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Fear of not getting better


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I had a sah at end of January,I feel really tired and groggy all the time. and stay in bed most of the day.my head has different pains and I get a ticking noise in my right ear now and again. I feel that im not getting better,I go down for food but thats it.I dont like noise and bright light, my eyes are puffy all the time,anyone else feel like this.

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Welcome to BTG.

 

You are in the very, and I mean very early days of recovery and sleeping  for much of the time is quite normal as your brain is healing. I slept much of the time for about 3 months. Recovery can be an exceptionally long slow process and because it is so slow it is difficult to notice any improvement. The order of the day is to take things extremely slowly, if you don't you may find yourself taking backward steps.

 

Not liking noise and bright light is another after effect of an SAH which may improve over time. There are no hard fast rules about what the SAH  can leave you with, members report all sorts of weird things.

Make sure that you keep well hydrated by drinking plenty of water as that may well help with the groggy head, it certainly helps to keep headaches at bay.

 

As we are not medically qualified and only a support group our advice is always see your doctor, contact your neurologist or specialist neuro nurse, if you have one, with any concerns you may have for medical advice

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Hi Stephen, welcome to BTG, glad you have found us.

 

Some good advice from Super, you are indeed very early days so don't panic things will get better. I remember very little about being in hospital and not much more of my first days at home. I slept a lot and found things like the TV too stimulating. I was forever saying 'please can you turn it down'.

 

Drink plenty of water and rest, rest, rest and while you are resting try reading through some of the posts here on BTG, you may find them reassuring. Keep us posted

 

Clare xx

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Hi Stephen, welcome to BTG,

Sorry to hear you had SAH you have come to a great place for support and advice, you will find a wealth of information here and all of it from people who have been through SAH.

 

It's really early days with your recovery, it is normal to feel tired as fatigue is one of the most common side affect of SAH, being sensitive to noise is another, lots of rest is required early on in your recovery as you will find the smallest of tasks really do take a lot out of you.

 

Your body and your brain have suffered trauma and they both need lots of time to recover, make sure you drink lots of water as staying hydrated really does help with headaches and dizziness, 

 

The recovery road can be a bit of a bumpy road at times, so take things slowly, listen to your body, when tired make sure you rest.

 

Wishing you all the best as you start your recovery journey.

Love 

Michelle xx 

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1 hour ago, Stephen d said:

I had a sah at end of January,I feel really tired and groggy all the time. and stay in bed most of the day.my head has different pains and I get a ticking noise in my right ear now and again. I feel that im not getting better,I go down for food but thats it.I dont like noise and bright light, my eyes are puffy all the time,anyone else feel like this.

Thank you clare,michelle and super mario for your reassurance i definetley need to drink more water glad i found this site

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Hello Stephen,

 

I had a SAH on January 26 this year — my birthday.  I still feel tired too.  Remember to be kind and patient with yourself.  Your brain is healing.  I felt the aversion to noise and light at first too.  Even riding in a car was somewhat overstimulating if I looked out of the window.  Yes, I agree hydration helps a lot.  

 

Yes, let’s rest and recover and look for what God is trying to tell us along the way.

 

With love, your SAH friend,

 

JP

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Hi Stephen,

I was so happy to find this site....I am glad you found it as well....as said by others you are very early in the healing process...There are so many awesome folks here who get it...they know what you and I and the rest of us are going through because they went through it...Read through some of the posts here...I have been reading them little by little and I have found them all so helpful...Welcome to BTG I hope each day is a bit brighter than the day before...Jean

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Welcome to BTG. I m not sure what other medical conditions you have. But you are at the very early stages of SAH and I m sure you ll be better. I m a family doc but I can assure you that this site will probably help you sometimes more than your docs. Take one day at a time. Goodluck .

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6 hours ago, Catwoman23 said:

Welcome to BTG. I m not sure what other medical conditions you have. But you are at the very early stages of SAH and I m sure you ll be better. I m a family doc but I can assure you that this site will probably help you sometimes more than your docs. Take one day at a time. Goodluck .

Thanks again everyone ive also had tb and heartattack 6yrs ago so you can see why im worried 

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As everyone has said, it's still early.  You are probably getting better, but just not feeling better yet.  It takes time, and it is not a constant trend up.  You have ups and downs.  Some members on there in the past recommend keeping a daily or weekly dairy.  That way you can look back and better recognize the improvements you are making.  I wish you the best.

 

Chris

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Hi Stephen. I had my sah May 2017. I am still not feeling right, but I’m also told not to worry by my doctors. That is the most challenging part. As far as fatigue, I am having major issues still 8 months out. I find I tire very easily and I do not like loud noises either. I saw a movie in the theatre a few days ago and was very bothered by all the images and noise. I hope you get a lot of rest and be kind to yourself. Like all the others have said you are in the very early days and things will get better. Take care. 

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I had mine in May 2017 as well and feel the exact same way as dbc.  I haven't even attempted the movie theatre because even watching any action type movies at home is too much for me.  I have been to restaurants but prefer the lunch crowd to the dinner one, its way more calm in the afternoon.

 

 I haven't ventured out much and still get tired easily as well.  I'm starting PT to help with stretching, strengthening and exercising again.  I'm glad it'll be under supervision.  I still have a ton of anxiety because I don't know the "why" still and probably will never know.  When I look back at how far I've come though, I am proud of myself.  Keep pushing forward.  It does get better with time.  Good luck to you!

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  • 2 weeks later...

Hi Everyone,

 

Stephen, I hope you're feeling better.  My NASAH was on January 26.  I was in the hospital for two days, off work for a week, back part time for a week and now full time.  Today has been a rough day.  I felt tired when I woke up even after 9 hours of sleep.  My right side  is tingling off and on, and my head hurts more too.  I have my follow up with neuro on Friday and got a new CT scan last Friday for him to read.  

 

Question:  If your CT scan is normal, is that the end of the symptoms or just proof that you're not bleeding anymore?

 

God bless everyone for your kind words of encouragement!

 

JP

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Stephen,

 

When I first came on this site I was thinking all Doom n Gloom !! 

Every pain was worse than the last I thought I was going to kick the bucket as the saying goes.

 

I came on here and people could laugh about what happened to them. 

 

Got myself 2 pairs of sunglasses one pair really dark for bad days.  Started to laugh again and the old Win come back. 

 

Hubby took me out for a coffee and all of a sudden there are all these people who had SAH/Bleeds who could smile about it in a fashion.  We need happiness and no doom and gloom and also keep stress at bay.  xxxx Anyone on a downer sing and smile  it really helps xxxx Good luck to All xxxx 

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Good luck Stephen you and all new members just remember you are Survivors xx and a smile helps and to all new members remember ..No Stress and lots of smiles.  I would also put singing but I'll never stop xxxx

 

Good luck to us All 

 

Win xxxxx

 

 

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My Pal Stella is from Wales and she used to make me sing "We'll keep a welcome in the hillside" 

 

Going back many years ago now, she is a fun pal and loves a song, known her since 16 now an old hag ha ha 

 

Keep singing it is so good for you Stephen, unless you listen to me and pal Stella xx

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