Daffodil Posted August 10, 2017 Share Posted August 10, 2017 Kay it's hard to comtemplate having to have another procedure but there are others on here, myself included who have had to go on to have further interventions ( mine was for shunt placement but others have had further coiling or clipping ) and it sounds like they are doing some good investigation so they can work out the best solution for you long term talk to your team at queens, if you aren't sure about anything get them to draw basic diagrams. Like you I quite like looking at the amazing 3D images bit sometimes simple is best and easier, also my hubby gets excited when he sees those and starts asking lots of tangent questions so Now I take MIL to my check ups who is much more focussed and takes notes so we don't forget what gets said. ? Its a shock to realise that perhaps what you hoped was fully 'fixed' needs some further maintenance but trust that for them that caretaking of your anneurism is what they excel at. Ask lots of questions and keep coming here if you need some support with the thought of what's next. Take care. Link to comment Share on other sites More sharing options...
Macca Posted August 10, 2017 Share Posted August 10, 2017 Be positive Kay - they have identified the problem and are in a position to be able to do something about it if required. Sometimes a second intervention is needed but look forwards to putting all this behind you once it is done. Good luck, Macca Link to comment Share on other sites More sharing options...
Winb143 Posted August 10, 2017 Share Posted August 10, 2017 Quite a few on BTG have to have an eye kept on their scans so at least you know they are doing their job. All what others have said Kay, I agree with, but it doesn't stop you stressing xx So keep calm and I wont say do not worry but 1 person or more had it done, but do not ask me who ??? Any takers on this ??? Remember ..Stress is bad for our poor brains xx Good luck Win xxxx Link to comment Share on other sites More sharing options...
kempse Posted August 11, 2017 Share Posted August 11, 2017 Sorry to hear you had a knock back Kay - I hope the shock has worn off slightly since you got the news, although I doubt it. I say that as I remember all too well when I was told I had to have more coils put in as they hadn't packed it sufficiently for fear of the coils coming back out, blocking my artery and causing a stroke. To hear that when you assume everything is solved is not nice. All that was 2008/09 and in 2016 I was told the aneurysm had grown and there was talk of yet more coiling. A further scan this April and I was told it appeared stable - so all a bit confusing and unsettling. Yes, seeing those images is fascinating. I hope you won't have to wait too long - the hope being that you don't have to worry about it for too long. Best wishes, Sarah Link to comment Share on other sites More sharing options...
Kay Posted August 30, 2017 Author Share Posted August 30, 2017 I have the date for my surgery through and it will be on the 14th September. I'm trying to stay positive but my anxiety levels keep going through the roof. I was just starting to get back to some normality, I was going to start working again, it just all feels like such a set back. Plus it's my 30th birthday this November, I'm worried about recovery time, I just really wanted to be ok for it. I think i'd feel better if i knew which it was going to be coiling/clipping because then I could prepare myself, but I wont know until they've done the tests on the day, I hate the uncertainty of it, I think that is whats stressing me out more than anything, I like to know exactly whats happening. Link to comment Share on other sites More sharing options...
Skippy Posted August 30, 2017 Share Posted August 30, 2017 Hi Kay As scary as all this is for you, don't look at it as a step back - look at it as another rung to climb on the ladder to recovery. I know it's easy for me to say but this op will help you move on with your recovery and in the end give you less to worry about. I suggest preparing yourself for what you would see as the worst case scenario because then anything else is a bonus. I'll be thinking of you xx Link to comment Share on other sites More sharing options...
Winb143 Posted September 12, 2017 Share Posted September 12, 2017 I remember someone writing on here that when we first had our SAH they had the blood to deal with etc etc . This time it is more straight forward as you will be in hospital not sick and bleeding but a straight forward op. Whereas before you were ill, does that make sense??? Not telling you not to be afraid just saying it is more straight forward. Keep Well and chin up and let us know how you got on after 14th. I loved my 30's and 40's I wont go on anymore on age as we'll be here all night xxxx ha ha Smile xxxxxx Link to comment Share on other sites More sharing options...
