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  1. Well, haven’t tried the other part of the song yet 😂 am waiting for next consult to ask whether it’s okay to have alcohol (low quantity) again Think my attitude stems from past experience. My mother’s side of the family has the unfortunate hobby of dieing at a relatively young age, so already took into account that it could happen to me too. It makes you live your life differently I suppose. My gran has survived a grand child, her three children and her husband. Though each and every death devastated her thoroughly, she always found the inner strength to go on and live her
    8 points
  2. Hi, I’m a newbie, discovered the forum by chance and it’s been a great help. It’s very useful to hear other people’s experiences as it’s something the specialist can’t tell you. Before I go into my story ... if you spot spelling mistakes, I’m Belgian, so English isn’t my first language and my Ipad has the unfortunate habit of switching Words to Dutch 😂 I had my bleed on feb 18th. I’m single, so was home alone. I’m used to severe migraine attacks, but immediately realised this was something completely different. Immediately sent a chat message to some friends to bring
    7 points
  3. I’m 43 and I’m head of a tiny department (4,5 people and no, I didn’t saw one in half ... she works for another department too). Local government, a coastal town in Belgium. Closest equivalent to my job I’ve ever seen is ‘housing inspector’, that daytime program on the BBC a few years back, so declaring houses uninhabitable due to low quality or because the inhabitants are hoarders or just plain messy. I also do some local taxes, so I have a really positive job! 😂 😂 Stress level is moderate most of the time, high on occasion, but after 16 years I’ve pretty much seen and heard it
    7 points
  4. Hi everyone, just to say thank you all so much for the lovely and helpful replies. It really means so much and has made me feel much better and reassured. I will go through each one again in detail (still takes me a while to retain information!) but just wanted to say how grateful I am to read all your responses and for the lovely welcome. 😊
    6 points
  5. My Subarachnoid haemorrhage happened on 26th Feb, I was at work and all of a sudden had the worst headache imaginable. I managed to get outside where I was met by my husband ( who works at same place) and 2 of the shift managers, all I could do is clench the back of my head and neck, my throat felt like it was closing up and I remember I was crying. My managers told my husband to take me straight to the hospital which is what he did. Owing to covid restrictions he wasn't allowed past a&e car park and was told to go home. I was left alone, in pain and frightened. It took an hour
    6 points
  6. As I’ve started to adjust to the fact recovery will be more of a slow & steady marathon than a quick sprint, I’m offloading non-essential activities and reducing my work commitments. Even the activities required to “slow down” can be tiring, but the more I let go of - the anxiety and headaches are less intense. I’m hoping and praying for a slower pace so I can heal & enjoy my son’s wedding in May. Best to you all.
    6 points
  7. Hi Susan Bless you, its so hard sometimes. Sending hugs your way 🤗 Never feel like you are complaining. I know your husband went through it, but so did you and both are adjusting to the new him. Lock down this past year has been very hard and working from home and being together 24/7, you have noticed these changes in his ways so much more. If you feel you really cant sit down and talk about this with your husband. I would definitely go and see his Dr, maybe go together. Your GP can refer your husband or both of you for counselling. It would be an opportunity to dis
    6 points
  8. Okay, this is a late post to my third year post SAH anniversary. Hurray. It was actually on March 6 and now it is (let me look at a calendar) March 17th (a pinch to all not wearing green). Our youngest two adopted children (we also have four adult children) are on Spring Break from school ~ not so spring weather-wise. We had a BIG snow blizzard a couple days ago. Lots and lots of shoveling. My eleven year old was upset that we didn't get to travel again (usually we travel over school breaks) and so my husband took him to a nearby hotel with a heated pool to celebrate. That worked.
