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  1. Today
  2. I had check up after I had shunt fitted many moons ago it seems. 2010 had SAH 2009 Surgeon said if I feel okay no need to come anymore !! Was scared as hospital was my life line You will be okay, I found waiting for results of my final MRI was the worse part xxx Good Luck for May 5th and results xxx Go in the Café and treat yourself to a cake or something nice...So nice memories lol xxxx Love Win xxxx
  3. Congratulations Paula on your 7 year anniversary. Thank you for posting, your positive attitude shines through Wishing you well for your check up on the 5th May and as your Sons and Skippy say, see it as a positive and try not to worry, easy to say i know. Lots of love & luck right back to you xx Take care and let us know how you get on. Love Tina xx
  4. Hi Kim, welcome to Behind the Gray glad you found us. Can you tell tell us a little more about yourself and your bleed? We are unable to give medical advice but can tell you about our own experiences. Sounds like your bleed was non aneurysmal, hope you get your angiogram soon so they can sort your treatment out. If you have more medical questions try going back to the unit where you were treated and see if someone can help. Take care and drink plenty of water, it helps with the headaches. Clare xx
  5. Hi Kim A very warm welcome to BTG, glad you found us. You will find lots of helpful information here and friendly caring support. Hope you get the date for your angiogram very soon and you get some answers. Let us know how you get on and feel free to join in the daily banter in the Green Room. https://web.behindthegray.net/forum/9-the-green-room/ Take care Tina xx
  6. Was in hospital only one day after my sah. Waiting to be scheduled for an angiogram. On Gabapentin, and predisone. Don't know where to find answers, so here I am
  7. Yesterday
  8. Iola, I get you. I’m at 7 years now ,my anniversary just passed in March and like you also feel I’m at a crossroad. Things are more stable, we have had these years of getting used to the new version of ourselves, our new limits, our new capacity and then also testing those and pushing and striving ...and then....you find the energy you have to offer other people is not the same, the BS is not something you want to deal with and people can be so ignorant of what an everyday struggle things are, and somehow what you work towards getting back to doing just rings a little empty. I hope part time helps you find the answers. I’ll post if I find any !! Keep on keeping on, you are doing so well...you’ve got this!! Daff x
  9. Thank you very much and congratulations to you too, 13 years....wow! Take care xxx
  10. Well done Paula on seven years. Glad that you have a routine check up and, yes, see it as a positive. I've not had a check up since 18 months post SAH - I'm 13 years in this year. Onwards and upwards hun x
  11. Well here I am seven years on and still feeling really positive. I have my routine check at John Radcliffe on 5th May now that fills me with dread as I hate going back to where my life was hanging in the balance but my sons tell me that I should see it as a positive as that’s where they saved my life. I'm doing really well, still have a few little niggles but nothing too bad, I’ve travelled such a long way and will continue to do so. To any new unfortunate people all I can say is hang on in there, your life will improve, even if you never get back to who you once was you will learn to accept the new person and be very grateful to your new life because I know I am! Good luck to everyone and may we all continue to move on in a positive manner. lots of love and luck to each and every one of you xxx
  12. I found out while in hospital I was allergic to codiene based pills so I take paracetamols when head gets thumping on me . Good luck always seek medical advice xx
  13. Iola, it’s good to hear from you. I’m sorry work is troubling you. I retired the year before my episode so got a bye on the return to work experience. I think if there is anything good that comes from experiencing what we have it’s discovering what and who is actually important. You have come far and done very well. You should be proud of yourself.
  14. Hello all, I am over the six year hump and sliding to 10 years. My five year was such a feeling of "finally" that I decided I'd turn over a new leaf with a new attitude and that lasted for five minutes or maybe five days, I can't remember!! Last winter was rainy, cold, and work was so stressful and the headaches were terrible. It's a wierd headache. Pain? Yes. But, something more than that. A feeling like my head is in a fishbowl with a vice wrapped around it. I had a few dizzy spells and I don't freak out like I used to but I do feel my body getting very hot. Maybe a hot flash as I am 53 now. Good grief. I think it's too little sleep and too much stress and I do know when my body says enough, although, I choose to ignore it sometimes. I am trying to make changes and I am going part-time soon. Really! After a life changing experience we all want to get back to normal and that just does not happen. I'm tired. Tired of headaches, tired of not getting on rides at parks, tired of always feeling weird, tired of the corporate bs, tired of trying to be as fast as I used to be, and tired of trying so hard. I love my team but do not care for the power players and I wonder why I even try? I've always been a helper but I do not seem to be helping myself. I think I'm at a crossroads and it is so hard to let go of what you worked so hard to get back to only to find you don't like it there anymore. I'm rambling. I dunno, just thinking out loud this evening. Thanks for listening. "i"
  15. Last week
  16. Paracetamol is a painkiller available here in the UK. We are not medically qualified so unable to give medical advice. You are in the very early days of recovery, that recovery can take months or even years in some cases. If you keep well hydrated by drinking plenty of water it will help the headaches.
