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Showing content with the highest reputation on 04/02/21 in all areas

  1. Money is overrated (unless you've got none!) Congratulations on the anniversary!
    5 points
  2. Well, today is my 17th SAH anni-versary. Where have all those years gone? Still enjoying life to the best of my ability although, like just about everybody, the last 12 months have been hard and I think, will be hard for the next months to come. I actually found out I share this anni-versary with the launch of Facebook 17 years ago today. Wish I had as much money as Mark Zuckerberg . https://en.wikipedia.org/wiki/History_of_Facebook#:~:text=Facebook is a social networking service launched as,Saverin, Andrew McCollum, Dustin Moskovitz and Chris Hughes.
    3 points
  3. Happy Anni-versary SM! Mine is just around the corner but not as impressive as 17 years! Clare xx
    3 points
  4. Dear Karen Thanks for your kind message. It’s been a great support to me and helped me through. Thanks also to everyone who sent their good wishes. So much appreciated. Sally x
    3 points
  5. Bless you Sally and just glad it's all over for you now .... well done and I know how difficult it is! x Never be afraid to ask for help to work out your problems ... it's not a sign of weakness, but a sign of strength ... we worry far too much about how people will judge us, but over the years and from this website, I've seen too many people struggle and that comes first hand from my own experience. It took me a long time to ask for help...and that's my only regret. Is it common how you've felt? Yes, it is and I've always hoped that within our little online community,
    3 points
  6. Happy Anni-versary Super Hope you've had a lovely day - congrats xx
    3 points
  7. Happy 17th Anni-versary SM! Hopefully this time next year, you'll be back on your adventures again! Have a good day and well done! x
    3 points
  8. A BIG congratulations SM, 17 years post SAH is quite a journey. You have certainly so much experience to relate to our members from the many lows and highs along the way. Well done. One thing you have (probably even more than MZ himself) is plenty of grit and determination, and a desire not to let any SAH limitations restrict what you want from life. Saying goodbye to Penny was so hard for you but it is great to see how your new doggy friend Kizzy has brought many smiles to your day, and I also hope there will be holidays at your favourite resorts in the f
    3 points
  9. Sorry for the delay, but Yippee ~ it is over! I hope that during the rest of your day you were able to relax. I also was given the choice to listen to music or have ear plugs during several MRIs ~ the music never was loud enough. So, I always ask for ear plugs now and it does help. You did well. 👍 Kathy
    3 points
  10. Hi, some lovely kind advice above and hope you are seeing you are not alone. The truth and reality of our changed brains is a hard one to explain to others , how that feels, the loss and adjusting let alone accepting it is even harder. A lot of the early days is about surviving really, getting through the day, the pain, the fog and slowly slowly clawing back what we can manage and seeing what is else is possible. But my goodness we are hard with ourselves along the way, I mean no one handed us a manual of how to live after an brain injury , and so here we all are muddl
    3 points
  11. Just come out of hospital. Unfortunately my scan was delayed by 40 minutes which didn’t help. Staff were so helpful and kind. She put the head cage thing on and I couldn’t handle it so she thought what she could do instead and used a different device which didn’t come over my face. My husband stayed with me the whole time. I was crushing his hand! Unfortunately the headphones weren’t working with sound as we found out afterwards that the cable wasn’t attached. The third scan was the longest and seemed to go on forever. When that stopped I had to press the bu
    3 points
  12. Hi Xmartz Sending you a great big virtual hug xx You are not worthless at all, you have been through a huge trauma. Be kind to yourself as our lovely Karen once said to me on here. Do you think you could sit down and write down all the things you are struggling with or getting frustrated with. Your children are adults and maybe as a family you could have a chat about ways they could help you. You may have done this already xx Also have you contacted your Doctor or Consultant about your angry out of control outbursts. There are people you can talk to a
    3 points
  13. 17 years SM...well done getting on with and enjoying your life...and being such a great source for all of us here on BTG... As for FB, nah over rated....surviving a brain injury, now that is an accomplishment xx Jean
