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Showing content with the highest reputation on 23/03/15 in all areas

  1. Sammy, I have flown many times since my SAH, both short and long haul. It really is ok. Cabins are pressurised so there is nothing there to alter your condition no matter what height you fly at. Make sure you are adequately insured for your trip and that you have declared your condition and the medication that you take, if any. Also make sure you have a European Health Insurance Card if flying to Europe - You can apply on-line at Gov.UK If you do take medication, make sure it is in your cabin luggage, not in the hold, just in case you need it and also so there is no chance of
    3 points
  2. Hi, I also was terrified of flying after I had coils fitted , and was told the same as you. My first flight was to Bermuda and I was a nervous wreck!!! Since then I have flown several long haul flights with no adverse effects and now I am a much calmer frequent flyer. Hope this helps and please don't be afraid... go and enjoy your life!!!
    2 points
  3. Hi Sammy, Welcome to BTG! Lonely is a familiar word to BTG'ers, even though there are lots of people around. It's because what you have just experienced is a lonely experience and others around you have not so there is an instant feeling of isolation on your part. It's a bit like when you go into town on your own - lots of people around but none you can talk to because they don't know you. Now you have been in 'hospital town' and no-one knows what you brought home! Except fellow sufferers. That's us! So when you need us, we are here. I would advise two things: 1) Kee
    2 points
  4. Subs, You are a good man, and your post made me cry, just a little !! Glad Wife is doing well and look after yourself so you can look after wife xx Good luck to you both xx Love Winxx
    2 points
  5. Well that was Mrs Sub`s MRI done on Saturday morning- First week in on the reduced steroid- 1mg Prednisolone- 5 weeks to go-no withdrawal effects so far. INR spiked to 4.4 five weeks ago then dipped to 1.5 - then 1.6 then 1.7 last week- sometimes it can be a slow process to get to the 2.00 target level- hiccup probably caused by the steroid reduction. The joys of Warfarin dependency! Quarterly check-up with consultant 14th April Thoughts are with all you guys/dolls who live with daily meds and pain.
    2 points
  6. Hello Sammy Also welcome to BTG Just take time to look around the site for topics relevant to you and you will find so much help. My wife had her SAH nearly four years ago- and this site will be a great help to your own immediate family too. Keep looking after yourself and take care and patience to grow stronger and build up your new life- Best wishes in your recovery
    2 points
  7. Hi Sam, It is scary, my surgeon said to me "No Stress" he insisted that was important. We are the survivors and we can help each other, mind you I do think singing is the be all and end all to problems. ha Welcome to the shunt club along with a few more of us You will be okay and when you don't feel well rest. Others will say drink water as your brain needs water. Ask for a letter from your brain and someone will give you the link xx Now please be sure you are okay before you rush back to work and when you get used to this site I will sing a song for you.. Now there i
    2 points
  8. While on the freeway driving home after working out in the morning, enjoying my birthday spa massage gift at noon and looking forward to my birthday dinner (which was planned for that evening), I felt a "pop" in the back of my head near my neck. My vision went crazy and my head felt like it was about to explode. Fortunately, I was able to slowly keep driving, make it the rest of the way home about 7 miles and have my husband get me to the hospital. From there, I don't remember much until I woke up in NICU at the local hospital about 36 hours later hooked up to many machines and sur
    1 point
  9. It was 0750hrs on 25th April 2014, my husband had just left to take our 13yr old daughter to school, then he was heading out for the day to work. I was left at home with my 7yr old daughter getting her ready for school and myself ready for work. Had finished cleaning the kitchen after cooking scrambelled egg for breakfast. What happened next changed my life forever. It is still a blur and I cant remember much. What I do remember was the pain in my head was excruciating never experiencing anything like it before. I remember sitting in the frontroom and calling my daughte
    1 point
  10. I experienced a non-aneurysm SAH on the evening of March 8, 2015. At first I thought it was simply a stiff neck or pinched nerve that caused a huge headache. I went to the local hospital emergency room and waited for a few hours until an ER doctor called me in. They did an immediate CT Scan and the next thing I knew I was in the ICU, saline drip hooked up and several nurses hovering closely. In those two weeks I have tried to do online research and have found most the topics are clinical descriptions. What struck me when I found "behind the grey" was a resource that finally began to descr
    1 point
  11. Thank you all for your comments and words of support. Being that I am in Los Angeles, it is interesting that many of you seem to be in the United Kingdom. I was looking forward to waking up and seeing if anyone posted back and I was not disappointed! Thank you for the support. In response to the specific question Clare - no, I did not have any drains installed. And yes, I am in the process of learning my stamina tolerance all over again. My main focus is on trying to string together more hours of sleep. I am able to do 2-3 hours but then wake up. I assume I may be able to increase t
    1 point
  12. Daffs has flown also Sammy, I haven't yet but if I can get a reasonable insurance I might unless hubby wont take me !! Good Luck Win xxxxxxx
    1 point
  13. Hey there Welcome to site and to the family. Glad you found us, but we always wish that you wouldn't have had to. Loving the pic by the way - you seem like you have a sense of humour and its important to try and keep that as much as you can - you'll be surprised how much it can help. Chat soon
    1 point
  14. Hi Sammy Welcome to the site and to the family I was treated at Derriford too (2006) - I had the best care in the world there - they were brill so I hope you had the same level of care. I was on holiday in Devon at the time of my SAH. My fatigue and headaches lasted about a year and then slowly started to ease. I hope we can answer any questions that you may have - they're a great bunch on here and we have a wealth of knowledge and a tonne of experience. Take care of you Sami xx
    1 point
  15. I have a shunt but haven't flown not because of that just haven't been abroad since. But know there's lots on here that have shunts and have hopefully you'll get good feed back...
