Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 04/11/15 in all areas

  1. A massive thank you to all that replied and as ever the replies make me feel like part of a big family who understand the challanges As I had mentioned, my SAH happened in the middle of the night and my wife also has trouble sleeping as any strange breathing patterns or unusual snoring noises she wakes me up to makes sure I'm ok, She has become paranoid about it the now she has decided to seek professional advice to help her. Has anyone else's partners or spouses go through or even going through anything similar It would good to let her read the posts should you have any WIN.......just got
    3 points
  2. Hey Loubie Only just caught this thread what with everything happening here. Congratulations my dear friend - you were a great help to me when I first joined BTG and you've stayed so as well as being a great inspiration ever since. Much love to you xxx
    2 points
  3. Ditto Sarah, Louise. You are a great example to all of us and have done so well. Clare xx
    2 points
  4. I'm sorry I'm a bit late arriving on this thread Louise, but just wanted to congratulate you on reaching and achieving what you have over those past 16 years. I hope the lovely posts from your friends on here help you in some way to get you through this difficult week. I know you have been a member of this site for some years now and just by looking at the total number of posts you've made indicates your commitment of helping and inspiring others - well done Take care, Sarah
    2 points
  5. Thanks for the warm welcome! Life after my SAH has been challenging at times, but also very rewarding. I've met, and continue to meet fabulous people. survivors and caregivers alike. I have moments when I definitely feel like a prisoner of my health, (I can't accomplish much of anything) and other moments when sheer determination is called upon! Like most when my energy is gone for the day, it's gone. (I've learned to get my housework and other stuff done in the morning.) Anyway... Thanks again!
    2 points
  6. Hi Sue, Welcome to BTG, glad you found us That must have been a very tough start to your new married life at that time, especially with young children. Two of my kids were a very similar age to yours when I had my SAH, but I didn't have the misfortune of having to relearn talking and walking. It's lovely that you now have a grandson and one on the way - I'm still waiting! Take care, Sarah
    2 points
  7. Welcome Susan, There's more of us we will be asking you how you did it etc etc ..I have trouble walking and my back hurts so bad after a little walk that I just have to sit down, but they said never walk again and here I am walking. albeit 60 paces and on a rough day then 60 / 100 yards. Congratulations on nearly 20 years xx Take care and Keep well so you can enjoy grandchildren xx Love WinB143 or just Win xx
    2 points
  8. Hi Sue. I liked your quotes also. They were right up my alley as a lot of people will tell you - lol. You're like a miracle! I can't believe you have improved so much and your life has continued so much that you have been able to enjoy your family. etc. That is wonderful! Congratulations. Sending you positive thoughts. Continue to be well and hugs to kids and grandkids. Carolyn
    2 points
  9. Thanks everyone ..I can't tell you how much better I feel knowing that you guys even have the tiniest insight into how I feel xxxx
    1 point
  10. Many thanks Daffodil I will take on board what you have said and also let my wife read it for comfort She is going on Friday for her second appontment and if you dont mind, I will let you know how she gets on Thanks
    1 point
  11. Hey Dave. The sleep and strange sensations can be scary. I woke with a start for no reason after my discharge and whilst I was still on lots of pain killers at that point I would have awful pains, then get scared, then be unable to get back to sleep. Racing thoughts, heart, pain. It was hard. And yes if I was so bad I woke my partner up then he of course would be anxious and worried. He also reports many nights when he used to watch me sleep or check on my naps just to check I was still breathing. I think it's good your partner is talking to someone, she will have been very scared by what hap
    1 point
  12. Hi Sharon, I'm sorry to hear you are having such difficult times but I can't say I am all that surprised that you would be struggling to manage all those hours so soon. It is so very admirable that you are trying to do this but reality and physical stamina is reminding you that it was just 9 months since you damaged your brain and asking you to tread a little slower. I suspect that those in medical professions whom witness daily the amazing feats a human body can withstand and survive can become quite indifferent to the lasting effects of some of these conditions and thus become the worst emp
    1 point
  13. Dave, Mull of Kintyre, well last night the Mist was defo rolling in from the sea... As to sleep, well Ronnie never says that it bothered him or not (but for me it didn't happen in the night) it was lucky though that he was in, because he was meant to be working, so for a while it was tough for him going out and leaving me. Well, that's good, because the first step to cure is getting help well done her... Its harder I think, for others, because they don't know how we feel & will never know, unless they are unfortunate for it to happen to them.
    1 point
  14. Hi Sue, Big welcome to BTG, this is a great place to come to, as you will find out. Everyone`s very friendly and very welcoming, very helpful and supportive It`s lovely that you have a grandson and one on the way, bet you can`t wait. Looking forward to hearing more from you Love Michelle x
    1 point
  15. Hi Susan A very warm welcome to BTG, glad you found us. Love your quotes : "Every time you find humour in a difficult situation, you win." "It doesn't matter how slowly you go as long as you do not stop." "In youth we learn, in age we understand" How exciting one Grandson and another Grandchild on the way My Daughter is expecting her first baby beginning of April, I can't wait ! Look forward to hearing more from you. Take care Tina xx
    1 point
  16. When I got home I had to sleep with a light on. I'm not sure if it was because of all the time in the hospital and the bright lights 24/7. Even now I hate total darkness. Feels like death to me. I do not sleep well and ask a God to wake me in the morning. I aways want to fall back to sleep around 5:30 or so when dawn approaches. It's very comforting to me knowing the sun is rising. I am not sure I'll ever sleep a full night again. Iola
    1 point
  17. Hi Davie! Great subject and one I've been embarrassed to talk about. So glad you brought it up. When I first got home I was so scared to sleep as I was sure there were ghosts in my room. I even swore I heard voices. I did have my sah in the bedroom while I was sleeping so I think that was part of it. Then my son brought in fleas from a job he had outdoors. You should have seen it. I was usually the one that never had them bother me but, of course, maybe medication, they picked my ankles to rest on. I was so scared and paranoid that I had to powder everything in the hou
    1 point
  18. Hi Davie, I had my SAH start to happen when I was in the bathroom, I was really paranoid about going in there when I returned home from hospital. I also struggled to sleep, like you I was scared in case I didn't wake up, Like Sharon said it`s the association with when it happened, but it does get better as time goes on, Hope things start to improve for you soon, Love Michelle
    1 point
  19. You are okay Davie, It's just that we didn't expect this to happen to us and we can stress about it which is no good for us. Been through 3 stages of a bleed Stage 1 Why me. 2. Guess I wont live long. 3. There is a life after an SAH. When you feel a panic mode coming on just say to yourself, I am still here and try and relax, you are not the first and will not be the last to feel like this. So start thinking happy thoughts remember the smile well try it when in bed where no one can see your silly grin ha. Bet you feel better, I was the same so been there also. Try a s
    1 point
×
×
  • Create New...