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  1. Today
  2. CaseyR
    Iola, it’s good to hear from you. I’m sorry work is troubling you. I retired the year before my episode so got a bye on the return to work experience. I think if there is anything good that comes from experiencing what we have it’s discovering what and who is actually important. You have come far and done very well. You should be proud of yourself.
  3. iola
    Hello all, i am over the six year hump and sliding to 10 years. My five year was such a feeling of "finally" that I decided I'd turn over a new leaf with a new attitude and that lasted for five minutes or maybe five days, I can't remember!! Last winter was rainy, cold, and work was so stressful and the headaches were terrible. It's a wierd headache. Pain? Yes. But, something more than that. A feeling like my head is in a fishbowl with a vice wrapped around it. I had a few dizzy spells and I don't freak out like I used to but I do feel my body getting very hot. Maybe a hot flash as I am 53 now. Good grief. I think it's too little sleep and too much stress and I do know when my body says enough, although, I choose to ignore it sometimes. I am trying to make changes and I am going part-time soon. Really! After a life changing experience we all want to get back to normal and that just does not happen. I'm tired. Tired of headaches, tired of not getting on rides at parks, tired of always feeling wierd, tired of the corporate bs, tired of trying to be as fast as I used to be, and tired of trying so hard. I love my team but do not care for the power players and I wonder why I even try? I've always been a helper but I do not seem to be helping myself. I think I'm at a crossroads and it is so hard to let go of what you worked so hard to get back to only to find you don't like it there anymore. I'm rambling. I dunno, just thinking out loud this evening. Thanks for listening. "i"
  4. Yesterday
  5. Super Mario
    Paracetamol is a painkiller available here in the UK. We are not medically qualified so unable to give medical advice. You are in the very early days of recovery, that recovery can take months or even years in some cases. If you keep well hydrated by drinking plenty of water it will help the headaches.
  6. Last week
  7. Mari Mari joined the community
  8. Kim Vanover
    What is paracetamol? Just had my sah in March. Still having headaches. Waiting for angiogram to be scheduled.
  9. Kim Vanover Kim Vanover joined the community
  10. IPS Temp Admin IPS Temp Admin joined the community
  11. Amber Amber joined the community
  12. Winb143
    I gave up smoking when I awoke as never liked the way I smelt, but a glass of wine and a cig was so nice after a rotton day at work. But Hubby gave up drinking totally !! while I was in cuckooland in case he got a call from Hospital. I used to imagine myself sitting on low wall with dogs and having a glass of Vino and a cig and then I realised I needed to get healthy !! Better late than never lol !!! So went cold turkey as I'd put my family through enough. Plus not walking made it harder for me to be tempted. Tell Hubs try and give it up with out trying to preach to him. It worked for me as I felt guilty as to what I had put them through.. Since 2009 I have had a half a glass of fizzy wine and lemonade and orange juice combined it has put me off drink for life ..well nearly !! Good luck to you both and get him to see a consultant on such matters as I was told no smoking !!! Gained weight eating chocs instead !!!
  13. Macca
    Hope you find the answers you are looking for!
  14. Karen
    I think that you need to raise the question as to whether vaping raises blood pressure? I believe that nicotine does raise blood pressure in whatever shape or form. It's perhaps better for your lungs, but may be not for your BP and it's important to keep blood pressure down after a SAH. With vaping, you're probably still taking as much nicotine, as you did, when you smoked and perhaps even more, as you don't physically put the cigarette out. Personally, I would say, that vaping is perhaps even worse than smoking post SAH, as you don't know how much nicotine you're putting into your blood stream. I'm quite shocked, that your husband's GP has said that it was okay.
  15. Bev75
    Hi Mike, Thank you so much for your words of wisdom. I really will have to take all of this into a daily practise for sure 😊 Daffodil, I had the call from the hospital, i'm on their waiting list for a Lumar drain with observation for 3 days on the ward. if I get some relief from my symptoms, they will place a shunt. How long did it take for you to recover from this operation? What was it like afterwards, I could do with your imput as i'm getting nervous about it xx
  16. Macca
    Hi, I think you hit the nail on the head when you said there isn't much research out there. Talk to your doctors, ie someone who knows, as Catwoman says above. Either way, it can't be as good as not doing it at all. There isn't a lot of research and even less, if any at all, on whether it would affect us a SAH survivors. With all sorts of chemicals possibly in vaping, are you substituting one peril for another? Speak to the professionals rather than us. Any information you get about this here would only be hearsay and probably very unreliable at that. Sorry not to be of more help, but I think we are the wrong audience for this question. Good luck.
  17. Catwoman23
    I cant give you med advice. Talk to someone who really knows. I know some quit smoking with vaping. That is the goal. Not to get hook on smoking. very bad habit. Hard to quit but one must keep on trying. I tell my patients how much money they are wasting by smoking.
