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  1. Yesterday
  2. Regarding recovery time, my neurologist said it would be about 8 weeks until I got back to my baseline, but that was really optimistic. That seems to be a pattern. I'm almost 10 months out, and while overall feeling pretty good, I occasionally get one of those unique headaches. But for the most part I'm back doing the things I used to do. As for driving, in the US the doctor just tells you not to, in my case for 6 weeks--our DMV never got involved. In the early days (after the 6 weeks), fast highway driving was really uncomfortable and led to exhaustion and more headache, but driving on the local streets for short jaunts was OK. I can just confirm what everyone here has been saying--be patient, listen to your body, and get rest. It will get better, but it'll probably be a matter of months, not weeks. And I never stopped drinking my usual moderate volume of coffee--in fact they brought it to me while I was in the hospital.
  3. Last week
  4. Everyone is different.. their SAH or whatever is different - so I think we all just recover as and when, but 3wks is a very short time. As I've said slow and easy keep hydrated and rest lots even if you think you're ok ...'rest' I also think this 3 weeks or 3 months is just a base line they give us really.... take care and stay-safe.
  5. I don't know who it was that told you you should be OK after a couple of weeks, but I have maybe heard of one person who had that kind of recovery, and I have read alot over the last few years so please don't feel there is anything unusual about not feeling recovered yet. I found a couple of really useful and reassuring documents on NHS sites but had to trawl through to find them. This one covers alot and gives a good outline. http://www.srft.nhs.uk/EasysiteWeb/getresource.axd?AssetID=53327&type=full&servicetype=Inline
  6. I am almost three weeks from my PMNASAH and I still have headaches, feel unmotivated and generally tired. I feel like I am crazy because there is so little info on recovery. Some say I should be okay in a couple weeks. That sounds wrong but what do I know? I cannot find any resources on nonaneurysmal perimesencephalic subarachnoid hemorrhage (PMSAH) recovery. Anyone have ideas?
  7. Hi Esedlock Guidance on the gov.uk site with regard to non-aneurysmal SAH and driving is: ✘- Must not drive and must notify DVLA. Driving may resume on clinical confirmation of recovery and, if no other cause has been identified, documented normal cerebrovascular imaging. As you say you are due a follow up very soon, your consultant should tell you then if you can drive. Once you have clinical confirmation the DVLA should allow you to drive whilst they complete their own formal investigations. Yes it is very common to have a great day and then sleep almost all the next day, especially so early on in recovery. Take care Susie Xx
  8. Wasn't told to avoid by my consultant and only avoided it for the first few months after my SAH - I drink about 6 cups of coffee a day and haven't had any adverse reactions. It is supposed to raise blood pressure though, so a good idea to check with your specialist for their opinion. Also, it may cause headaches - try a good quality decaf tea; you can barely tell the difference if you buy Yorkshire Tea (other teas are available )
  9. I'd say very normal its just a case of balance but in those early days most definatly do less, sleep lots its all recovery... (for me that was the case anyway)
  10. Sadly, in the UK, SAH is notifiable to DVLA and you will have to wait for their decision after you have infirmed them. Quite possible, everyone is different in their recovery. Try doing much less on the "great day" and see what happens the following day. As for your other 2 questions, they need to be asked of your medical professionals.
  11. Thanks for the replies. I just have so many questions: 1. Driving. Can I drive? I am waiting for my one-month follow-up. 2. Caffeine. Can I have it? I miss my tea. 3. Is it normal to have a great day and then sleep almost all of the next? 4. Massage. Can I get a massage? My neck and shoulders are sore and I would love one. I am not asking for medical advice; just what you all experienced. 😊
