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Irene

Thank you. Two years on!

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Irene    84

Hi,

Today (9th September), is two years since my Perimesencephalic Brain Haemorrhage and I just wanted to say "Thank You" for this forum.

Here was the place where I could read of others who had gone through the same trauma as myself.  I saw I was not the only one who couldn't juggle everyday life, using credit cards, driving far, having odd headaches at various times and also having melt downs for no particular reason.  To speak to my Consultant, my issues were not worrying, my GP asked me about what it was I had and how it happened.  I felt out on a limb.  Luckily I could drop in now and then to BTG and feel comfort in your responses and having the knowledge that this was all par for the course.

 

Two years down the road I see great changes, I can see my progress, but I also know it was fairly slow.  I can trace back to days when I would be in a supermarket and my husband could tell that all the noise about me and the decision making on what to buy was just too much and he would escort me to the car.  He would watch me as I would begin to try and process using a debit card again.  He would travel beside me in the car to make sure I felt confident and had the concentration driving again.  (I am still not driving longer than an hour and a half on my own).

 

I had to tell people I was slow to respond as my brain was taking a little bit longer to register things, and people were very accommodating.  Headaches would come and still do, but I can cope.  (In fact a physiotherapist has been correcting my neck and shoulder in the hopes of correcting my off centre neck and drooping shoulder which could be causing some of the pain at the back of the head.  The neurosurgeon said some could be due to neck problems, but no suggestion of getting that sorted, I got my own physiotherapist).

 

Even though two years has past and I still have a few issues I think I am back to what my consultant had said he would expect, 95% back to normal and am I grateful.  I still need to have MRI scans so the neuro-radiologist can monitor a small area for no changes, something they feel has been there from birth but must just watch over a period of time.  

 

To all of you going through early stages, keep up the good work, don't stress, rest and recover at your own speed and your bodies ability.  Continue checking in to this great forum to relieve yourself of any of your own worries.  Also check with your doctor if you have medical problems but for the support and for the help from those who have gone through a similar situation this is the place to be.

 

Two years ago at this time I was in A&E waiting to be be taken by Ambulance (Blue Light), to James Cook Hospital and all I could think of when the doctor told me I had suffered a brain haemorrhage was what was the future going to hold for me.  I have to say the future was a blessing and that includes me finding Behind the Gray, with that I have had hope and encouragement. 

 

Thanks to you all,

Irene

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kempse    1,809

A lovely written post Irene and I'm pleased you are feeling more positive about the future than you were 2 years ago.  You have done very well with your progress and you should be proud of yourself.  Behind the Gray is certainly a great aid to recovery to those us who have had the misfortune of a brain haemorrhage.

 

Wishing you well for the next two years and beyond,

 

Sarah

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Winb143    5,603

Lovely post Irene and this is my safe Haven still xxxx 

 

Hope you go from strength to strength  xxxx

 

Keep in touch  

 

Win xxxxxxxxxxx

 

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subzero    7,145

Hello Irene... also many thanks for your update 2 years post SAH. 

 

Well done and we appreciate your kind comments about how you have valued the support of BTG and it`s members in your recovery.

 

Well done also to your husband. It is clear that he played an important role in these early days being sensitive to the support you needed along the way. Hope he is fine too.

 

So glad to hear how well you have recovered.

 

 

Subs

 

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Irene    84

Thanks for the lovely comments. Just didn't want the day to go past without acknowledging here that I managed because of responses on this site. 

 

Irene x

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Macca    9,843

Hi Irene,

 

Delighted for you!

 

Thanks for letting us know how you are getting on and may you continue to progress! 

 

Congratulations on reaching your milestone!

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ClareM    2,851

Hi Irene

 

Just catching up after my holiday and read your lovely post. You are slightly behind me recovery wise, I am about 2.5 years now. I can totally  understand everything you say and empathise. We are lucky to be here and if we have just a few small deficits we have done well. I reckon I am about 95% too and though I would love to have the other 5% back I know it's not going to happen and I need to accept the new normal.

 

You have done really well and sounds like you have great support around you too.

 

Clare xx

 

 

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Chelle C    2,075

Congratulations on your 2 year Anni-versary, you have come such a long way in that time.

You have written a lovely post, you are right BTG is a wonderful place to come for support.

 

You appear to be doing really well with your recovery, it also sounds like you have a very positive attitude, 

 

It's lovely to hear how you are progressing and long may it continue.

 

Love 

Michelle xx 

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Chris G    1,692

Congrats on your anniversary and your progress.  Keep healing and may every day be better than the one before.

 

Chris

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Susan    55

Hi Irene

 

It was lovely to read your post. You summed up so well life after your PMSAH and the comfort in finding BTG.

 

I think that our experiences have been quite similar. It is now 20 months since my PMSAH and though I know that I have made loads of progress, I also feel that it has been fairly slow - probably slower than the medics would have expected, judging by some of the medical literature on PMSAH.

 

I too can clearly remember the night I was diagnosed and feeling fearful of what it all meant, but I recognise that having gone through that experience has greatly enriched how I feel about life. In spite of the continuing fuzzy-achy head, lack of energy and disrupted sleep, I feel very lucky.

 

A PMSAH can be an odd event causing a muddle of feelings. You go through the trauma at diagnosis of being told that it could be life threatening, only later to be left to feel that it wasn't such a big deal - the clinical prognosis for PMSAH is so very good. If you do have ongoing symptoms you can't help but feel that medics may try to put them down to anxiety or other reasons rather than direct symptoms of the bleed.

 

You sound like you have a lovely supportive husband. I am single and live alone but my son (now 24) came back to live with me for 3 months after my haemorrhage. It was good timing as he had just finished a job over the Christmas period and did not get another one, so we spent a rather strange but special 3 months together just mooching around.

 

I am so glad that you have reached a level of recovery that you are happy with, and wish you, and your husband, all the best for the future.

 

Love

Susie x

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