Tina Posted September 13, 2017 Share Posted September 13, 2017 Hi Kay Wishing you well for tomorrow and a speedy recovery in time for your 30th birthday Thinking of you and sending loads of positive healing vibes your way xx Take care and as Win has said, when you feel up to it, let us know how you are doing. Love Tina xx Link to comment Share on other sites More sharing options...
ClareM Posted September 13, 2017 Share Posted September 13, 2017 Hope all goes well tomorrow Kay be thinking of you. Hope it's not as traumatic as you think it may be and that you recover well. Let us know how you get on. clare xx Link to comment Share on other sites More sharing options...
Super Mario Posted September 13, 2017 Share Posted September 13, 2017 Kay, wishing you well for tomorrow. Link to comment Share on other sites More sharing options...
subzero Posted September 13, 2017 Share Posted September 13, 2017 Kay, also thinking of you Subs Link to comment Share on other sites More sharing options...
kempse Posted September 13, 2017 Share Posted September 13, 2017 All the best for tomorrow Kay -try and concentrate on the 15th September when it will be all over. Not knowing until the day which method they are going to perform is not easy, but either way it is being done for a good reason and then you will not have the anxiety that you have right now - you will be able to continue with your recovery and get your life back on track without it hanging over you. The relief afterwards will be a great feeling so keep telling yourself this for the rest of today x Hugs, Sarah Link to comment Share on other sites More sharing options...
Aandrea Posted September 13, 2017 Share Posted September 13, 2017 Good luck for tomorrow Kay, it will be over and done with before you know it will be thinking of you. All my love Andrea xxx Link to comment Share on other sites More sharing options...
Kay Posted October 24, 2017 Author Share Posted October 24, 2017 Hey, just to give everyone an update, the surgery didn't happen on the 14th of September. I've been given a preliminary date of the 10th of November but no official letter yet. To be honest it's been quite stressful, and I've been trying not to think about it, which is why I haven't been on here lately, I've just been trying to forget about it and distract myself. The Doctors have said they can't do the test on the blood vessel coming out of the aneurysm to check if it's essential or not (they believe it's not essential), but they can't be 100% sure. This basically means they'll be coiling the aneurysm and blocking of the blood supply to blood vessel, quite scary, but I'm sure everything's going to be fine. fingers crossed Link to comment Share on other sites More sharing options...
Tina Posted October 25, 2017 Share Posted October 25, 2017 Bless you Kay, so very frustrating and stressful, really feel for you, so sorry your surgery did not happen, hugs xx Thank you for letting us know, I really hope you get the 10th November confirmed so at least you know what's happening. Wishing you well for your coiling and hope it wont spoil your 30th birthday celebrations. Everything crossed for you, all will be fine Take care Love Tina xx Link to comment Share on other sites More sharing options...
Kay Posted December 4, 2017 Author Share Posted December 4, 2017 Hey, just to update everyone I have an appointment for the 14th December, fingers crossed it will happen this time Link to comment Share on other sites More sharing options...
Tina Posted December 4, 2017 Share Posted December 4, 2017 Hi Kay fingers crossed for you that all will happen this time on the 14th December. Wishing you well and let us know how you are doing. Take care Love Tina xx Link to comment Share on other sites More sharing options...
Macca Posted December 4, 2017 Share Posted December 4, 2017 Good luck Kay - don't forget to let us know how you get on! Link to comment Share on other sites More sharing options...
Kay Posted January 11, 2018 Author Share Posted January 11, 2018 Hey, this is just to give everyone an update. I went in on the 14th of December and came out of hospital again last Monday. My memory of everything is still pretty hazy. They wanted to coil the remainder of the aneurysm but after 6 hours of trying decided they couldn't (I believe they came to the conclusion whilst they were in there that one of the blood vessels was essential) whilst i was in surgery, there was another bleed somewhere else in the brain (definitely not from the aneurysm) they believe they may have nicked something somewhere else, whilst trying to coil, which led to a vasospasm. They then had to let me recover for a week before proceeding to clip the remainder of the aneurysm, during which they also delt with a cyst. I also went through a collapsed lung and sepsis. I don't believe I've read much on here about other people suffering from delusions, but this time round I most certainly did. At one point I believed the Hospital was a ship that kept sailing between Paris and England. Apparently delusions like these are not uncommon because of the strong medication and blood on the brain confusing everything. Ok so that was the last month of my life. I will go in to more detail later, I just wanted to give you all a rough summary and to let everyone know my current situation. I'm gutted I missed both Christmas and New Year though!! Some serious TV catch-up is needed now Link to comment Share on other sites More sharing options...