    1 point
  16. Hi Sam A very warm welcome to BTG ! Glad you found us...we are a very friendly supportive group. Look forward to hearing more from you and please feel free to join in the daily banter in The Green Room too. Take care Tina xx
    1 point
  17. Hi there, a warm welcome to BTG - certainly a good place for the realities of recovery, written by those who have first hand experience of the aftermath of a sah. You will find plenty of good advice on here. This all happened very recently for you, so it's good that you've found this site so early on - it took me over a year to find! Wishing you all the best on your journey of recovery, Sarah
    1 point
  18. My partner Jane was dropping our son off at church, and I was having my usual Sunday morning lie in. At around 9-40am I started to get up. On swinging my legs out of bed I was rocked by the worst pain I have ever experienced searing through my head, followed by a strange “trickling warm water” sensation in my skull. Clutching my head in my hands, I fell back on the bed. Fortunately my phone was on the bedside cabinet, and I was able to call Jane. I must have sounded a bit scary as I struggled to get my words out – ““bad headache” and “need you to come home”. When she arrived I was lying across
    1 point
  19. Hi Sam and welcome aboard! This site is brilliant for support and advice and I'm sure you will gain a lot from it and the people here. Sometimes it's useful to have somewhere to post a question away from family, and to let your guard down a bit, without worrying about what anyone else thinks. Mandy x
    1 point
  20. Hi sammy Welcome to the group. Glad you found the site and hopefully you will get lots of help here and find some comfort and answers as I have since joining. You share a Similar story to myself. A pretty long stay in hospital and VP shunt to boot and it all takes a good while to settle and adjust to and achieve a state that is steady. In fact that's my ambition even now three years on, I hope for steady days and when they come round then I'm happy. Regular routine in the day is very helpful especially when you are returning to work, if you add something in then give it time to settle and
    1 point
  21. Just a little info re my post of 15th January when I mentioned that my wife had no SAH follow-up scans since her discharge from hospital over 3 and 1/2 years ago. She has been told that a MRI scan is being scheduled asap. She is still doing her two days a week AND wait for it- going back for a third day this week to help with the back-log,!! Yes Carolyn I`m pulling my hair out!!! What are you women like!! Not looking forward to the next three months election campaign Louise!!! Think I will lock myself in the garage!
    1 point
  22. Today, in 2011 was my mums last day alive, as fully functioning human being. I posted on here looking for answers and a miracle and while a miracle never came, the support and love I got from people helped me so much. I'll never forget it. I am at university now, I've moved away from home, my dad and brother now live on their own, my dad is attempting to date which is going horribly wrong but my brother is really finding his strengths, he's doing very well but the relationship between the two of them is shaky at best, so I worry and I felt incredibly guilty for leaving them. It still feels l
    1 point
  23. Hi all, I've been reading peoples stories on here and thought i'd share mine! 26th Oct 2012 approx 7.30pm, i had sold some of my fishing tackle on ebay, ard 2 young lads had came to collect from dudley. I went into my garage with them to sort the stuff out. I remember that i started to feel weird, cant explain the actual feeling but also felt dizzy, the next thing i remember is waking up in Coventry hospital. My partner later informed me that as i was sorting fishing stuff out in the garage, i had collapsed and had a seizure, i was being sick. One of the young lads came bashing on the livin
    1 point
  24. I had my SAH on August 17th this year. It was coiled the next day at the Walton Centre in Merseyside. I have a smaller aneurysm which is being monitored. A close friend (who actually saved my life by insisting I ring NHS Direct instead of trying to sleep it off) found this site for me and I've been looking in a lot but not saying very much yet. I have a passion for photography and this has kept me focussed (pun) when everything else needs too much concentration and mental effort. Last week I was invited by a local paper (Liverpool Echo) to talk about my photography and recent experiences, an
    1 point
  25. 2006 was meant to be a year of new beginnings my darling husband Morris had been given a new lease of life in May of 2005 when he had his quadruple heart bypass. He had been really poorly from the September of 2004 and it was a stressful time for us as a family. For his mother it proved too much and she suffered with a heart attack the day before Morris was discharged from hospital and ended up having a triple bypass herself within days of her son. It was also the year we would celebrate our 25th Wedding Anniversary. I was running on low batteries and felt constantly tired from about the May.
    1 point
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