Welcome, Guest!

By registering with us, you'll be able to discuss, share and private message with other members of our community.

Recommended Posts

Rich Nepon    0

March 23 I suffered a brain bleed. I vomited, was dizzy, nauseous suddenly. I called out to my wife who thought my voice was odd. She called EMS. Last I remember I was leaving the  house on a stretcher.  

 

Apparently I was quickly diagnosed at hospital and transported to main hospital. As the bleed was in my cerebellum, they could not operate to relieve the pressure. I was not on blood thinners beyond baby aspirin.  After two weeks in hospital the next I remember was leaving for rehab. I could not stand or walk, my eyes were light sensitive and bugging out, I did not like noise. They did PT on me in bed for a few weeks.  I could swallow and eat and drink.  I received speech therapy. And my voice mostly returned.  I quickly passed OT tests and began walking with a walker. I continued PT daily until June 10.  I decided I could sleep at home and do PT outpatient.

 

Also, as I am diabetic, I could control my diet better.  I completed all the PT tests two weeks ago.  I have been walking two dogs daily. I joined a gym.  But I remain very tired and get dizzy with movement. Lying down or tilting my head is awful. Epply manoeuver didn't help. Nor did meclazine. Dr prescribed Gabapentin.  It relieved the nausea and light/noise sensitivity.  

 

My question is am I missing something which might relieve the dizzy/tiredness?  I have had my eyes checked. Same as they were before. Podiatrist says no diabetic neuropathy. What else can I try?  Is it possible this may never end?  My BP is good. A1C is good.  

 

Thanks for any help

Share this post


Link to post
Share on other sites
Skippy    7,061

Hi Rich

 

The dizziness and the tiredness will more than likely be side effects of the bleed itself. You sound like you're doing an awful lot too so at this time in your recovery you will be tired and quite possibly even fatigued.  The brain needs a long time to heal - liken it to a broken leg and then times the recovery time by at least 5 is what my Neurosurgeon told me.  

 

I had the dizziness when bending over to load or unload dishwashers, driers and washing machines for a good year or so.  The tiredness/dizziness may also be a side affect of the medication you are taking - having you checked this with your GP?

 

5 months is very early to expect after effects to disappear completely - try upping your water in take and rest when you can.

Share this post


Link to post
Share on other sites
Super Mario    17,984

Sadly my dizziness has never gone away even after 13 years and my sense of balance is almost non-existent.

I am not saying that will happen in your case as everyone is different.

Share this post


Link to post
Share on other sites
iola    194

Hi,

 

i had had my bleed 4-1/2 years ago and when I am tired I get very dizzy.  I get, what I call, pop fizz sensations in my head and much heaviness.   I feel like my eyes are moving and some times my brain too.  All weird but it's a part of me now.  I spray liquid magnesium on me every day, which is supposed to help with dizziness.   I've tried it all and I think only time and healing helps.    It's frustrating and in my experience there is no miracle cure and I've researched and read a lot of information.   

 

When you are tired, lay down and rest.  That was my biggest mistake, I did not rest like I should've.

 

iola

 

Share this post


Link to post
Share on other sites
jess    7,706

I am like super I am afraid dizziness nausea still here still a problem after 15yrs but not as big as what it was. Have you had your ears checked as I suffer lots of ear infections now also labyrinthitis.

 

Hope you feel better soon xxx 

Share this post


Link to post
Share on other sites
Tina    7,969

Hi Rich a very warm welcome to BTG.

 

It is very early days for you in your recovery, at 5 months i could hardly walk because of the dizziness and double vision plus headaches.

Well done for doing so well, but i would say slow down and pace yourself, don't push so hard. Your body has a way of telling you when you are doing too much.

Rest up as much as you can to allow your brain to repair, you have had a major trauma.

 

Have you thought of trying a V pillow to help keep you slightly upright when trying to sleep. I found this really helped with the dizziness when lying down.

 

I was also very noise & light sensitive for quite some time. Even nearly 10 years down the line, i  still suffer from dizziness and fatigue, also nerve pain down the side of my face, forehead and around my eye. I had to learn how to pace myself and recognise my new limits, still catches me out now sometimes ;) 

 

Things will get better, go steady and let us know how you are getting on.

Take care

Tina xx 

 

  • Like 1

Share this post


Link to post
Share on other sites
jillbb    21

Hi Rich, l had my SAH in 2012. I also have dizziness blurred vision and at times my brain goes into lock down , i.e. I can't remember what the next thing l was going to do!

 

Sounds ridiculous, but then othertimes l am reasonably.  normal.  I definitely think it is associated with tiredness and stress. It gets better but does not seem to go away.

 

l find it very difficult to relax, l always seem to have too much to do.  I was told at the hospital today, that l must slow up if l wanted to keep well.  Don't push yourself  SAH seem to happen to very active people  and that l makes it hard.

 

Good luck it's a long haul, but there is light at the end of the tunnel.  It has been very hard for me to try to change my life style, but one just has to adjust best wishes Jill 

  • Like 3

Share this post


Link to post
Share on other sites
Winb143    5,603

Same as Jillbb Rich,

 

I have a good day and then laying in bed I go giddy so I sit up slowly, wait for a while then stand etc etc . some days are worse than others  and some I feel fine !! 

I think I have a fickle brain  lol 

 

I've noticed it helps if you do things at a slower pace, well it does me.  

 

Good luck and hope you feel better soon xx

 

Win xxxx

 

 

Share this post


Link to post
Share on other sites
Macca    9,843

Hi Rich,

 

I still suffer with tiredness/fatigue. It may be worth you getting your hormone levels checked. When I was coiled, my pituitary gland stopped producing growth hormone and I now have to have daily injections of it and I feel much better, although not perfect.  I haven't heard of anyone else having this, so don't hang your hat on it, but it is a possibility.

 

Hope you find some answers.

 

Macca

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now