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Super Mario

Super Moderators
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Super Mario last won the day on November 22

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About Super Mario

  • Rank
    Super Moderator
  • Birthday 11/08/49

Profile Information

  • Gender
    Female
  • Location
    N Derbyshire

Converted

  • Location
    North Derbyshire
  • Interests
    Family including grandchildren, my doggy, voluntary work, keeping busy, busy, busy. Foreign travel
  • Occupation
    Lady of Leisure
  • SAH/Stroke Date
    SAH 4th February 2004

Recent Profile Visitors

1,121 profile views
  1. Don't feel a nuisance about taking up your doctors time, you have experienced a life threatening event. It is possible your doctor knows very little about SAH that is why you were told to wait for your appointment. SAH is pretty rare and many GP's have never had a patient who has suffered one. Was there a specialist nurse at your hospital? If so that could be a port of call for you to discuss the problems you are having. Regarding being told what to expect or what to do if you were concerned, this is a frequent failing upon discharge. Most of us were never given any information at all, just thrown out and left to flounder. Seems to be a common problem, it wasn't you not asking the correct questions.
  2. Worried all the time

    It may well be prudent to follow Skippy's path and ask for help through your GP. Neither of you can carry on as you are.
  3. I have a shunt too, had it for over 13 years now. It was fitted whilst I was still in hospital as my cerebral spinal fluid drainage didn't correct itself. In fact it was done as an emergency as I dropped into a coma apparently, not as though I remember anything about it, just what I have been told.
  4. Brand new to the SAH

    frmertd, welcome to BTG. 1) As we are not medically qualified we are unable to give medical advice re meds. All I can suggest is for you to take what is prescribed and if that doesn't work see your consultant and request to try something different. It will be trial and error to see what works for you. The advice given here to help with the headaches is to drink lots of water to keep you hydrated. In most cases it does help although you will still need medication that works for you. 2) Recovery is an individual thing. Usually it is very slow but sure and you may or may not achieve the same level as you were prior to the SAH. Take baby steps, do not try to rush your recovery or you may find yourself going backwards. As for returning to work, that is an individual thing, listen to your body. It is also wise to arrange a phased return, don't jump into it head on. 3) Only time will tell if your career is over. Many members have returned to their professions, some with contractual adjustments regarding working hours. You just have to see what works for you. Don't give up. Some years ago we did have a member who was a doctor and as far as I can remember they did return to work. Best wishes for a full recovery and please stay in touch. Your experience may well help others in the same situation.
  5. Worried all the time

    Sorry if I caused any offence, it is just that so many survivors are not informed by the medics that it has to be notified. Me pointing it out was just a precaution. Pleased that he can remain driving, it is independence.
  6. Worried all the time

    TJRCGG, I don't want to put a damper on your husbands progress but did he drive or did you? The reason I say this is because a SAH is notifiable to DVLA and depending on what they say he may not be allowed to drive just yet. Obviously if that is the case then his insurance will not be valid. Check here https://www.gov.uk/health-conditions-and-driving Of course you may be well aware of the facts, if so, I apologise.
  7. My heart tests were fine when at rest could you request a stress test when you are wired up and go on a tread mill. For me that was the only thing that showed up a problem. One of those may put your mind at rest. Diabetes could also be the root of your problems. Keep pestering the medics.
  8. I have no creases on my earlobes , checked this morning after reading the post but have both the named conditions
  9. Travel Insurance

    So pleased for you and enjoy the wedding when the time comes.
  10. Tori. I think the majority of us, in the very early days, had confusion and talked nonsense. I knew I was in hospital but thought I was in the one where I worked in my late teens according to my family. I even accused them of trying to poison me. Short term memory problems are also a common result of a SAH. In the main a modicum of normality does return over time, maybe not to the same level as pre SAH. I am 13 years on and still come out with the wrong words or I lose words and get very frustrated when I know what I want to say but cannot recall the correct one. All in all it sounds as if your mum is making progress, slow but sure. Nothing in the recovery is fast, it can take goodness knows how long.
  11. Welcome to BTG. Worry can cause headaches so you could be stuck in a vicious circle, all 3 relating to each other. There are members on here who have had panic attacks after a SAH and found that counselling has helped them. Go to your GP, tell him/her what is happening and see what they suggest and enquire about counselling. Other members have also benefited from seeing a neuro phycologist although for what reason I can't remember. Is there a neuro support nurse/contact at the hospital where you were treated, if so it may well be prudent to contact them for advice. They are all options for you to explore. Many GP's never come across a SAH survivor in their working life because it is quite rare so yours could well be fumbling in the dark. Remember, there is nothing demeaning about asking for help.
  12. My story up to now - Maria

    Personally, I think, from what you have said, the future seems more positive. Hopefully the insurance company will fund rehab and he may well improve more although he may not be anything like he was before the SAH. I will say the time you spent with him did him good and did bring back some memories.
  13. Sah 7 months post op

    Welcome to BTG although I am sure that you wish you didn't need to be here. I'm sure you realise that we cannot give medical advice. Because of what you describe it would be in his best interests to go back to the hospital because after an SAH there can be a fluid build up in the brain. The lumber puncture will have relieved the pressure but who is to say that it isn't building up again causing headaches which he is not admitting to. Please try and persuade him to seek medical attention, even if it is only a visit to his GP who should then take the necessary action.
  14. It has been said before time and time again that it is easy to blame ensuing health problems on the SAH and in some cases that is not the case. I would suggest that you get medical advice and a thorough health check.
  15. Travel Insurance

    Spain is often excluded from some insurances unless you take out the more expensive cover. You have to be careful as insurance goes in zones. Don't know why that is. I have found All Clear will cover me at a price. It is better to ring up for a quote than to do it online. I find that many throw their hands up when I say I have a shunt for hydrocephalus, don't know why as I have never had a problem with it. If it is only your shunt and nothing else try The Post Office in the first instance because they are quite reasonable. They used to cover me but altered their criteria which excludes my other conditions. You must declare everything, and I mean everything, or if you are unfortunate to have to make a claim they will use undeclared conditions to wriggle out of paying up.