  12. Hi there early days are scarry but slow and easy does it... keep well hydrated and listen to your body.. take care.
  13. Hi @Esedlock I haven't been on here in a while but like to check back in as I always remember how incredibly hard those first months were and people on this site gave me help and support when I needed it so would like to do the same for others. I definitely found the new normal extremely difficult to accept. I am someone who has always pushed myself, for me I have never managed to get back to exercising at the gym but I cycle and walk alot and do yoga as they don't trigger headaches. I think it is very important to listen to your body in the early stages. Everyone kept telling me it's early days but until you are through those first 6 months or a year it is hard to see that. Take one day at a time. Anxiety was and to be honest remains a huge part of my life post bleed. I have had therapy that made a big difference. Night times were definitely worse. Post bleed I started listened to apps such as Calm at night that help and also podcasts as a nice distraction. Perhaps they could help you. Anyway I hope you continue to recover and any questions feel free to ask on here or PM me. Take care Charlotte
  14. Earlier
  15. You are really early days, at your stage I was still in hospital- I did have the added complication of Hydrocephalus. We are unable to give medical advice but the symptoms you describe seem similar to most who have had a SAH. I never felt anxious at night particularly though there are others that did. Write all your questions down and make sure you ask them at your Neuro appointment. What you describe appears normal so try not to stress, it will only make things worse. Clare xx
  16. Well, I had a PMNASAH two and a half weeks ago and I just want to be back to normal. Like you, Clare, I tend to push myself but I am noticing that the more I do, the worse the headache later. I also have weird things happening, like muscle spasms in my back on the side of the bleed. Plus, I feel super anxious at night. Is that normal? Any advice on that?
  17. You will see improvements but they may be slow. I think post bleed everyone has to find their new normal and often the hardest part is accepting what that is. For me it’s been a rocky road as I am so used to pushing myself. Realising that that isn’t my best path has been hard to accept and even more difficult to change. Enjoy those walks and let us know how it goes with your neuro doctor. clare xx
  18. Clare, Thank you so much for your reply. I feel so alone in this because so few people actually go through it. I am having trouble telling if I am tired or fatigued or overreacting but I am just going to take it slow. The hardest part will be letting go and taking it day by day. I want to set goals, etc. but I have no idea how much time until I see (or even if I will see) improvements. I just want to feel normal but that seems like a ways off. I am going to try to walk every day and then start weights once I get the buy-in from my neuro. I think I might be like you - it’s not the physical but the mental that really exhausts me. e
  19. Hi I was out running when I had my bleed and was keen to get back to it afterwards. It took a good couple of months before I was able to start exercising again so to walk a mile after 2 weeks is impressive. I think you need to speak to your neuro doctor about how much exercise and when. Give yourself time, you were fit prior to your PMH so hopefully you will be able to regain that fitness. I now regularly run 4-5 miles three times a week with no issues but working for a full day still floors me - people can suffer from different types of fatigue, mine is brain fatigue. However I do find when my brain is saying 'no', I can go for a run and then feel much better. Take it slow and listen to your doctors advice and hopefully in time you'll be back to where you were. Take care Clare xx
  20. Hi Ericp A very warm welcome to BTG I suffered with hearing loss in my right ear. It was like i was underwater like Jess and Digglydog and was very painful and drove me mad. I had my ear checked and because of my craniotomy surgery it was blocked wth gunge from surgery. I had it suctioned out which sorted that. I found afterwards i was very noise sensitive and would suddenly a hear loud noise that would make me jump. It did improve over time. I also had back pain and was told like you it was the blood dissipating down my spinal cord. It did subside eventually. It is very early days for you in your recovery. As Compostc has said be kind to yourself and dont rush things. Wishing you well with your recovery and we look forward to hearing how your are doing. Take care Tina
  21. Hi Ericp Reading your post reminded me of numbness and pain in the lower spine l suffered it used to drive me crazy. My son got me a little vibrating cushion that seemed to ease it a bit. I was in hospital for three weeks and it took about three weeks after that to clear up. Take it easy and don’t try to rush things.
  22. Hi all! I am exactly two weeks from my PMH. I was released from the ICU after 12 days so I am trying to figure out how to recover. Prior to the PMH, I exercised 2+ hours a day (weights and cardio), did not drink/do drugs/smoke, and am a healthy weight. I am so fatigued but want to slowly work up to where I was. I walked a mile this morning and then my head hurt (whomp whomp) but it pretty much hurts every day as the blood is clearing from my brain. I have searched for resources and there are so few. Can I have caffeine? I have not had any but should I be afraid to? Can I get my heart rate up and if so, when? I see a neuro doc this week and he should have ideas. Would love any tips for recovery (multivitamin?) or resources. I am sure this is posted all the time so thank you to all who answer. It means a lot and I feel super isolated because PMHs are so rare.
  23. Hi there Warm welcome glad that you found us. I went deaf in one side when I was sent home, turned out to be the Iodine had hardened in my ear.... and got disslodged by the movement in the car on the way home...
