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Showing content with the highest reputation on 31/01/21 in all areas

  1. Hi Sally, you really need to get in contact with your GP.....give them a call first thing tomorrow. Tell them that you're claustrophobic and freaking out ... they may be able to help you with a sedative that takes the edge off your fear ... as long as someone is able to drive you home...I'm not a medic but your fear is really common, so get help. I've never heard about wearing a "coil" helmet and not sure where you've got this info from? Remember that you always have a buzzer in your hand when you go into the scanner ....you can press it any time, if you need to get out of the scan
    2 points
  2. Hi Daff, It's been a while and I just want to say a big thank you 😊 For all your support and advice you've given me these past few years, which have been invaluable to me. I feel like my journey after my bleed has been a very similar one to yours and it makes me feel that I'm not alone. I had another shunt adjustment in Jan, where they've lowered the settings to 1.5 so I'm now having to readjust again to everything. Blimey doesn't it take time, it seems for me it takes about 3 months for the pressure to settle. But i'm still getting horrible stitch like pain in my
    2 points
  3. Hi Gam, I can totally understand where you are coming from. I was just like you, Daff, sent me the link for sensory flooding which really helped me to understand what had been happening to me. I too practice mindfulness everyday. Mark Williams is very good, I have his audio books, I like the 5 minute breathing space he practises on there. which i've found have helped to desensitise the chaos of distorted sounds and vibrations. I still have the high pitched hissing and buzzing, but I find I'm coping much better using relaxation techniques, I use Headspace and have downloaded
    2 points
  4. Hi Daffodil! This is GAM. Sorry for the late reply. I appreciate your sharing so much! I was really down this past week. The tinnitus started in the other ear on and off. I felt like I was relaxing more and doing my best to get better. Your post inspired me to be patient and to continue to take care of myself. I tried "turning off all competing noise and switching of devices. Try and have some complete silence." I felt more at peace. Many blessings to you!
    1 point
  5. Hello and many thanks for keeping on touch. The years pass by quickly and we (survivors and carers ) learn more about ourselves and how we deal with life post SAH. Great to hear how supportive your husband has been. His life and focus has also undergone much change. 😊 Keep enjoying the outdoors. A great way to bring positivity to a crazy world at the moment. Well done almost four years on. Subs
    1 point
  6. I’m grateful to be able to come her and peruse the posts and comments. It’ll be four years in March since my SAH. I STILL have headaches and a buzzing feeling in my head. But I’m ok with that to be honest. My husband is wonderful and seems to intuitively know when I’m not feeling great. I worked for a medical doctor before retiring and we chatted recently. After doing some research he found a study and told me that 16% of us will live with chronic headaches. They come and go! So I’m resigned to that but so very thankful to still be active! To hike and jog a bit with the dogs and
    1 point
  7. Hi, The others advice really helped me. I am doing counseling via tel-med with a doctor who has worked with clients with brain bleeds. It is mostly helpful. I may try another doctor. I am almost 6 most post NASAH. I pushed myself back in month 3 because thought I should get ready to go back to work full-time. The ringing in my head increased in volume and doesn't stop...However, the greatest gift I experience is acting kinder and more accepting of myself and not setting goals...my body is the guide. I wish you well on your journey.
    1 point
  8. Hi all and thanks very much for your wise words, advice and support. Really appreciated. I'm now day 65 and there are some changes. I managed to track down my consultant as follow up appt at 8 weeks was never going to happen because of covid. I decided it was better to pay to see him rather than wait. Too many unanswered questions. I had 30 mins with him on a video consult and he didn't charge me. Nice man. He said the chat we had was what he would have done at a follow up. So I felt re-assured. In summary My various symptoms ongoing were to be expected. He
    1 point
  9. Hi Carolyn, Great question. I'll answer from my own experience and I'm sure others will add theirs. firstly 6.5 weeks is virtually nothing in recovery terms. Months and years is more the order of the day. What I did, and it was completely wrong, in my opinion, with hindsight, was to set myself a goal of getting back to normal. What's wrong with that, I hear you ask? Well, what was 'normal?' In my head, It was back to being the old me, where I was the day before I had the 'event.' But then, that was all I knew. I realised later that was never going to h
    1 point
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