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  1. Well, I made it! Ten years to the day since my 'event' and I'm still here. It just shows it can be done! It is also eight years to the day that I married the lady that saved my life, my wife Sandra! It is hard to believe that all that time has passed. I am eternally grateful to my surgeon and his team. Well, the weather is fine, the sun is shining, it's a clear blue sky (not often you can say that in Salford!) and we're going for an Italian tonight. Here's to the next ten and thanks to everyone who has supported me through these last ten ye
    13 points
  2. Good morning all hope that you are well and have a great day xxx Well it's my 18 year anniversary today and what an 18 years it has been xxx I was nearly 5 years in when I found behindthegray and I will always be glad that I did I have found some lifelong friends here and no matter how down I am feeling you are always here xxx I still have problems brain zaps lightheadedness heart palpitations but it's a part of who I am now but the good things I now have outweigh the bad my two boys 17 next month 13 this month my job being able to go on holidays now I can
    11 points
  3. Thank you all very much for your kind words. I really find it difficult to believe how long it has been since this awful event happened to me. The silver lining though is that I came into contact with all of you. From my point of view, I think you underestimate how much of a help you all are to me with the inspirational things you do, sometimes in the face of terrible adversity. I think this group is a kind of push me pull you type of thing where we all bounce and thrive off each other and long may it continue. Just for the record, my wife and I had a fabulous meal l
    10 points
  4. Thank you Paul. I remember you from all those years ago back in 2009 when I discovered BTG while searching about SAH’s and all the advice you gave. I’m glad I could tell her about this site because it really helped her and when she was nominated for a stroke award she was chuffed to bits. Mums passing was very sudden and unexpected. One minute she was fine and the next she got very ill. We thought her shunt had failed but it turned out to be heart failure. Thank you also to the others who have replied and for your kind words. I do read them all but I don’t always come o
    10 points
  5. Aw thank you Subs. It's quite surreal looking back on that year. Such a roller coaster ride of emotions, and we've jam packed it with love and togetherness. We remain grateful for every single day, and often reflect on where we've come from. I know Terry needed us to help him recover, and we needed him just as much. He never lost his sense or humour or determination. It's incredible how much a person can suffer and still survive, and recover. I hope we can continue to encourage others who manage to make their way onto BTG. This site saved my sanity and gave me hope, so muc
    7 points
  6. Thanks everyone can't believe how long it has been xxx My eldest actually came to tesco today to have lunch with me and bought me some sweets for afternoon shift bless him xxx
    6 points
  7. Well done on 18 years Jess, you have done an amazing job with your boys - I am sure they are both very proud of you. Clare xx
    5 points
  8. Hello Jess ... not just another day for you. Well done, 18 years post SAH is a great achievement. I hope you are taking stock tonight of how much you have achieved. The mental, physical and emotional battles you have had to face often on your own, must have unconsciously left your lads full of admiration for their mum. Often in their future lives they will draw on how they saw their mum survive and hold their family unit together despite the odds. Immense admiration for you Jess. Subs
    5 points
  9. Jess. Happy anniversary and have a great day at work. You have inspired so many people in the time since especially those I know who had concerns about having kids post SAH. So a big hurrah and well done for all you have weathered. Onwards x
    5 points
  10. Hi Carolyn, My husband had a subarachnoid haemorrhage in May 2019. At 6-7 weeks post bleed he was still very frail, struggling with overwhelming fatigue and headaches, and uncertainty about his future. Some things we did together which helped were doing cryptic crosswords, to help keep his brain active, and going on short walks to help build his strength. We had to keep the home calm and not too hectic for him, with minimal noise and demands on him. Your comment about visitors not able to see you fatiguing is because brain injury is a hidden condition, you actually need to let
    5 points
  11. Apologies for the inappropriate smileys.....I'm still learning my way around the forum.. 🙂
    5 points
  12. Sarah i am saddened to hear this news. I don’t check this site often enough so I apologize for the delayed response. Win was a pleasure to know and I always enjoyed her upbeat comments and singing. I am thankful to have known her on this site. Chris
    4 points
  13. Well done Jess, a complete privilege to be a mod with you and the others. You are an inspirational character and clearly a fantastic Mum and human being. Hope you have had a fabulous day!
