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Showing content with the highest reputation since 14/09/19 in all areas

  1. 4 points
    Hi i knew I would get some answers here. Daffodil you are lucky you get annual scans. I live in Canada, and even though my hospital care was superb, the after care was non existent. I saw my neurologist 2 weeks after discharge, again after 6 mos. and had a CTScan. That was the last of it. I will check to see if, like you I see some improvement after these weird episodes. I do look at the bright side though, I’m here to complain about it😉😂😂. thank you Subzero, for the references, that did help. Hugs everyone Pat
  2. 4 points
    Hi Zach, Feeling down is common after this event and it can take a long time to get back up again. You say you feel like you didn't get a chance to live fully Yes you have, you survived and you have a second chance. You haven't lived your life fully because you are still with us. All that's changed is that your circumstances have altered a little and you might need to make some alterations to the content of your life. Try looking at your life a little differently. Instead of lamenting what has happened to you, look upon it as an opportunity. An opportunity to reappraise what you do and how you move forwards. You just had an abrupt change forced upon you, like the rest of us, but now it's time after having fallen down (like you did when you were a kid) to get back up, dust yourself down and carry on, just like you always did.. Might take a bit longer but you will do it! Short term memory can be an issue, again as it is for many of us, but there are ways around it, like making notes or keeping a diary for instance. You don't need to convince us Zach of the veracity of your story, but you do need to convince yourself that changing your mindset is a key to improving your lifestyle and frame of mind to positive effect. No - one says it's easy - it isn't - but you need to have hope and belief in yourself. A year out isn't that long in brain recovery terms and being a young man no doubt you'll be impatient to move on, but your body tells you when you've had enough. If there's one thing that a brain injury teaches you, it's to be patient. Dealing with negative thoughts? Well when you think one - ask yourself 'What about turning that around and looking at the flip side?' To every South there is a North, to every East there's a West. To every desperado looking at the negative, there's a John Wayne looking at the positive and taking on the world again! You need to be a John Wayne! So don't despair, things do get better over time. Good luck, my friend. Macca
  3. 4 points
    Tomorrow is the 2 year anniversary of my husbands PASAH and we will be off to Cyprus where it happened to celebrate our Ruby wedding Anniversary something at the time I never thought would happen. He is back to his usual self working full time and we are living our usual life although we don’t take things for granted and try to be more relaxed. When it happened we expected the worse. There is life after a PASAH and you need to value it more
  4. 2 points
    Dear Sarah Good luck with the angiogram. I hope it all goes well and doesn’t set off any auras. Sally
  5. 2 points
    Hi all I have not been on this site before so bear with me....I had a SAH (not sure what a NASAH is (sorry!) last September 2018. I ran the London marathon in April 2018 and the Great north run in September- 3 days before the SAH. I was back running after about 10 weeks but slowly! My rupture also happened whilst on a recovery run after the GNR. I was cautious and my family were initially very worried but I gradually built my running back up to a half marathon distance after 8 months post SAH and now I am back to producing similar times. If it helps I kept my heart rate under 140 beats initially then 150 and now just watch when it gets to 160+ and then just stop and walk a bit until it comes back down. The running, for me, was hugely beneficial psychologically particularly when I couldn’t drive as I could regain some independence. I often slept / napped afterwards though soI didn’t over do it. I found the naps became less frequent, speed improved and confidence too for me and others! I would speak to your neurosurgeon about what he thinks - mine was quite supportive due to my history. I was also in runners world as I contacted someone else who had the same thing and they got back to ultras ! I think it’s individual but hope that helps x Tbh I found it more of a challenge to get back to work!!!
  6. 2 points
    Hello all, I know a lot of you have had your SAH years ago and I was wondering if I could get a little knowledge from your experiences. I had my SAH in April 2019. I've been doing really well - went back to work about a month after I was released from my 3 week hospital visit. I struggled with that in the beginning - being tired all of the time and having headaches. I was also horribly depressed after. The tiredness went first, then the depression. Now I'm only having headaches every so often, and they are in no way as bad as they were. So, here comes the question. What are some limitations you've experienced after your SAH? I'm flying out this week to California - and I had to ask my neurologist if I could. He gave me permission. I also asked about roller coasters, and he gave me a firm no on that one. This has me wondering - what are other things that we shouldn't do, or should avoid other than roller coasters? Are there things you've done but struggled with that you believe someone that has had a stroke shouldn't do?
