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Showing content with the highest reputation on 08/07/20 in all areas

  1. 1 point
    Hi there I’m hoping to get some insight into NASAH. My mum called an ambulance yesterday morning at 830am, was confirmed to be a bleed on the brain. She was transferred to a specialist hospital to undergo more scans, which revealed NASAH-which is good news I hope? Its very early on I know but I have no idea what to expect. Is it in her favour to pull through? Have they caught it at right time? I called this evening to check how she is and she’s still in a lot of pain, and confused/drowsy etc. Is this to be expected? When will she start to improve so I can talk to her? Or her symptoms to start going? Thank you for reading, and thanks for any advice you can give. rebekah
  2. 1 point
    No worries Rebekah it's a stressful time. Everyone googles but the advice we always gave our patients in the hospital I worked at was stick to NHS websites or those of charities associated with the diagnosis. 'Headway' and 'Brain and Spine' are good sources of info. The fact they are sending her back to a closer hospital sounds like positive news. Yes a subarachnoid haemorrhage is classified as a stroke. Take good care Clare xx
  3. 1 point
    Thank you so much for replying. I’m glad you are ok. I think I did the worse thing and googled it, as I never even heard of it before and all I could see was the worst case scenarios. And yes not being able to see her is making me anxious mess. I just want her back so I can look after her. Is this classed as a stroke? They aren’t operating, and sending her back to a closer hospital which is good. i think I’m just being inpatient and wanting her well again ASAP. xx
  4. 1 point
    Hi Rebekah A very scary and uncertain time for you. We can't give medical advice on the site but can tell you about our own experiences. My bleed was a NASAH with the complication of Hydrocephalus. I was in hospital for 2 weeks and remember very little of that period. I was in pain quite a lot of the time with headaches but this was managed with painkillers. Hopefully as mum was seen early in hospital she will recover, as there does not appear to be an aneurysm no surgery should be required unless she develops Hydrocephalus and needs a drain as I did. Have a good look through the posts in the Non-aneurysmal section of the site and read others experiences. However what you need to remember is that everyone is different and their stories vary. It will depend on how alert she is as to when you may be able to speak to her. My husband and family were with me all the time and say I was talking after a few days - however a lot of it was rubbish and I slept most of the time. I presume that due to Covid you are unable to visit? My friends husband had a NASAH in early April this year, she was unable to see him while in hospital but was able to skype call him - the hospital helped with this. He was able to communicate after a few days and has made a remarkable recovery with virtually no deficits, a very lucky man! Feel free to personal message via the site me if you would like more help. Just keep strong, look after yourself and be prepared to give Mum lots of support when she comes home. Be thinking of you. Clare xx
  5. 1 point
    Hi Tania So sorry to hear about your husband. It's always a bit of a shock when we lose our freedom to drive. It's not the end of the story though so please try to hold on to some hope. We need to know a lot more yet so perhaps you could tell us why he went for the field of vision test. Was it requested by the DVLA? If it was then the optician (presumably Specsavers or some such company?) will send their findings to DVLA and they will then write to him with what happens next. The first thing they'll do is to ask for his licence back but they could also tell him that he could be considered under 'exceptoinal circumstances' to regain his licence. There are copies of these letters in this thread (see my post of 29th August 2019 above). If he gets this letter, there is a good chance that he will be fine but it will definitely take some time. It took me 20 months to get mine back. Let us know what happens and we can offer more advice as the process unfolds. I must caution you that if the DVLA say his eyesight (visual defect) is too severe, then there is a chance he will not get his licence back. There is nothing that can be done about this. It is the way it is. I wish him good luck. Make sure you keep us up to date. JM
  6. 1 point
    A letter from your brain Hello, I’m glad to see that you are awake! This is your brain talking. I had to find some way to communicate with you. I feel like I barely survived WWIII and am still not quite all in one piece. That’s why I need you. I need you to take care of me. As time passes and you and I feel better and better, people, even doctors, will tell you that we are fine, “it’s time to get on with life.” That sounds good to me and probably even better to you. But before you go rushing back out into that big wide world, I need you to listen to me, really listen. Don’t shut me out. Don’t tune me out. When I’m getting into trouble I’ll need your help more than I ever have before. I know that you want to believe that we are going to be the same. I’ll do my best to make that happen. The problem is that too many people in our situation get impatient and try to rush the healing process; or when their brains can’t fully recover they deny it and, instead of adapting, they force their brains to function in ways they are no longer able too. Some people even push their brains until they seize, and worse… I’m scared. I’m afraid that you will do that to me. If you don’t accept me I am lost. We both will be lost. How can I tell you how much I need you now? I need you to accept me as I am today… not for what I used to be, or what I might be in the future. So many people are so busy looking at what their brains used to do, as if past accomplishments were a magical yardstick to measure present success or failures, that they fail to see how far their brains have come. It’s as if here is shame, or guilt, in being injured. Silly, huh? Please don’t be embarrassed or feel guilt, or shame, because of me. We are okay. We have made it this far. If you work with me we can make it even further. I can’t say how far. I won’t make any false promises. I can only promise you this, that I will do my best. What I need you to do is this: because neither of us knows how badly I’ve been hurt (things are still a little foggy for me), or how much I will recover, or how quickly, please go s-l-o-w-l-y when you start back trying to resume your life. If I give you a headache, or make you sick to your stomach, or make you unusually irritable, or confused, or disoriented, or afraid, or make you feel that you are overdoing it, I’m trying to get your attention in the only way I can. Stop and listen to me. I get exhausted easily since being hurt, and cannot succeed when overworked. I want to succeed as much as you do. I want to be as well as I can be, but I need to do it at a different pace than I could before I got hurt. Help me to help us by paying attention and heeding the messages I send to you. I will do my part to do my very best to get us back on our feet. I am a little worried though that if I am not exactly the same… you will reject me and may even want to kill us. Other people have wanted to kill their brains, and some people have succeeded. I don’t want to die, and I don’t want you to die. I want us to live, and breath and be, even if being is not the same as it was. Different may be better. It may be harder too, but I don’t want you to give up. Don’t give up on me. Don’t give up on yourself. Our time here isn’t through yet. There are things that I want to do and I want to try, even if trying has to be done in a different way. It isn’t easy. I have to work very hard, much harder, and I know that you do too. I see people scoff, and misunderstand. I don’t care. What I do care about is that you understand how hard I am working and how much I want to be as good as I can be, but I need you to take good care of us, as well as you can do that. Don’t be ashamed of me. We are alive. We are still here. I want the chance to try to show you what we are made of. I want to show you the things that are really important in life. We have been given another chance to be better, to learn what is really important. When it is finally time for our final exit I would like to look back and feel good about what we made of us and out of everything that made up our life, including this injury. I cannot do it without you. I cannot do it if you hate me for the way being injured has affected me and our life together. Please try not to be bitter in grief. That would crush me. Please don’t reject me. There is little I can do without you, without your determination to not give up. Take good care of us and of yourself. I need you very much, especially now. Love, your wounded brain ©1996 Stephanie St. Claire May be reprinted for personal, not for profit use.
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