  24. Hi and welcome. Sorry to learn about someone so young having post SAH issues. My sah was in late 2018 so now almost three years in, I'm (considerably....)older than you but have similar hearing issues. It's a bit more complicated in my case as I needed a programmable VP shunt implanted in the skull behind my left ear and current UK advise seems to be to avoid anything with even a small magnetic field being in contact. This means that most hearing aids are to be avoided too. I've found that my underwater moments like Jess happen when the air pressure is low. I keep an informal watch on barometric pressure now and have noticed that I struggle more when the air pressure drops so enjoy my music more when it's fine but that's probably more to do with listening to Bob Marley in the sunshine.... Hope it all works out for you.
  25. Hi there welcome to btg sorry you need to be here xxx Hearing loss I have had problems with my ears since the sah in 2002 I describe it as its as if I have suddenly gone under water that's what it sounds like I get tinnitus daily to some degree drs were telling me my ears were fine but after a swab it turned out I actually had an infection (for 18 months everyday I was taking antibiotics with a couple of days break between courses and with regular swabs just wouldn't go) xxx Pain in base of spine I still get that but that is due to osteoarthritis and fibromyalgia which I have been diagnosed with both yours is probably from the blood as it takes a while to absorb hopefully it will go soon xxx
  26. I am in my early 30s. 11 days ago I was lifting weights and got hit with a thunderclap migraine and neck pain. I also got sick but tried to wait it out another 12 hours (I know...). Finally I decided I needed to go to the hospital. diagnosed with mild subarachnoid hemorrhage from CT. did angiogram, apparently it ended up giving me two "minor" strokes. mri performed days later no longer showed sign of hemorrhage. seemed to clear out quickly. However, I've noticed some odd issues. my tail bone was hurting a lot and I couldn't stretch my hamstrings even slightly without significant pain. possibly related, my right abdominal region is numb. the doctors shrugged this one off but the nurse thought it might be from the bleed leaking down my spinal cord and messing with nerves. or maybe being stuck in a hospital bed? Was discharged from the hospital after 5 days. Something I noticed once I started getting up and walking around was that my left ear had some tinnitis. also feels stuffy, congested, sometimes hurt. it has more or less worsened and I've lost a couple decibels of hearing. music sounds gurgly, muffled, and bad. this is especially disturbing to me because I work with audio for a living and permanent hearing loss is the worst possible outcome. Went to an ent and did a basic hearing test; diagnosed with "mild" hearing loss in the left ear. really seems more than mild to me. I got my ears cleaned, didn't change anything. I also have the typical residual headaches, fatigue, weird balance, and what not, but I'm not too worried about that. I assume those will subside. My questions for the people here: 1) anyone dealt with hearing loss? is all hope gone for my left ear? 2) anyone experience similar lower spinal pain mixed with numbness?
  27. Good to hear that you are doing well frmertd. I m sorry your ex wife does not get it. It is important to have someone who understands you. Try to rest since working in urgent care/ er can be challenging. At least we have control of our schedules and can limit people we see. Try to limit screen and phone time also and rest. Try meditation. I m doing one oct 8-17th coming up my first time since 2019 and I have done two home course with zoom oct 2020 and March 2021. It relaxes the brain and we used to have some er doc from South Carolina came up as well as some other docs and nurses. Have a good rest of the week everyone.
  28. Jenni So sorry to hear of your plight. So many emotions when this happens and especially hard for you as a Mum caring for little ones. As others have said already, there is hope for you and you are in the right hands. I also had a brain hemorrhage in 2016. It was just a headache at the back of my head (I was on my way to work on the train). It was a little strange as I don't really get headaches and it didn't seem that bad. Anyway, whilst emailing at my desk I noted that I couldn't see the right hand side of my screen without moving my head that way. Long story short, visit to Chiropractor didnt sort it. Visit to Moorfields Eye Hospital confirmed it wasn't an eye defect and they sent me in a cab straight to a stroke unit in London. That was a shock! No-one expects a stroke do they! I am recovered as I think I will be but still have the loss of vision. I do, however, have my driving licence back (woo hoo!) although it did take 20 months! We are all here for you and we all have our own stories and coping mechanisms. Come back here whenever you feel alone or unable to understand the issues you are facing. Be kind to yourself and keep hydrated!
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