    6 points
  9. I’m a 50+ French guy who suffered a ruptured SAH back in June last year followed by an emergency splenectomy 2 weeks later while still in HDU. They didn’t seem to be related but none had an identified cause. Prior to the SAH, I had suffered some massive headaches and pain at the back of my neck for about 2 weeks but thought it was muscle related (even seen a physio) . Then, one evening I collapsed in front of my wife and grown-up kids (who performed CPR while on the phone with the medics). 9 months on, and I still suffer with cognitive issues (memory problems, lack of c
    5 points
  10. Thanks, Jean. I think my 'old me' is a bit too harsh with my 'new me' at the moment. I'm trying not to compare myself with how I was before the SAH but it's not always easy. Even though it's been nearly 10 months, I suppose it is still early days for me and we all need to adapt ourselves to our new life. I'm learning a lot from this forum and it gives me some strength and hope. Thank you very much 🙂
    5 points
  11. My NASAH happened February 22nd. Thankfully my husband was home, we got good care, and I have no major physical deficits.I was in the hospital for 9 days and I believed that once the blood cleared from the CSF that I would be back to normal. Once I was home for a few days, I was getting very depressed and frustrated about the exhaustion and headaches because I thought I should be better. Thankfully I found this site and have started to form more realistic expectations for what may be a long recovery. Some days I am very sad about what happened and about my lack of energy and about
    5 points
  12. Hi Keyo Welcome to the site and to the family. I can completely identify with what you are saying. I hated not being able to do what I wanted to do, when I wanted to do it. However, I soon realised that what I wanted and what my body and brain needed were two very different things. The adjustment is hard to begin with and I also found it very frustrating. My expectations were completely blown out of the water after my SAH. I know it isn't easy but you have to adjust those expectations and do everything within your limits - such as they are right now. A
    5 points
  13. With many thanks to Super Mario for her very kind donation. x Many thanks to all of those members who continue to donate each month....your kindness is very much appreciated. x
    4 points
  14. Just back from my eye test SMASHED IT!!!!!!!!!! Only one missed spot in the high left area which the optician said was completely irrelevant. Hopefully that means my licence will arrive soon but I'll wait until that day to celebrate properly. Thank you Johnnie and Tina for your calming words
    4 points
  15. Ilse, all I can say is "Well done girl" - believe me, that attitude and humour will be a great asset to your recovery. My husband has always said that it was stubbornness and humour that got me through the tough days. Loving you and your outlook already xx
    4 points
  16. Hi Clare and others - I hope I am responding correctly, so please like if you get this. On 12/9 (2 months ago), after a very stressful phone call from my dad who was ill and wouldn't go to the hospital, I sat back down in my stressful social work internship and got a lightning bolt headache and my blood pressure had gone from normal to very high. I thought it was anxiety, but later that night I went to the ER and they immediately after CT scan said they see blood on my brain. Long story short, I had a Subarachnoid Hemorrhage, numerous angiograms - they never
    4 points
  17. Thanks very much for your reply Tina. I've been lurking around the Forums for a few months and , in the main ,have taken great comfort from the experiences of others. When I surrendered my licence I knew it was the right thing to do but was under the impression that, as long as my consultant agreed, I could drive once DVLA had received my application. To be told to go for another eye test is a shock and very annoying but as you say, I should pass it anyway. I'll certainly be back with updates.
    3 points
  18. Hi Pascal Welcome to BTG, glad you found us and are finding the site useful. We aren't medically trained so can't give medical advice but we can offer support and our experiences. I am 6 years post bleed and still struggle with noise, concentration and ability to pay attention and my memory.... we best not mention that. I wonder if the sensations you are feeling may be attributed to fatigue or stress. I know if I have to concentrate hard for any prolonged period it makes my head feel a bit 'wobbly' If you are worried though try speaking to the unit where you were t
    3 points
  19. Hi Ilse, Another welcome, and so happy you found us...Love your humor, enjoyed reading what you wrote...You seem to already have what took me so much time to find...a positive attitude, That is wonderful. Your chumbawanba reference made me laugh out loud xx Jean
    3 points
  20. Hi Ilse and welcome. So glad that you've found the site helpful and realise that you aren't alone. Can you tell us a bit more about yourself - age, job etc. Don't worry about your English either - it's probably better than a lot of people's that I know whose first language is English!! You seem to have kept your sense of humour too, believe me this is a huge bonus and get me through a lot of tough days. All I can advise at the moment is to take your time going back to work full time (not sure what you do, hence the request to tell us a bit more ab
    3 points
  21. I'm sure you have read that there are no hard, fast rules as everyone's recovery is different. When you feel able you could start to walk, slow and for a short distance, not forgetting you have to get back. Apart from the exercise the fresh air and change of scenery can lift your spirits. I, personally, started taking slow and short walks, . I gradually picked up the speed and distance. For any vigorous exercise I would contact your doctor for their advice.