  17. What is paracetamol? Just had my sah in March. Still having headaches. Waiting for angiogram to be scheduled.
  18. I gave up smoking when I awoke as never liked the way I smelt, but a glass of wine and a cig was so nice after a rotton day at work. But Hubby gave up drinking totally !! while I was in cuckooland in case he got a call from Hospital. I used to imagine myself sitting on low wall with dogs and having a glass of Vino and a cig and then I realised I needed to get healthy !! Better late than never lol !!! So went cold turkey as I'd put my family through enough. Plus not walking made it harder for me to be tempted. Tell Hubs try and give it up with out trying to preach to him. It worked for me as I felt guilty as to what I had put them through.. Since 2009 I have had a half a glass of fizzy wine and lemonade and orange juice combined it has put me off drink for life ..well nearly !! Good luck to you both and get him to see a consultant on such matters as I was told no smoking !!! Gained weight eating chocs instead !!!
  19. Hope you find the answers you are looking for!
  20. I think that you need to raise the question as to whether vaping raises blood pressure? I believe that nicotine does raise blood pressure in whatever shape or form. It's perhaps better for your lungs, but may be not for your BP and it's important to keep blood pressure down after a SAH. With vaping, you're probably still taking as much nicotine, as you did, when you smoked and perhaps even more, as you don't physically put the cigarette out. Personally, I would say, that vaping is perhaps even worse than smoking post SAH, as you don't know how much nicotine you're putting into your blood stream. I'm quite shocked, that your husband's GP has said that it was okay.
  21. Hi Mike, Thank you so much for your words of wisdom. I really will have to take all of this into a daily practise for sure 😊 Daffodil, I had the call from the hospital, i'm on their waiting list for a Lumar drain with observation for 3 days on the ward. if I get some relief from my symptoms, they will place a shunt. How long did it take for you to recover from this operation? What was it like afterwards, I could do with your imput as i'm getting nervous about it xx
  22. Hi, I think you hit the nail on the head when you said there isn't much research out there. Talk to your doctors, ie someone who knows, as Catwoman says above. Either way, it can't be as good as not doing it at all. There isn't a lot of research and even less, if any at all, on whether it would affect us a SAH survivors. With all sorts of chemicals possibly in vaping, are you substituting one peril for another? Speak to the professionals rather than us. Any information you get about this here would only be hearsay and probably very unreliable at that. Sorry not to be of more help, but I think we are the wrong audience for this question. Good luck.
  23. Earlier
  24. I cant give you med advice. Talk to someone who really knows. I know some quit smoking with vaping. That is the goal. Not to get hook on smoking. very bad habit. Hard to quit but one must keep on trying. I tell my patients how much money they are wasting by smoking.
  25. So my hubby is 2 months post SAH and had 3 coils fitted. He was a VERY heavy/long term smoker before and has completely given up now. He has turned to vaping which he is enjoying a lot. I don't think that he could survive without it. Has anyone got any info about vaping, is it ok? Its very early days I know and there isn't much research out there. The Dr says it's ok and that it's only cigarettes that are bad news for aneurysms etc. Any thoughts?
  26. Hi Elaine A very warm welcome to BTG. There are other members that have had problems with bone flaps. Hopefully they will see your post and reassure you. You have certainly been through it , bless you. Please find the link below, where others have posted and may help you. https://web.behindthegray.net/search/?&q=bone flap&search_and_or=or As Super Mario has said, please keep us updated with how you are getting on. If in doubt or worried always go and see your GP or Neuro. Wishing you well with your recovery. Take care Tina xx
  27. Welcome to BTG. I would suggest that you visit your doctor with your concerns or even contact the neuro nurse specialist at the hospital where you were treated. As we are not medically qualified we cannot give any medical advice. Would be helpful to others in the same or similar situation if you came back and reported the outcome.
  28. Hi i had a subarachnoid haemorrhage 30 years ago shortly after the birth of my son. It was successfully clipped and, although the bone flap never healed properly things were okish. On December 2017, a small boil appeared at the wound site. Several courses of antibiotics later and it still wouldn’t heal. Eventually it turned out that the bone flap was infected and I had it removed in feb 2018. In feb this year I had a titanium plate put in as I hated having such a large portion of skull missing. Unfortunately, just after the staples were removed several leaks appeared and csf was leaking. This time I had plastic surgery to repair the original wound. I am now recovering from this but am concerned re the amount of fluid that is building up at the wound site. Any advice/ reassurance would be gratefully received! Thanks Elaine
  29. Bev. If I didn't know better I'd think i was talking about myself in your situation. Have a read of some of my posts, you may find something that might help you. Theres lots to read by the way. Time, yes time is on our side use it wisely, take your time for you. You need it to recover. Take time to do things much slower, it's not a race, look at the Rabbit and Tortoise story, theres the message right there. You hit your own answer in the very last sentence, it's hard, very hard. Sometimes it too hard. But. Some good news for you. Ready? Here we go. Theres always tomorrow, today was hard, yesterday worse, but tomorrow, oh it's going to be a good day, even for 1 hour itll be good. Now the weather is warmer, go in to your garden, take off your shoes and socks and walk on the cool grass, make fists of your toes. Breathe and relax. Hear the birds singing, feel the sun on your face then breathe, relax and do it all again. As often as you need to try this, its soothing and mind calming. It helps to relax, the headaches may not hurt as much, the sun with warm your tired bones. The cool grass under your feet will soothe. Take care Mike
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