  18. Sunisontheway
    So my hubby is 2 months post SAH and had 3 coils fitted. He was a VERY heavy/long term smoker before and has completely given up now. He has turned to vaping which he is enjoying a lot. I don't think that he could survive without it. Has anyone got any info about vaping, is it ok? Its very early days I know and there isn't much research out there. The Dr says it's ok and that it's only cigarettes that are bad news for aneurysms etc. Any thoughts?
  19. Tina
    Hi Elaine A very warm welcome to BTG. There are other members that have had problems with bone flaps. Hopefully they will see your post and reassure you. You have certainly been through it , bless you. Please find the link below, where others have posted and may help you. https://web.behindthegray.net/search/?&q=bone flap&search_and_or=or As Super Mario has said, please keep us updated with how you are getting on. If in doubt or worried always go and see your GP or Neuro. Wishing you well with your recovery. Take care Tina xx
  20. Super Mario
    Welcome to BTG. I would suggest that you visit your doctor with your concerns or even contact the neuro nurse specialist at the hospital where you were treated. As we are not medically qualified we cannot give any medical advice. Would be helpful to others in the same or similar situation if you came back and reported the outcome.
  21. Elaine galer
    Hi i had a subarachnoid haemorrhage 30 years ago shortly after the birth of my son. It was successfully clipped and, although the bone flap never healed properly things were okish. On December 2017, a small boil appeared at the wound site. Several courses of antibiotics later and it still wouldn’t heal. Eventually it turned out that the bone flap was infected and I had it removed in feb 2018. In feb this year I had a titanium plate put in as I hated having such a large portion of skull missing. Unfortunately, just after the staples were removed several leaks appeared and csf was leaking. This time I had plastic surgery to repair the original wound. I am now recovering from this but am concerned re the amount of fluid that is building up at the wound site. Any advice/ reassurance would be gratefully received! Thanks Elaine
  22. Elaine galer Elaine galer joined the community
  23. Earlier
  24. Peggy Currier Peggy Currier joined the community
  25. Mike157
    Bev. If I didn't know better I'd think i was talking about myself in your situation. Have a read of some of my posts, you may find something that might help you. Theres lots to read by the way. Time, yes time is on our side use it wisely, take your time for you. You need it to recover. Take time to do things much slower, it's not a race, look at the Rabbit and Tortoise story, theres the message right there. You hit your own answer in the very last sentence, it's hard, very hard. Sometimes it too hard. But. Some good news for you. Ready? Here we go. Theres always tomorrow, today was hard, yesterday worse, but tomorrow, oh it's going to be a good day, even for 1 hour itll be good. Now the weather is warmer, go in to your garden, take off your shoes and socks and walk on the cool grass, make fists of your toes. Breathe and relax. Hear the birds singing, feel the sun on your face then breathe, relax and do it all again. As often as you need to try this, its soothing and mind calming. It helps to relax, the headaches may not hurt as much, the sun with warm your tired bones. The cool grass under your feet will soothe. Take care Mike
  26. Mike157
    Jean, like you I have problems with various things. Locally we have a group called going steady It's a chair based exercise group, at 57 I'm the youngest. We do these exercises and at first they seem way too easy to look at. Oh how wrong was I. But, given it's only and hour doing this, it really increased my abilities to be stronger in stance and balance. Being able to sit down and exercise was brilliant. We use the exercise bands of differing resistances. I'm now on black. With these bands you can do so much, stretching, pulling and many more of the core exercises to strengthen your tummy, arms and legs. You can also use them in a rolled up tube to help with your gripping too. Although these bands are only 5 feet long they do wonders for your body. Give your local rehab unit a call and ask if there are such groups in your area? Secondly and much more fun is exercise in a swimming pool, it's a lot harder to fall over and cause injuries. Water resistance is surprisingly good at core repairing and strengthening too, combining both may offer a very nice end result. The nice thing about both of these is it appears to be a lazy way to exercise but take my word it's not, but I feel great after 36 weeks! Mike
  27. Mike157
    Hi, Looks like you're doing well? Doing too much too soon and your body gently let's you know. I'm nearly at 9 years post. Having had numerous hills to climb, my eyesight was one of them. My optician was aware and paid attention to the fact the pressure in my brain did affect my vision. Then I found out I had right side peripheral vision deficit. Secondly allegedly I have cataracts too. I was checked by the eye Hospital in London a few years back. It was confirmed that I did have the deficit. Due to numerous complications and medicine reviews, I had my anti seizure meds stopped for nearly 18 months. My sight started to return to normal I used to have to wear spectacles for day use and reading. A month or so ago, I had the great news that my eyesight is 20/20 again! I only need standard reading glasses. If you're on medication it may pay to ask your Pharmacist about side effects of combined drugs, sometimes there a conflict. Problems with your eyesight is very common due to the fluctuating pressures in your brain. Resting often can relieve this pressure and you may notice a difference in your vision. Strange question do you use sunglasses? I find the yellow driving anti glare ones often help with bright lights, even in doors. I also wear a baseball cap every time I go out to reflect the light and offer shade to my eyes. Everyone is different, this is what I do and it helps me. I also use tinted coloured lighting indoors too, soft pinks work for me.
