letter 4 weeks ago stating still considering my. case, dont call us we will call you, I live on a mountain I feel very cutoff as I have broken my leg I cant even walk anywhere, My road tax is due so l want to know if l will have to wait another year? I just wish they would tell us, best wishes jill
  21. Hi Julie Ann, I am also a new member and am still trying to find my way round the web site. I have found BTG a terrific support. My family although very supportive cannot understand why I am not completely back to normal, unfortunately I have also broken my leg which has put even more work on their shoulders. Until I found this site I have felt very guilty because I can't cope ie get anxious tired and my brain goes completely muddled. I thought I was going round the bend, so it is a terrific relief nto find that this is the way SHA affect one. There seems no ongoing help from the hospital, my GP has no experience of SHA,s his comment to me was, I would never have thought it of you! Good nluck at ieast WE know t5hat it is not a quick fix, like my leg hopefully will be. Best wishes jill
  22. Dear Mary So sorry you are feeling so bad, since I have joined. BHG your messages and courage have really helped me. A few days ago I never thought. ICpuld find my way round this web site, but now I am actual.y writing messages even though they zare in the wro ng forum at times. My sony tablet is not as easy to type with. and I cant fi nd. how to correct words. So please ex cuse mistakes, I know one should not blame ones tools! !keep going. Love Jill
  23. Had. Good luck David. MY GP said I have only ever had one SAH iin all my years of practising, I am very surprised you have had one, first a d. last time I go there! I was discharged after my 6 week appoint ment aadmittedly. I had not fou d this web site, I did not know what to expect as the hospital told me nothing except to expect memory loss and that I probably never be able to do the things I did previously, bit depressing. However where I. Live everybody seems to have forgotten I had an SAH. They afe mlre con er ed about my broken Leg and inability to drive.. so I cant be at every ones beck and call. Just had 3 lovely. days in COrnwall went on day trip to scilly Isles, hardwork in a wheel chair poor husband had to push me round ST Mary,s. as cant put my foot to the ground! Magical ISlands. Love Jill
  24. Hi Mary. I wake up every morning with a headache,. I try not to take pain killers, as they make me dopey,. I have found eating breakfast and drinking water does help, but I do sympathise,. I also find trying to read is bad news. Love Jill
  25. Dear Juliett I was chasing. A ewe who was having a problem lambing, bang Ifelt I had been punched in the head. I thought it must be migrain, I still managed to catch th ewe with the help of my husband he does not run, and then draw 3 lamb could not believe what was happening to me. I agreed to. go to hospital. The next day as the pain was so bad and was tranferred to the neuro unit at the HEath hosptal CArdiff. Love jil
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