  7. 2 points
    Hi Charming, After my SAH followed by Vasospasm I was told "go live your life...Now I realize that being 64 probably already was putting limitations on it but like you I was left wondering. After my stroke I had a trip booked and paid for 4 months out to South America, the Neuro said have a good trip...I went and I did...very cautiously such as I wanted to walk up the side of a mountain path in SA but I rode up instead worrying that it would be too much... I love to snorkel, and I do but am a bit worrisome doing it (I guess I don't enjoy it as freely as I did before) but i do it perhaps cutting my time.. No doctor gave me limitations...I think I had hoped for guide lines, didn't get that either... Two and a half years out I still am making choices as to what I feel ok doing.. I would not do anything that risks injury to my head...haha pretty obvious I guess...everything else I do as I tolerated...sometimes struggling with something and then attempting it again perhaps after more rest. Depends on how important something is also... Very individual choices all depending on what limitations we feel we have... Time plays in here also...I have regained confidence as time has gone on... I wish you well in all your challenges . Jean
  8. 2 points
    I am 4 weeks post SAH non aneurysm. I had the horrible headache, vomiting, light sensitive, motion sickness. I had a bleed into 2 cisterns. Angiogram showed no aneurysm. I have not went back to work. Having issues of poor short term memory, headaches, major fatigue and ear ringing. If I do not write things down the next day I will forget. I get lost trying to find my car if I go to shop. All a tad bit scary to me. Anyone else have these things? Thanks
  9. 2 points
    Hi there warm welcome. Yep keep well hydrated doesn't make headaches go but it does help. Good replies (as ever) My lower back pain was due to 5 spinal fluid extractions but I was told that when the blood goes back through the body it can cause pain not sure if that's right so DO ask the GP and if your at all worried call the Neuro Team. Its early days... You take care of yourself because without the people who care for us 'where-would-we-be'
  10. 2 points
    Thank you. Im so glad I found this forum. I set it up for my partner Matt so when he is ready he will be able to read through and possibly communicate with others who have gone through what he has. I didn’t realise It would also be such a help to me. has given me a better understanding of something I know nothing about and reading others comments has helped so much.
  11. 2 points
    I am a new member in the USA but perhaps my experience could be informative. I had my PSAH on April 29 while traveling in Italy and returned to the USA on 18 May. When released from the hospital on 19 June I was told that by state law I could not drive until six months after the event. But about 3 months after a therapist told me I was perfectly fit to drive. She asked if I had been contacted by our state DMV (Department of Motor Vehicles), and the answer was a truthful "no". So I have been driving ever since in all types of traffic with no issues at all.
  12. 2 points
    Hi Teri, Just knowing you are not alone is a help in itself. On here we can tell our worries to others who understand . As for short term memory loss mine has got a bit better but I often say to hubs "Did I tell you this" and I get the look which = "Yes Win 4 times" ! But it gets better and when tired it is worse lol catch 22. Keep a smile handy for down days and I love to sing so poor hubs and Family and on here. (BTG) I have been known to feel a song coming on. My ears are echo and loud sea noises sometimes worse than others. Depends how many people are talking all at once lol xx shhhhh like waves !! Take care and look after you XXX Hope to hear from you soon Nice people on here xxxx All that the others have put also especially water xxx
  13. 2 points
    Hi Teri A very warm welcome to BTG Wise words above from Casey & Subs. You are very early in your recovery, things will improve, it just takes time. One step forwards and sometimes two steps backwards. Pace yourself and rest rest rest We look forward to hearing more from you. Take care Tina x
  14. 2 points
    Hello Teri … and also a warm welcome to BTG. It is very early days in you recovery and the post NASAH symptoms you describe are very common. You will find support and comfort as you read the various threads on this site. They are the personal experiences of so many survivors. It is so important to accept at the outset that your brain has been injured by the bleed. Don`t try and rush the healing process by attempting to get your life back to what it was too quickly. Recovery will take many months of patience and rest while you deal with and accept the physical and emotional circumstances you find yourself in. Heed Casey`s good advice. I do hope you have the support of family and close friends. Take time to explain to them how you feel. This is such a new situation for them too. They can`t see the internal damage caused by the bleed. To them initially you may look normal. If you have employment …. please don`t rush to get back … take advice from your consultants and phase any return so that you can gauge how your body and brain are reacting. Fatigue and tiredness will challenge you a lot. Please keep in touch regularly with us and our members will be eager to respond to any questions you may have. Take care and I wish you well on this difficult and challenging journey. Subs
  15. 2 points
    Teri, I suspect we have all been there! You are very early in your recovery. Be kind to yourself, hydrate well and get lot’s of rest. Don’t hesitate to consult with your doctor your concerns.