  28. Mike157
    With my epilepsy I'd not had a really bad one for nearly 18 months, as some know I had a really bad one very recently. My warning signs are confusion, dizziness and unsteadiness, it takes a few seconds for it to take effect. I head for the nearest wall, in case I fall over and hit my head. Why a wall? You put your back against it and slide down being supported by the wall, so no falls to the ground. By the time it's over, I'm really tired and very confused. This is why I have my routes around town. I speak to shop keepers and let them know I'm ill. Then if I need help they know what to do. Only a few times have I been caught with an episode out of the blue, then it really hurts. I've now got the Headway brain injury card, it's advertised on this site somewhere. I got mine quickly. It's a nightmare when you're on public transport to have a fit, so notifying the driver is a good idea, as is telling them your stop. It's happened twice on a bus for me, the driver looked after me, kept me on the bus, then dropped me of on the return journey at my stop. Pointed out where I needed to go. Jimble, little and often, slow and safe, repeat steps 1 and 2 very often. Use visual reminders, eventually your mind will adapt to input in a different way, this is cognitive retraining. More later. Mike
  29. Macca
    Hi Mike, I'm not laughing - your advice is inspirational to others - we all have to adapt in our own ways, dependent upon how SAH affects us and to what degree. Brilliant advice, and put across in such a positive way. Thank you. Change happens - it's how one deals with it that counts. Well done indeed! I do similar things to help my short term memory. I also find repeated repetition helpful. Best wishes, Macca
  30. Mike157
    These results are normal for us, I have cognitive, functional and executive function disabilities. We adapt to each disability as we come across it. Practice makes perfect. We adapt in ways that seem strange to others but to us it's another step forward. Lists, reminders a great circle of friends are really good too. As is keeping a diary for yourself. I carry a pocket book to jot notes down as I need to. I also have made friends with various shops, why, they are places of safety for should I have the need for them. I've used them in the past when I mess up. Learning is going to be hard at times, hence note taking and asking for information in smaller easy to handle slots. Weakness in things we used to do but not at the moment are actually strengths, why because you already know it's a weakness and already starting to adapt and to make it a strength. Playing games is good too, as is the Nursery rhyme 'old McDonald had a farm'. Please don't laugh at me for this comment, but given you have to remember animals in an order, it becomes fun learn this new technique. Mike
  31. Nick202 Super Mario started following Intro - new member Elaine and Recovery and medicines
  32. Mama2two
    Thanks everyone! I figured I had over done my activities. I slept for 11 hrs that night!!! i have been taking naps at every opportunity. I see my opthamologist in 1.5 weeks. Thanks, so much for all of your information and support! You guys have been so helpful! I have a coworker who just had a SAH due to a ruptured aneurysm, so she and I have been comparing notes. I have shared with her much of what I have learned from this wonderful group😘
  33. subzero
    Hello, and also a warm welcome to BTG. Well done for achieving four days at work. Being involved in any schooling activities involving children would certainly be a challenge to your recovery, with so many different stresses, noises and demanding children affecting your work day. Six months on you will no doubt be aware that finding time to rest and recharge is vital as you build up your physical and mental strength and your brain adjusts to your bleed. As others have mentioned, eyesight is a very common after effect of brain trauma, and often time is needed to see how things settle down and give an indication of how it may be longer term. You have come to the right place for help at BTG. Within these forums there is over ten years of personal input from our members, and eyesight issues is certainly well documented. The following link will give you access to 50 pages of information. https://web.behindthegray.net/search/?q=eyes Wishing you well as you continue your recovery Subs
  34. Super Mario
    I would get it checked out if I were you. There are things, for example, iritis that can cause those symptoms, I only know about that as I get it. It may well be nothing at all to do with your SAH.
  35. ClareM
    My vision was definitely affected after my bleed, mu optician advised me to wait a good 6 months before making any changes. I subsequently did wait and my prescription was changed but not by much. I wonder if as Tina says you may have just done a bit too much last week and your brain is protesting. Mine still does now, 4 years later, when it thinks I've not played fair. Take it easy and rest when you get the chance. I wasn't back to 4 days a week at your stage, possibly working up to that so don't push yourself too much. Enjoy the Easter break and rest Clare xx
  36. Tina
    Hi Well done for getting back to work 4 days a week It could just be you have totally overdone things last week and your body/eyes are letting you know. Hopefully you can take things a bit easier. I had pain and problems after my bleed, mainly my right eye was affected. I had 5 nerve palsy, the whole right side of my face was paralysed. I also had nerve damage, which caused a lot of the pain around my eye, forehead and side of face. Try not to worry, easy to say i know. If in doubt always go back to see your GP or Neuro. Take care & let us know how you are doing. Tina xx
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