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  1. Last week
  2. Dear Subs, Thank you so much for your reply. You are absolutely right there is no one advice that fits all! However I appreciate any information, knowledge and experience out there. I realise my journey is indeed that! My journey! Thank you for the link, I have not looked at it yet but will do so soon! Kind regards
  3. Thank you for your reply Winb143! I realise more and more that one advise does indeed not fit all! However I appreciate you sharing your experience and information, as much can still be learned from one another. All the best wishes for your continued recovery! kind regards
  4. Dearest Gem, it it is with such a heavy heart that I've read of your losses - first the tripping from SAH and then the final blow from this dread virus. Your poor dad an innocent victim unable to shield himself. There are just not enough words in my vocabulary to tell you how sorry I am. I so so hope you find solace in the poem Daff has shared and in good memories. I pray you will find comfort and that we all will move past these terrible times we are in. again my condolences to you and your family. With love, Colleen
  5. Earlier
  6. Gem, so sorry for the loss of your dad, my heart goes out to you and your family at this very sad & difficult time. We will always be here for you if you need us at anytime. Sending you love & hugs Love Michelle xx
  7. Gem, I’m so sorry and hopefully you will be able to start that grieving process but this strange time is changing normals for everyone. Do find quiet time to sit and sit and reflect on happier times with Dad. Let the tears flow but look up and what Spring is offering. Love lives on I think. A poem i find comforting in times of loss When I have moved beyond you in the adventure of life, Gather in some pleasant place and there remember me With spoken words, old and new. Let a tear if you will, but let a smile come quickly For I have loved the laughter of life. Do not linger too long with your solemnities. Go eat and talk, and when you can; Follow a woodland trail, climb a high mountain, Walk along the wild seashore, Chew the thoughts of some book Which challenges your soul. Use your hands some bright day To make a thing of beauty Or to lift someone’s heavy load. Though you mention not my name, Though no thought of me crosses your mind, I shall be with you, For these have been the realities of my life for me. And when you face some crisis with anguish. When you walk alone with courage, When you choose your path of right, I shall be very close to you. I have followed the valleys, I have climbed the heights of life. By Arnold Crompton
  8. Gem, I am so, so sorry to hear the news, my thoughts are with you at this time, and more so in this time we're living in.... sending you big cyber hugs. take care. xx
  9. Gemma I'm so sorry to hear dad passed away words cannot express how you feel, but remember your dad before the strain took hold and remember him in the good days. My thoughts are with you and the family, please look after yourself that's the main thing to hold on to. Will pm you. take care hugs and cuddles from all of us to you xx
  10. Oh Gem So sorry for you and Family and there was me blurting on..Sorry for your loss Gem. Think I'll shut up but wishing you well xxxxxx
  11. Gem so very sorry for the loss of your Dad. Thoughts are with you and your family at such a difficult time. Sending much love and hugs your way xx Love Tina xx
  12. Sad sad news Gem at a sad sad time. My thoughts are with you and your family xx
  13. Gem, my sincere condolences to you and your family at this difficult time.
  14. Gem, I so very sorry for the loss of your Dad .... My heart goes out to you and your family. I can't find the right words and all I can do is send you all, much love and know that I'm thinking of you. xx
  15. Hello Gem .... also so so sorry to hear that your dad has passed away amid such immensely challenging times. Please accept my sincere condolences and I hope you and your family can find solace in the many good times you shared with dad over the years. Take care and keep strong. Subs PS. So glad that Win made that contact with you which made you aware that the BTG family were there for you since his SAH.