    4 points
  14. Happy Anni-versary Jess Agree with all - you've come soooo far since I first "met" you - and it was great to actually meet you in the flesh those few times. You're a fantastic mum, a good friend and a wonderful person to know - proud to know you xx
    4 points
  15. Congratulations on your 18 year anniversary. Enjoy your day 😊
    4 points
  16. Please, please please be aware that being fit to drive medically can change instantly when fatigue is a constant companion. I have had times when I've driven somewhere but can't face the drive back because of the mental torture of dealing with everyday traffic. Sometimes it's good to push yourself through tiredness and fatigue, but not when you're behind a wheel. I'm sure you won't put yourself at risk after surviving SAH and being on the road to recovery. I think that you'll find at 65 weeks it all looks different from 65 days... Keep up the good work.
    4 points
  17. Macca - happy anni-versary and wedding anniversary You're a wise and compassionate man who has been there for anyone and everyone who needed you and you never fail to have the time to pass on your wise words - it most certainly is a pleasure knowing you
    4 points
  18. Macca, congratulations on 10 years and also your 8th wedding anniversary. You have a long time to go before that licence runs out. Here's to the next decade. 🙌
    4 points
  19. I've just found this forum site and have spent the last couple of hours looking through some of your experiences. Nothing unusual in my story. We were on an extended tour of Europe in our motorhome and slowly making our way back from Albania, decided to go back via Brittany and just wombling up the Atlantic coast. A sudden headache, and stopping to get some sleep seemed the best bet. I woke up 2 months later, back home in Milton Keynes having spent the time recovering from the initial bleed, subsequent bacterial meningitis, then hydrocephalus and a VP shunt installatio
    4 points
  20. Warm welcome to BTG! I'm so glad you found this site. It is a great resource and is run and full of very supportive people. You have come a long way and many of us can empathize that it is not always easy. I speak for myself that all I can do is take it one day at a time (even one hour a time depends on my stubborn headaches 😄 ) Take care, Ann
    4 points
  21. Hi Shaw, Like Tina, I had no symptoms prior to my bleed either. So sorry that after making a really good recovery you are now experiencing those odd symptoms again. Hopefully your scan will get to the bottom of what is going on with you. It must be a very worrying time for you, if you need to off load those worries we are always here for you. Wishing you well and good luck with your scan. Love Michelle xx
    3 points
  22. Hi Shaw A very warm welcome to BTG I did not have any warning signs before my bleed but others here may have experienced your symptoms. Good to hear you have made an almost full recovery but sorry you are experiencing those odd symptoms again. I hope you get some answers when you have your CT angiogram. Let us know how you get on. Take care Tina
    3 points
  23. With many thanks to John for his monthly donation to help keep BTG running. Very much appreciated. x
    3 points
  24. With many thanks to all of those members who've made a monthly donation towards BTG funds in August and September. It's very much appreciated! x
    3 points
  25. Hi Macca, I send you my very best congratulations on 10 years since your event. Also Happy anniversary to you and your love...Happy to read you had a wonderful Italian meal out to celebrate. You have an incredible way of giving support on this forum and you share generously. I am so appreciative of your time and wisdom. I so agree with you that this group is a push and pull thing...helping each other. Be well xx Jean
    3 points
  26. Sarah Mums memory will always be with us as long as we live. Remember the good times, hugs and cuddles xxx
    3 points
  27. Sarah, beautiful fitting words for your wonderful mum, brought tears to my eyes. She was a very special lady, who touched so many people lives. When I think of Win, it's always with a smile on my face and a song, she was just a very special person. Xx
    3 points
  28. Sarah I'm shocked and saddened by mums passing i don't come on here very often due to some very serious health concerns which involve hospitalisations please remember the good times and remember mum will always be in your heart and in everyones memory hugs and cuddles sweetheart just take time for yourself xxx
    3 points
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