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Nine years this week on the 9th November
Macca replied to johntaras's topic in SAH/Stroke Anniversaries
Well done Paul and John! I am 8 years out and now 63, and you are right, there is life after SAH. Just make adjustments to what you did before. Change the way you do things, sometimes it will take a little longer and we each have our personal journey but we get there in the end - well done lads! I took early retirement and I wouldn't go back to work if they paid me - I love it! -
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Reapplying for license with exceptional circumstances-UK only
Finollie replied to Daffodil's topic in Driving After SAH
Thank you Johnnie! We are so pleased that the never ending banging of our heads against the Dvla wall is having some effect! The 88 page report compiled by the private Opthalmic consultant seems to have had an immediate impact- he was very clear that I should have a practical test. My test will probably be in Chester. I will ring the Dvla tomorrow to ask if it’s possible to get a provisional licence before the test- the form I’ve filled in clearly states it’s just for the test. Thank you for all your support and positive comments- appreciate it. -
Reapplying for license with exceptional circumstances-UK only
Johnnie M replied to Daffodil's topic in Driving After SAH
That is, if I may say, wonderful news Finollie!! Yay! We have lots of advice on the practical assessment but we can let you know more when it is in the diary. Once you have applied then make sure you ask the assessment centre for a cancellation. Let us know where you'll be doing it as someone here may already have attended that centre. I did mine in Carshalton in SE London. It may also be sensible to ask the DVLA if you could have a provisional licence until you get your assessment done. I had one for about three weeks before my assessment and it really helped my confidence on the road and particularly enabled me to pinpoint if there were deficiencies of which I needed to be aware. You'll have to have L Plates, always be accompanied by someone who has had a clean licence for 3 years + and you cannot go on Motorways. Give them a call and see what they say. Come back here when you have a date for the provisional and we can tell you all about the assessment. Excellent end to my working day!! -
Reapplying for license with exceptional circumstances-UK only
Finollie replied to Daffodil's topic in Driving After SAH
Had a great email from the Dvla this morning- they are letting me do a practical assessment!!!!! All our hard work is hopefully paying off! If anyone has any advice about the driving assessment/ what it’s like etc , I would appreciate it! Thanks - Earlier
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Hi Johnnie/Ally/ all Quick update on my sons recent Estermann test. More improvement. Still falling just short of the 50degrees DVLA criteria but full central vision & a very good clear central line. Peripheral vision present after 80degrees too 👍🏼 Moving forward and hope DVLA consider his exceptional case application. So thankful to this site. All the the best for 2019 Lyne
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LisaV joined the community
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My surgeon told me not to stress and the only way I found not to was sing, but it stressed all around me out as I was sooo flat lol Keep thinking happy thoughts if possible, and try not to worry but I do not practise what I preach lol Be well and hope all goes well xxxxx
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I went through a spell of something like vertigo early in my recovery. It would hit me suddenly if I looked up. Sometimes it came on for no apparent reason. It mostly passed in a few months. Although I still occasionaly suffer from the “staggers”.
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Nine years this week on the 9th November
Paul Simpson replied to johntaras's topic in SAH/Stroke Anniversaries
Hi Johntaras I had a SAH four years ago on November 17th. It has taken me most of the four years to accept what happened and to come to terms with it. I am 61 years old I still work 3 days a week and still enjoy my job( I work with autistic youngsters) Happy anniversary Paul -
Saw my GP and it is probably stress but a few of the symptoms/ surgery tests were a little odd and so she's referred me for an MRI to check all is ok as I don't have a neurology appointment yet scheduled. thanks for the support and advice
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Vertigo is something I suffered from occasionally before my SAH, I had a few bouts of labyrinthitis and it was nasty. Since the SAH I have small episodes of dizziness/vertigo generally when I have a bad bout of head pain or am very tired. I did ask my GP about it and she said to keep a note of it and mention it at my next neurology appointment. I hate the feeling and find closing my eyes and counting slowly to an arbitrary number (depends how dizzying feel) calms me down so I can work through it. Definitely echo the advice to see a GP as if it is labyrinthitis there is some treatment out there.
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I get giddy when I wake up, and I cannot jump out of bed as before I have to sit there and wait !! and only then do I get up and dash to loo !! So try sitting before you move I have noticed picking things up off floor = bad move and move slower but still see Doc xx Put your mind at ease. Hope all goes well xxxx You also Jess xxxx
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Hi Todd I have been diagnosed with vertigo but I dont think it is nothing spins with me it just feels like I am on a boat my brain vibrates and rocks (well feels like it) go and see a doctor Hope your improve soon xxx
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Hi Todd and welcome Not had vertigo but in the early days looking down or bending over used to make me feel very sick and dizzy. May be worth getting in touch with your GP or Consultant for advice though.
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Has anyone else experienced sudden bouts of vertigo? I woke up this morning with a mild case. I'm fine as long as I'm not looking up or down. Not good. I haven't had any issues with this until today. I've been doing pretty well since my event 2 months ago.