Super Mario Posted January 11, 2018 Share Posted January 11, 2018 Kay, thank you for the update. You may have missed Christmas and the New Year but there is always the next one to look forward too. Now the only way is up. A very gentle and slow recovery but you will come out the other end. Just take baby steps, don't push yourself at all. Talking about delusions, apparently, although I must have known I was in hospital, according to my family I was convinced I was in another hospital in the same city and being well looked after because I worked there. In actual fact I had trained as a radiographer at the hospital I thought I was in many years ago. I cannot recall any of this or any of the time I spent in hospital. I was also convinced that the staff were trying to poison me. The mind certainly does play funny tricks when it has been disrupted Link to comment Share on other sites More sharing options...
Skippy Posted January 11, 2018 Share Posted January 11, 2018 Kay So sorry for all you went through, but so glad that you're here to tell us all about it. Think there are a couple of people on here that have had the confusion etc - my husband did after a bike accident 2 1/2 years ago and he only had a slight head injury - his was caused by infection, exhaustion and lack of oxygen - he took us through ten decades in one afternoon - 1 minutes thinking it was the 70s, then the 80s the next minute and so on - even told his mother that he'd teach her how to smoke. So think it may be a pretty natural reaction to all that your body went through. Make sure you rest up and just catch up on all that missed TV x Link to comment Share on other sites More sharing options...
Macca Posted January 11, 2018 Share Posted January 11, 2018 Great to hear form you Kay! Many of us had delusions. Mine involved still being in the 1950's, (1953, some two years before I was even born) someone called Diane was Prime Minister and the Houses of Parliament were on my local shopping precinct next to Greggs! Crackers, but I really believed it at the time! The main thing is that you have come through it and its onwards and upwards now! Great to have you back aboard the great ship BTG!!! For the time being, I bet every day is Christmas now isn't it? Best wishes, Macca Link to comment Share on other sites More sharing options...
Kay Posted January 11, 2018 Author Share Posted January 11, 2018 I think I might start a topic on delusions. I think it would be helpful for people to know about the fact that they happen. Whilst I was in the hospital I wrote some of my delusions down in a diary (that my fiance was keeping for me, because I kept forgetting that he was in fact coming to see me everyday, so he started to write down for me that he'd been to see me on such a day and what we talked about) As I was writing these delusions down I compared it to what Dali produced with Disney, very surreal, but I didn't know I f this was due to my own individual interests or if every ones would be just as strange. I would be fascinated to hear of other peoples experiences with delusions, I felt very alone at the time and so hopefully a topic on this subject could help someone else in the future, or someones family (I know It was very hard for mine to cope with at the time, especially when I was getting upset and insisting that the nurses were lying to them) Link to comment Share on other sites More sharing options...
Kay Posted January 11, 2018 Author Share Posted January 11, 2018 It's also just occurred to me that this last lot was a NASAH, I guess I will be having a Christmas day next week sometime, we've even still got the tree up (bad luck be damned, I've never been superstitious) I shall not miss out, but yes I feel great and very lucky at the moment Link to comment Share on other sites More sharing options...
Kay Posted January 14, 2018 Author Share Posted January 14, 2018 After reading through all the comments on here last night, it occurred to me that I never completed my original story of my first SAH, I only got so far and needed to stop. I'm going to make an effort to complete that today. I just hope I haven't forgotten most of it at this point now, I think I wrote some notes down at the time, I'll have to see if I can dig them out. Link to comment Share on other sites More sharing options...
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