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paul99

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About paul99

  • Rank
    Senior Member
  • Birthday 24/05/48

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Converted

  • Location
    west midlands
  • Occupation
    retired
  1. My story up to now - Maria

    Maria don't you ever give up or think of giving up. You have proved he is fighting his corner and enjoyed your visit so buck up and try to look at the positive side. I did that for lin and never gave up and had plenty of lovely moments and I would do it again if I had been given the chance. So look to a better future and some fun in the sun as time goes on sweetheart. Try and lift your hopes because nothing is final its just the start of the very long road to recovery hugs and cuddles xx
  2. Hi Maeve I'm sorry about Mum passing. Remember Mum with the love you had together and the happy times and the funny times which Mum made you laugh and smile. Hugs and cuddles to you both.
  3. Hi Tori I'm sorry I seemed to have missed a lot of your postings. please don't get upset about the peg its there to maintain mums weight and it will be removed when mum gains weight and maintains it as it is better in the tummy than the nose so mum will be a lot happier. My Lin was in the old n/staffs and yes they were brilliant to her although sometimes the nurses seem to be over stretched hence the food was still on the table. are they thinking of mum going into rehab elsewhere after they deem her fit enough? if you see Simon Shaw give him my regards a nice chap, wishing you and mum well take care and try and take time for yourself please xx Paul
  4. 3 weeks post SAH

    linda You will experience many changes and feelings over the next three to four months, it's part of the healing process. Drink plenty of water and listen to your body and sleep when your body tells you its had enough for now. Good luck xx
  5. My story up to now - Maria

    Maria I have sent a pm for you
  6. My story up to now - Maria

    hi sweetheart as your fella seems to be able to talk and the trip goes well, would you consider going over full time and marriage? never say never where a stroke is concerned the future is still there make a choice when you see him next as to if you are able to supply the necessary support. its a big undertaking but it depends on how you feel after the join up. darling I hope all goes well for you my fingers are crossed for you both hugs and cuddles xx
  7. My story up to now - Maria

    hi Maria im sorry I haven't responded any sooner I really feel for you and your fella I don't understand how drs make such choices recovery takes years and if your fella can improve he will with the right support can I ask if you are engaged do you have a green card and the right to work in the US? if so is it possible for you to transfer your skills overseas? I've been in your shoes for over eight years plus and never gave up which is why I sympathise with you being in such a difficult situation but hopefully when you do go over to see him, he reacts positively towards you and I have my fingers crossed that he does.. good luck on the visit sweetheart
  8. Hi Xmartz I haven't answered your thread before it is well known that the frontal lobe controls your feelings and behaviour and that your personality may change along with you behaviour and that you have little or no control over if they are affected a clinical psychologist may help you come to terms and educate you in how to handle the situation People will or not be able to accept your new self and will need to be educated and accept you for who you are now there will be many who cant handle the situation hence the suggestion that you seek out a clinical psychologist to help you along I found this very helpful when I was dealing with lin it also helped me understand the effects of frontal lobe bleeds and I've been in the advanced health care in the uk for forty five years and Im still learning you never stop learning the only thing I can advise is seek out a clinical psychologist and count to ten before you answer someone who riles you good luck
  9. 42 and worried

    Hi Kris Just take one day at a time, keep hydrated with lots of water. It does help with the headaches. Good luck and safe motoring should you continue. Take care.
  10. 42 and worried

    Hi Kris Your neurologist maybe right in respect of straining, you will have many a symptom which worries you as you are still in the very very early days of recovery. The headaches and other symptoms are normal as the brain has got some blood surrounding it and it will take up to three months for that blood to be reabsorbed back into the body. Try not to allow the anxiety to take over, the bleed happened and you survived. You are talking to people who have gone through exactly the same and its very unlikely to happen again. Many who have suffered a NSAH are now leading normal lives with very little after effects and some with very minor effects. Enjoy your new life Recovery can be years not weeks, but as you progress in your recovery the less you take notice of it. I would recommend that you drive when you feel better. You don't say if you are in the UK or not but if you are be wary because bleeds of the brain is a condition which is recorded to the DVLA by the surgeon by law, hence you might be breaking the law. We wouldn't like that, take one step at a time, please drink plenty of water and try to relax a lot more. Best wishes
  11. Gcs is 14 out of 15

    Aandrea The figures you are quoting relate to the Glasgow coma scale which hospitals use on admission and it's a moment in time. It does not relate to how a person recovers, that is very much down to the patient. It does not have any relevance to recovery. All it relates to is whether your are awake and whether you are responsive and the answers you give at that time. Look forwards to the future and making improvements as each day progress's, good luck
  12. 42 and worried

    Hi Kris Welcome to the site. Glad you have come out the other side, good luck on the angio on Thursday. There are many reasons for bleeds and non aneurysms bleeds which your seem to be related to. The drs will set you straight when you get a follow up appointment There are many myths and suggestions relating to sah. There is one related to the loo as well i.e. straining too much. There is no rhyme or reason one has a sah. It is though and has been proven its normally genetics I would start by taking baby steps first drink plenty of water and above all listen to your body. Don't over stretch doing things, sleep when your body wants to. Sex is not the main reason for sah its when the anni ruptures on its own cause normally because the walls have weakened and they let go. Evidence shows more happen when things seem to be going ok but there is a possibility during sex, but that will happen immediately not down the line I would suggest that you have a second chance of a new life one step at a time and one day at a time there will be the odd step backwards but many steps forwards good luck and hope to hear from you soon with updates
  13. Hi It's just on a week since dad had his bleed I'm not surprised he is agitated because of the blood irritating his brain. It will be three months before the body absorbs the blood into his body. The sodium can be catered for by the hospital and corrected. Please don't lose or get despaired, things will get better in the next few weeks. Take care
  14. hi I'm sorry your dad has suffered but he has come through the other side alive, however it is still extremely early in his recovery. Believe me the increase neuro pressure is always normal as well and the patients recollection and thought processes' go everywhere and things that are said do not relate to anything in the real world, its because all the electrical signals get mixed up and speech again does not relate to anything tangible. The evd's is placed as a short term solution to the increase pressure within the skull your dad may possibility have a shunt placed later but everything is speculative at this early time so the old saying of patience is a virtue is really important. Dad may not express himself properly for a few weeks so be prepared but hopefully dad will come through without any major deficit fingers crossed wishing you all well and please keep us up to date. Regards Paul
  15. Jan We love you for who you are now not what you were before. You have come through the hardest part of a brain bleed and have moved on with such courage and determination with John's support to a wonderful women who has such a lot to share and give. Be proud darling of everything you have done and will be doing in the future. Massive hugs and cuddles to you both xxxx Paul