Welcome, Guest!

By registering with us, you'll be able to discuss, share and private message with other members of our community.

Super Mario

Super Moderators
  • Content count

  • Joined

  • Last visited

  • Days Won


Super Mario last won the day on February 16

Super Mario had the most liked content!

Community Reputation

20,532 Excellent


About Super Mario

Profile Information

  • Gender
  • Location
    N Derbyshire


  • Location
    North Derbyshire
  • Interests
    Family including grandchildren, my doggy, voluntary work, keeping busy, busy, busy. Foreign travel
  • Occupation
    Lady of Leisure
  • SAH/Stroke Date
    SAH 4th February 2004

Recent Profile Visitors

1,394 profile views
  1. Hemorrhagic Stroke

    Welcome to BTG. Sadly many of us were in the situation where the medics were giving very little help. It seems to be commonplace. Is your mum still in hospital or has she been discharged? She is in the very early days of recovery, there is no timescale as everybody's recovery is individual. Some people are still recovering years afterwards. Unfortunately recovery from a SAH is a very long slow process. and only time will tell what deficits will remain. Make sure she drinks plenty of water as that will help any residual headaches. As for caring for her, all you can do is to take your lead from your mum. Do you have any follow up appointments if she has been discharged as an inpatient?
  2. Fourteen Years Later

    As are the rest of you all.
  3. Penny, it is very early days for you. Unfortunately for me the balance clinic didn't help because of the part of my brain that was damaged. That is not saying it won't help you. They did provide me with a triwalker though, which I have to use when I go out. In the house I use a stick and furniture. I also have a stairlift to make ascending and descending the stairs safe. Initially I felt a fool with the walker as I was only 53 then and I associated them with much older people, but so what, it gave me independence. Over the past 14 years I have learnt coping strategies. Before I even attempt anything I think very carefully about how I can achieve it safely. I no longer go into doing anything like a bull in a china shop. I do everything very slowly including walking. With the walker I was able to take my dog for long walks. Because of later joint problems as well I have a mobility scooter now. That also allows me to get out and about including walking the dog. With aids I have an almost normal life even though everything is often a struggle and takes much longer than it did pre SAH. It is hard adapting initially but with positivity and determination it is possible. I must admit that I do have a cleaner as housework, other than the simplest things, I am unable to cope with. After saying all that, this may not be the case for you, the balance clinic may well be able to help you. I would advice you to contact Social Services Adult Care for an assessment as they will advise on or even provide equipment that will help you to be safe at home and out.
  4. Headaches worse at night?

    Because of the shape it elevates the shoulders as well. Over here many of our members have found that it helps. You could try her sleeping on two pillows in the first instance.
  5. Headaches worse at night?

    This is the type of pillow Skippy is talking about. http://www.wilko.com/pillows/wilko-v-shaped-pillow/invt/0329727
  6. Lowey family post

    Write all the questions down that you want to ask so you don't leave the appointment thinking "Oh we should have asked about??????" Be well prepared. It may be an idea to write down the answers too so therefore avoiding any confusion. Don't let the doctors rush you, anything you don't understand, say so, to avoid speculation on your part later. Hoping the appointment goes well and you get all the answers you need to put your mind at rest.
  7. Headaches worse at night?

    Thinking about what Skippy has posted, I was told to sleep with my head on two pillows in the early days.
  8. Headaches worse at night?

    What about trying a different routine, get your wife to have a nap in the day so she doesn't get over tired by night time. Is she forcing herself to keep going during the day, if she is that will not help. 6 weeks is very early days in the timescale of SAH recovery and most survivors find that naps are necessary, for months or even longer
  9. Lowey family post

    In the main I don't think many survivors can tell you what happened to them in the early days as most were completely unaware of what was happening. They possibly only know what they have been told by their family. I know, with me, it was about 9 months after the event that I really started to be aware of things happening around me and I was at home then. Did have small snatches of memory during that time though.
  10. Lowey family post

    Welcome to BTG. We are not medically qualified so cannot give medical advice, just support. Recovery from SAH can be a roller coaster ride, everybody is different. My advice is to talk to his doctors to see if they can give you any explanations. Recovery, in the most part, is a very long slow process. Keep on talking to him whether or not he responds, it is all stimulation. His brain has had a nasty onslaught and will take time to heal. Make sure he is keeping well hydrated as that will help any ensuing headaches he has. Please come back to us if you need support and to let us know of your father's progress.
  11. Travel Worries

    Krislwal, I flew again 1 year after the event, I visited a place in Turkey that I had been to regularly, knew the owners and knew that they would look after me if anything went wrong. In fact I still visit this place twice a year as I am now very friendly with them and many others in the area, most of them Turkish people. In the early years I did research medical facilities before I booked anywhere, mainly because of my heart problems. Now I don't even bother. I have been to many small islands that depend on sea transfer for medical problems plus everything else, nothing on the island at all. I never even think about it now. I am of the opinion that what will be will be. I might add that I always travel alone so I have no one to rely on either. There is no point in worrying about what might be. In fact I have just booked to go to a Cape Verdi island in April and medical facilities there are very sparse. I no longer let the lack of medical facilities put me off going somewhere I really want to go. Life is for living and enjoying not to be spent worrying about the "what ifs"
  12. Travel Worries

    Swishy, I travel abroad several times a year, on my own. I do sometimes think about my family having to cope if anything happened to me whilst away. I always put it to the back of my mind, what will be, will be. I have heart problems which is much more of a risk than the SAH, anything could happen at anytime out of the blue as I have learnt in the past. Luckily I have been at home at the time. Go and enjoy the holiday and don't worry about anything. Life is too short for that, energy is much better spent enjoying yourself, not worrying.
  13. Long term neck aches

    I would go to see your GP as it is more than likely that it is not to do with your SAH but due to degeneration because of age. No offence meant by that, but as we get older our body parts wear so your symptoms could be due to wear and tear.
  14. Fourteen Years Later

    Yes, Skippy, my life is definitely better than what it was prior to SAH
  15. Fourteen Years Later

    Today it is 14 years since my brain decided to play silly devils. After an initial struggle to come to terms with what had happened and many months of recovery I now have a good life. It may have knocked my sense of balance and memory off kilter but I look on it as doing me a big favour in the long term. Positive thoughts. Yes, I know I have to use a walking frame but that hasn't stopped me enjoying life, I look on it as my bit of independence. I was unable to go back to my profession due to the balance problems but I eventually made a new life for myself that I enjoy. Unable to do most of my housework (something I hated but necessary) I now have a cleaner. In fact I do very little in the house. I spend most of my time doing things I enjoy doing. I can travel when I want, no adhering to a set holiday routine and I do love to travel, exploring different cultures, Europe only though because of insurance costs, but so what, I am following a dream of my younger years. Initially I thought that the SAH was the end of the world, my opinion on that gradually changed and I now see it as a positive event in most ways. The message here is, look on the positive and not the negative. Your life is what you make it in spite of possible difficulties, there is always a way round them. I have gone on to make a good life for myself, you can too.