    2 points
  14. Congratulations SM on your 17 years SAH Anni-versary! Great to hear you are still living life to the best of your ability, you are an inspiration Hopefully in time you will be back off on your holidays. Feels like Facebook has been around a lot longer than 17 years. Hope you have a lovely day and can celebrate in some way. Take care Stay safe Love Tina xx
    2 points
  15. Sally, this time tomorrow, it will all be over with .... don't forget, that you always have that buzzer to press ... let us know how you get on. x
    2 points
  16. Hey there Agree with everything Tina has said - be kind and accepting to yourself as well. Regarding the uncontrollable outbursts - I see you're only 3 years older than me and I'm going through the same thing at the moment. However, I do know what's causing them - the flaming menopause!!! And I do notice that the symptoms are worse the nearer it would be to my monthly cycle. Is that ringing true for you at all? It's still worth talking to your doctor if you can, they may be able to help somehow, but identifying the reasons is just as helpful and may help
    2 points
  17. Hi Gam, I can totally understand where you are coming from. I was just like you, Daff, sent me the link for sensory flooding which really helped me to understand what had been happening to me. I too practice mindfulness everyday. Mark Williams is very good, I have his audio books, I like the 5 minute breathing space he practises on there. which i've found have helped to desensitise the chaos of distorted sounds and vibrations. I still have the high pitched hissing and buzzing, but I find I'm coping much better using relaxation techniques, I use Headspace and have downloaded
    2 points
  18. Hi Daff, I was a workaholic...As a first grade teacher, I was usually in the building early and left at 5 pm or 6 pm daily (the custodians use to kick me out of the building lol) I worked weekends. The day of my hemorrhage, I was scheduled to tutor a student... Yes, As a society ‘busy’ is worn as a medal! I'm learning to take quiet time to heal...
    1 point
  19. Thank-you for responding Bev. I think I'm hoping that what I'm experiencing is a continuation of neuro fatigue because that feels like it still gives me hope that I can achieve further gains. Kind regards Majella
    1 point
  20. Hope all goes well today xx
    1 point
  21. You can do this Sally. 😊 Subs
    1 point
  22. 1 point
  23. Sally hope all goes well for you today, take care xx
    1 point
  24. Hi my mom really panicked because I told her there was a mirror there wasn't in hers and there wasn't in my last one I dont know why or where it was but it panicked me a bit so don't expect one but I did still have the button to press if I needed to come out xxx Close your eyes and think of a time you were really happy and just let your mind go there it didn't take long xxx
    1 point
  25. Yes, I never thought I was claustrophobic until I had my first MRI (before my SAH). I freaked out. I pressed the button and yelled “Get me out now!” They did. I told the technician that it felt like I was being buried. He sorta smiled and told me to look through to see that it was open at the other end. I felt very embarrassed, but he assured me that it was a common feeling. He was very helpful. He asked me what was my biggest fear. I said ~ that I wouldn’t get enough oxygen. He said, okay we can help with that fear. Then, he brought oxygen tubing and positioned it right near on my
    1 point
  26. Agree with everything Karen says. It is common to feel like this. The first one after my bleed was playing the local radio station so you could hear it during the scan. That was great, but the show was people phoning in to tell funny stories so it was very difficult to stay still and not laugh I find that closing my eyes from the second you lie down until it's all over is good as well. Be kind to yourself. Remember everything you're feeling is absolutely normal.
    1 point
  27. Hey Gam, just glad it was helpful. Try and give yourself that gift of space and silence each day if you can, even if it’s just 10 minutes 15 can help , genuinely your brain will thank you for it. As a society ‘busy’ is worn as a medal but your brain is always busy, doing all this unseen work and yours is healing and trying to adjust to the damage from the bleed. So giving it some ‘quiet’ time is a great way to allow it some time off from all the other processing. Even now as far out as I am in healing if I am in busy situations I have to step away and give my brain ti
    1 point
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