    3 points
  22. We are always here for you Susan. So pleased BTG kept you sane It has been a Godsend for me and many others too. Glad you are going to try and talk to your husband again and make some calls. Yes, it is more than ok to feel frustrated, sad or lonely. It is very normal to feel this way. You are both going through a huge life changing trauma. I hope no nasty reaction to your vaccines and you both have a lovely vacation. Your happy place ❤️ enjoy, you deserve it Keep in touch Take care Love Tina xx
    3 points
  23. Tina, I cant thank you enough for your response. I will certainly try again to talk with him. And I can talk with his Primary care physician since he is mine too and he knows everything that has gone on. And I need to go talk to my psychologist as well to help me better address what is going on. I just want him happy. Honestly, some times I get angry missing some of what was, but then I feel guilty. Damn, he is alive, he loves me, I love him, we have a home, we are safe and most of the time I like him...lol. And he is the strongest man I know❤️ I reread
    3 points
  24. Welcome to the site. I'm also in the States and cannot imagine what you had to endure due to the COVID. During my time (12 yrs ago), my husband was constantly present except in ambulance and life flight. Doctors kept him constantly apprised of what was happening. These days I pray to not hurt myself or have any other reason to go to Emergency, the stories are so scary. I hate being a bearer of negative news, but recovering from SAH is not like getting over a cold or even a migraine. It takes time for the brain to settle down, heal, and feel better. As you've no doubt discover
    3 points
  25. Hello Daff ~ happy 9th post SAH anniversary. I read your blog. Now, I know why Daff (at least, the poem suggests). WOW. It is something when you don't check in regularly on BTG and then when you do ~ everything you "catch up" reading speaks right to you! A "divine appointment" sort of thing. I have struggled on and off since my SAH and at times don't like the "new me" in the "new normal" BUT your blog hit a chord. I am a type A personality and control freak. Not that I didn't already know it, but I didn't connect how much it is interfering with my post SAH progress. I am a person o
    3 points
  26. Hello Keyo, I'm almost three months in, and while progress has been slower than I'd like it to be, when I think back to where I was in January, I realize that progress is happening. This is a weird condition--extending the broken leg comparison, you know that you can't put weight on a broken leg because it tells you right away with a sharp pain. With NASAH, though, I never know what caused any particular headache that I have since the feedback loop isn't so immediate. Just rest assured that things do improve. In fits and starts and what seem like setbacks, but they will
    3 points
  27. Had the Moderna , no effects after first shot but head ache and body aches after the second dose...lasted through the night into the nest day and around 4pm it started to fade and by eve I was feeling better...I am so happy to have gotten the shots I didn't even mind it.....My husband had same shots and only sore arm, different for everyone I guess..
    2 points
  28. I had my 2nd dose of Pfizer today. Didn't have any problems with the 1st one so don't expect any with this one.
    2 points
  29. Thank you Sami. The licence means my job. Working from home/ sat in an office just isn't me as I've found out over the last few months!
    2 points
  30. Tony Welcome to BGT. I am sorry to hear of your nervousness but you should take great comfort in the fact that you are way ahead of most 'licence losers' that come here for advice. Many/most of us have had our licences revoked rather than taking the (purely personal) decision to hand them in. I would suggest that you focus positively on the test you have to take at Specsavers (we all had to do it!) and tell yourself that it will be a positive outcome. In the 18 odd months it took me to get my licence back I never lost the idea that I would get my licence back at some p
    2 points
  31. Hi Pascal! Welcome! I don’t exaggerate when I say that this group has been a Godsend to me- especially the first year of my brain bleed. I’m coming up 5 years, and someone in this group wrote something that has always stayed with me. Let me share it, and I hope it will be as encouraging to you as it was to me. We tend to compare ourselves to what we were like prior to our bleed. The reality is our brain has gone through a change, and the comparison should really be between what we were like right after our bleed and what we are like now. I’m not like I was before my blee
    2 points
  32. Hi everyone Firstly, I want to thank everyone for sharing their experiences and personal stories. I have many a time taken comfort and hope from reading posts on here but have never felt brave enough to post before. Apologies in advance if my first attempt is too long! I had a SAH caused by a small 2mm ruptured aneurysm in 2013. Thanks to the amazing medical team and surgeon who performed the coiling I survived. It has been a long journey and my life is completely different now but I have adapted as best I can. I have been regularly monitored with scans yearly or b
