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Showing content with the highest reputation on 31/12/16 in all areas

  1. 3 points
    Hi Sharon, First of all, welcome to BTG - glad you found us. The first thing is to say that he is home and you must be pleased about that because many of us were in hospital for longer periods before being allowed home. Your husband is probably wondering what hit him and it has floored him. He will be a pent up mixture of emotions at the moment and he probably can't explain it himself yet. The things you describe are quite common amongst those who suffer SAH. Hopefully, over time things will calm down as he comes to terms with what happened. He will be realising, much against his innermost thoughts, that he cannot do what he took for granted before. That will be upsetting, will make him angry, will frustrate him. The main reason is that he can't control it and at the moment he can't do anything about it. The main thing is for him to rest, and rest properly, at the moment and allow the brain and his body to come to terms with what has happened to him. Over time he will learn to do a lot of what he did before but, perhaps, in a different way. Time seems to be the biggest healer in all of this. I would say to you to keep talking to him, understand that although he may look the same as he did before, his inner workings have suffered a big blow that you cannot see in much the same way as you can't see a submarine but you know it's there. I don't know about the pain at the bottom of his back so you need to see a doctor about that. It might not be related at all. Did he have a lumbar puncture? If he did, then perhaps that pain is an after effect and it may subside again over time. The pain may account for some of his frustration and irritability so seeing the doctor is your best bet, as we can't give medical advice, not because we wouldn't want to, but because we are not doctors and, therefore, are not qualified to do so. It is very early days for your husband and I did all of the things you describe when I came out of my coma, but I am largely ok now, so there is hope. I reiterate that time and your understanding are two of the best things you can give him right now. Patience is a virtue and although what he is doing at the moment is probably a little unpleasant to handle currently, he can't help it or control it, so the best thing to do is to give him the time and space to work through this in his own time. You be there for him when he needs you, even if he doesn't realise it himself just yet. When he is in his better moods, talk to him about the issues you have raised with us - work with him, not against him. Realise also that he will tire really quickly at the moment, so short talks are best and then let him rest. Also, a good idea is to keep a diary so that you can chart progress. It's a bit like when you see somebody after a period of time and you say "Wow you've lost weight" but if you had been in their presence all the time you wouldn't have noticed it. With brain injuries progress comes in small steps over a prolonged period, so that diary will be a journal of his recovery process. When he is well enough, ask your husband to look at this site. He, like many others, will benefit from it I'm sure. Let us know how you get on. Best wishes, Macca
  2. 2 points
    Hi Sharon A very warm welcome to you and your partner. So glad you found BTG. Some great advice above from the others. It really is patience, rest rest and more rest and plenty of water. Two weeks is so very early in your partners recovery. You will find a wealth of information here and lots of friendly support for you both. Keep in touch, take care. Tina xx
  3. 1 point
    Hi Sharon, Hubs is more than likely feeling vunerable at the moment but he shouldn't take it out on you !! He has realised that he is not invincible. When I woke up after being in Dreamland for an age I started to prepare for my funeral as I thought this is it lol xx I joke but it 's scary when you find that you could have died as I had Ventriculitis, UTI, Sepsis and still struggle to walk. I got back ache real bad and it stops me walking xx All I can say is talk to him, I found singing happy songs cheered me up. He has to learn there is life after a SAH. You have been scared witless also. Get him out the house even if it's for a coffee decaff !! All the Best Win xx xx Tell him to type on here as he will see there are others also and we are still living xxxx Good luck
  4. 1 point
    Hi Sharon Welcome to BTG sorry to hear your partner has suffered a SAH. Very early days for him. The pain at the bottom of his back is probably due to the blood dissipating and will subside in time. He is probably very frustrated and bewildered. Just bear with him. Plenty of rest, quiet and lots of water. Hopefully he will improve in a few days. I am sure other members will be commenting soon with helpful advice. You are not alone. Clare xx
  5. 1 point
    Sophie, I`m with all the above on this one, I do think you should have stayed at A&E and if I were you I would certainly go back, You need to forget about waiting time, as Super Mario said yesterday, this could be a life threatening condition. You have so many questions that need answering, they should never have discharged you and if I were you I would be making a complaint. I think it`s shocking the way you have been treated, you really should do something about it. Sophie, do you have someone who could maybe go back to the hospital with you, as you can see from the posts here we are all very concerned for your welfare, you could maybe do with a little support if you do go back, it`s just a thought. Like Macca said, the slightest change in your condition you really do need to get to hospital, 999 if necessary. Please let us know how you are, Love Michelle x
  6. 1 point
    Sophie, I am hugely disappointed at the way you have been treated. It simply isn't good enough. I do think, though that you should have stayed until a consultant saw you. If I were you, I would go back but only you can make that decision. I also think you should complain in writing to your local health trust and copy in your local MP - enclosing a copy of your SAH letter and detailing the wretched way you have been handled. Send them by recorded delivery so they can't say they haven't received them. If there is even the slightest change in your condition - get back to the hospital, blue lighted if necessary, but get there.
  7. 1 point
    Sophie, if you take the discharge letter saying suspected SAH I am sure you will be taken seriously and you won't look silly. There are people who go with cut fingers, this is far more serious than that. To your health, work is secondary. Do you realise a SAH is a life threatening condition. Brutal me saying that, I know, but please go.
  8. 1 point
    Hi Sophie SAH can be diagnosed by CT scan, or by lumbar puncture if the CT scan is negative/ inconclusive or MRI/MRA. Once SAH has been confirmed the usual process is to determine whether the bleeding is from an aneurysm or not - this could be initially by a scan with contrast dye and/or cerebral angiogram, but is usually done quite quickly after diagnosis. In your case you don't seem to have a definite diagnosis yet and I can understand this is worrying. I agree with Clare and would say go back and see your GP or ask for a telephone consultation. Ask the question you have asked here: 'If the referral is for SAH why has it not been given more urgent attention?' I would also be asking if the CT scan has been reviewed by a neurologist or neurosurgeon yet. GPs often don't know much about SAH but hopefully you have one who will try to get answers for you. Don't be worried about seeming over cautious - it's better to get some peace of mind. I hope you get some answers soon. Take care. Xx
  9. 1 point
    Hi Sophie This must be such a worrying time for you especially as you do not seem to be getting any answers from the medics re your condition. I suffered from a NASAH. It started with an explosive headache, photophobia and vomiting. I was diagnosed using a CT but I also had a hydrocephalus which resulted in surgery and a 2 week stay in a neuro unit. As Skippy has said I am sure that if there was any worry that you needed urgent attention you would have been referred to a Neuro unit straight away. Have you actually spoken to your GP? GP's are often fairly uneducated about SAH, mine had never had a patient with one. Would it be possible to have a telephone consultation with your GP to discuss your predicament? Perhaps he/she could be persuaded to contact the Neurologist himself by phone to discuss your case and then possibly put your mind at rest or at least give you some idea when you will be seen. I hope you manage to get some answers soon. In the meantime I hope you can continue to find some help here on BTG. Clare xx
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