  16. 2 points
  17. 2 points
    Hi, I just read your post. I hope you are well over your bleed and feeling strong. I also suffered a sah with no sign of a cause. Went to my 14 week check up with a new mri scan. Still no cause evident. Apparently it was more typical of an aneurysmal bleed pattern, with complications associated with a large sah. The Neurosurgeon had no answers to what could be the cause. Just for me to get my (perfectly normal) blood pressure checked regularly and to drink no more than the recommended units of alcohol. Like you I would like a better idea of what and why. It looks like the answers aren't out there. I take great solace from the fact that rebleeds from NASAH are very, very rare. My specialist said she had only seen 1 in sixteen years. The intend to carry on as normally as I can and try not to be held prisoner by what has happened. Stay fit, be healthy and get on with a full and enjoyable life.
  18. 2 points
  19. 2 points
    Just a quick update. I saw the neurologist yesterday at my (nearly 4 months) post bleed check up. She showed me the original mri scans of my brain against the ones taken last week. Apparently it was a large SAH that was typical of an Aneurysm rupture. But because they couldn't find the cause, after two angiogram, 2 CT and 2 mri scans, it is classed as a Non aneurysmal SAH. There appears to be a bit of staining on the front left side of my brain as a result of the bleed. My neurologist seemed very pleased with my overall recovery,. She told me that I can build up my exercise regime to my previous levels. I asked about the chance of a future rebleed. She said that only 15% of SAH patients are classed as Non aneurysmal and in the 16 years she had been a neurologist, she had only had one of these patients have a rebleed. Good enough for me! I intend to get back on my bike and hit the road ASAP, might even get back to the gym. Mild Headaches and periods of tiredness will no doubt be a new part of my immediate future, but I intend to live a long and full life, without dwelling on what has happened and whether it could happen again. Regards Brian.
  20. 1 point
    Hello Katow My husband has NASAH on 20th May this year, he's a healthy, fit 57yo. I did a lot of research, and read medical journal articles in the weeks after his haemorrhage. It is confounding that something so life threatening can occur to a health focussed and fit person. The truth is, it can happen to anyone, of any age, and for reasons that cannot be explained (I witnessed people of all ages in the Neurology ICU with my husband, he was too sick to observe what happened for those people, I watched as people fought for their lives, and others lost their lives, all happening around him). Having something so life threatening occur is in itself enough to trigger anxiety and panic disorder in the best of us, if you had any pre-existing anxiety, it's not surprising that you could now find yourself struggling, especially so soon after the SAH. What I found is that the medical help kept my husband alive and aided his recovery, but once the medical crisis had passed their job was done, and no further support was forthcoming. I agree with others that counselling and mental health support are also a big part of the recovery. We know that life has changed, we are incredibly glad to have my husband still with us and because he was so healthy when the NASAH happened, his prognosis for a 'full recovery' is very good. We don't know if he will return to his job as a locomotive driver, but we know there are more important things in life. As I said to him, we can't go back , we can only go forward. Having a health crisis like NASAH is confusing and very distressing, but it clarifies what is important in life, and what the priorities are. I wish you all the best for your recovery. The stories and support I have received on this site has been incredible and a huge part of me coping and helping my husband cope. I hope you will continue to find comfort and support here, you are among friends and fellow survivors. Veronica
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