  16. Oh Gem, I cannot express how sorry I am for your loss and under these awful circumstances. I sincerely hope that you manage to give your beloved dad a good send off in the weeks to come. Thinking of you all at this time. Much love and many hugs xx
  17. Hi everyone, I'm so sorry I didn’t realise I’d had so many people reply until I’d seen Win‘s comment come through on my email, the notifications must have gone into my spam for some reason. I'm really sad to say that after 4 months of fighting, my dad contracted the coronavirus last week while in hospital and passed away two days ago. Since my original post he hadn’t really made any progress neurologically, but he was hanging in there. This sadly proved too much for him, but he’s no longer suffering. Due to the virus, he wasn’t allowed any visitors whatsoever, so we couldn’t be there when he passed, we can’t see the body and we can’t even give him a proper send off. Losing my dad in the midst of a global pandemic is proving very surreal. Because I haven’t seen him, I feel like he’s just still in hospital. I’m sure it will feel more real in the coming weeks. I really want to thank you all for being so kind and taking the time to reply. Our story has had a sad ending, but all the hospital staff who cared for him were truly amazing and did their best. During our time in the neuro ward I saw many other people make remarkable recoveries, so it just goes to show that there is hope after brain injury. I wish all of you the best, Thank you so much Gem x
  18. Hiya Gem, People were ready to put me in a home I spoke and remember nothing. I remember talking to my Mum who was dead ??? same with Dad . Mum swam away from me ??? all in my mind or perhaps they were there. As my Dad said I can't talk to you love your Mum will kill me. My sisters sang to me and were good as it helped my Daughter after about 4 months I was sent to a hospital nearer home and I had water/hydrocephalus on brain..had a shunt put in and sang to a nurse when I awoke so..Your Dad is in there like I was ..Sing to him make sure his catheter is empty if he has one...Sing to him and see if he knows the words ..keep talking to him took me an age to recover but I did . Good luck to your Dad and all of you ..we get a lot wrong with us after so aftercare is important for us ..Our memory comes back slow but sure ..Wishing You Dad all the best and make sure he is getting looked after okay xxxxxx Good luck to Dad xxxxx
  19. Hello Stevie Many thanks for posting your comments on BTG. I do hope you are getting the support from family and friends to help you on the recovery road. Following SAH there is no 'one advice' that fits all. The nature of each bleed is different, as is the damage to the brain and the area suffering the trauma. This site has so much valuable information from members who have shared their fears, anxieties and struggles in the days, months and years following their bleed. You will find great encouragement from reading the various forums. Meantime the following link will provide some information on your specific query about 'flow diverters' . https://web.behindthegray.net/search/?&q=Flow diverter&search_and_or=or Please take time when you are able to share the circumstances surrounding your SAH by visiting the Introduce Yourself forum. Our members will endeavour to help answer any questions you ask. Wishing you well as you go forward and remember it has been a steep learning curve for survivors and carers alike. Subs
  20. Stevie , I had a SAH 4 and my rupture was coiled ...but I was out of it so cannot tell you much about it. All I know it stopped the bleeding into my brain. Had mine at Kings College London...This was in 2009 ..So good luck xxxxx... Go get em xxx ha ha Keep smiling and singing it really helps..But drive hubby mad xxxx Let us know how you get on xx
  21. I have had treatment for an unruptured aneurysm. Has any one here had non-intrusive operation - meaning through the groin to have flow diverter stent inserted? If so, How long was your hospital stay? How long did your recovery take? How long after your operation did you return to work?
  22. Hi and welcome. I had the same experience when I first joined BTG. I had a NASAH while running and have not been through what many on here have. I am also mostly back to my old self, while I know many here have daily struggles. I learned quickly that I am accepted. As mentioned above, we all experienced something tramatic and we all need support. I love this forum and the people here. Please feel completely welcome. Chris
  23. Congratulations KAthy - well done on reaching your milestone - and the smile on your little one's face on her birthday must make it all seem worthwhile! You can't buy that! So glad you are with us! Macca
  24. Hi Matt, and welcome so glad your able to post now.... I think what you said is the same for a lot of us in one way or another, and there's nothing (I don't think) trivial about an SAH its not a broken bone that a cast can help repair.... you definatly will find a good support network on this site... take care.
  25. Kathy sorry I missed your post and wanted to say hi and congratulate you on all you have navigated . Keep on keeping on ! Daff x
  26. Matt, no one here thinks for one minute that you trivialising SAH. When I joined all I was looking for is affirmation that the emotions I had were normal / usual after something like this happening. The very fact that you are struggling means that this is not a trivial matter for you at all. Every one of us here came here for help and understanding, no matter what aftermath we were and are going through. There is a wealth of experience and understanding on here and that's what you may need to get you through the next few months.
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