    2 points
  33. Hi there warm welcome, so sorry we seemed to have missed this post - we are friendly... Take care, stay-safe..
    2 points
  34. Hi and sorry you didn’t get any reply to your first posting. I think you hit the nail on the head when you say He also said if it was urgent they would not have let me out of the room. No doctor likes to take risks with their patients, it not only affects the patient but their reputation too. I am sure if it was that urgent you would have had the surgery already. I work in the NHS and know Covid has delayed a lot but I am also aware that if a procedure is important it goes ahead. Also from what I understand, (though I’m not medically trained) a coilin
    2 points
  35. Welcome to BTG, sorry that no one has replied to you. We do have members who have been recoiled so hopefully someone will pick this up and reply.
    2 points
  36. Hi again, I thought I would try again to see if I could perhaps get one reply. It was my first time posting and took a lot of courage for me to do so. I know that this is a friendly and welcoming place from what I have read in the past and in response to other posters so hope someone will be able to respond in some way. I have received a letter for a telephone appointment next month so hopefully I will know more then as well. Thank you for reading and hopefully replying!
    2 points
  37. Hi Pascal, Welcome ... I am coming up on 4 years from my event. My morning brain and my evening brain are very different now. I have been learning Spanish during the pandemic and it has made me aware of the differences. I make so many more mistakes when I start to get that brain fatigue feeling. ..So I try to do it more in the morning...I keep thinking to myself if I have opportunity to use the Spanish if anyone talks to me at night hahaha...let's say I will be missing a lot I have found the recovery to be slow but I will say each year I feel improveme
    2 points
  38. Welcome Ilse! What a wonderful picture. Thank you for sharing and for being so open about your experience. Perspective really do makes coping a bit easier. I admire your attitude towards it all. I love this...keep it up! 😊 Ann
    2 points
  39. Thank you everyone for replying. I had Astrazeneca and its been 2 weeks now. I had sore arm and little fever because of this I was sleepy for the whole day.
    2 points
  40. I agree with folks that starting with walks is a good thing to do, gradually increasing distance. You might also try some gentle yoga--I was doing an on-line chair yoga class that didn't involve my head going upside down. I'm 3 months in--the first few days I could barely walk a block, but now I can walk or cycle for miles. I'm also now doing more vigorous yoga classes. I'm not yet back to where I was pre-NASAH, but pretty close. But I don't think my case was that severe--for other cases it can all take longer. I think a bit of cardio exercise may be better for your recovery
    2 points
  41. Hi, I started exercising by taking short walks about 4 weeks after my bleed. I progressed onto longer walks and eventually back to running which is what I was doing when I had my SAH. I now run 3 times a weeks, about 4-5 miles each time. My Neurovascular Nurse specialist encouraged exercise but you should check that it is ok for you. You are still early days so take it slowly Clare xx
    2 points
  42. My husband and I get the first Pfizer vaccine tomorrow. Will let you all know how it goes. Both his mom and my parents at 80 had no reaction other than a sore arm! Hoping genetics plays role in response 🤦‍♀️🙏🏻
    2 points
  43. Hi Debbie, Welcome to this terrific site. You will find much of value here to support you as you recover. One thing to remember is that the brain does not care to be bathed in blood; it is irritating to tissues and it really has no where to go. The way it also seem to stress more easily. However< WE ALL ARE Different and your was explained to me is that it creates sort of a bruise. Anyway, the headaches do go on for awhile. I had a ruptured aneurysm and even after 12 years, stress will cause me a headache. I also seem to stress more easily and no dou
    2 points
  44. Hi Keyo, I hear you...I was shaken too, it takes time to take it all in. I had some sad but struggled more with reliving the experience. I did do some mental health therapy, I learned to relax, sounds crazy right haha...but yes I needed to Breathe and also do some visualization, which I now find very relaxing. So Keyo, what I guess I am trying to say is that we all have our own path to find our way back. Our brains follow I think, but time is key. Sending you well wishes as you continue to heal. xx Jean
    2 points
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