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Nicole joined the community
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Perimesencephalic haemorrhage with EVD
Winb143 replied to RuthB's topic in Non-Aneurysm SAH or Perimesencephalic SAH
Hi Ruth, Never give in, I had an SAH4 and was told I'd never walk again and the PT's advised my hubby to put me in a home, which hubby said no to them !!! Pulls a face at said Physios lol I never did like them lol !! Cannot remember them to be honest I can walk 300 to 400 yards on a good day but on down days I do nothing !! Apart from have a sleep !! but the only physio they gave me was hitting a balloon none of this I remember as had hydrocephalus, had a shunt put in and awoke and hubby told me what happened as I never knew. I am so glad I awoke and am able to tell my baby who is 40 plus lol how much I love her in between rows. I found this site and realised there is a life after a bleed. Well my Daughter did and I saw women who could smile again and then another and this is when life doesn't stop after a bleed. Wishing you all the best and my answer to all ills is sing and smile as much as you can xxxx Good luck Win alias Winb143 xxxxx- 7 replies
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Perimesencephalic haemorrhage with EVD
RuthB replied to RuthB's topic in Non-Aneurysm SAH or Perimesencephalic SAH
If anyone reads this, even months or years later, please do send me a message. I'd love to talk to you x -
Five and a half months!
Crazy replied to CharlieD's topic in Non-Aneurysm SAH or Perimesencephalic SAH
Hi Charlie, Im pretty lucky I think, I’m at a bit over 4 months and have had minimal issues since about 2 months. I’m back a work now, powering on as much as they need me (I’m a casual but worked 10 days this fortnight). I get tired at times, more so than before especially if I have to concentrate for extended periods. Run a marathon no probs but if I have to think... Stay positive is the best advice I can offer. I’m up and down a bit but as long as you just keep remembering it will take time and keep working at it, you’ll be giving your self the greatest chance at recovery. All the best Dave -
Heavy Head, Headaches & Neck Spasms
Crazy replied to Todd Lentini's topic in Non-Aneurysm SAH or Perimesencephalic SAH
Hi Todd, All sounds pretty standard. I’m 4 months in now and felt pretty good after the initial awful time we all have with this. Now I can get a tad sketchy with similar to what you say. Give yourself time mate, you’ve had a brain injury. It will take time to come right. Stay positive! all the bst Dave -
Perimesencephalic haemorrhage with EVD
RuthB replied to RuthB's topic in Non-Aneurysm SAH or Perimesencephalic SAH
Thanks Chris, really great to hear your story. -
Hello Sarah, I'm coming up to 2 years since my NASAH and the headaches I get do seem to correlate with increased periods of stress, and they have varied in intensity over the last 2 years. Of course, the usual 'seek medical advice' applies, but I hope all goes well. daf
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Thank you Clare for the reassuring words, I feel you are right about the stress as I have woken up feeling better and wonder if that is because I haven't got to go into the office until Tuesday. I will keep my Dr appointment today and just get checked out just to be on the safe side. i knew this was the place to come for reassurance.
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Hi Sarah I read your post and really feel for you. Employers always stay just that close to the line to protect themselves with no care for the employee. Not much you can do in this situation except ride it out, they hold all the cards and will play them as required. Regarding your headaches I would predict that they are due to stress but would suggest you get them checked out to be certain. Stress can cause headaches. I had a period of stress recently and found I was getting a lot of stabbing pains in my head. When I sought medical advice I was told they were most likely caused by stress and true to form when my stress lessened so did my headaches. Try to relax, get some medical advice and take comfort from the fact that repeat SAH is very rare. I hope you get your employment issues resolved my only advice would be to do what is best for YOU, no one else. Stuff the company - they will only be thinking of themselves too! Clare xx
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I'm feeling a bit scared/worried tonight and rather than sitting at home stewing I thought I'd post here knowing that even without you all being able to give me medical advice I know you're all likely to understand. I'm just a week away from the 1 year anniversary of my SAH/RVCS and in the past month I've started feeling really unwell again. Headaches that come absolutely out of the blue and affect the back of my head (so not at all like how my migraines used to be - but equally similar but not quite as bad as the thunderclaps from last year). I'm taking all the medication that has been prescribed, drinking loads of water/squash and sleeping 8 hours a night. The only change in the last month is that I've been told my job is being deleted and they can't see any successor rights for me. I had seen part of this coming but thought there would be new less stressful roles I could apply for but that seems not to be the case. I thought I was fine with this, the job has ceased to be a passion/love and I was hoping to recover more (hopefully) and then job hunt next year. The problem however is twofold in that as the changes are all just 'in consultation' right now no one can or will give me a structure to how this will work timing wise (I could be in redeployment prior to redundancy in 2 weeks or maybe not until April) and the uncertainty is not helping. Then all my colleagues think I've been treated unfairly and so are feeding this back and I could find out I can apply for a new role - this sounds great but if I get this right I *have* to apply otherwise it is considered I am quitting and I get no help/payments and no reference. I have seen Occ Health and the Union and know my employer is just about staying on the legal side of how they are treating me, although there are some issues to raise and keep track of for discrimination/constructive dismissal. I guess as I am listing this rationally I can see that it probably is just stress that is causing the problems but the pain onset is so sudden and scary I am of course worried that there is something else going on. I have an appointment with my GP tomorrow (and amazingly at such short notice I get to see the dr I've seen all year about the SAH) and it is only 10 days until my first NHS mental health appointment but right now I just needed to write this out and ask others who may have experienced similar symptoms to reassure me that stress is my main problem and that I'm not missing anything obvious. Thanks for listening Sarah
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Thank you. Very much appreciated. I’m doing ok Ally thank you. I’ll be after mine back in January but hope it’s straight forward for me. Need to get back to work. Safe journeys Lyne x
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I have to agree take their advice - as for excersise I think your getting plenty just with day to day life stuff. Do listen to your body and keep well hydrated and remember your in early days take it easy.. take care
