Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 14/02/21 in all areas

  1. I thought I would share this with you all, as it hopefully might be of interest to some folks. Sorry this is slightly, short notice...... The NIHR Brain Injury MedTech Co-operative is one of the eleven MedTech and In Vitro Diagnostic Co-operatives (MICs) funded by the National Institute for Health Research (NIHR) across the UK. https://www.brainmic.nihr.ac.uk The invite is to an online briefing session from the NIHR Brain Injury MedTech Cooperative. The session will focus on the opportunities that this group has for acquired brain injury survivors to get involved in res
    3 points
  2. Hi WLG3 A very warm welcome to BTG, glad you found us. There is a wealth of information here and friendly caring support. So sorry you are experiencing loss of vision. As you say, i would definitely get checked out by your Neurologist for some peace of mind and answers. I don't have a stent , but there are others here that do. Also others on blood thinners. https://web.behindthegray.net/search/?q=stents&quick=1 https://web.behindthegray.net/search/?q=blood thinners&quick=1 Above are a couple of links that may he
    2 points
  3. Seems mad that six years ago when I woke in the morning little did I know how much my life would change within 12 hours. There have been many ups and downs, job changes and friend changes, life is similar but different. I can’t say it’s worse as I now can’t remember what life was like pre-bleed lol! But I do know that life is slower. Will take a run this morning, something I was doing when I had my bleed. May even run past the spot where I first felt that awful headache, confident that it won’t recur today. For all of you behind me in your time line,
    1 point
  4. Hi there. I am not on blood thinners only blood pressure tablets but have a shunt placed. I experienced some sudden eyesight changes which resulted in my requiring a full ophthalmology assessment but my experience was very similar to yours, sudden loss of vision in one eye on a number of occasions. Every time MRI, the neurological checks etc revealed nothing , my shunt and SAH consultant happy nothing related to the SAH or hydrocephalus so I got referred to a neurologist and we established for me it was a migraine now presenting itself differently as a result of the br
    1 point
  5. Howdy from Texas. I experienced a SAH on 3/20/20. I had a pipeline stent placed at the aneurysm site and was released after a couple of weeks in ICU. I’ve had some of the minor issues that are common to us (headaches, tinnitus, seeing shooting stars in my vision, etc.). I was on blood thinners for about 10 months and they tried to get me off them about month 6. About 10 days after getting off the blood thinners I experienced a complete loss of vision in my right eye for several minutes (same side as my SAH). It went totally grey, but I could see out my lef
    1 point
  6. Thank you so much for the links. I will definitely check them out. God Bless.
    1 point
  7. Hi there warm welcome to the site, glad that you have found us..
    1 point
  8. Congratulations Claire on you 6th anniversary, you have achieved so much since your bleed, you should be very proud. You have a wonderful positive attitude and have overcome some challenging times where your working life was concerned, well done also on keeping up with your running, you are an inspiration to us all and will be to the many who come along in the future. I hope you enjoyed your run this morning and the rest of your special day. You are truly amazing. Love Michelle xx
    1 point
  9. Hi Clare Congratulations on your six year anni-versary. You've certainly been and inspiration and incredible support to so many on here. Like Subs said, you've set yourself challenges and have never given up reaching those goals. You're amazing and I hope your day is too xxxx
    1 point
  10. Hello Clare, also a big well done 6 years on. So glad you didn't choose to give up your running. It's been great to follow the different distance challenges you've set over the years. Well done for facing your SAH journey challenges, and changing life and work when you knew change was the right thing to do. Change for you wasn't admitting failure but rather embracing an opportunity to do things differently. Thanks for your helpful and encouraging posts to members ...much appreciated. Keep on running and enjoying life. 😊
    1 point
  11. Clare, Happy 6 year anni-versary! Hope you manage that run this morning and it will probably feel quite cathartic! Enjoy your day Clare, you've done so well! Hears to many more years to come! xx
    1 point
  12. Clare, well done on your 6 years and for coping with the many changes you have made. Congratulations.
    1 point
  13. Congratulations Clare on your 6 year Anniversary ! Enjoy your run this morning and hope you can celebrate how far you have come xx Loving your positive attitude that reflects in all your caring supportive posts to many on here Take care stay safe Love Tina xx
    1 point
  14. I’ve only just seen that Macca has passed. Very sorry to hear that. So very generous of his family to think of BTG. He’ll be missed. 😒
    1 point
  15. I am just reading about dear Macca. My deepest condolences to his wife and family. His words were always so kind and encouraging. His words certainly brought strength to me on my SAH journey. Hugs to all the lives he touched. Kathy (Colorado)
    1 point
×
×
  • Create New...